Arm use after BMX

tsoebbin
tsoebbin Member Posts: 474

Can I use my arms to get up out of bed or off the couch after a BMX? I have read stories about T-Rex arms and I want to make sure I understand what I should plan for. If I have reconstruction it will be with TE's and slow fills if that makes a difference?

Many Thanks!

Traci

Comments

  • Jacklin
    Jacklin Member Posts: 162
    edited May 2016

    Hi Traci,

    I had a BMX on April 26. My surgeon told me to use my arms asap and as much as possible as well. I noticed a big difference between the arms - the right breast was a mastectomy with no lymph node while the left was mastectomy with ALND. The differences post-surgery have been astounding. I've been able to use my right arm without any issues, I am still struggling to get my left arm raise to the same height as my right. I will get there eventually, but for me the difference was the ALND. Note that i did not have TEs as I am going to have radiation.

    Hope this helps and I can tell you, I had no incisional pain post-BMX, none at all. Keep us posted on how you're doing.

  • ksusan
    ksusan Member Posts: 4,505
    edited May 2016

    I didn't use my arms for 2 weeks. I scootched rather than pushing myself up with my arms. I was told to limit arm use for two weeks so the lymphatic system could heal.

  • dtad
    dtad Member Posts: 2,323
    edited May 2016

    Hi all. This infuriates me! Lymphedema is one of the worst SE of treatment and could affect your QOL forever! How could the docs differ on how to treat it by 100 percent! My BS at a major university hospital in NYC told me there are no precautions to take. He said if you are going to get it you are going to get it! Really? I just don't know who to believe. Im traveling to Italy in the fall and don't know if I should take any precautions. What to do?

  • florida_jo
    florida_jo Member Posts: 15
    edited May 2016

    My BS said "no restrictions" as well. When he told me that and that I can take a shower, it felt good, so I never questioned it. Right arm pit where nodes are removed is numb, painful to touch like a burn sensation. Cannot move this arm up more than 90 degrees. Left arm almost full motion, if it wasn't for the breast incisions pulling a little...JP drains still here too, so that limits my arms movement or bending over somewhat. Tomorrow (day 9) my first BMX post-op visit, maybe the JPs will come out? Keeping my fingers crossed to findings in the pathology report, but I will ask him about the arm movement, lymphatic system healing question. I suspect like most other surgeons, he only cares about the clean removal of the breast tissue and no infection part...just my impression.

    5/26 update -Nodes are negative, yey! JPs are out today, yey! Prophylactic removal of left breast was a good call because it showed pre-cancerous cells. Margins in the right are "close", some skin has to come out, back to OR we go. Might need chemo, hoping for the best, will see MO soon to determine further treatment.

    Regarding the nodes and early arm movement and lymphedema, my BS said to take it slow, watch comfort level. Did not answer my lymphedema risk question. I can't do much anyway, lots of swollen and painful areas below the armpit, like a side boob. BS said it will subside with time. Bending down puts pressure on incisions, so I am mindful of that.

  • LRGO2016
    LRGO2016 Member Posts: 242
    edited May 2016

    Tsoebin, my PBMX was May 4, no lymph node removal. First week I was told no movement if possible. No push or pull. No lift. Think TREX arms. I rented a power lift recliner that could stand me up. It was an absolute necessity for me as it was too painful to use my arms for the first 3-4 days. Then I rapidly gained strength and confidence in what I could do with my arms. By week two, I was told start gentle stretching with a goal to be able to reach arms over my head within two weeks. But, No weight over 5 lbs for next 6 weeks. My ROM is now very good and I can already move at nearly pre surgery ability, with minimal reduction. But I'm tight... will need to continue stretching.

    Note: as my arm movement activity increases, my drain output also increases... they are directly proportional. So 3 weeks PO, I still have drains! I'm planning on taking it easy for the next few days!

    Good luck to you and your upcoming surgery!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited May 2016

    tsoebbin - I was totally freaked out about the "T-Rex" implications after BMX... so I rented a fully-electric hospital bed for a month. What a lifesaver! I have a Tempurpedic mattress (like swimming in Jello) and didn't have a recliner I could sleep in without someone maneuvering the handles for me.

    I had excess pain due to some aggressive recon procedures done at the time, and the stupidity of not taking my pain meds regularly. The hospital bed gave me complete independence in bed, plus the comfort of adaptability. HOWEVER, the majority of women here do just fine with loads of pillows in their regular beds or recliners.

    (For my Exchange surgery, I finally had a nice recliner to sleep in, and I put an extension on the handle so I could use it.)

    As for everything else, it took time to figure out which muscles had been cut (pectorals and anterior serratus) and how that affected things like opening the fridge, or a window. Those were the times when I wished I'd paid more attention to developing my "Core"...

    Here is the thing to remember - all these limitations are TEMPORARY. If you follow your surgeon's guidelines (and you will definitely pay for it if you don't), and you get good nutrition - 100 grams of protein daily if you can handle it - and find ways to accomplish other tasks (daily hair drying and straightening is highly overrated), you will be fine in a few weeks.

    DH said he was amazed at how quickly I was able to regain strength in my arms and become independent again.

    Wishing you the best!

    p.s. Yes - our motto for TEs is "Low and slow is the way to go." Some women can take big and fast fills, but why? Avoid the potential pain and just take what your body is able to handle. It's not a race.

  • tsoebbin
    tsoebbin Member Posts: 474
    edited June 2016

    If opt for delayed reconstruction without TEs.. does that give me a bit more use ofy arms?

  • Jacklin
    Jacklin Member Posts: 162
    edited June 2016

    My surgeon said that I should use my arms immediately after surgery, just no heavy lifting. I have BMX with no recon at this time. Looks like each surgeon has their own post-surgery thoughts for their patients. Can you ask your surgeon what their opinion is?

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