Spring 2016 Rads

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  • Artista928
    Artista928 Member Posts: 2,753
    edited May 2016

    Iammags- I am SO enjoying the cool breeze blowing through my apt right now. Nothing like feeling like crap and being hot on top! Cheers to a week of good temps on tap!

  • iammags
    iammags Member Posts: 216
    edited May 2016

    Will do, LG! I saw that you had a bone density test before starting Tamoxifen. Why do you have to do that? I don't have to so I'm curious. :)

    Happy almost Friday!

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2016

    iammags--planning the wedding? Well that would be mostly the kids and I. :-) And re: the pig roast--it's not really our party. One of my younger brothers and his friends have been doing this annually since they graduated from UVA in 1983 (ish). It floats around the east coast--we hosted in 1996 (right after we moved to Charlottesville), again in 2012, and they asked us last summer if we could host again this year. We said sure (great excuse to work on the house/property). When my son and his young lady called to tell me they'd decided to get married, the second sentence was, "And we've decided to do it when we're home for the pig roast." All of my kids were already planning to come home for it so the timing really makes the most sense. We'll just see where I am having the two events on consecutive days in my back yard. (I keep telling friends to bring me drugs--not sure when I'll need them--before, during, or after, but I'm sure I'll need them. ;-) )

    #3 of 20 today. :-D

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    Mags, my MO set it up and when I went to hospital to have it done yesterday, the lady explained that he wants a baseline and that he will want to check it every 2 years to see how my bones look, I guess to put me on medicine to build up my bones if it looks like I'm having bone loss due to tamoxifen PLUS having ovaries taken out.

    Ingerp, that sounds like LOT of planning and work, but it will keep you busy and keep your mind off of the cancer. I find it helps to stay busy, but between all that and rads, your going to be so tired!!!!

    Hope you all have an awesome day! I did something today that I NEVER do, I called into work! Through all of this, I managed to work everyday besides what I missed for appointments and only took off 3 days for both surgeries. I went into work so many days feeling so bad, so I'm treating myself to a 3 day weekend as my celebration for finishing rads (and because I'm still waking up in the mornings since completing rads with a agitating headache), I rarely have headaches and I figure it's a post rads thing? My husband is so proud of me!!! We get to spend the day together!!!

  • DisneyGirl16
    DisneyGirl16 Member Posts: 121
    edited May 2016

    LG, enjoy your extra day off!!! I plan to do the same thing next week when I finish my rads!

  • Lemint
    Lemint Member Posts: 162
    edited May 2016

    LG enjoy your day off . I finished rads yesterday I also called off yesterday and this Sunday. I've worked thru most of chemo and all of rads I'm so sore and red so I'm giving myself extra time to hopefully heal. I've always had a hard time calling in.

  • iammags
    iammags Member Posts: 216
    edited May 2016

    oops Ingerp, speaking of drugs, I should've asked you who you are planning the wedding for! Duh..sorry ;) The pig roast idea just sounds fun and yummy.

    Good for you LG, have a great weekend!

    And to everyone else, have a great weekend!

    #LastRadiationEVER!!

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2016

    I am loving the extra days off idea. Think I'll take the whole day off on my last day--should be June 15th.

    And the wedding is for my middle. My oldest is going to be best man and my youngest is officiating.

    The pig roast is always a good time, and really I won't do much/anything once it starts. Already planning on having the sniffles the Monday after that weekend.

    Happy weekend everybody!!

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    Mags, ###BESTENDINGTOAWEEKEVER!!!###

  • PlanB58
    PlanB58 Member Posts: 157
    edited May 2016

    Congratulations to all who are finishing this week! Nice work!


    For those that are continuing TGIF! Enjoy your time!


    #10 today!
  • New-girl
    New-girl Member Posts: 358
    edited May 2016

    Today was my 2nd day of zaps of 33.  Nothing major but while in the waiting room the girls and I were all talking and they said most of them didn't like my RO.  One day a week, we all get a quick "physical" from the RO.  Apparently my doctor saw everyone last week cause the other doctor was gone.  Anyway the other women were saying my doctor doesn't do any exam other than a very quick not even close up look.  So today sure enough after waiting 30 min to see the RO she zipped in took a quick look from 2 feet away and said fine and that was it.  If nobody had mentioned it while waiting, I wouldn't have thought anything about it. Can yall tell me how often you see the RO and what is done during that time? 

  • Wenrisa
    Wenrisa Member Posts: 94
    edited May 2016

    New-girl

    I see my RO once a week and he just does a quick look. But I haven't really have any side effects so there isn't much to look at. If I had any issue he probably would have looked closer/longer..

  • iammags
    iammags Member Posts: 216
    edited May 2016

    I was seen once per week and it was very quick. I think that's normal if you're not having anything odd happening.

    LG it is the best Friday! I'm done. I got my little certificate and I'm so happy. My RO asked if I would be interested in sharing my story, which I thought was nice.

    But I think I'm having a little PTSD now. I mean, for months all I've done is think about BC, docs, sx's , rads, now, boom, all that's left is Tamoxifen (or AI's). Of course, this is the best outcome of a cancer dx, right? Still, I feel a bit deflated. Not sure how normal this is?

    :) Happy Friday to all! #RadiateThis

  • Lemint
    Lemint Member Posts: 162
    edited May 2016

    My RO was awesome. I saw him once a week as well. He always looked meet over closely recommended things I could do to relieve my discomfort and gave me tons of samples of things as well. I was so impressed with him from consultation throughout, he never seemed rushed. I even seen him a couple times more than once a week when I was not feeling that good.

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    I love my RO, but it was a quick look from a few feet away and lasted about 60 seconds total, but he was always nice and smiled a lot!

    Mags, I feel the same way. I cried my last day because I thought, "what now?" Onto tamoxifen and hysterectomy coming up on ninth of next month, but it's like your hanging in limbo and I got down and cried on and off last weekend. I guess it IS ptsd? I'm not feeling as bad this weekend. I cleaned out my car, did the laundry, checked for tomato worms, and now hubby is going to take me out for ice cream I'm joining a gym Monday to go every day after work so I don't go home every day, crash in the recliner, and over think things too much. Maybe I will lose some of the weight I gained from eating ice cream every day since my cancer diagnosis!!! Congrats Mags and to everyone finishing up and stay strong to those just starting or in the middle of treatment. I wore a regular bra yesterday!!!!!!! But still couldn't wait to take it off when I got home!!!! Lol!!!

  • Deaconlady
    Deaconlady Member Posts: 158
    edited May 2016

    I see my RO once a week and really like her and her nurse. It's a very quick look and she says if I'm not having problems she'll see me next week.

  • New-girl
    New-girl Member Posts: 358
    edited May 2016

    Thanks so much for all your responses.  I only had two treatments and I am overall very healthy so maybe I will always just get a quick look unless I start to feel bad.  I just never got any info on skin treatments, what to expect, how to prepare nothing.  If I hadn't read the boards, I would have kept wearing deodorant .  Just seems that treatment varies so much from one hospital to the next. Glad at least this time my RO is somewhat in line with all the rest.  Thanks again.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2016

    Let me just throw in that I read somewhere that 80% of women exhibit at least some symptoms of PTSD after a bc diagnosis. I don't really see that as me (although my dreams have not been good lately) but it never occurred to me that it might not hit til after treatment is over.

    Hope everyone is having a wonderful Saturday. We're expecting rain + I did the little bit of gardening I wanted to get done this weekend yesterday afternoon + hubs and I went out last night so I think I may do absolutely nothing the rest of the day.

  • Sunnyone22
    Sunnyone22 Member Posts: 191
    edited May 2016

    I had RO appointments weekly but just a quick look and a chance for her to answer any questions I had. As for finishing rads, I, too, felt a little let down. I hadn't thought of it as PTSD as much as just leaving the comfy cocoon of medical attention I'd gotten used to for the previous months. Rather than looking at my BC as gone, treatment done and time to move forward, I kind of mourned the loss of caring attention I'd gotten used to. This feeling only lasted a day or two and then my great big, lovely, beautiful life took over and I'm back to my (new) normal!

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited May 2016

    Suzted7, I'm a uniboober on here! There does seem to be very few of us, but like you, I had a MX of the left breast and I'm having 25 treatments. I've just completed #10, and so far, no big problems. My skin does look a little pink and I noticed after #9 and #10 that I was a bit more tired, so treated myself to naps! The fatigue didn't hit me though until a couple hours after tx and then I just felt like I needed to shut my eyes for a little while. Every other day they use the sticky bolus on me, and the techs apologize, but I kind of like it. haha I think it's sort of soothing and comforting. I think that's only used on those of us who've had mastectomies.

    I see the RO every Tuesday and it's a quick check, I'm assuming, because I'm not having problems, but he does look me over pretty well. He always asks me how I'm doing and if I have any questions or concerns.

    Congrats to those who have finished or are nearing the end!!

  • Grazy
    Grazy Member Posts: 373
    edited May 2016

    Hello, just chiming in on weekly RO appointments. I am seen first by the RO nurse and examined/have a chat, as I imagine you all are, and I haven't seen the onc yet during these weekly visits as I have had no issues (the nurse asks if I'd like to see her and I decline). I'm barely pink, have no itching, no fatigue, etc., and I'm not using any products on my skin. Apparently I'm a boring patient, which is a good thing. I have four regular treatments left (of 16) and five boosts to go. We're having a long weekend here (Queen) Victoria Day, so I'm enjoying the three-day break from driving to treatment and have been gardening my brains out this weekend. Now if my cat would allow me to sleep past 5 a.m. on a weekend, that would be lovely. ;) Hope everyone is having a good weekend. I'm forcing myself to get my hands out of the dirt today and get my body into the hammock!

    I hope those who've finished their treatments have really celebrated this weekend! So happy for you :)

  • rrgoods
    rrgoods Member Posts: 24
    edited May 2016

    Hi Grazy, Fellow Oncotype DX 21 buddy,

    I have 2 more RADS to go and 5 boosters. Just like you, no fatigue or itchiness. Just a few rashes - they don't bother me. The one thing though is the breast they are treating is hot to the touch. I'm on fire! Hear the boosters can be rough. Hope that does not happen.

  • Grazy
    Grazy Member Posts: 373
    edited May 2016

    Hi rrgoods! Glad to hear you're also having a pretty easy time of it. I haven't had the real 'heat' - keep thinking it'll come?! I even bought one of the cooling cloths and it's still sitting in its package. Some people recommend those or chilled cabbage leaves (I love that idea!). Have you tried those things to cool things down? My breast feels a little warm to the touch immediately after treatment, but then it dissipates. Honestly, if it weren't for the light pink rectangle, I would think I've not actually been getting any radiation. I hope our experiences encourage new people heading into treatment.

    P.S. Interesting that you're another "21er". :)

  • SouthernSkies
    SouthernSkies Member Posts: 17
    edited May 2016

    Hi all! I finished my 33 rad treatments on Wednesday the 18th! It was bitter sweet, as I will miss the ladies I saw daily who made my treatment time so easy. My skin got very red and sensitive but no sores or anything. My nipple has peeled a few times and gives me the most trouble as far as discomfort goes. I had a lot of fatigue the last half and napped ever day after my treatments. I am hoping to resume running in a few weeks. I hopped on the Tamoxifen train 2 days ago. Hopefully, I will be able to tolerate it! Best of luck to all who are still getting their zaps and those about to begin!

  • iammags
    iammags Member Posts: 216
    edited May 2016

    Grazy I can't help but sing the Kinks song Victoria whenever you mention the holiday weekend.."Victoria..toria....) :)

    rrgoods- the boosters felt exactly the same to me. My RO said it's, in my case anyway, even less radiation then the regulars, just more targeted. Sounds like you're doing well. Ice packs (not directly on the skin, of course) helped with the burning.

    SouthernSkies- Good for you! I'm getting on the T train myself in a couple of weeks. I'm anxious to know if I'll experience SE's. Knowing me, it'll only be weight gain. Arrrggghhhh.

    My blisters are healing and I'm not so itchy. I'm glad that I don't have to go back to rads tomorrow. :) I hope that everyone who still does has an easy journey with the end in sight.

    What do you think? Do you think we should start a "done with spring rads and on to the T train/AI's forum?" There is another Tamoxifen (or several) topics started but should we start from the beginning? It might be a nice way to keep in touch.

    Have a great Sunday!

    #NowToGetACuteBra #DoneWithSportsBras #IDidIt! #RadiateThis!

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    Mags, I think a new forum would be awesome!!!!!! It's hard to enter a forum where so many people are already posting, but we can go there to read up or learn stuff!!!! Uhhhh! What a weekend! Ill be glad when I don't feel like I can pass out and go to sleep 24 hours a day with on and off headaches, but when I try to nap, I can't- my brain won't turn off!!!!! Ill be sucking it up and asking for nerve medicine/antidepressant this week since ill probably only get worse with WEEKS off of work for hysterectomy on 9th. Don't meet with surgeon until 7th to see what kind I will have, abdominal or scope. I'm not relishing being cut open and being an invalid for so long. Hugs to all! I start the tamoxifen train this week! Hope all have a awesome week with no bad effects!Feeling crappy all of the time SUCKS!!!!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited May 2016

    I started tamoxifen before rads....could I still join?

  • iammags
    iammags Member Posts: 216
    edited May 2016

    Yes, Jill! All aboard! :)

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    Mags, do you know how to start a new forum- if you start one, I will join! Just let us know or I can try to figure it out?

  • PlanB58
    PlanB58 Member Posts: 157
    edited May 2016

    I think tomorrow I will take my ROs offer of anti nausea meds. Feel fine on weekend. Nausea hits about 20 minutes after treatment and lasts 2 to 3 hours. Two days last week on and off all day. Unusual I guess. My treated breast is pink and swollen. I'm small breasted so actually kind of impressed with it! Too bad the other side doesn't match!

    Not sure if I'm doing the T but if I do I'll ride the train! Enjoy your evening

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