Spring 2016 Rads
Comments
-
Iammags- I am SO enjoying the cool breeze blowing through my apt right now. Nothing like feeling like crap and being hot on top! Cheers to a week of good temps on tap!
-
Will do, LG! I saw that you had a bone density test before starting Tamoxifen. Why do you have to do that? I don't have to so I'm curious.
Happy almost Friday!
-
iammags--planning the wedding? Well that would be mostly the kids and I. :-) And re: the pig roast--it's not really our party. One of my younger brothers and his friends have been doing this annually since they graduated from UVA in 1983 (ish). It floats around the east coast--we hosted in 1996 (right after we moved to Charlottesville), again in 2012, and they asked us last summer if we could host again this year. We said sure (great excuse to work on the house/property). When my son and his young lady called to tell me they'd decided to get married, the second sentence was, "And we've decided to do it when we're home for the pig roast." All of my kids were already planning to come home for it so the timing really makes the most sense. We'll just see where I am having the two events on consecutive days in my back yard. (I keep telling friends to bring me drugs--not sure when I'll need them--before, during, or after, but I'm sure I'll need them. ;-) )
#3 of 20 today. :-D
-
Mags, my MO set it up and when I went to hospital to have it done yesterday, the lady explained that he wants a baseline and that he will want to check it every 2 years to see how my bones look, I guess to put me on medicine to build up my bones if it looks like I'm having bone loss due to tamoxifen PLUS having ovaries taken out.
Ingerp, that sounds like LOT of planning and work, but it will keep you busy and keep your mind off of the cancer. I find it helps to stay busy, but between all that and rads, your going to be so tired!!!!
Hope you all have an awesome day! I did something today that I NEVER do, I called into work! Through all of this, I managed to work everyday besides what I missed for appointments and only took off 3 days for both surgeries. I went into work so many days feeling so bad, so I'm treating myself to a 3 day weekend as my celebration for finishing rads (and because I'm still waking up in the mornings since completing rads with a agitating headache), I rarely have headaches and I figure it's a post rads thing? My husband is so proud of me!!! We get to spend the day together!!!
-
LG, enjoy your extra day off!!! I plan to do the same thing next week when I finish my rads!
-
LG enjoy your day off . I finished rads yesterday I also called off yesterday and this Sunday. I've worked thru most of chemo and all of rads I'm so sore and red so I'm giving myself extra time to hopefully heal. I've always had a hard time calling in.
-
oops Ingerp, speaking of drugs, I should've asked you who you are planning the wedding for! Duh..sorry
The pig roast idea just sounds fun and yummy.
Good for you LG, have a great weekend!
And to everyone else, have a great weekend!
#LastRadiationEVER!!
-
I am loving the extra days off idea. Think I'll take the whole day off on my last day--should be June 15th.
And the wedding is for my middle. My oldest is going to be best man and my youngest is officiating.
The pig roast is always a good time, and really I won't do much/anything once it starts. Already planning on having the sniffles the Monday after that weekend.
Happy weekend everybody!!
-
Mags, ###BESTENDINGTOAWEEKEVER!!!###
-
Congratulations to all who are finishing this week! Nice work!
For those that are continuing TGIF! Enjoy your time!
#10 today!
-
Today was my 2nd day of zaps of 33. Nothing major but while in the waiting room the girls and I were all talking and they said most of them didn't like my RO. One day a week, we all get a quick "physical" from the RO. Apparently my doctor saw everyone last week cause the other doctor was gone. Anyway the other women were saying my doctor doesn't do any exam other than a very quick not even close up look. So today sure enough after waiting 30 min to see the RO she zipped in took a quick look from 2 feet away and said fine and that was it. If nobody had mentioned it while waiting, I wouldn't have thought anything about it. Can yall tell me how often you see the RO and what is done during that time?
-
New-girl
I see my RO once a week and he just does a quick look. But I haven't really have any side effects so there isn't much to look at. If I had any issue he probably would have looked closer/longer..
-
I was seen once per week and it was very quick. I think that's normal if you're not having anything odd happening.
LG it is the best Friday! I'm done. I got my little certificate and I'm so happy. My RO asked if I would be interested in sharing my story, which I thought was nice.
But I think I'm having a little PTSD now. I mean, for months all I've done is think about BC, docs, sx's , rads, now, boom, all that's left is Tamoxifen (or AI's). Of course, this is the best outcome of a cancer dx, right? Still, I feel a bit deflated. Not sure how normal this is?
Happy Friday to all! #RadiateThis
-
My RO was awesome. I saw him once a week as well. He always looked meet over closely recommended things I could do to relieve my discomfort and gave me tons of samples of things as well. I was so impressed with him from consultation throughout, he never seemed rushed. I even seen him a couple times more than once a week when I was not feeling that good.
-
I love my RO, but it was a quick look from a few feet away and lasted about 60 seconds total, but he was always nice and smiled a lot!
Mags, I feel the same way. I cried my last day because I thought, "what now?" Onto tamoxifen and hysterectomy coming up on ninth of next month, but it's like your hanging in limbo and I got down and cried on and off last weekend. I guess it IS ptsd? I'm not feeling as bad this weekend. I cleaned out my car, did the laundry, checked for tomato worms, and now hubby is going to take me out for ice cream I'm joining a gym Monday to go every day after work so I don't go home every day, crash in the recliner, and over think things too much. Maybe I will lose some of the weight I gained from eating ice cream every day since my cancer diagnosis!!! Congrats Mags and to everyone finishing up and stay strong to those just starting or in the middle of treatment. I wore a regular bra yesterday!!!!!!! But still couldn't wait to take it off when I got home!!!! Lol!!!
-
I see my RO once a week and really like her and her nurse. It's a very quick look and she says if I'm not having problems she'll see me next week.
-
Thanks so much for all your responses. I only had two treatments and I am overall very healthy so maybe I will always just get a quick look unless I start to feel bad. I just never got any info on skin treatments, what to expect, how to prepare nothing. If I hadn't read the boards, I would have kept wearing deodorant . Just seems that treatment varies so much from one hospital to the next. Glad at least this time my RO is somewhat in line with all the rest. Thanks again.
-
Let me just throw in that I read somewhere that 80% of women exhibit at least some symptoms of PTSD after a bc diagnosis. I don't really see that as me (although my dreams have not been good lately) but it never occurred to me that it might not hit til after treatment is over.
Hope everyone is having a wonderful Saturday. We're expecting rain + I did the little bit of gardening I wanted to get done this weekend yesterday afternoon + hubs and I went out last night so I think I may do absolutely nothing the rest of the day.
-
I had RO appointments weekly but just a quick look and a chance for her to answer any questions I had. As for finishing rads, I, too, felt a little let down. I hadn't thought of it as PTSD as much as just leaving the comfy cocoon of medical attention I'd gotten used to for the previous months. Rather than looking at my BC as gone, treatment done and time to move forward, I kind of mourned the loss of caring attention I'd gotten used to. This feeling only lasted a day or two and then my great big, lovely, beautiful life took over and I'm back to my (new) normal!
-
Suzted7, I'm a uniboober on here! There does seem to be very few of us, but like you, I had a MX of the left breast and I'm having 25 treatments. I've just completed #10, and so far, no big problems. My skin does look a little pink and I noticed after #9 and #10 that I was a bit more tired, so treated myself to naps! The fatigue didn't hit me though until a couple hours after tx and then I just felt like I needed to shut my eyes for a little while. Every other day they use the sticky bolus on me, and the techs apologize, but I kind of like it. haha I think it's sort of soothing and comforting. I think that's only used on those of us who've had mastectomies.
I see the RO every Tuesday and it's a quick check, I'm assuming, because I'm not having problems, but he does look me over pretty well. He always asks me how I'm doing and if I have any questions or concerns.
Congrats to those who have finished or are nearing the end!!
-
Hello, just chiming in on weekly RO appointments. I am seen first by the RO nurse and examined/have a chat, as I imagine you all are, and I haven't seen the onc yet during these weekly visits as I have had no issues (the nurse asks if I'd like to see her and I decline). I'm barely pink, have no itching, no fatigue, etc., and I'm not using any products on my skin. Apparently I'm a boring patient, which is a good thing. I have four regular treatments left (of 16) and five boosts to go. We're having a long weekend here (Queen) Victoria Day, so I'm enjoying the three-day break from driving to treatment and have been gardening my brains out this weekend. Now if my cat would allow me to sleep past 5 a.m. on a weekend, that would be lovely.
Hope everyone is having a good weekend. I'm forcing myself to get my hands out of the dirt today and get my body into the hammock!
I hope those who've finished their treatments have really celebrated this weekend! So happy for you
-
Hi Grazy, Fellow Oncotype DX 21 buddy,
I have 2 more RADS to go and 5 boosters. Just like you, no fatigue or itchiness. Just a few rashes - they don't bother me. The one thing though is the breast they are treating is hot to the touch. I'm on fire! Hear the boosters can be rough. Hope that does not happen.
-
Hi rrgoods! Glad to hear you're also having a pretty easy time of it. I haven't had the real 'heat' - keep thinking it'll come?! I even bought one of the cooling cloths and it's still sitting in its package. Some people recommend those or chilled cabbage leaves (I love that idea!). Have you tried those things to cool things down? My breast feels a little warm to the touch immediately after treatment, but then it dissipates. Honestly, if it weren't for the light pink rectangle, I would think I've not actually been getting any radiation. I hope our experiences encourage new people heading into treatment.
P.S. Interesting that you're another "21er".
-
Hi all! I finished my 33 rad treatments on Wednesday the 18th! It was bitter sweet, as I will miss the ladies I saw daily who made my treatment time so easy. My skin got very red and sensitive but no sores or anything. My nipple has peeled a few times and gives me the most trouble as far as discomfort goes. I had a lot of fatigue the last half and napped ever day after my treatments. I am hoping to resume running in a few weeks. I hopped on the Tamoxifen train 2 days ago. Hopefully, I will be able to tolerate it! Best of luck to all who are still getting their zaps and those about to begin!
-
Grazy I can't help but sing the Kinks song Victoria whenever you mention the holiday weekend.."Victoria..toria....)
rrgoods- the boosters felt exactly the same to me. My RO said it's, in my case anyway, even less radiation then the regulars, just more targeted. Sounds like you're doing well. Ice packs (not directly on the skin, of course) helped with the burning.
SouthernSkies- Good for you! I'm getting on the T train myself in a couple of weeks. I'm anxious to know if I'll experience SE's. Knowing me, it'll only be weight gain. Arrrggghhhh.
My blisters are healing and I'm not so itchy. I'm glad that I don't have to go back to rads tomorrow.
I hope that everyone who still does has an easy journey with the end in sight.
What do you think? Do you think we should start a "done with spring rads and on to the T train/AI's forum?" There is another Tamoxifen (or several) topics started but should we start from the beginning? It might be a nice way to keep in touch.
Have a great Sunday!
#NowToGetACuteBra #DoneWithSportsBras #IDidIt! #RadiateThis!
-
Mags, I think a new forum would be awesome!!!!!! It's hard to enter a forum where so many people are already posting, but we can go there to read up or learn stuff!!!! Uhhhh! What a weekend! Ill be glad when I don't feel like I can pass out and go to sleep 24 hours a day with on and off headaches, but when I try to nap, I can't- my brain won't turn off!!!!! Ill be sucking it up and asking for nerve medicine/antidepressant this week since ill probably only get worse with WEEKS off of work for hysterectomy on 9th. Don't meet with surgeon until 7th to see what kind I will have, abdominal or scope. I'm not relishing being cut open and being an invalid for so long. Hugs to all! I start the tamoxifen train this week! Hope all have a awesome week with no bad effects!Feeling crappy all of the time SUCKS!!!!
-
I started tamoxifen before rads....could I still join?
-
Yes, Jill! All aboard!
-
Mags, do you know how to start a new forum- if you start one, I will join! Just let us know or I can try to figure it out?
-
I think tomorrow I will take my ROs offer of anti nausea meds. Feel fine on weekend. Nausea hits about 20 minutes after treatment and lasts 2 to 3 hours. Two days last week on and off all day. Unusual I guess. My treated breast is pink and swollen. I'm small breasted so actually kind of impressed with it! Too bad the other side doesn't match!
Not sure if I'm doing the T but if I do I'll ride the train! Enjoy your evening
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team