May 2016 Surgeries

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  • Papillon1
    Papillon1 Member Posts: 308
    edited May 2016

    downdog - that's a shame, I was hoping age would triumph over fitness ;) I am an active mum but far far from having your six pack... Unless it's the six pack of beers in the fridge ;)

    I kept meaning to get in shape before this op but life just kept rolling and it never happened.

    You make recovery sound pretty straightforward though and for that I am super grateful - thanks. I bounce back quickly from 3 c sections so I am hoping to tolerate this surgery as well. I know they are entirely different but I can hope!...

  • Bfuruseth
    Bfuruseth Member Posts: 2
    edited May 2016

    Hi all,

    I am new to this site. I got the dreaded call on May 9th. I am scheduled for BMX on Monday, the 23rd. I just got my MRI results today and it was a good prognosis. I talked to my surgeon and she feels that I would be a great candidate for a lumpectomy. I am confused as to what to do? What are your thoughts?

  • Angtee15
    Angtee15 Member Posts: 209
    edited May 2016

    Greykat! I am so sorry to hear you are back in. Prayers and hugs to you. I am in the ER with bleeding from my right drain site. The ER doc thinks I have a hematoma. The drainage from the right side is all blood, no fluid. Something is awry.

    Wondering how the nerve block is administered. If it's via epidural I guess I had one?

  • dctexas
    dctexas Member Posts: 15
    edited May 2016

    Hi ladies! I've been "stalking" these forums for a couple of weeks, since I was diagnosed w/ Stage 1 ILC in one breast and LCIS in the other. My DMX and direct implant is next Tuesday, the 24th. I want to thank everyone who posts for your willingness to share your stories. I've been more prepared for procedures and doctors appointments and I feel ready to take on surgery and recovery. Y'all are the best.

  • grandma3X
    grandma3X Member Posts: 759
    edited May 2016

    I'm resting comfortably after my surgery at 7:30 this morning. I had a paravertebral block and then they used propofol to put me to sleep. I woke up in recovery at about 1:30. As I was coming out if anesthesia, I felt like this was the most wonderful deep sleep I had ever had.

    Very little pain- more like as ache - along the back of my arm pit. They have me extra strength Tylenol in recover at about 3:00, and just gave me a Tramadol. Pain level is about 1 or less

    The room I'm in is normally reserved for the rich and famous, which I'm not 😄 but it was the only room available. It looks more like a swanky hotel room than a hospital room, and it's huge! I'm a little disappointed that I will be going home tomorrow! Here's a photo

    image

    I'm sorry I have not caught up with everyone's posts today. I'll try to get caught up tomorrow. I did see the question about drains. When I had this surged in Jsnuary, my drains were removed at my first post op apptmt my, so that was 9 days.


  • Midwest
    Midwest Member Posts: 34
    edited May 2016

    Grandma3x, you are the queen of model surgery! So happy for you, it seems that everything went as planned. Oh, jealous of your room !The most I got was a room with a " view"( the only one).

    Raven4me, drain came out the 11th day post surgery. Surgeon wanted less than 30 ml for 2 days, well I counted that day too as it was a Friday. Crossing my fingers for you for tomorrow, that is a very long time to spend with Flotsam.

    Angtee15, sorry to hear about the ER trip. I hope you will be back home soon.

    GreyKat, please stay strong, that is a lot to go through.Big gentle hugs to you!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited May 2016

    Grandma3x, that's what they are giving me, glad you are doing well.

    Oh no Greykat, so sorry things have been so bad for you.Sending hugs

    Angtee, so sorry about the possible hematoma, please keep us posted.

    Welcome dctexas, sorry you have to be here, but we will support you. You are in the right place

    Papillon1, not sure i that's standard practice but it was explained to me by a friend that is an anesthesiologist that for radical modified mastectomies they like to do both anesthesia and some time of blocking agent, due to pain afterwards. They want you to have a head start on pain management

  • GreyKat
    GreyKat Member Posts: 225
    edited May 2016

    hi everyone. Am doing a lot better at reading and writing than when I was sent to the ER after my postop appointment. Wanted to add a few things. I developed a hematoma almost immediately after surgery and it's just slowly healing. I also bled out at that drain site on day 4 and was sent to either the ER or wait three hours til my PS was in office and see him there which I did. Had him paged at 430am so had pretty clear idea I could wait. Also nerve blocks are great if they work. I've had repeated problems with anesthesia in the past so I'm not typical. They were more focused on taking extra precautions so I didn't wake up early as I have before and despite the nerve damage from positioning error and waking up in agony I don't blame them one bit. They were devoted by my side for five hours until the pain was controlled and you know it didn't kill me even if it made me yell. And my bum hand will heal, nerves just take time. And I'm currently trying to untangle a bunch of stuff with the neurological team that amounts to too many drugs doing too many weird things in my body. But I'm better today than yesterday and I'm not giving up because this turned wonky. So chin up and all that. Missed my first fill bc of this . Am already worried about exchange surgery down the line. But walking comes first

  • georgiaredskin
    georgiaredskin Member Posts: 214
    edited May 2016

    Welcome Bfuruseth and dctexas! I'm sorry you all have to be here but this is such a great place for support. Bfuruseth I am not sure but ask your breast surgeon (BS) to explain things more to you.

    Angtee-So sorry you are in the ER! Praying for you and hope they can resolve the problem!

    Hydranne-Congrats on the great report!

    Raven4mi-I had 2 drains taken out on day 7 and they were getting 5-20 ml.

    Grey-Kat-Wow what a bad roller coaster you have been on. Bless your heart! I hope you feel and get better soon!

    Grandma3x-So glad you are recovering so well!

    Hope everyone else is healing well and those with surgery soon have safe and effective surgeries!

  • stellamaris
    stellamaris Member Posts: 384
    edited May 2016

    monica I had right mx with Immediate DIEP on March 26. You should count on 4 weeks at least. Some ladies need more. That being said, 1st 2 weeks are rough, with tight tummy and dealing with the drains. Mine were out in two weeks, but some girls go much longer. I was going hiking 3 weeks post op and back at my desk job 4 weeks post op. I am a fast healer, so this is just a guideline. I am 66 years old. I love my DIEP result. The foob feels like me. I still need a reduction on the left to even me out, but have no issues with arm, shoulder or flexibility. I feel very blessed to have gotten through it with so much support from the ladies on these forums hugs and best wishes to all. Ps, I am still sleeping alone, and still have bandage on my tummy. That took a while to heal. My DH is sleeping on the mattress in the living room. It is just so much easier to have the bed to myself, especially first 3 weeks while still not able to straighten out. Get a big pillow for under your knees when sleeping

  • I_Spy
    I_Spy Member Posts: 507
    edited May 2016

    hello everyone! I can answer some questions. I had a BMX with TE placement last July, and then the Exchange surgery in October. Other than a little redness on my foob that moved my Exchange surgery up, I have had NO PROBLEMS. It is important to remember that most of use who have NO PROBLEMS just go on with our lives and unfortunately don't spend a lot of time on here; so it is skewed a bit in terms of the seeing lots of problems (the people who are here are seeking help and solace too, and so it can seem like everyone runs into difficulty). That's why I put it all in caps! It can indeed all work out in the end.

    DRAINS: Don't compare yourself. The drains are wicking away fluid that is pooling in the area where your breast tissue was; more breast tissue removed equals more liquid pooling (the body doesn't like empty spaces and sends fluid there). If they take the drains out too early, the fluid will pool and you can get an infection or other nasty thing. The drains are truly the worst part of it because they are uncomfortable and disgusting. But they are keeping you from having an infection. As a note, I was a freak about preventing infection: my advice is do not touch your drains unless you have surgical gloves on. So when you empty them etc etc have gloves on. And don't let nurses touch your drains without gloves on (at least one will try haha). Those drains lead straight to your insides, and germs can just crawl up them. You can get a box of gloves from Amazon for cheap.

    NERVE BLOCK (PARAVETEBRAL): I had this twice, once for BMX and once for exchange. Let's be clear: this is IN ADDITION to General Anesthesia (you are completely asleep and the anesthesiologist is making sure you breathe and then wakes you up when the surgery is done) and pain killers like morphine after the surgery. If you are having a lumpectomy this will be different (not as major a surgery, same day, and sometimes done without general anesthesia; I had one of those and it really was not a big deal). But for a BMX, it is general anesthesia (or it should be; you want an anesthesiologist in the room watching you, and that is what is required with general anesthesia). They will give you some calming medicine (versed) before they give you the injections for the Nerve Block. It was a wee bit scary for me, but hey none of this is a thrill ride is it? Studies show that women have much less pain upon waking with the nerve block; also, that they have less of a chance of cancer recurrence -- how about that one? I figure the body isn't worried about pain and so can kill off some errant cancer cells.

    Do all of your research (and ask me questions I go on here in the evenings for the last few nights), and then remember my mantra: "It could also all turn out okay." We get so involved in eventualities and possible problems that we forget that it can turn out okay.

    For those of you fighting infections and other painful nasty things, I'm so sorry and just hang in there. I've had other medical problems (that frankly make my BMX seem like a cake walk at this point, although it was not I'm just wrapped up in my problems now). This was a tough road; it was a rough surgery and a rough recovery. But if you plan for your hospital stay and set your house up everything can turn out okay (and I live alone!)


  • Papillon1
    Papillon1 Member Posts: 308
    edited May 2016

    Thanks ispy. Im so glad you mentioned calming medicines. I have a fear of the anaesthetic and so hope I can have some chill out medicine beforehand! I am not scared of pain or anything afterwards, just the being knocked out... I think j am a control freak and hate the idea of not being in control?!

  • MoreShoes
    MoreShoes Member Posts: 322
    edited May 2016

    Grandma3x that's one fantastic room, love the chair. And you make the operation and everything sound so easy.

  • MoreShoes
    MoreShoes Member Posts: 322
    edited May 2016

    Hydranne, I'm so happy for you. After 16 months you really needed a break. The rads are not going to be easy, but compared to the rest, a walk in the park.

  • MoreShoes
    MoreShoes Member Posts: 322
    edited May 2016

    Valstim, when did you finish with chemo?

    Yesterday I went to the big hospital to discuss about the operation and they freaked me out. Today I talked with my surgeon (in my city) and I trust him. He knows me, I know him and I know he's going to do his absolutely best for me. Although he didn't give me any guarantee for the scars.

  • MoreShoes
    MoreShoes Member Posts: 322
    edited May 2016

    Angtee, how are you doing? Are you still at the hospital?

    GreyKat, *hugs*. This too shall pass.

  • grandma3X
    grandma3X Member Posts: 759
    edited May 2016

    Hydranne - that's great news!

    Ipsy- thank you so much for posting! This is my second mastectomy and I had a pretty clear about was involved but wasn't sure if my first surgery in January was just a fluke (I felt great after surgery and had minimal pain during recovery). I know from the first one though that reading about other women's experience really helped reduce the anxiety.

    GreyKat - I feel so sorry that you have had such a rough time! Im glad that things are looking up for you.

    I slept well last night except for the nearly constant stream of nurses into the room, lol - at least it seemed that way! My poor DH slept in the recliner and I'm afraid he did not get much sleep. For my last surgery he went to a hotel room. There was a Orioles game last night, though and any hotel room that was not already booked cost about $400 for the night!

    For those of you who have not had surgery yet, I posted about my first surgical experience in January in the "No pain, no nausea" topic. If you search my name (grandma3x) under the "surgery-before, during and after" thread you will find it.

    Sending good surgery mojo to Scared and Knardo!

  • Lorice
    Lorice Member Posts: 13
    edited May 2016

    Hello all,

    My mastectomy is less than a week away. I am really concerned about the drains, how long they may be in and the possibility of infection. I had my lumpectomy three weeks ago today and still have some serious swelling. I saw my surgeon yesterday and she drew 60ccs from my lumpectomy site and since the skin at the site was red and warm put me on antibiotics. Surprisingly, having a large needle stuck in my breast didn't hurt at all but it did make my husband squirm! Hopefully, having a drain will help with healing rather than relying on my body to reabsorb the collected fluid. That, apparently, wasn'tworking so well!

  • grandma3X
    grandma3X Member Posts: 759
    edited May 2016

    Papillon and Valstim - they gave me a dose of versed before doing the paravertebral block and it did help to calm my nerves. Then they did a series of injections down my back, about an inch to the side of my spine. It didn't really hurt, just felt a little strange. The block lasts for about about 24 hours, but it's been over 24 hours now for me and still feeling little pain. The propofol is not for pain, it just knocks you out for the operation. It's good stuff and doesn't induce nausea the way some anesthetics do. I asked for an "opioid-sparing" regimen, so they gave 1000 mg of Tylenol, some gabapentin, and Celebrex just before starting surgery. This way they could avoid giving me morphine during surgery. Oh, and I forgot to mention, SpecialK posted earlier that they monitor pain levels during surgery, so if the block fails, they will give you more meds during surgery.

    There is also a difference in the types of blocks. I had an epidural block when I had a C-section years ago and while it did block pain during the surgery, it wore off pretty fast. I could feel a lot of pain but was not able to move my legs yet, which made me feel really panicky. The Paravertebral block that I had for my mastectomies blocked nerves to my chest, so there was no pain but I could still move. It also lasted longer. When I was researching it before my last surgery, I PM'd someone one the boards here and she said they gave her a second dose before going home, so she didn't have any pain for about 2 days.

    My plantar fasciitis is gone again as it was during my first surgery. I'm pretty sure it's due to the compression sleeves they put on my calves to promote blood flow.


  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2016

    Welcome Bfuruseth and dctexas! I know you will learn a lot from all these wonderful ladies. I know I was lost before I found BCO!

    Wow GreyKat! Gentle hugs and healing vibes coming your way!

    I hope I don't need a nerve block! They did one back in1982 for my tubal after my daughter was born. It DID NOT work! When they cut my abdomen the whole hospital heard me screamimg! Never again! I'm glad they had the anesthesiologist in the OR and was able to put me under in a flash. The last thing I remember hearing is someone yelling "PUT HER UNDER! NOW!!!" I told them they should have listened to me when I said it wouldn't work "woman's intuition" I guess?

    I want to get a room like yours Grandma3x! The last room I had at Bloomington IN hopital wasn't to shabby. It had a big picture window and faced the woods. I felt bad for anyone blocking my veiw the first few days. The room I had in San Antonio TX faced the zoo, I'm glad I got to stay a few extra days! LOL

    No surgeries today but best wishes and healing thoughts going out to all!

  • raven4mi
    raven4mi Member Posts: 562
    edited May 2016

    Thanks to everyone who responded on my informal poll on the drains. It seems like most of you had very low output by the time they were removed, but I've seen others who are at 20-30 CCs when the drains are removed which is the part that's frustrating for me because that's where I am and I'll be disappointed if the PS still says no. Ispy, thanks especially for your input. I also have had no problems post-op with the exception of the annoying, never-ending drain saga. It's annoying me so much that I seriously considered lying about my output at my appointment this afternoon just to get it out, but then you popped up with your sensible voice of reason (darn you! jk) and then I ran into a friend this morning who pointed out that the nipple necrosis is so rare and yet I had that, so why take a chance on something else? Couldn't really argue with either one of you, so I'm being a good girl and writing down my actual output. *sigh*

    GreyKat, so sorry you're back in the hospital and that you've had SUCH a rough time. Please know I'm thinking about you and I sure hope that things start to normalize for you very soon.

    Papillon1, you mentioned bouncing back quickly from three C-sections. If you can do that then, barring any complication, post-mastectomy should be a piece of cake. I hated the aftermath of my C-section so much and was so miserable that I fought – and got – to have VBAC for my second. For me, the recovery from mastectomy was WAY, WAY easier than C-section! No comparison at all.

    Bfuruseth and dctexas, sorry to see you both here, but you've come to the right place for support.

    Angtee15, so sorry about the hematoma! Post an update when you can and let us know how things are going.

    Grandma3x, that's some swanky room! I ended up in some junky old part of my hospital after I was told that I'd likely be either in the new multi-million dollar women's center or the birthing center, so I was pretty disappointed.

    Hydranne, so happy for all your good results!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited May 2016

    Moreshoes, I finished chemo 4/18. Had dose dense AC and dose dense Taxol. After surgery, then on to 33 rads . I'm freaked out after meeting with the anesthesiologist.

    Hydranne that is the best news ever, I'm hoping for a similar outcome. My tumors are no longer palpable, and my swollen lymph node you can't feel it anymore.

    Sending good thoughts to everyone. I have some anxiety now about my surgery Tuesday. thanks so much Ispy for helping me with some of that anxiety.

  • Mom4four
    Mom4four Member Posts: 117
    edited May 2016

    Hello,

    I had a BMX on May 2nd. I am new to posting on line. I am doing well but feel so alone, I am glad I found this thread. Now I need to read all of it

  • Angtee15
    Angtee15 Member Posts: 209
    edited May 2016

    "It could also turn out all OK." Thanks Ispy! Definitely needed to hear that. It's a challenge to see the glass half full these days.

    I think my drain drama will be resolved soon. Last night I was in a suburban Chicago ER. They just bandaged me up essentially and sent on my way since the bleeding stopped and didn't want to do anything my doctors weren't aware of. I'm waiting now at my PS office in the city to see what they think happened. The offending drain may just come out.


  • raven4mi
    raven4mi Member Posts: 562
    edited May 2016

    Welcome Mom4four. No need to feel alone anymore - we're here for you! You'll get lots of good advice and support from this thread.

  • GreyKat
    GreyKat Member Posts: 225
    edited May 2016

    Hey everyone. Discharged today. Not fine, but too stubborn for them to keep me there. Could walk alone today so they agreed. Still dizzy, and they have no idea how long it will continue. The main reason I was sent from my post-op appointment to the ER was they feared I had had a stroke related to the mastectomy surgery - just one of those blood clot floating around getting stuck things. But scans were clear. They've taken me off all meds so I'm a hurting puppy but I'm still dizzy. As long as I'm dizzy, I can't drive, even after Mast restrictions are lifted. I'm having a little pity party crying about how I'm too damn young to lose my health and independence. At the end of the day they have no idea what was wrong. Physical therapy finally cleared me on walking and I told them three days of lying there being on super-restricted fall-risk movement was depressing me and I wanted to leave, and once I could walk again they let me. Just going to be a mystery.

    In other news, the drain that got pulled by the BS went from 30ml to 9 to nothing in one day, and just dried up, all within a week from surgery. And boy, were the PS's hospital team crabby about the BS pulling it instead of them. Ruffled some feathers. Got me a lecture about who's supposed to be in charge about that. The BS pulled it because she knew I was going straight to the ER for neurology, but you'd think there was some nefarious power-play going on from the way the PS residents were huffy. Other drain has been sitting at 4 or 5ml for a couple days now but the PS crew was so petty they refused to pull it. My actual PS is on vacation for the week and then some, so I'm stuck with a basically empty drain for another 10 days, more or less. Not happy. Hoping I can get ahold of a friendly nurse in his office and have it pulled sooner. As they say, the longer it stays in unnecessarily, the greater the infection risk.

    Hope everyone else is doing well. If anyone wants a seat at the pity party table, we'll be open for the next hour or so. Sometimes this is just too much. A grandparent is actively dying (sudden stroke) and the cat has an ear infection and needs to go to the vet and I can't manage to dress myself, you know? And God only knows how long or how permanent the vertigo will be. So I'm scheduled for a good solid cry. Anyone is welcome to join me.

  • tsoebbin
    tsoebbin Member Posts: 474
    edited May 2016

    Welcome Mom4four! I'm sorry you feel alone but this group will make you feel more connected.

    I have a BMX in my near future. We all learn from each other. How is your recovery coming along?

  • tsoebbin
    tsoebbin Member Posts: 474
    edited May 2016

    GreyKat - I'm you're discharged again. Hope this time you're on the road to recovery!

    You sure deserve a pity party. Let it out and I hope you feel cleansed afterwards.

  • grandma3X
    grandma3X Member Posts: 759
    edited May 2016

    GreyKat - have you been seen by a good neurologist or ear, nose, throat Doctor? If you have, please go find another one for a second opinion. It could be an inner ear problem. There are crystals in your ear that may have become unbalanced, causing the dizziness, or it may be neurological. Sending hugs and wishes for a solution soon!

    Edited to add the following: it's called benign paroxysmal positional vertigo, and can be caused by surgery when the patient has been lying in a supine position for a long period of time:

    http://www.dizziness-and-balance.com/disorders/bpp...



  • Moderators
    Moderators Member Posts: 25,912
    edited May 2016

    Agree, welcome Mom4four. As you can see, you are not alone! Glad you found us!

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