Having a scan? Waiting on results? The waiting room is open!
Comments
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Dear Golden...such good news for your Mom!!! Hoping DH's biopsy was clear...praying, fingers crossed!!!!
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Having my CT scan and bone scan tomorrow. Praying for stable for all of us. Hugs xx
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I haven't checked into this thread for quite a while... but wanted to say hello and good thoughts and prayers for everyone having scans. Hugs to you tomorrow Aoibheann.... XO
Andrea
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Just to say that my scans came back and onc said all is more or less stable. I'll look at the report next month when I go in for my faslodex shots. It is so stressful isn't it? Always waiting for the other shoe to fall... Best wishes to everyone especially those waiting on results. xx
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Hi Ronnie - His biopsy was negative! Whew! But back in limbo with my mom again as the Faslodex has been causing severe SEs and her counts to drop considerably again. Will see onc on Monday to figure out the best way to proceed.
Aoibheann - More or less stable is still great news! xx
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Yes Caryn, great news! now go enjoy that grand baby some more! Scanxiety is the worst! Not very many people without cancer get it either. It's a very lonely disease.....Best wishes to all getting scans soon!
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Hi everyone. I haven't posted in a while, because my family situation blew up, in a big way. Currently my mom is in hospice, after her stroke. My dad, brother, and I go visit her daily, though she can't speak or swallow. It's horrible to watch, but it's what she wanted. She insisted on the feeding tube. She really wants to keep going. I don't understand it, but it is her will.
I had a new PET scan yesterday and I will get the results on Friday. I really feel like my cancer is back, and I can't shake the feeling. Just needed to share that, because my cancer is not a priority for my folks right now; they all have their own shit to deal with.
Thanks, and pardon my French.
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NineTwelve - I'm sorry that you have so much on your plate right now. Remember to take time for your own health and well-being too. I hope you are wrong about progression and that is the scanziety talking, but whatever happens we will be here to listen. Keeping you and your family in my thoughts. Let us know the results of your scans when you can.
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Nine, Your situation is just too much for one person. Shutter is right on, you have to take care of yourself right now. Whatever other time you get with your Mom is a blessing, but you should be your own priority. I hope you are wrong about the scans too........
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Nine....I didn't post when I read your message & I will look to see if you updated elsewhere...but still hoping, praying your scans were good.
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Busy Scan Day all day. PET followed by 3 MRI. And having all that fun all by myself. BC can be a very lonely thing. Hopefully I'll have good news to report back. Fingers crossed.
Stefanie
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Stefajoy - Fingers crossed for you. You are not alone. Can you tell me what MRI's you are having done. One doctor suggested an MRI, but it never happened and I never understood when the MRI would be used.
>Z<
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:-( is soo hard to be positive...I wish I have never left my little hometown to fulfill "dreams"...now what, hanging by a thread, having 1st scan tomorrow after so many unfortunate events with my care. ....I would give everything to be at my mom's sorrounded by family and friends. Now
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gramen, I am sorry you are having such a hard time. What can I say? Cancer sucks! I will be thinking about you tomorrow as you are having your scan. Do you know when you will get the results? Any chance that you can call your mom or a friend? Sometimes just hearing that voice can help. In the meantime, we are all here to support you. You are in my thoughts and prayers.
Lynn
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Z- all scans stable today. Yay! the reason for the MRI is that a year ago I had mets appear in my c7. After PET lit up, it was measured via MRI. It continued to progress to the point of it being dangerously close to my spinal cord, so I did Cyberknife. Fast forward 8 months later, this is my standard PET plus the follow up MRI, which shows the met in the spine has mostly healed, and the met in my sacrum shows no change (stable) and no new activity or mets anywhere else. Not NED, but still oligo, with lazy cancer cells...ill take it.
Gramen, sorry you are feeling so alone. I hope good scan results bring you some comfort.
Stefanie
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Stephanie, I so agree BC can be such a lonely thing. I am so grateful for my virtual "friends" here. Just a little compassion and understanding can be a total lifesaver. I am so glad you had good news today! Whoop Whoop! Nothing like the release of stress at these times. Unfortunately, my scans came back with slight progression. Slight growth and uptake in existing tumors. Time to switch meds (damnit). I liked this one, it was easy and was hoping so much for a long run. But I know it could be way worse so onward we go!
gramen, I am feeling for you so much being in a funk. I too left my hometown years ago. Now all my siblings live down there while I live in the mountains and I miss so much family stuff. I have been here 30 years and am now contemplating selling our house and moving. But I feel much trepidation in leaving all of our friends here too. It's so hard! Lynn is right, hopefully you can pick up the phone and call someone for support. In the meantime, we are all here. Take care and good scan results!
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thank you virtual friends!
scan is done. now waiting for the call, hopefully good news, i hope.
these are my mom's flowers, can't wait to visit sometime soon
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Gramen, I am glad the scans are over, but I know that waiting for results can be torture. How far away from you does your mom live? How long have you lived where you are now? I am keeping my fingers crossed for you and sending good vibes your way. I hope you hear good news soon.
Lynne
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Lynne, mom/family are in Puerto Rico, not a bad trip from Atlanta (4 hr flight then 2 hr drive), I'm just on negative #s on work leave, and weekly treatments also make it a little more tricky, but determined to make a visit soon! I left for college here in the US in 1998, wow almost 20 years, and still nostalgic :-)
Positive thoughts positive thoughts ..hummmmm
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gramen, That is a long time to be here. It doesn't matter how long we are away, there is nothing like our original home and our family. I do hope you are able to visit fairly soon although it does sound like a long trip. I am sure you are constantly in your family's hearts and minds. Does you mom have a computer? Can you Skype or call her? I am sure she would love to hear from you.
Big (((hug)))!
Lynne
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You are right, i should reach out, I'm always trying to not to worry them, but that's what family is for, support. Thank you Lynne!!!
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Stefanie - Yay!!!!
Gramen - thinking of you. and your family.
>Z<
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Without thinking, I scheduled a bone scan for Friday, July 1. How dumb can I get?
Bet no one gets around to reading it for at least a week! :-(
Tina
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Sigh. Got the call with results. Not sure what to call them, I guess mixed results? Lymph nodes "are gone", largest liver tumor decreased in size from 4.5 cm to 3 cm, BUT, the other 2 spots (I thought it was one) 1 cm each are brighter. Dr wants to keep me on navelbine/perjeta/herceptin for 2 more cycles, then rescan.
Thanks for your support here, cancer really really sucks.
Tina, 1.5 days were torture for my first "stage iv" scan. I'm not sure if it gets better with time. I hope you don't have to wait long.
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Gramen, thank you. I'm an old pro at this scan business. Five years out with Stage IV and I can assure you that awaiting scan results does not get any easier. Sigh.
"Brighter" may not mean much on your latest scan. Seems like your onc is watching your status carefully. That's what we count on.
Wishing you well
Tina
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Gramen - I would call that a good scan. Possibly a great scan. The fact that the two smaller lesions in your tumor were stable is important.
All my scans are like yours ... everything we were looking for is better except ... we saw some small new thing in your lung, you may have a secondary primary tumor in your thyroid, your sternum lit up and it may be a bone met. The scans are highly sensitive but not super accurate. They always find something. It takes judgement, time and other supporting data to say whether it is important. Sound like your onc is managing this well.
I try to focus on the main story and in your case the main story is awesome. Congratulations.
>Z<
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Thank you and you are so right Z! After processing for a few hours, I think the best part is finding my new oncologist. 1st one misdiagnosed me as "stage ii" and downplayed liver lesion from the beginning. Second one gave me an couple years expiration date.
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We have no expiration date. Pretty much only thing that will cause me to fire an onc is if they give me an expiration date. All perspectives are useful in this complex space except for that one.
>Z<
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Gulping barium pre-CT and telling myself "It's a vanilla milkshake...It's a vanilla milkshake...yum!"
Tina
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Awww Tina, I'm feeling for you right now. Hope they can speed up results before the 4th.... Z, I'm with you, don't dare try and predict my future demise! gramen, on my recent scan, the radiologist said "2 new spots" on liver. My Onc says she thinks they are the same ones??? Makes me crazy not knowing exactly whats going on but as Z says it is not super accurate. Just focus on the big picture I guess. My Onc called it slight progression so I'll take that and move along I guess.
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