PBMX - April 20... help me prepare!
Comments
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I'm going to ask for slow fills. Let's take 3 months folks!!! I'm not trying to win a race! And since my back has been spasming since the initial surgery, I really don't want to leave every fill with a back cramp! No fun!
I've gotten the go ahead to start ROM exercises. With the comment they want me to be able to raise my arms out straight to my sides and up to the 11 o'clock position by next week! That sounds insane! Everything I've read indicates I should take it slower. Does anyone know if ROM restrictions are not placed on women undergoing prophylactic BMX?
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LRGO-
Oh wow exercises already? How many and how often? Did she fill you at all this time?
I'm nervous about my appointment tomorrow morning. The pain under my arm is constant and nothing helps it. I hope the incisions look ok.
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I did not have any nodes removed so I guess that is the difference for my schedule. I no longer have much pain, only an occasional stabbing when I move wrong. Not bad or long lasting.
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If it doesn't bother you, I don't think it is an issue Georgia. Your body is your guide. I think it sends us good signals. I wish we had a recliner. We talked about renting one. My parents were moving house and were going to give us one of there old ones. But an old recliner seemed like an even worse idea! My daughter also had foreign house guests for over 3 weeks. Plans made long before my surgery was scheduled. So, sleeping in the living room would have been weird!
We seriously had Germany, Netherlands and Sweden here. Gosh, I have forgotten so much of this. It's like survival instincts!!
Truthfully, though--I would ask your doctor what they recommend is best. Although I have a hunch they will say do what's most comfortable for you! But, it never hurts to ask.
Specific no nos I remember were no hot tub or public pools. And, I guess no beach for a while.
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http://www.breastcancerrehabilitation.com/watchthe...
another great video. I love this one!!! She is amazing!! I like this one even better than the MMSK!! Sorry I didn't post it sooner. She did lose some ROM and she is a fitness instructor!!! I do this one now. Not as often as she says to do it because, well, life. I put reminders in my phone to do it.
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Does anyone know if ROM restrictions are not placed on women undergoing prophylactic BMX?
I am sorry, Idk. My PS was a dope about this. And my BS said to follow my PS instructions. Maybe consult a PT. I adore mine!! We have new sucky insurance and I have to quit, I think. But I am going to start personal training with someone my physiatrist suggested. So I am pretty fired up about that. My abs and thighs could use some attention as well as the rest of my body!! I am a little tired of thinking about my boobs!
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thanks for all these posts, katykids.
I'll watch the video. I will also ask about PT recommendation once I'm cleared to work out again. I want to resume weight lifting and general body conditioning as soon as possible. I Devin it ely want recommendations on do and don'ts. I managed to lose 30 lbs in the past year by working out and attending to my diet. I want the trend to continue!
I think I have figured out that all the stabbing post surgical pain I have been in is associated with my drains. After they removed two of them, so much of my localized pain has diminished. Now I only have pain on my left side, right at the spot where the firm part of the tubing rests on a rib. Did you have any issues like this with drains?
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I totally agree with SpecialK. I need Motrin about an hour or so after my fills. My PS had me come every other week for fills and did small amounts. I still needed the Motrin. After the last fill she told me to wait a month. She wants to see how things settle and go from there. I'm fine with that but like everything else it's very individual so just make sure you talk to your dr about you worries and goals. My skin is still sensitive (7 weeks out) but getting better. I also use scar gel and think it helps. Glad it's behind you and you are doing so well!
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Katykids, Great stretching videos! Thank you for the link! I'll start them today! She Is so comforting to listen to. Explaining every sensation to expect and how to address it. Excellent!
I'm mystified that my Dr's have not directed me to any if these types of sites or even some documents outlining specific post surgery stretching of their own design. It is as if they don't acknowledge post surgical trauma or the adverse impact of mastectomy on ROM.
Maybe they are dismissing my case since I did not lose lymph nodes, but I am certain the reality of breast removal and insertion & inflation of TE's will require that I stretch daily. I wish they would give me more guidance on the specific stretches that will provide the best outcome in my recovery. Maybe they simply don't know...
I might need to ask for post surgery PT if I am unable to regain my desired ROM. this site should help for sure!
Thanks, thanks, thanks !
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Thanks for the great feedback katykids and Merit! And always LRGO ❤️
That makes a lot of sense about having less pain after the drains were removed. So glad you feel better, LRGO!
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Did you have any issues like this with drains?
I am sorry. Other life got in the way. My youngest has autism and had an MRI last week for some seizures and headaches he has been having. And he had another seizure. Boo. But he bounces back!! yay!!
I really had no issues with the drains. They were annoyingly in the way. And aside from me getting it caught in a zipper...my shower belt kept them pretty manageable. You would be amazed by how far they go inside. How did I see them pulling them out of someone else?! A video? They are way in there!!
I met my new personal trainer today. I loved him. So different from my old one but really cool. We were on this Functional Training Wall. We even did some TRX. I was throwing medicine balls at a rebounder. First go hit me in the gut. But he changed my stance and I was able to do it. I really want to do those battle ropes but he said not yet. They look so bad ass.
Glad two drains are out. I hope I read ahead and they are all gone!!!
eta. whoops. I did have a little pain at the entry point of the drain. I had a prescription for bactriban. if I am spelling that right. it was sensitive.
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Maybe they are dismissing my case since I did not lose lymph nodes, but I am certain the reality of breast removal and insertion & inflation of TE's will require that I stretch daily. I wish they would give me more guidance on the specific stretches that will provide the best outcome in my recovery. Maybe they simply don't know...
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My BS and PS both don't know how I got frozen shoulders. I have broken up completely with the PS. The BS and I will have a natural break up when I move. My mom and I share her and she won't go back. My mom is 78. And is dealing with lung cancer again. I have made it a bit of a personal mission to share my story so women know what can happen. I knew I would be out of the gym for 4-5 months but I didn't know I would be in PT for, well now, 6 months. And I am still not back to my previous self. But I have a taken a journey I never expected and learned things about myself I never knew before. I thought I was strong because I had a child with autism and my mom has had cancer multiple times since I was 8. I am strong because of me!
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I LOVE that statement! "I'm strong because of me!" That is so true of you and every one of us as we each battle our personal wars... whatever they are.
Hang in there and never doubt that you are indeed STRONG and your strength is from within!
Hugs and applause, my friend!
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PS Katykids, the ropes ARE awesome. I love the fatigued state my arms reach when I use them!
TRX is also a favorite. Try doing TRX moves SLOWLY.... the burn you get is fabulous.
Boy do I miss the gym!
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Thanks everyone for your good energy and well wishes and prayers.
My biopsy results are clear!. NO CANCER! Celebrating in my house tonight!
LRGO
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LRGO!! Marvelous news!!! wooohoooo!!!! celebrate!!!
and thank you!! xo
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LRGO woo hoo!!!! Awesome news!!!!
How far out are you from surgery, katykids?
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Celebrating with you LRGO!! This is wonderful news, congratulations.
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Thank you Jacklin! My surgeon indicated there were atypical cells present but none had turned cancerous yet. This means I made the right decision, just in time! As my BRCA+ status indicated, my breasts were ticking bombs, waiting to explode. We diffused the bombs successfully!
My first fill today was only 40 mls each. I started with 100 mls at the time of surgery. So as of today, I have 140 mls in each. No pain with the process! I'm still a bit sore/bruised from the surgery so the pressure of the needle and fill made me more aware of my post surgery tenderness, nothing more. The feeling of pressure on my chest, which had subsided, is back. No doubt because the pec muscle is under extra tension again. It doesn't hurt but does feel constricting.
It was quite interesting to watch the breast mound lift a bit. I am capturing each phase of my journey in photographs so my hubby took pictures of the procedure! Syringe, tube, needle, breast, inflation underway! Very cool clinical photo. New foobs, here we come!
I'm really elated to learn I had no cancerous cells in the biopsies. Tonight will be the first night I can sleep easy since learning of my BRCA status.
It has been months! I feel like shouting out to the world and every woman I know, get tested, find out your risk, do something, BEFORE cancer strikes! Every person on this forum is here because they are affected by BC. It breaks my heart to hear their stories and be powerless to help. I believe that someday a cure will be found, and this disease will be easily cured without the invasive and otherwise harmful treatments we must use today to kill cancer cells.
My journey to this place and the loss of my breasts began when I was born. My genetic makeup dictated my path. My choice to address my risk proactively has saved my life!!! It is as simple as that.
I want to start a new foundation to raise money for Breast and Ovarian cancer research! I am going to name it after my Grandmother, Bertina Edith Connor, who died of ovarian cancer at the age of 49. I was only a baby when she died and was too young to remember her. But my mother says I have her personality and remind her of her mother.
My vision is to help families gain awareness of the power gained with genetic knowledge. To stimulate a proactive movement toward using genetic risk to make appropriate and life saving decisions, and to fund genetic research into finding ways to transform broken genes into cancer killing cures! The study of genetics is so young, we have so much to learn, this means we have tremendous opportunity!
My thoughts tonight are with every woman and man struggling with cancer. I will do what I can to help you in your fight! Keep fighting and have hope. I and many others are also fighting to help!
LRGO2016
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The following book, published by Avery - an imprint of Penguin Random House, is inspiring and helped me adjust to and act on my genetic knowledge. I recommend it to anyone who has a history of cancer in their family!
"A Cancer in the Family - Take Control of Your Genetic Inheritance" by Theodora Ross, MD., Ph.D; 2016
Dr Ross is a cancer survivor and a top genetic researcher in BRCA1 genes who understands the impact that cancer has on the individual and their families. She translates complex medical facts into laymans terms. She helped me accept my newfound awareness of my BRCA1+ status as a gift! Her positive message helped me transform my anguish into action! In addition to explaining genetic risk and cancer types, stages,and treatments in easily understandable terms, this book contains an exaustive list of really helpful cancer information resources and links to active foundations and research.
I read the entire book in 4 days, devouring the information before undergoing my surgery. It helped me digest and accept my genetic inheritance and helped me navigate the difficult task of telling my family about my choice and the implications of my genetic information and their own genetic risk.
Learning about my genetic risk and sharing it with my family may save their lives! It has already likely saved mine. What a gift knowledge can be when we use it to make good choices!
Podcast: interview with Dr Ross:
http://www.npr.org/2016/03/14/470371943/bad-luck-o...
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LRGO..AMEN ! -
Hi new-me!
I'd love to ask you questions about your journey through reconstruction if you are up to sharing your experiences. PM me if you are willing to share!
Thanks! LRGO
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I had my BMX in July 15 and implant exchange in November 15.
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Katykids, I'm definitely looking for more info on the fills process, exchange surgery, fat grafting process, now that I've made it past the worst part of the initial BMX.
Are you willing to share? And these questions go to anyone who wishes to contribute. Here are some of my questions.
- I've been told the fill process will become uncomfortable and gets worse before the exchange (as stretching reaches max target). Please describe what it feels like and what, if anything, you were able to do to get comfortable.
- Did your pre-expansion wrinkles and pickers disappear as fills neared completion?
- Did you have fat grafting? If yes, was it done at the time of exchange? Did you need more than one fat grafting treatment to achieve your desired result?
- If you had lyposuction, how did it make you feel and look, and what is the procedure recovery like? (I'm hoping to be rid of stubborn belly fat and buldges)
- How much time did you need off from work to recover from the exchange surgery?
- Did you have drains after the exchange?
- How soon before you could drive? Exercise? (What weight restrictions did you have after the second surgery?)
- Did you have nipple reconstruction? If yes, what is that surgery like and are you happy with the results?
- If you had nipple reconstruction, do you now have permanent "Headlights on" or have the nipples softened and relaxed a bit?
I'm sure I'll have more questions as my process continues. I'll post them in another entry. Please post here if you are willing to share your experiences publicly or PM me if you would rather discuss it privately. I'm eager to learn more about the next phases!
Thanks everyone! Your mentoring and friendship has been indispensable! Hugs to you all!
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- I've been told the fill process will become uncomfortable and gets worse before the exchange (as stretching reaches max target). Please describe what it feels like and what, if anything, you were able to do to get comfortable. It's funny. I don't remember a lot of that. I was told, it's a lot like having babies. You forget. And I have forgotten. Sorry.
- Did your pre-expansion wrinkles and pickers disappear as fills neared completion? I had a Nipple Sparing. My PS goal was to get my nipples in a particular spot. When they were where she wanted them--essentially not pointing at the floor--she was finished filling.
- Did you have fat grafting? If yes, was it done at the time of exchange? Did you need more than one fat grafting treatment to achieve your desired result? I did have fat grafting done at the time of exchange. I had to wear something around my belly home from the hospital for a few days. I showered in it. My donor site was my belly. Not a ton. 100cc to 150cc. I do have ripples but they aren't hugely obvious. My new PS says we can do more fat grafting to work on it but I am okay with how I look right now and don't want any more surgery at this time.
- If you had lyposuction, how did it make you feel and look, and what is the procedure recovery like? (I'm hoping to be rid of stubborn belly fat and buldges) I was amazed by the bruising. It was actually quite shocking, the bruising across my chest. And it was there for a while. I didn't think the recovery was bad as I have read. Just the bruising was really hideous. Arnica is your friend. It did nothing for the belly fat I had from having three children.
- How much time did you need off from work to recover from the exchange surgery? I took the full two weeks off. I only took 9 days off for the BMX after those nutty surgeons said I needed only 2 days after the BMX. I probably could have gone back after 1 week but I had the coverage so I used it.
- Did you have drains after the exchange? I did not have drains but I do think I had some fluid in my foobs as there was a bit of gurgling going on there which I hear can be normal.
- How soon before you could drive? Exercise? (What weight restrictions did you have after the second surgery?) Hmm...within a week. Exercise, I think it was 6 weeks. Walking was okay. I was also given the okay to do spin classes.
- Did you have nipple reconstruction? If yes, what is that surgery like and are you happy with the results? no nipple recon. as I had nipple sparing.
- If you had nipple reconstruction, do you now have permanent "Headlights on" or have the nipples softened and relaxed a bit?
- Hope that helps some!! xoxo
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very much so thank you! This whole process is so interesting to me. I know I'm going to be amazed when it is all done and I have two lovely foobs where my old girls used to be. So I am naturally curious how the process went for my sisters who have gone before me. Thank you for sharing. I hope others are willing to post too. I feel like a piece of sculpture being shaped by an artist. I suppose as long as he doesn't decide to give me 3 foobs, I'll be happy! ;-)
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haha!! You are funny. Sorry for short answers. Looong day with prom meeting, b-day lunch for my mom and tux rental. Never did that before. I would rather buy a prom dress. I know nothing about tuxes and suits.
PS are all so different. I have 4 incisions. Others have just 2. Some have lollipop. Mine extend toward armpit. From nipple. One has faded quite a bit. One not as much. Although my husband says they are both faded. I am my own harshest critic sometimes.
Off to sleep. Hope you are feeling better and better!!! And get more input
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warm compresses mine had suggested during painful fills.
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Thanks katykids for that awesome feedback and thanks LRGO for posting the great questions! I am very interested in knowing those things and trying to prepare and decide what to do also!
And yes, LRGO you are so funny. I love your outlook on life and how you compare things. Love how you say you feel like a "piece of sculpture being shaped by an artist".
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here's to hoping my PS is Michelangelo! ...
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