Lymphedema and Diep

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Sannoliver1
Sannoliver1 Member Posts: 25
edited May 2016 in Lymphedema

To any who have lymphedema and still went ahead with diep reconstruction, could you please share your experience? How did you fare? Did things improve? Get worse? Stable?


I have mild bilateral arm and truncal Lymphedema. I wear the garments and do mld, but have about 40 lbs more than I should. Also wondering how much weight loss helps with mild lymphedema. I just can't get any traction dropping the pounds because I'm not a slow and steady type. I'm all in and over do the exercise ... And then I flare so I back off.


Thanks for any input.

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  • Lbower
    Lbower Member Posts: 2
    edited May 2016

    I have lymphedema and had a diep / tram flap in May 2015 at md andeson cancer center . Also during the procedure they did a lymhnode transplant . A year later I now have lymphedema in my abdoman and its no fun having it my arm breast and abdimon . Not everyone will get itvut if you google abdominal swelling after diep flap theres alot to read and think about . Good luc

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  • Sannoliver1
    Sannoliver1 Member Posts: 25
    edited May 2016

    Oh that is terrible. I'm so sorry. How many lymph nodes did they remove? Did you have radiation? Do you wear compression? Did they have you wear it right after surgery? Do you get Mld? What does your surgeon say?

    Gosh I just feel awful that the LE spread to abdomen too. Sometimes life is so unfair.

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