Lumpectomy Lounge....let's talk!

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  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    Tsoebbin, cry all you want. I remember when I was in your shoes not that long ago. I dealt with being down and depressed, overwhelmed, constantly waiting on the next appointment, test, test result. Wondering if they would get all the cancer, if I had to do chemo, if I had to have a mastectomy? I completed my radiation today!!!!!!!! I have come a long way since my diagnosis in Jan and this wonderful group of people have been part of my saving grace that kept me from going crazy. Everyone here understands what you are going through. We may not have all had the same treatments, but someone here will always be able to answer questions and pep you up when your down. Hello to all the new people and Hugs to all! I agree that CANCER CAN KISS MY ASS!!!! RADIATE THIS!!!!!!! LOL!!!!!!




  • iammags
    iammags Member Posts: 216
    edited May 2016
  • tbalding
    tbalding Member Posts: 449
    edited May 2016

    Bmg welcome! This group is great! I was just diagnosed in March & they have been very helpful & uplifting :) I now check in ever evening to see how everyone is doing

    Created, sorry you are in pain. I would check with your bs too. After my first surgery, i used ice 20 minutes at a time & was never in any pain.. I bought an refreezable Ace ice pack from walmart that is softer and you can form it to fit around your breast & underarm.

    Traci, I agree with everyone else, it gets overwhelming and it's hard to stay upbeat & positive all the time. Most days I manage but find myself more emotional now and I have to give in.

  • ejmann44
    ejmann44 Member Posts: 89
    edited May 2016

    wHello,

    I'm in sunny FL in Tampa Bay. I was diagnosed on May 5 and my surgery is May 18. I'm bummed I will have to miss my daughter's play but DH is traveling the following week and the next surgery date was well into June. The plan is to remove my 3 millimeter spot and a couple of sentinel nodes. Radiation 4 weeks later to last 6 weeks and hopefully no chemo if the pathology is good.

    I homeschool our 10 and 11 year olds girls and was wondering what to expect those first few days. Should I have someone keep them for me or will I be able to function? DH will be home over the weekend and my mom, an RN lives a mile away and can always help. I am overweight by quite a bit and the surgeon said he would need to go deep to reach the nodes so it might hurt more than usual. I don't have a lot of experience with other surgeries other than a tonsillectomy back when I was about 36 years old.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited May 2016

    ejmann, perhaps if you can post your profile (type of breast cancer, grade, tentative stage, hormone/HER2 status if you know it) it would help us help you. Sorry you had to find us, but welcome in!

    Assuming you're having a lumpectomy and sentinel node biopsy, if you have someone to help you with household responsibilities those first few days it'd be great. 10-11 is an age where your daughters can actually do some of the light housework, wait on you, even nuke frozen or pre-made meals. If you are not loopy from pain meds or too exhausted, you might even be able to handle some of the teaching you've been doing. If your DH can take the time off, and your mom can help out (how great that she's a nurse!), so much the better.

    I can only relate my experience. My DH is a cardiologist and can almost never take time off unless it's a dire emergency--for him as well as for me. He took off the day of my surgery. I am lucky to have a housekeeper and a 31-yr-old son who's an actor (which means not exactly fully-employed). I drove to the hospital, but they got me home, ordered and served me dinner and made sure I got to sleep (downstairs on the daybed). My housekeeper went home as soon as I assured her I'd be fine. My DH went back to work the next day, and my housekeeper came in. My sister flew in from VA, expecting to find me bedridden and exhausted--instead she found me fully dressed, on the porch, eager to go out to dinner. (Because we have cats and she's allergic, we spent most of our time together outside on the deck and she had to sleep at a nearby hotel). Third day was a Friday, so housekeeper came in for half the day, we ordered out for pizza and my best friend came over. Saturday, DH, sis, DS and I walked to brunch and then to the lakefront beach before she had to drive to the airport. Sunday night, DH & I went out to dinner and I was able to drive home. I never got the “extreme fatigue” my BS’ nurse warned me to expect. (Never got it during radiation either).

    I am obese (5'3", 188 at the time but 200-ish after 4 mos. on letrozole) but my tumor wasn't too deep. But my breasts are very large and fatty. So your mileage may vary. But you can handle this!

  • ejmann44
    ejmann44 Member Posts: 89
    edited May 2016

    CHISandy,

    Thanks for the info. I will have a lot of help. I am quite a bit larger than you. I think I updated my profile. Hopefully I did it right.

    Take care,

    E

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    BMG, Welcome! I'm glad you found us. We are warm, comforting, supportive and quite funny (weird??). Hopefully you are coping with your chemo. That's hard but we all do what's necessary to kill cancer! Please help us help you by filling out your profile as completely as possible and making it public. You can tell that this thread moves quickly and often we can't remember each person's particulars and that helps immensely. Ask any questions you may have - we have many ladies here who have done or are doing (or about to do) chemo and they may be able to answer you.

    HUGS!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Ejmann, Welcome! Sandy gave you great advice. Like her, I had very little pain and took Tylenol. You will probably be happier taking a couple days off from everything to rest and let your body heal. It is important to remember that YOU have to put yourself first right now. It's very hard when we seem to be hardwired to care for everyone. But if you don't do that then you won't be able to help your family later on. The goal is to KILL CANCER and get rid of it. You will likely be able to do a lot of your activities, just no lifting anything heavier than a gallon of milk (and you really won't want to anyway) with your "bad" side. Be sure to take any pain meds necessary to keep you pain-free. This is not the time to be heroic! Ice your underarm (which will probably be the most annoying part of your surgery) and lumpy site. BTW, we'd love to know where you are - we might be very near you! Ask your questions - we'll answer!

    HUGS!

  • createdonpurpose
    createdonpurpose Member Posts: 27
    edited May 2016

    I was able to get the surgeon to change the pain meds around noon yesterday, what a difference! She also told me that the lymph node portion of the surgery was much more complicated than they anticipated and they ended up cutting i& tearing some nerves so I will likely have some intense pain for quite a while. At least now I'm getting periods of rest

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Created, Thank heavens you have pain meds that help. I think they usually damage nerves with the SLNB incision and that's what makes them so danged annoying. Obviously, yours are worse than annoying. Hang in there - it WILL get better, just probably not soon enough for you.

    HUGS!

  • tsoebbin
    tsoebbin Member Posts: 474
    edited May 2016

    I think i am off pain meds during the day!!!

    I am feeling pretty good today and hope I keep improving at this rate. I seem to need them more at night when I am laying down so I may need them one more night - I guess I will know later. I am on ibuprofen every 6 hours and that seems to be helping.

    I will need to decide about rads and hormonal therapy soon. I hate the idea of both but if I do not have to go through all of this again it might be worth it. Such BIG decisions to make in the next couple of weeks.

    Many thanks for everyone's support during my "cry-fest". I am sure there will be more but I cannot explain how much better I felt afterwards. I am going to contact the staff at the hospital that were with me that morning to send my thanks for treating me like a real person and not just a stranger having surgery that morning. Might need to bake some cookies or cinnamon rolls when I feel better!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Traci, that's wonderful. I think it helps just DOING something to get rid of the BC. I strongly urge you to do both rads and AIs or Tamoxifen as recommended by your oncologists. Those are the best guns we have in our arsenal right now to make sure the BC doesn't return. Granted no guarantees, but it is something we can do! Take care!

    HUGS!

  • tsoebbin
    tsoebbin Member Posts: 474
    edited May 2016

    Peggy - That is where I am heading right now (rads/hormonal therapy). I am scared of both but sure appreciate all of your honest posts about both rads and hormonal therapies and I hope I am one of the lucky ones that tolerate both well.

    On another note Peggy - I cannot wait until you get to Spokane! I will probably be in the middle of my rads and not be quite "me" yet but i am sure I will return to me or a better version of me soon.


  • Grazy
    Grazy Member Posts: 373
    edited May 2016

    Traci, listen to Peggy!! :) My RO remarked that without radiation, there would be a 25-30% chance of recurrence (I never NOT considered doing it; we were just discussing stats) and the hormonal therapy offers another layer of protection - it's important to do both. I quit taking pain meds early on during the day as well after my lumpectomy, but continued them at night until I was pain-free and could sleep well through the night. Glad you're starting to feel a little better! Have a relaxing weekend :)

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Traci, you'll be fine and yourself during rads. Maybe a tad more fatigued than usual (what woman ISN'T fatigued?). I didn't notice any difference. Had no reaction to the rads. Just another thing to do while sitting at the hospital with DH when he was extremely sick with pneumonia after surgery. Now THAT is exhausting. I also am anxious to meet you in person! It's coming!!!!

    HUGS!

  • tsoebbin
    tsoebbin Member Posts: 474
    edited May 2016

    Thanks Grazy and Peggy - I have moments when I wonder "is all of this necessary" and then I wake up from that dream!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Traci, we all have those moments and then realize we have to slog on, doing everything we can to beat BC!

    HUGS!

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    ejmann and bmg, welcome!!!!!! Created, hope you are feeling better really soon!!!!! Tsoebbin, do what you have to for getting rid of the cancer. Even though I was hurting and itching so bad my last day of rads, I would have done 10 more if I had to. I have actually gotten use to functioning rather normally with having so much constant pain the last few months. Not horrible pain, just nagging background pain, but we do what we must!!!!!!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    LovingGrouches, got that right. It's what we do.

    HUGS!

  • Grazy
    Grazy Member Posts: 373
    edited May 2016

    It's what we do. Got that right. I've only ever taken a multi-vitamin (and birth control back in the day) so now that I have to remember to take Arimidex, Glucosamine 3 times/day, Calcium and Vitamin D, I had to buy one of those compartmentalized pill containers just to remember to take those few pills! lol My husband and kids were totally teasing me about my old lady pill organizer at dinner tonight and I was waving them off saying, "this is what I have to do now!!".

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Grazy And we're thankful that those prescriptions and supplements are available to us - little old lady containers or not!

    HUGS!

  • Peachy2
    Peachy2 Member Posts: 350
    edited May 2016

    Grazy, that made me laugh! My 78 year old mom was here visiting two weeks ago and suggested I get a pill container like hers. I told her that though I am eligible, I have not joined AARP yet, and thought that was a requirement for purchasing one. Waiting for her to buy one for me.

    tsoebbin and created, so glad that you both are done with surgery and managing your pain medication well. It is a happy time when you no longer need it!

    I have to brag on my sweet husband. This is his Facebook status today. His profile pic is the logo for the Pan-Mass Challenge, a two day bike ride to raise money for Dana-Farber cancer care and research. In August he will be riding 200 miles across Massachusetts to fundraise for the great facility that has become our second home. (Just to note, it was 30 radiation treatments, but who's counting?)

    image

  • Grazy
    Grazy Member Posts: 373
    edited May 2016

    Aw, Peachy (Claire!), what a sweetheart.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited May 2016

    Peachy, that's wonderful. What a great hubby!!

    HUGS!

  • Peachy2
    Peachy2 Member Posts: 350
    edited May 2016

    Though his leaving his toothbrush head on the electric toothbrush base drives me batty on a daily basis, I think I'll keep him. ;-)

  • MJS1266
    MJS1266 Member Posts: 222
    edited May 2016

    Peachy great post, your hubby is a keeper.  I am originally from MA and while I received great care in Northern VA, I wished I could go to Dana Farber.  MJS


  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited May 2016

    Aw, Claire (Peachy)- what support and acknowledgement of your journey...30 or 60 rads treatments- DH "gets" your strength and what you did. Precious way to show you!

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited May 2016

    peachy, what a sweetheart for a husband! I'm only 42, but I've had one of those pill holders for a year or so since I became diabetic, I had those pills plus supplements and now have added vitamin d and calcium along with cholesterol pill, pepcid and soon to be tamoxifen. I have spoken with bosses at work and since we have no snack machine and workers are always DYING for candy and chocolate- I'm going to Sam's to buy bulk and sell stuff at work every day in my office and donate the proceeds to the 2 nearby hospitals to assist with needs for their cancer patients. The cancer place where i did rads are so loving and giving- they use donations to give mastectomy pillows and pillowcases to patients, t-shirts and gas cards to those who drive long distances for treatment and have a hardship. I have decided to use the profits to help them buy gas cards and to help with the navigation program they have for any needs they may have and may can't afford due to strict budgets. It is on my heart and I believe that God has impressed on me to help in any way I can, it will go a long way in keeping me busy helping other cancer patients and keeping my mind off worrying about mine coming back. Hugs to all!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited May 2016

    EJmann, I was once a homeschool mom, too, so I really get your concerns. You probably won't feel great after your lumpectomy, so you might want to plan for that. At the ages of your kids (10-11) they should be able to entertain themselves, do some of their work on their own, and help with simple chores. It is very likely that you will have some discomfort, which can range from mild to pretty bad, depending on what they have to do and your pain tolerance. They will give you a narcotic prescription. Fill it, even if you think you won't need it. I didn't need much pain relief in the daytime, but holy cow! Come nightfall and my underarm was really hurting and swollen. I took the narcotic at night for about a week, just so I could get some relief. But by daybreak, I was fine again, no narcotic needed.

    As far as what other help you need, I think you'll be okay. If your mom can come over to help you with some of the things that the children might not be able to manage, that would be good. You're not going to be a complete invalid, but you won't be able to lift anything heavier than a paperback book for several weeks until your LX and SNB heals. So, no laundry or carrying in groceries for you~!

    Good luck to you with surgery. It's getting close to the end of school, so maybe you can let the kids watch a Disney movie DVD every day, do a little math and writing, and have a 1 hour reading time. It won't mess them up tooooo much.

    Winking

  • Peachy2
    Peachy2 Member Posts: 350
    edited May 2016

    LG, what a wonderful, generous, thoughtful idea for your work! Where in LA are you? I grew up in Baton Rouge.

    MJS, Dana-Farber hasn't been the easiest or most convenient place to go since we live in NH, but it is worth the extra effort and hassle. I went to a seminar there on Wednesday evening and though it's only 30 miles from my office in Lowell, MA it took an hour and a half to get there. Oh, the Boston traffic!

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