Newly diagnosed ILC, Stage IIIA, what do I do now?

I have the same diagnoses as you except my mass is a bit larger. I am doing surgery first, then chemo, they told me rads only if I do a lumpectomy, and I am doing a mastectomy on my right. I am curious to know the same info as you, as I was also recently diagnosed. Good luck and take good care of yourself.

xoxo Michelle

I wish I could advise you better, but I can only give you my feeling about treatment overall--once I was dx, I wanted to throw every single thing that docs were offering me this first time around (and some they weren't, like both radiation and a BMX) because if that damned bc came back later, I wanted to at least tell myself that I did everything I could to keep it away. I think I was more afraid of regrets than of the bc.

I would hesitate to advise on only using alternative treatments since I never considered just that as a way to treat my dx. I do know that ILC does have a higher tendency to be multi-focal, and although it seems to be a bit of a slower mover overall, does also have a higher tendency to recur later in life.

I was terrified of chemo, rads, bmx, all that. But when I began to make friends on this board and read all the positive posts about women who came through all that just fine, I quickly lost my fear and found my courage.

I hope others will post here and try to answer your questions, but you can also ask us more or look at some of the other threads like chemo, rads, alternative treatment, etc. to gather your own info.

Hugs

Claire