Is this it?

Options
2»

Comments

  • LovesCats
    LovesCats Member Posts: 7
    edited April 2016

    I have been living with fear of liver mets from the beginning. I have had upper right belly pain and some back pain almost all along, though it comes and goes. Many doctors along the way have poked and prodded and felt no liver enlargement and pressing on it doesn't cause pain at all. Lately, though, the pain has become almost constant. The thing is, as long as it's not diagnosed, I can cope. I don't know how you ladies cope with the stage 4 diagnosis and I'm terrified to actually hear the words. My support system is shaky at best. I feel a little better just putting it on paper. Thanks for listening.

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    Loves cats, big huge hugs to you.

  • stillhere61
    stillhere61 Member Posts: 2
    edited April 2016

    I'm new here but not to Breast Cancer. I just went thru a scary series of tests looking for mets after having some severe back pain. An MRI ruled out bone mets BUT they saw an "undetermined" liver lesion or tumor. My oncologist immediately sent me for a CAT scan with contrast. To say I was scared was an understatement. After 4 days (weekend) I got a good call and basically learned I have benign lesions in a few spots which is not that unusual. From reading some of your posts I can see some doctors are more aggressive with testing than others. Here's my take on that....

    My initial diagnosis was delayed for over 3 years by a "well trained" breast surgeon who assured me my calcifications were not cancer. Since then and after finally being diagnosed at stage 3 I don't stand for waiting anymore. Why do oncologists take a few months to observe before ordering tests? First of all, we are all Breast Cancer patients so the possibility of recurrence is real. Is it an insurance issue? One doctor told me he doesn't want me to "google" diagnose and hates to worry his patients over small things. That's crap...we worry regardless and I don't need him to spare my feelings... I'd rather he save my life or help me live as long as I can. I know I can't order tests or tell a doctor what to do but it's my body, my life and I have a say. I wish you all the very best and thank you all for being here for me as I silently lurked in fear. Your stories empowered me and allowed me to feel less alone.

    . 55 years old. Chek2 mutation. Family history of BC10/13/2015 Arimidex (anastrozole)Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall

  • Morwenna
    Morwenna Member Posts: 1,063
    edited April 2016

    I'm booked for a CT May 6th.

    Not thrilled about that, but my hematologist wants to rule out (another) PE and also any possibility of malignancies as that would mean changing my anticoagulants with some urgency apparently.

    Had a respiratory function test Wednesday as part of an ongoing study on the effects of exercise on breast cancer survivors, and comparing with my last 2 tests (one just after starting treatment and a second the year later) I am well down on my VO2 max testing, which explains my feeling breathless on exertion. Still could be explained by lung damage due to multiple PE and radiation stuff ......

    Lovescats ... one of my lovely doctors said it's fair enough to acknowledge that recurrence is a possibility, and to think about how that'd look and how one might cope, but then, she said, imagine life without a recurrence - retirement, grandchildren etc ... what that will look like, and try to spend at least as much time, if not more, thinking about and planning for that! For me that was quite helpful ..... Hugs to you.

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    Oh Morwena, big hugs and positive thoughts.

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2016

    Morwenna, Keep us posted. Thinking of you.

  • molliefish
    molliefish Member Posts: 723
    edited April 2016

    I totally agree with this quote

    " Lovescats ... one of my lovely doctors said it's fair enough to acknowledge that recurrence is a possibility, and to think about how that'd look and how one might cope, but then, she said, imagine life without a recurrence - retirement, grandchildren etc ... what that will look like, and try to spend at least as much time, if not more, thinking about and planning for that! For me that was quite helpful ..... Hugs to you."

  • LovesCats
    LovesCats Member Posts: 7
    edited April 2016

    Thanks Morwenna. I keep telling myself I feel fine other than the belly pain so I can't have mets, but I know that's not true. I have always been such a strong person, fear like this is new to me. Each time I see my oncologist, I say I'm going to tell her then I don't. But the pain is starting to take its toll.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited April 2016

    You should tell her. Definitely tell her what you are feeling and fearing. Have that discussion. Hopefully she will be able to set your mind at rest, but most oncology doctors are very proactive about organizing imaging or other relevant tests if there are any new symptoms.

  • Bexter3
    Bexter3 Member Posts: 61
    edited April 2016

    praying for you Morweena!I am so sorry that damn cancer is trying to get you again! But u got this! I have a friend who is "living with breast cancer" and has been stage IV since 2002!!! She leads a full and active life, just as you will once you beat this

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2016

    Lovescats, I had intermittent upper right abdominal pain for over a year. It was every day, and usually about a half hour after I ate. It was getting worse and worse, which was really stressing me out. Since it was intermittent, my MO was not concerned. I was ready to make an appointment with my GP when I was driving listening to "Doctor Radio" from the NYU medical Center. It was a digestive call in show and some guy called in with the exact description. I remember thinking that could be me! In my mind I was thinking gallstones or something, but the doc told him the first thing he needed to try was eliminating dairy. I did not want to hear that since I had to do it for a year while breastfeeding, and it was not fun. I tried it though, and my pain went completely away. I ran out of my almond milk and had regular milk over the weekend on my cereal and it returned, so I think I know the culprit. I am bummed that I'll have to cut out dairy (since I had a bunch of other food allergies) but I am thrilled to take that off my "worry about" list. Yours is likely different, but thought I would mention it in the off chance that it's the same thing.


    Morwenna, how are things going?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2016

    We will all be in your pocket on May 6th. Very happy to hear the other tests came out well. Hang in there!!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited May 2016

    I have a horrible "code-id-da-doze", which has somewhat taken my mind off my other worries!

    Thanks for the support everybody. I'm feeling it! xxx

  • shoppygirl
    shoppygirl Member Posts: 694
    edited May 2016

    Hope you feel better Morwenna! Thinking of you

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2016

    Spring colds.......el crappo!

  • scouser47
    scouser47 Member Posts: 963
    edited May 2016

    Hi Morwenna , I too am here for you 😘.

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2016

    Thinking of you Rosemary... Hope all went well today.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2016

    Thinking of you, Morwenna.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited May 2016

    Thanks.

    Scan was horrible. They had 4 pokes to eventually site an IV in my hand, and it hurt like stink when they inserted the contrast. Spent the rest of the day miserably nursing an ice pack.

    Today feels much better. I expect I'll hear from the doctors next week.

    Meanwhile this morning dh's mum in England suffered a stroke so he is flying back tomorrow night.

    Cold gradually improving. Still coughing like a good'un.

    Deep breaths.

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2016

    Not a fun experience, for sure, Mo. Waiting for results isn't easy either. How are you feeling these days?

    Sorry also to hear the news about your Mil.

    Sending hugs.

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2016

    sorry it was so rough. Keep us posted

  • Molly50
    Molly50 Member Posts: 3,773
    edited May 2016

    So sorry about your MIL. I am praying for good results.

  • Morwenna
    Morwenna Member Posts: 1,063
    edited May 2016

    Thanks everyone for your support.

    Well ...... First off, the CT showed no changes in the lung nodule that we know about. No other lung lesions. No lymphadenopathy visible, and no new or suspicious lesions in the liver or other organs, and no obvious bony lesions. YAY! Happy dance!!

    But. Then it mentions a ground glass opacity in the right reconstructed breast (not the cancer side), that was new since the last exam, so Dr wants that checked with an ultrasound asap. Then as I went to get up I winced with a sharp pain in my left back/lower ribs area that grabs me from time to time if I'm sitting a bit twisted. Dr prodded me and said area profoundly tender so now she wants a bone scan ("to be sure").

    So. Hmmm. .........

    She also wants me to follow up with my GP re the fatigue and weight loss and slightly odd blood results, in case there's something else going on (not breast cancer)

    Meanwhile, back in the UK, mum in law was diagnosed with aspiration pneumonia and put on iv antibiotics today. If I'd been there I would have strongly questioned that decision: 93 year old lady with dense right hemiplegia, no speech and no swallow reflex.... I was strongly considering flying back this weekend but my son's gone over today so I guess I better get these tests done rather than putting it off until end of June!

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2016

    Sounds overall like a good result from the scan, Mo. I'm hoping the flap opacity is nothing more ominous than fat necrosis.

    Good that your son could go over to support hubby. You need to stay home and get sorted, so you can put some of the worries behind you, or get on with taking care of what needs "attention".

  • KBeee
    KBeee Member Posts: 5,109
    edited May 2016

    Ground glass opacity tends to be typical of radiation pneumonitis or fibrosis. Keep us posted.

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2016

    Yes, that's true, Kbee....I may have misread, I thought it was in the flap.

    Hope you get the scan and ultrasounds scheduled soon, Mo.

  • Molly50
    Molly50 Member Posts: 3,773
    edited May 2016

    Good and not so good news. I am sorry about your MIL but glad that so far everything looks good for you. Hopefully the ground glass opacity is nothing serious. Hugs

Categories