Anyone play the looking backwards game?
I googled women on the stage 4 board who have my dx or SE's. Then I fast forward on their names to see when the last logged in. How devastating yo see they've been gone for years. This disease is getting to me. Physically and mentally.
Comments
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Yes, there are a lot of women that have came and gone. But there is still a lot of women still here. As hard as it is, we can not change our diagnosis or outcome. I try to stay living in the moment instead of worrying so much about what and when something will happen. I think that is a work in progress, somedays, I am better than other days. I always remind myself that no one is promised tomorrow, with or without cancer. I do agree that this is such a mental game. Wishing you nothing but the best.
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Not a good "game" to play. Been here on BCO for 6 years, many friends are gone now (but NEVER forgotten!). At the beginning (2009), it was hard to not look for examples of how long I had left. As the years have progressed, I have come to the conclusion that each one of us is as individual in treatment results as we are in personality, DNA, location etc.
With my diagnosis, the "experts" gave me months to live. Obviously, they were mistaken. So now it is my goal to cherish each and every day, get through the treatments with as little impact on quality of life as possible, and keep on going.
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That's a losing game. Each of us is unique in our response to treatment, and treatments have been improving over recent years, so comparing yourself to others will tell you nothing useful. I don't know long it's been since your diagnosis or what your treatments or SEs are, but I encourage you to look ahead with hope. You may want to ask your doctor about medication to relieve depression/anxiety, which many of us find helpful.
Tina
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Rachel, I am only 11 months out from my diagnosis, but I choose to focus on the positive. I know that is not always possible. Since I joined this forum, I have seen some wondeful women pass away. It is never easy to lose someone here. I turn to others on these boards for support when I need to. As others have said, we are all different. Some people who post have lived a long time with mets. Some of us will continue to live beyond the most optimistic expectations. That could be me or it could be you, who knows? There are never any guarantees in life.
One thing to keep in mind, just because people have stopped posting, it does not mean they are no longer alive. People lose interest, find another site, take breaks and don't return, fail to find the support they need here, no longer need support from this type of forum, get bored, get busy living life, get upset with something they have read, find someone annoying and decide to stop posting, become lurkers who just don't sign in anymore, forget or dislike their usernames and pick a new on, and on and on and on.
I understand why you are looking back the way you are, but looking ahead will make you feel better I think. Let us know if we can help
Lynne
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I did that at first, 12 years ago...following others with the same dx/pathology. and lots of nodes (I have freaking 17!!)
Its not a good game, and as others have said, it just isn't a good indicator.
My surgeon was not positive on my outcome, 12 years ago. But then came herceptin.
A doctor at my clinical trial made some remark about triple +++ being harder to treat, that was almost 4 years ago...I responded to Tykerb/Herceptin combo for almost 3 full years after that.
NOBODY can predict what is going to happen. It truly is a crapshot!
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Though it's tempting to play that game, it means nothing. What you're doing has no predictive value at all. Focus on today. If you don't, then bc is claiming your life long before it should.
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Hi Rachel,
I play a very different version of the looking backward game.
When I think back on all my years with cancer and the losses I've experienced, especially of loved ones who were diagnosed and died after me, I remember them with great love, appreciation and admiration.
Each brought something uniquely invaluable to my life and perhaps we'll meet again when I die.
And, every time I start feeling survivor guilt, I hear them cheering me on and offering me strength to live my life fully in the now!
We really don't know how it will go for any of us, but if we can choose our reactions (and we can't always), we can choose kindness, caring and compassion for ourselves and others. We can choose to live in the now.
One of my favorite sayings is, "my crystal ball is on the fritz."
It takes the burden off needing to know the future and allows me to live in wonder and awe in the present.
Rachel, if you are depressed about your diagnosis, treatment and prognosis, don't hesitate to reach out for professional help like MBSR (mindfulness based stress reduction), counseling and perhaps anti-depressants. This is tough stuff to deal with and well-meaning advice from peers isn't always enough to lift us up.
Blessings as you find your way with MBC, Stephanie
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Yes I have checked on some but I also am a firm beliver that attitude means a ton in surviving. My youngest (14) dd has 9 brain tumors, she has spent much of the last 9 years on one treatment or another. On paper she should not be doing as well as she is...she is a whitty, vibrant, smart...and all around wonderful..Dr's who have just read about her walk in a room and are shocked....but we have NEVER told her she could die made a effort to not let her feel sorry for herself...and I believe strongly this is why she does so well. Take this for what you want...
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Good Morning keetmom, Big hugs to you and your girl.
When I look back I see my two younger sisters, who died before me. One at 23 and the other at 52. And my mother who lived to be 53. Prince just died at age 57. I'm currently 58. I always feel blessed to have been given more time on this Earth than so many people are given.
It's my pleasure to enjoy this gift. I don't worry about "life saving chemo" adding a few more years, I've already been given a few more years than so many people had. Everyone has their own time.
cb
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CB, I like the way you are looking at things. I am going to keep your thoughts in mind. Thank you for your post.
Lynne
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Rachel, yes, I have played that game. I saw it as sort of a reality check. As in, okay, can I figure out how long others lived so I can either try to live longer, get my affairs in order sooner if my research leads me to think that way, or maybe I should allow myself to start blowing more money because time is short. And here's the thing, I have had a stretch of stability, so sometimes I wonder how much should I be thinking about when things go down hill? Am I living in denial, or am I simply living?
I will also admit to this: even now, when a member here passes away, I look to see what kind of bc they had and how long they lived, were they stage iv from the start or did they progress from an earlier stage?
I let myself ook back at some of the posters to see if there was any pattern or something I could learn from my unofficial research. I think it tells me to live in the present and soak in all of life today, then do it again tomorrow. It's taught me to simplify my life, do more of what I really want and do less out of obligation, reassess things often to eliminate stress, and even embrace the crappier things that come my way because I'm still around to figure out solutions to life's difficulties. And I've learned I don't have to live big, I just want to live meaningfully.
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Rachel1, I think all of the posts here are just wonderful outlooks and so true. It is such a mental mind&^%$......However, worrying myself sicker will not change the prognosis and makes me feel worse. Yes, I have some bad days and occasionally VERY bad moments. But for the most part I am trying to stay busy both mentally and physically. It helps to distract my mind and makes me feel much better.
Longterm I like the crystal ball quote!
Lynne, I love all the possibilities you listed for people dropping off, many that I never thought about. That really helps with perspective for sure.
Keetmom, I want to wish a very special Happy Mother's Day to you and your precious girl! What a special gift she is to you and vice versa!
Divine I do a lot of that too just as "unofficial research" then move on to more positive things. It's a natural reaction to our situation. I like your outlook on how you live now, simplify, do less out of obligation ect. And I don't need to live big either, just enjoy the things I always have with little perks along the way. All we do is the best we can do....
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Sometimes I find myself doing that. But then I turn it around. The (I believe outdated) stats say that only 20-30% of us will be alive five years past Dx. But I see SO many on here exceed that. And a fair amont even NED for that time!
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I have done the same thing, especially when first diagnosed. I think it is a natural reaction when you are trying to figure out this disease. But what the others have said is right. No two people, even with the same dx, will respond the same way. It is tempting to try to compare our situation with others, but each of our stories are unique. The uncertainty of this disease has been one of the most difficult things for me to grasp, so I understand where you are coming from.
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