January 2016 Chemo!

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  • Cathytoo
    Cathytoo Member Posts: 667
    edited May 2016

    Estelal.orca.......This only lasts a few days with me. What works for me is vanilla ice cream (who knows why) and highly spiced foods like chilli, ... anything tomato based like tomato sauce, tomato soup, gazpacho, salsa. I can't taste carbs at all. I buy frozen grape juice bars (Outshine) and eat them constantly. I can tolerate oatmeal with dried cranberries and brown sugar. Good luck. After about a week, everything is back to normal.

  • JCS28
    JCS28 Member Posts: 153
    edited May 2016

    EstelaLorca -- Thanks for asking! I'm feeling pretty good overall. I'm definitely more tired than the other times. The weird part is that I don't know when I'll be tired. I was fine on Monday, but then yesterday I was a lot more tired. Getting out of the bed in the morning is very difficult. But Advil helps. My leg muscles are sore all the time.

  • Smurfette26
    Smurfette26 Member Posts: 730
    edited May 2016

    Vanilla ice cream also worked for me. Odd because I don't even like ice cream normally. I drank a lot of chocolate milk and milkshakes too.

  • Mena4911
    Mena4911 Member Posts: 49
    edited May 2016

    Zinny I hope your surgery goes well and as pain free as possible! Looking forward to hearing how it goes. i am so nervous about the surgery! But, i am looking forward to this next step in this long road!

    I felt so much better yesterday after having the blood transfusions the day before! Dont know why I suffered so long and so weak. If I need blood again I wont put it off again thats for sure!

    I have so much trouble with eating after every treatment. Carnation instant breakfast are very nutritious. I have not seen the Bolt house farms shakes. Where do you find them Myraknits?

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited May 2016

    Zinny hope it goes well, sending hugs. I'm right behind you bmx 5/24. very nervous but ready for this next step.

  • jensgotthis
    jensgotthis Member Posts: 937
    edited May 2016

    I'm with you guys - UNX on May 25

  • Myraknits
    Myraknits Member Posts: 264
    edited May 2016

    Mena, the Bolthouse smoothies are in with the refrigerated premise juices by the produce dept. Much better than Boost or Ensure. It's all I'm eating these days...

  • Mena4911
    Mena4911 Member Posts: 49
    edited May 2016

    Thanks Myraknits, I will try them. Nothing tastes good right now!

  • Cathytoo
    Cathytoo Member Posts: 667
    edited May 2016
  • JEBA
    JEBA Member Posts: 15
    edited May 2016

    Dear ladies, hope you have a great day today.

    Happy mother's day!

  • JCS28
    JCS28 Member Posts: 153
    edited May 2016

    Has anyone had luck relieving muscle aches? My legs hurt and it's gotten much worse after this 6th round. I know y'all have said your legs hurt when walking upstairs. Has anyone found anything to help? Advil helps a little. I also have caught a cold or something, so my body aches are worse. UGH. I thought I was almost done. Silly me.

  • MissBee123
    MissBee123 Member Posts: 186
    edited May 2016

    3 more treatments to goooooo!!! I'm getting so pumped to finish this.

    Taxol was kicking my butt for awhile and I told the doctor how poorly I was feeling. She sternly asked me if I was exercising enough and I admitted I hadn't been doing much because I was so tired. She reminded me that fatigue from Taxol is a chemical fatigue, not a true one, and that the more I exercise the better I will feel. I know this and yet I just let exercise slip! I went home with my tail between my legs and promised myself to be better about exercise. I've started working out 90 minutes a day, 5 days a week and--damn my MO for being right--I feel SO much better! I'm sleeping less (I was up to 13 hours), have more energy, my side-effects have lessened, and I finally managed to drop a little of this steroid weight I've gained. I'm counting my calories and having vegetables with every meal, which has also helped.

    For those of you struggling, I really recommend you try and get out and move. I know it feels counter intuitive but it's made a huge difference to me.

    Now if I can just get rid of these f*&^ing hot flashes I might feel human again!

  • zinny
    zinny Member Posts: 281
    edited May 2016

    Happy Belated Mothers Day to all of the mommies out there. Hope everyone is doing well. I am now 2.5 weeks PFC - Hooray. Caught a cold, though, and I am tired and cranky! Well, for me anyhow…Miss Bee, will take the advice and get my butt outside and moving a bit today.

    Those of you struggling with eating - my naturopath friend and her business partners have made a product called Rumble - not sure how wide the distribution is - a meal replacement drink made only with good stuff, that has 20 g of protein per bottle. It comes as chocolate, vanilla maple, and coffee bean flavours. It is a bit "thin" when you drink it - kind of like low fat milk - I like to mix mine with a half of a banana. Doesn't have any of the ice of ensure and the others.

    Worth a try. Some whole foods have it, also on Amazon. http://www.amazon.com/Rumble-Dutch-Cocoa/dp/B00S8LQLY2/ref=sr_1_2_a_it?ie=UTF8&qid=1462896551&sr=8-2&keywords=rumble+drink

    Jen and Valstim and Mena, counting down with you….

  • Maya15
    Maya15 Member Posts: 323
    edited May 2016

    I've been trying to keep up with the exercise, but Taxol has found a way to put a stop to it. Last Friday I headed off to the gym feeling just fine, and after 10 mins going gently on the elliptical machine my leg muscles literally seized up and I couldn't even walk back home. I'm so ready to be done with Taxol -- one more infusion left on Thursday!

  • Paxton29
    Paxton29 Member Posts: 221
    edited May 2016

    Oh, the hot flashes--yes, they SUCK. My MO told me I could try Vitamin E, which I finally got around to a few days ago. I do feel they've been fewer and of less intensity, maybe a placebo effect but I'll take it. And I hate the word "flash" here--the ones that wake me up at night don't let me get back to sleep until I cool off some and it's usually at least ten minutes.

    My thoughts are with everyone getting closer to the chemo finish line! I have 32 more radiation treatments and then it's on to Tamoxifen and hopefully exchange surgery by the end of the year. Wishing us all good health.

  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited May 2016

    MissBee and Paxton....right there with you both. Taxol while manageable, the longer I go and closer to the end the harder the fatigue and hot flashes. I walk every morning and evening (track miles) so agree that helps but have not been doing my gym regimen so anxious to get back to that. The hot flashes....ewww weeee..........and its getting ready to be in the 90s' here in Texas and with my wig.....I might just melt...lol. Good tip on the Vitamin E...had not heard that.....but worth a try.

    Everyone is pushing ahead to the finish lines of chemo treatments.......hard but great hurdle for all! Onward and upward!!


  • Valstim52
    Valstim52 Member Posts: 1,324
    edited May 2016

    Hey Zinny, yes the countdown is on, and i'll check out the energy drinks.

    MissBee, couldn't work out during taxol, muscles seized, did lots of walking on week 2 (i was dose dense) but true working out just could not handle. Went ahead a few times and pushed it wound up seeing my MO and she said just take it easy till done. For me it made my pain worse, not better.

    Sometimes it works and sometimes it does not, especially with excruciating muscle pain like I had.

    Now that I'm done, it keeps me balanced mentally to work out. Had to start slow.

    Paxton29 keep us posted on the radiation, after surgery on the 24th that's my next stop. 33 radiation treatments In the dead heat of summer.

  • Lolliipop
    Lolliipop Member Posts: 32
    edited May 2016

    Hi Everyone,

    I have been reading but not doing much posting. I finished my chemo on 4/21, yeah!!! Anxious for some of the SE to ease up. The hot flashes especially, although I am 49 so I'm guessing they won't ease up any time soon since I was pushed into menapause. My skin is dry as hell, my toenails are starting to lift (just in time for sandal season) and my eybrows and eyelashes have just started falling out! I meet with the oncologist and surgeon next week to see how I responded to chemo and hopefullyget surgery scheduled. I am so ready to move on to the next step.

  • buttaflydiva
    buttaflydiva Member Posts: 88
    edited May 2016

    I think some exercise does help. I walk twice a day,and always feel worse if I miss one of those. I have 5 taxol left and it does seem like fatigue is getting worse. I just push through it and rest a bit then push ahead again on those days I'm really tired. I have just a few eyelashes left, hardly any brows and some really soft white peach fuzz all over my head. But wow that fuzz is so look white lol

  • MissBee123
    MissBee123 Member Posts: 186
    edited May 2016

    I just want to amend my comment to say, of course, you all know your bodies best and if exercising is causing physical pain by all means don't do it!!! Our bodies and their response to treatment are so unique that just because something works for one person does not mean it will work for everyone. For me, exercise has been a huge help but I know that many of us do not feel that way. Sending good thoughts for a speedy recovery to those who are struggling

    My hair on my head is growing but very slowly, and seems to be more brown than blonde (I'm naturally blonde). My eyelashes are back and are blonde, which is funny because last time I had chemo they grew back and were very dark! My eyebrows haven't bothered to come back yet so I guess I'll have to wait and see what color they are. It's definitely a whole new me!

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited May 2016

    Oh, MissBee, that's why we have this forum, to express what helps us and what may not help some of us. Plus with BC how we feel changes constantly, depending on what treatment, after treatment etc. What didn't work at one time, may work later That's why we share.

  • Paxton29
    Paxton29 Member Posts: 221
    edited May 2016

    Miss Bee, I suspect I speak for everyone when I say you are managing so many things so impressively. I mean, you're dealing with challenging treatment at a too-young age, you moved cross country, found a new job during treatment AND are keeping up a regular workout routine! I don't know how you do it but you are an inspiration.

    I ended up cutting back on work during radiation--my firm is wonderful and we worked out an arrangement that is beneficial for everybody. Now I don't feel so guilty with my constant appointments as I'm basically part time until everything's all wrapped up. I was feeling more stress not being able to produce billings than I was because of the cancer--I felt like I was a burden.

    Now, as for hair: it's really growing! Friday will be 7 weeks PFC and I have actual brown hair over most of my head! My eyebrows seem thinner and one is missing a small spot but otherwise ok. Lashes hanging on but they were never anything to speak of. My leg hair grows, but slowly, and doesn't seem to be coming back much downstairs, so to speak. Fingers crossed that I can ditch the wig (on weekends at least) by July 4th.

  • Maya15
    Maya15 Member Posts: 323
    edited May 2016

    MissBee, For me your original post about exercise was an inspiration even though Taxol is making it hard for me. I seem to have every side effect in the book and then some, and your post was a reminder NOT to let it get the better of me. I find exercise helps too, and my MO encourages it. Today I was able to do 30 mins cycling at the gym without muscles going into meltdown.

    Hair is growing back too, currently looks like a newborn baby! Hoping I will have enough by the time it gets really hot to ditch the wigs and the headscarves, assuming the last Taxol doesn't just wipe it all out again.

    And the hot flashes...never knew a scalp could sweat so much! Getting tired of sleeping on a wet pillow. Does anyone know, do the hot flashes go away at some point after chemo, or are they permanent?

  • Cathytoo
    Cathytoo Member Posts: 667
    edited May 2016

    Hair growth after Taxotere? This question might seem a little premature. Next Wednesday will be my 6th and LAST‼️ Infusion. No hair in sight. I know there have been some documentation of a small percent stage of women who DID NOT havetheir hair grow back after Taxotere. Hope that won't be me. Anyone on my schedule? What's the status of your hair growth? Am I needlessly worrying?

  • MissBee123
    MissBee123 Member Posts: 186
    edited May 2016

    Cathytoo, I had taxotere last summer and--for me--I do now have a few small bald patches that do not appear to be regrowing. The patches are about the size of a thumbprint so they're not too terrible, although one of them is smack in the middle of my forehead on my hairline. The other two are on the sides of my head and easily covered.

    I do know there is a lawsuit currently happening because people are saying the makers of Taxotere presented false information that shows it being more effective than other chemotherapies. They allege that they did this while also suppressing facts/numbers about side effects, such as permanent hair loss.

    For me, my hair did not start growing back right away so give it 6-8 weeks before you worry too much!

  • Ivegotthis
    Ivegotthis Member Posts: 28
    edited May 2016

    Cathtoo, I had my last round of chemo with Taxotere and I have ever so slowly growing peach fuzz. Ithink it's slow because I am on Herceptin, which I was told slows the growth to half. I'm ok with that . It just means it's growing. I'll wait... Sigh...

  • Paxton29
    Paxton29 Member Posts: 221
    edited May 2016

    Cathy, it takes a few weeks after your last infusion to see anything. I wouldn't expect to start seeing growth until maybe 4 weeks after your last infusion. Try not to panic if you don't see anything before then!

  • Samcpa
    Samcpa Member Posts: 9
    edited May 2016

    I was getting concerned. No sign of hair last week. My last TC treatment was March 31st. I can't see anything up there but this week when I run my hand over my head I think I can feel something happening. Does wearing a wig or cap effect hair growth

    Cathytoo - Not excepting private messages?

  • Cathytoo
    Cathytoo Member Posts: 667
    edited May 2016

    Samcpa....I just saw that you were blocked from sending me a private message. I must have clicked the wrong button a while back SORRY‼️ I just unblocked you. How are you doing

  • jensgotthis
    jensgotthis Member Posts: 937
    edited May 2016

    Cathy I'm so excited you are almost done!

    My last infusion was April 20 and I define try have some growth - head feels fuzzy. It's a nice feeing to rub it lol

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