Chemo protocol for high risk reccurance

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2pyrenees
2pyrenees Member Posts: 6
edited May 2016 in Chemotherapy - Before, During, and After

Hello all - I've just received my mammaprint results which put me in the high risk category, with blue print of luminol B. I have an appt with the MO next Monday to discuss my treatment options, but was wondering if someone could tell me if there is a certain protocol that is followed with these results. Any information would be most appreciated.

Thanks so much!

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  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2016

    Julie, do you know what % er and PR you are? Are you post menopausal? I was 95% Er+ and less than 1% pr+. My oncodx was 34, but Nottingham scores were 5 and 6 respectively with 1 mitotic rate. I didn't do the recommended chemo just AI. I am fine after 4.5 years. I just didn't buy into the stats I was looking at it was like 23% chance vs 12% maybe. Not compelling enough for me to do the hard chemo.

    I went with my gut feeling on that one. A lot of people believe throwing the kitchen sink at the cancer gives you the best chance of not going stage 4. Of course, most people think their decisions are the right way to go. In reality, there is no right way. Most mo's want to minimize the chance of recurrence especially if your health is good. They do down play the permanent side effects but believe me the risk is there.

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  • Italychick
    Italychick Member Posts: 2,343
    edited May 2016

    2pyrenees it depends on the oncologist. Mine favored Taxotere over Adriamycin. She doesn't use Adriamycin unless she has no other choice, but some oncologists prefer Adriamycin

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  • 2pyrenees
    2pyrenees Member Posts: 6
    edited May 2016

    Meow - My ER % on the mammaprint is +0.01, PR is +0.26. On my initial biopsy they were each 95%. I don't know why there is such a huge difference and will definitely ask the MO when I go. I'm not sure if I am post menapausal or not. I had a hystorectomy 8 years ago. I'm pretty sure I'm going through it right now. They will be doing blood work to determine that status.

    Thank you for sharing your story with me. I'm still very undecided as to what I will do if the MO recommends chemo. My breast surgeon said the MO would go over all of the statiscal information with me but that he strongly recommends chemo it due to my young age. ( I don't tire of hearing that!) I have a large family history of cancer from both sides of my family, all different types. My mom had breast cancer at age 56 but died from unrelated lung cancer at 74. I had a 2nd cousin (moms side) die of ovarian cancer at age 43 and a 2nd cousin (dads side) die of breast cancer in her 50's. With everyone in my family who has died having died from one type of cancer or another, I've always felt I would probably die from cancer at some point and knowing I'm at high risk of it returning makes me very nervous. However I'd like to be given some really good percentages, something compelling before agreeing to chemo and all that goes with it.

    Italychick - I had a feeling that would be the response I would get. :) Thanks though for giving me the names of the drugs. I can at least research those and maybe be able to ask some reasonably intellegent questions about the therapy that is recommended.

    Thank you both!!

    Julie

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  • laura_ingalls
    laura_ingalls Member Posts: 78
    edited May 2016

    ladies.

    Just in case it helps anyone: I was given a very very high risk score and I am getting dose dense AC chemo followed by taxol probably. Taking it one step at a time. First few days after chemo were the worst of my life.

    I consulted with many different oncologists and I stayed with the one who ordered more tests to determine exactly what was going on.

    I did a complete 180 since my journey begin. At first I was very against chemo etc. but now I see it gives me a higher chance to be there for my 3 year son. I am making dietary changes as well and will continue them of course. But my oncologist is trying to cure me with the dose dense chemo. I think it will work based on my own readings and research.

    Praying for all of us.

    Laura

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  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2016

    Laura, trust your instincts and absorb your research the dense dose should kill a bunch of bad cancer cells.

    Quite a few people are doing the dose dense with good results, best wishes to you.

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