Direct Implants - After Prophylactic Mastectomy

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TMP
TMP Member Posts: 1
edited October 2016 in Breast Reconstruction

Hi everyone, I have LCIS with a 63% possibility of having cancer in the future. I have opted for a bilateral mastectomy with immediate reconstruction of which I chose "direct implants". Has anyone else opted for this type of reconstruction using alloderm? If so what was your recovery time like etc?

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  • EstelaLorca
    EstelaLorca Member Posts: 98
    edited April 2016

    Hi TMP,

    I had just one of my breasts done with direct to implant using alloderm. I am pleased with the result and in terms of recovery, I felt it took about 1 month and a half to get back to work. Again, I had only 1 of my breasts done so it's hard for to say what it would be like having both done. Of course surgery takes a lot out of you, but in a couple of weeks I was able to walk around and try to keep myself busy.

    I had DIEP on my BC side 5 years ago and had decided at the time to keep my right healthy breast. After a few years of mammograms, ultra-sounds, MRI's I just couldn't handle the stress anymore and I was a candidate for direct to implant.

    Good luck TMP and I hope you have success and a speedy recovery.

  • SissiAngel
    SissiAngel Member Posts: 19
    edited April 2016

    Hi,

    On March 2016, I had a prophylactic nipple sparing mastectomy on my right breast, with direct to implant reconstruction (the left breast had already been mastectomied 3 years ago, so I had the TE-implant exchange procedure there). My PS didn't use alloderm.

    It took me about four days to be able to lie down and get up from bed on my own and two and a half weeks to return to work (office work). Everything is still healing but now there is only a discomfort during the night because I cannot yet sleep on my side. The breast is still swollen and feels a little sore and my PS told me that the swelling could take up to six months to subside. Overall, I am pleased with the whole procedure and results.

    Good luck to you!

  • dtad
    dtad Member Posts: 2,323
    edited April 2016

    I had a BMX with direct to implant reconstruction about a year ago. I was a DD and told I could only be a full C with this type of reconstruction. Avoiding the TEs and a second surgery was more important to me than being bigger. Its taken awhile to adjust to being smaller but Im getting there....Good luck

  • BBgirl22
    BBgirl22 Member Posts: 1
    edited April 2016

    Had BMX rt side cancer left prophylactic with direct to implant. I am thrilled to have avoided TE. My PS has been using alloderm with much success. I recovered quickly. I work as a mammographer and use upper body a lot so I was out of full time wk for 6 weeks. Did have some necrosis due to thin skin on cancer side which delayed my nipple reconstruction. When I did have procedure it was outpatient and healed very nicely. They did not reabsorb totally which is a good thing! Had fat grafting too and boy that was horrible! I was not prepared for the bruising and swelling. Looked like I was 5 mo pregnant! Lipo really beats ya up. After that had photorealistic tattoo for areolas. The artist is Cathi Locati . She is amazing. http://www.cathi.ink "The Areola Architect". That was the icing on the boobs. So the latest 2 years and 4 mo from first surg one of the silicone implants has begun to wrinkle and it feels like the pocket is a bit loose. I am scheduled for day after tomorrow for more surg to exchange implants for new better model and have fat grafting from tummy to boobs. I am a nervous wreck. Hate anesthesia and was just feeling like I was getting stronger upper body. Gardening and lifting and maneuvering like I used to. I pray this is the last surgery for a very long time.

  • NattyB
    NattyB Member Posts: 122
    edited April 2016

    Hi,

    I'm having direct to implant (had previous saline implants from augmentation) sometime in the next couple weeks. He will be using alloderm. I am dreading the "no showers" for the 3-4 weeks that he anticipates the drains being in. Hoping he is a worst case scenario guy and that really means 2-3 weeks but either way - I am hung up on that. He also explained the fa grafting - and said many need that on the upper part of the breast to smooth the transition - has that been your case(s)? thanks so much.

  • SissiAngel
    SissiAngel Member Posts: 19
    edited April 2016

    NattyB, I decided to use Mentor anatomic implants and the upper part of both breasts (modified radical mastectomy left, nipple sparing mastectomy right) is very smooth and has a soft cleavage without having any fat grafting. The shape of the right breast feels more like a breast, compared to the left, because of the skin & nipple that was spared.

    Good luck to you!

  • wiseseeker
    wiseseeker Member Posts: 16
    edited April 2016

    I have been told that because my skin is so loose on my 60-year-old saggy breasts that I am not a candidate for direct to implant. Thoughts? Doctor suggestions? Info?

  • SissiAngel
    SissiAngel Member Posts: 19
    edited April 2016

    Dear wiseseeker, because my breast was ptotic, my PS performed a mastopexy (lift) during the same surgery with the direct to implant nipple sparing mastectomy/reconstruction.

    Good luck!

  • softness1
    softness1 Member Posts: 217
    edited April 2016

    I had bi lateral direct to implants back in 2012. I am so glad that I did. I did have a little tweaking down but compared to what my co worker went through I am happy I did it this way. One major surgery, that's it. My co worker had a single mastectomy and several months after that surgery she had to go back in and have another surgery for the final implants..

  • willowiris
    willowiris Member Posts: 8
    edited May 2016

    I am new here but found this discussion to be helpful. I have a high family history of breast cancer and have decided on Prophylactic Mastectomy direct to implants. I finally got insurance to say they will cover the surgeries, but am now waiting on my surgery date. I am so nervous and scared. I feel like I can't really talk to my husband or anyone else about it since they don't know what I am feeling. My husband is being supportive but he is a male and wants me to keep my breasts at the same time.


    I was excited to find these threads that have discussions from others who have gone through this same process. Are there any pointers or words of wisdom anyone can give me about this whole process or how to mentally and emotionally prepare myself?

    Thanks!

  • dtad
    dtad Member Posts: 2,323
    edited May 2016

    Hi all. I had a BMX with direct to implant reconstruction about a year ago. Im 63 and had saggy DD beasts. My PS told me the biggest I could be was a full C with this type of reconstruction. I agreed that the trade off would be one surgery, no fills and no TEs. Im not going to lie. It took me a while to get used to my smaller breasts but overall Im happy. The recovery was about 6 weeks but I also have autoimmune disease which complicates things. IMO its very important to find a PS that has done a lot of this type of reconstruction and is there for comfortable with it. Sometimes I feel PS are like car salesman and want you to have the type of reconstruction they are most comfortable with so do your research. Mine was brilliant. She is at a major NYC facility if anyone is interested please PM me. Good luck to all. I hope this helps....

  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2016

    Hi everyone,

    I'm pretty new here myself and currently waiting for my insurance to cover the reconstruction portion of my DBMX. My PS is going to try to do a direct to implant with alloderm on both breasts. My right breast is healthy but I don't want to go thru this again anytime in the future. If PS can't do direct implant then he will use the TE's to get to the desired size. He said it'd be easier to go smaller but I feel that they are taking my natural breasts I'm not giving up size too. Just me... I'm very nervous about all of this and being here has helped immensely!

  • willowiris
    willowiris Member Posts: 8
    edited May 2016

    Hi

    I am new here as well. Insurance finally approved my surgery and I plan to have the surgery all at one time- breast removal and implants. I am debating on the nipple sparing. I want to keep them but am wondering exactly how much of a risk I run keeping them as the tissue can form cancer later. I was told that there was no option to keep me at the same size, which is fine with me as I would like smaller ones.

  • NattyB
    NattyB Member Posts: 122
    edited May 2016

    Hi all,

    WenchLori, my insurance approval took about 3 days. My PS has a list of I think 10 different sized implants he will have ready in the OR. I asked to be the same or close to what I am now and he felt confident he could do that. I will not be nipple sparing since my tumor is pretty close to my nipple and given that it was ductal, it wasn't an option. He said about 50% of his patients go on to do nipple reconstruction - not sure how I feel about that but I guess I have at minimum 6 months to think about it. Personally, I just wanted to be able to wear the same clothes I have and look like myself in clothes. Joked with my husband that I'd just draw on them with a sharpie to fit my mood:)

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2016

    Natty - There are several vendors of temporary nipples and temporary nipple tattoos online.Some are at the exotic sites. :)

    I found mine thru a link on breastfree.org. The day they arrived by USPS my DH said, "Dear, your nipples just came in the mail!"

  • NattyB
    NattyB Member Posts: 122
    edited May 2016

    Farmer lucy - OMG can't imagine ordering from the exotics!! Hilarious!

  • WenchLori
    WenchLori Member Posts: 1,558
    edited May 2016

    NattyB, I wish it only took 3 days for my insurance to approve anything. It's taken 1 to 2 weeks to get anything approved! That's military insurance for you. My DH gave 20+ years in the Air Force and they give him crumbs. What a trade off!

    Shocked

  • NattyB
    NattyB Member Posts: 122
    edited May 2016

    So sorry Lori - it really isn't fair at all! Even though I was approved I'm still going to be about 7 weeks out from diagnosis before I have anything done. I feel like a ticking time bomb - I know most BCs are slow growing but in my mind every minute counts so I'm learning patience (which I don't have). Hopefully you will get all of your approvals in one shot so you will be good to go. BTW, my MRI approval took longer than the surgery one - ridiculous.

  • ml143333
    ml143333 Member Posts: 658
    edited May 2016

    I had a BMX with direct implants and alloderm two years ago in August. I only took two weeks off of work and was back. My recovery was really easy and good once the darn drains were removed. Those things are irritating in so many ways. Just make sure to follow the exercise instructions and do them even if you don't want to. I was lifting my arms over my head before I went back to work.

    Unfortunately the alloderm failed on my unaffected side and the implant shifted so I go back in on Monday to have everything removed, new implants and something other than alloderm and a little bit of fat grafting!

    I wish you all the best!

  • NattyB
    NattyB Member Posts: 122
    edited May 2016

    Yikes Ml - great that your recovery was not hard but ugh on the alloderm. Did they say why it failed on that side after all this time? And do you remember how long you kept your drains? I was told there would be four and could have them for 4 weeks:( blech.

  • Mom2Winston
    Mom2Winston Member Posts: 12
    edited May 2016

    I had a direct to implant on 4.28, was cup size B before surgery and looks like I am a size B afterwards , but fuller with more projection and not tear drop anymore. PS was able to spare both my nipples and skin. He used alloderm. ISpent one night in the hospital and was able to get in and out of bed by myself with some pain. Today is exactly one week after my surgery and I have full range of motion with my arms and even took my dog for a 45 minute walk. I started driving yesterday again. I still take my pain medication throughout the day, alternating tylenol and advil, have not taken any narcotics. I do take a valium at bedtime, that is supposed to help with the muscle tightness. Overall I feel pretty good considering the major surgery I just had last week. I'm glad not to have to go through the TEs and another surgery. And oh, I only had to keep my drains in for 6 days, had one on each side.

  • willowiris
    willowiris Member Posts: 8
    edited May 2016

    Mom2winston Glad to hear that you are doing well. I got my surgery date for May 27th! I am having the same procedure as you. I am so nervous but ready to get this done. I was wondering how long the drains stay in, sounds like 6 days isn't too bad. I am hoping mine goes as smoothly!

  • Mom2Winston
    Mom2Winston Member Posts: 12
    edited May 2016

    Willow iris: Good luck on your surgery! It will be a big relief when it is all over. And don't forget to do these exercises they tell you to do after your drains are removed. I feel much more stiff when I realize that I haven't done them for a while.

  • Hopefloatsinyyc
    Hopefloatsinyyc Member Posts: 211
    edited May 2016

    so glad to find this thread. I'm really hoping my PS will be successful in doing direct to implant with alloderm reconstruction at the time of my BMX. It's the plan, but he said there is a 20% chance he will have to go with TE- and won't know until he's "in there" and has a better sense of the health of the tissue etc. I am waiting for confirmation, but sounds like surgery will be June 23rd. So scared that it will emotionally knock me down if I wake up and find he was unable to do the planned procedure. He will be going with a 700cc implant (he believes) and I am currently a DD. I am happy to go smaller, and he said this will result in a C cup on my frame.

    Anyone else told pre-op that there may be a chance TEs would have to be used as a back up, but successfully woke up with the implants in place? I love that my PS wants me to know all possibilities, and won't do a surgery that could create more problems... But I wish he would have just said "no problem!"

  • SissiAngel
    SissiAngel Member Posts: 19
    edited May 2016

    Hi to all!

    I just wanted to post an update. I am 2 months post exchange (exchange TE with teardrop implant after a mastectomy on left cancer side and direct to implant prophylactic nipple sparing mastectomy on the right). The bruising which had formed on the right has been absorbed. The scab that had formed around the nipple incisions, fell off the skin only a week ago. The right breast still looks a bit bigger than the left and it also looks more like a breast because the skin and nipple were spared. I can now sleep on my sides without feeling any discomfort, exactly the way I used to before reconstruction. I can move my hands and lift household weights and do my chores just as before (but I am still not overdoing it). I like the fact that the teardrop implants are firm and I have never felt them move around. The right breast feels harder when squeezed, whereas the left breast feels softer, probably because of the thinner skin and the lack of fat on the left. I even did the flashlight experiment. The left breast was bright and red, when lit, with small veins going through the skin, whereas the right breast could barely be lit by the flashlight and large veins were going through there.

    As a conclusion, I suggest to everyone who is given the option, to have a skin & nipple sparing mastectomy. I love my right breast, it feels and looks as though I had a cosmetic surgery to it and not a mastectomy. My left breast which had to go through a modified radical mastectomy and then TE placement, is just OK. Maybe if I had fat grafting (which I did not) it would be better and it would look more like a natural breast.

    Be and stay healthy!!!
  • FLBuckeye93
    FLBuckeye93 Member Posts: 87
    edited October 2016

    This has been a very helpful thread. Does anyone know if Alloderm can be used with a breast that has had radiation?

    I finished rads last spring, and have since been diagnosed with LCIS in my other breast. Trying to decide if I should have a bmx or just be closely monitored.

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