anyone else with Osteoporosis?

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ruffy
ruffy Member Posts: 141
edited May 2016 in Bone Health and Bone Loss

I went in for my oncologist appt yesterday, mammogram clear (ya!) but she did tell me that i have osteoporosis and was shocked at the degree that i have it. Im 42 and am a little shocked myself. I will be getting zoladex injections two times a year. i guess its a combo of chemo, ovary removal, tamoxifen and now arimdex. just wondering if any one else has experience with this and has any helpful tips :) i've also shrunk 2 inches! :(

thanks!

Sara

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2016

    I had a total hyst/ooph and became osteopenic, but stable, nine years before breast cancer diagnosis. Hard to say if the lack of estrogen caused this as I also fit the physical profile for this. During that time I did try the oral meds but could not tolerate them due to a previous reflux surgery in '95. After chemo and six months of Femara I had a DEXA and was right at the osteoporosis measurement, so had definitely worsened. I get a Prolia injection every six months and after two years my DEXA showed density in the normal range. I don't have any side effects from the injection, but am advised to take vitamin D and calcium as well.

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  • ruffy
    ruffy Member Posts: 141
    edited April 2016

    thx special k, :) hope you are well. :)


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  • savgigi
    savgigi Member Posts: 376
    edited April 2016

    I was on Femara almost 3 year, making sure I took plenty of calcium and Vitamin D and getting weight-bearing exercise. I started treatment with a normal Dexa scan and was relieved to find it was still normal after 2 years of an AI. Then I had 2 small fractures and my PCP says I have osteoporosis no matter what the Dexa scan is - that the fractures trump the scan. So now I am on Boniva and recently stopped the Femara because of the osteoporosis.

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  • edwards750
    edwards750 Member Posts: 3,761
    edited May 2016

    I haveborderline osteoporsis. I take Calcium+Vit D, Magnesium and a nose spray all in an effort to keep my bones strong. So far, so good I guess.

    Diane

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited May 2016

    ruffy - hey! It is good to "see you" and it seems a long time since us Feb '11 gals! I am doing well, having surgery on 5/17 - hopefully the last recon - lost my left implant about 18 months ago after a repair surgery, so finally had a new TE and will now exchange on the left and downsize the implant on the right. Other than that, just about at five years on AI drugs - had a BCI test, which showed high recurrence risk but low drug benefit - MO wants me to stay on Femara if I can tolerate it, so I will, but I think we will re-visit that decision annually from this point on. Are you doing ok, besides the osteo issues?

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  • ruffy
    ruffy Member Posts: 141
    edited May 2016

    Hi Special k! yes, i am doing ok. went off my tamoxifen at year 4, started the femara jan and onc wants me on it for another 6 years. Glad you're ok and hopefully yes this will be your last surgery. you've had quite the journey! i'll be thinking of you! xo

    thanks everyone for your feedback. getting bloodwoek done tomorrow and will get zoladex twice a year.

    <3

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