Cancer as a Battle
Brandall posted this article on her facebook page and it is excellent. The web page is tricky and won't pull up all of the time but here is the link. I hope it works!
http://nypost.com/2016/04/24/stop-telling-the-lie-...
Comments
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Thank you for sharing that. I loved that article.
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Good piece. The "lost her/his battle" in the obits and death notices is a tired, worn-out cliche that implies the wimpy deceased just didn't try hard enough.
Talk about adding insult to injury!
If anyone writes that about me, I swear I will return to haunt them.
Tina
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I've been reading many articles denouncing the battle words. The implication being, you didn't "fight" hard enough. You weren't strong enough. You weren't positive enough. I'm definitely not in agreement with that train of thought.
Before being diagnosed with BC, I struggled with RA for 32 years. Thirteen years ago, I contracted flesh eating bacteria and almost lost my life. Three years ago, I was diagnosed with triple negative and her2 breast cancer, I started a blog called beppysfight. This month I've been diagnosed with TN metastatic BC - mets to lung.
In my eyes, living a good life with pain has been a battle for me. The word "fight" for me has always pertained to my fight between my mind and body. I'm constantly fighting the crazy thoughts of progression that creep into my mind. At times, I fight with my mind to get out of bed and get my body moving. The conversation between my mind and body is frequently confrontational. I fight daily to find something beautiful and positive in the world. I fight daily to be grateful for all the extra time I've been given. I fight daily to chose love and kindness over bitterness. Some days I'm successful, some days not so much. I am human after-all.
As it pertains to my life, I don't feel like I'm battling cancer. Although I must admit, I wouldn't mind hitting it with a big stick and smashing it into oblivion. I'm fighting the disagreement with my body and mind. My mind wants to run, dance and sing at times. Unfortunately, my body won't co-cooperate. At other times my mind wants to shut down, and my body is a willing participant. That is my best description of the battle or fight for me. Maybe when my mind and body reconcile the fight will be over. Does that mean I've lost my battle or fight to cancer? In my mind, no.
Sorry for the rambling. I just wanted to point out it's not always about the disease for me. It's about reconciling the mind with the body. Something I freely admit has been a struggle, fight, conflict or battle for me.
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Hm....I just followed a link earlier on a completely different, non cancer relate website that took me to an article about an interview of the woman who wrote this book, A Series of Catastrophes.... and it intrigued me, so I went on my library website and placed a hold on the book. Thanks for sharing, Kay.
Slowdeepbreaths, you have really been through so much! My goodness. I admire your continuous determination to always move forward. Btw, the Japanese proverb in you signature is one of my very favorite sayings.
~Camille
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very much.
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Thank you for this post. It is so true.
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It really touched on a lot of how I feel about the whole battle terminology, which is to say I loathe the statement "She lost her battle with cancer". Loathe.
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It's no shock that some of us choose to write our obituaries in advance. I have, and while I don't think much about it, am glad I put down how I'd like it to read. It will say "Mrs. M. was diagnosed with stage iv breast cancer in 2011 and continued to live bravely with the disease for -X-number of years until her passing."
Or, if I get hit by that proverbial bus first, I guess it could read "lived bravely with the disease for X number of years then got hit by a bus."
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Mrs. M, too funny !
I have been writing my obit in my head for the last few weeks. Dx stage 4 a few months ago.
I want mine to state I died of Metatastic Lobular BC. No battle, no warrior analogies. Just the simple facts.
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DivineMrsM - I love that wording! Would it be okay if I "borrowed" it to use as well? I hate "lost her battle", but what you have is a perfect solution to that.
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Not sure but I never missed a beat . I keep plugging a long pain what pain. Both breast gone no pain meds afterwards 7 days from work and back I went. Yeah I was stupid.
The only thing that brothered me and made me run is when my boxer looked at me like a new toy ,six hanging drains. He just didnt get it he had to sit on my lap.
Now what is pissing me off is the wait game. Lets see what happens . Just one more month on a drug that has'nt been out long enough to know long term effects or what happens to the cancer, if you can no longer take it. What then. How does it effect the response to other meds given.
Why are some taking duel or three treatments and others are not. Why some standerdized care but just some. Why are we started with certain drugs first.
Why not start off with the good stuff first . Whats the methodology in cancer. String it along and watch it grow.
Study the cancer as a group yes but also individually .
Seriously to much wishy washy BS for my standards and that is what matters. Its not the story after the fact but the team and people here that have fought tooth and nail to keep our asses alive. Crying does not help anymore tears can barely fall from my eyes. Except to hear how someone anyone is still losing their lifes to cancer.
4x cancer fighter yeah a stage 1 with skin mets. Hmmm
Fight on all. Show those teeth
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The conversations in this blog are so amazing! I identified, laughed, nodded or shaked my head with each comment above. This is such a great group. My hubby is starting to wonder if I'm OK lol. Cybernetic hugs to all.
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Nbnotes, you are more than welcome to use the same or similar wording.
When the phrase "lost the battle" is used, it sounds like every day dealing with cancer was a struggle, a fight, and that in the end, the cancer won. That's not at all how I would describe my life since being diagnosed stage iv. Yes, of course there are challenges, however, I chose to see myself as living with the disease, not dying from it. The obituary wording might help inspire others and it sounds much more victorious.
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Wow didn't know everyone hating the term lost the battle too! It always upsets me when I here it. Even before my diagnosis. It definitely implies that the person didn't fight hard enough but those still alive are doing a better job. Lets see if we can make a change in the verbiage.....
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Here are my random thoughts. My immune system is probably fighting cancer cells along with other invaders in my body like infections, illnesses, whatever. I have no hand in that process. I am not participating in any battles. It just happens. Cancer is in my body, but it is not in my soul, my emotions, my very being. I continue to live my life, enjoying the good times and suffering through the bad ones. I continue to love, to play, to dream, to share, to travel, to live my life the best way I can. In the end, my body will certainly die, but I hope that bits and pieces of my ideas and love and dreams will live on through those whose lives I have touched. My belief is that cancer will not win a battle or anything else.. Why? Because when I die, whatever the cause, all those nasty cancer cells will die right along with me. There is no victory in that. TAKE THAT, cancer!
Lynne
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Wonderful input! Slowdeepbreaths, your description of how your feelings vary day to day and the manner in which mind and body are not always in synch resonated deeply. Your perseverance and resilience are outstanding, and will continue serve you well in the years to come.
Divine, your point about writing one's own obituary is well taken! It was a relief to complete mine, as I know that no one will describe my experience with cancer as either a "journey" or a "battle."
Brandall and Kay - thank you for opening discourse about this intriguing topic!
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Sorry about the rant. I totally am confused and dumb founded by it all sometimes.
Im always trying to hang out here or there. I just started the ibrance and falosadex. I do not know why Im not responding to other treatment. My cancer changes back and forth . Skin mets . Now nodes on the opposite side.
But anyways Thank you all for being cool,
classy , informative and caring. The list can go on and on add to it and pass it on . Big hugs
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Funthing, There is no need for you to be sorry. Everyone here would agree that cancer sucks. We all need to rant once in a while. We are in a scary place, and we all become frustrated at times. It sounds like you have been going through a difficult time. We are here for you.
I will include you in my prayers and hope things get better soon.
Lynne
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Mrs. M, Thank you for your kind words. I liked your obits! The bus obit gave me a good chuckle.
Bestbird, I appreciate the encouragement. Thank you so much for your wonderful Insider's Guide. The information you've compiled is so helpful!!
Funthing, I think we deserve a few rants.
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To that article I say, "Amen." No "battle" or "journey" for me.
P.S. to the obituary: "And it wasn't her fault."
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I've been living with cancer for a really long time and have never forsaken my pacifist status.
Yes, I acknowledge there's a war going on around me, have heard treatment called, "slash, burn and poison", but I don't use those metaphors for what I've chosen to help my body heal and live well.
Wellness, wholeness, healing, living are my guide words.
The closest I come to battle is the warrior pose in yoga - I set my focus and gather strength from earth and heaven to claim my place in the family of humanity, of all life.
There are many ways to "do" cancer. I feel fortunate to have chosen the metaphors that work best for me. And to have healing artists who've helped me achieve wellness, wholeness, healing and a good long life, even while living with cancer. Even while living with a dying body.
Just a thought from another one living outside the dominant paradigm.
Be well, my friends, Stephanie
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Hi Stephanie,
I had to shed some light on an internet kitty pic this morning and now I'm going to open my eyes to the way I speak about cancer. I currently am at war but will open to your picture of this.
Thank you so much for sharing with a newbie like me, your posts have been warm and comforting.
cb
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Hi CB,
It's possible to change how we image this from:
"I am fighting against cancer, I am fighting against dying and death."
To:
"I am fighting for my life. I am fighting for health and well-being."
Yet, when we're down and out with disease and treatment, the fight is hard to keep up.
And also, I'm not sure how healthy a long-term fight is for anyone. Definitely isn't for a pacifist like me.
xxx
As a cancer fight song goes, this is one of the more truthful and funny ones,
Saffire - The Uppity Blues Women - Bald Headed Blues
"I didn't battle cancer, yeah you know it battled me"
https://www.youtube.com/watch?v=sNaW6FyiJRI
With a smile and a hug, Stephanie
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Damn, I love that Uppity Blues Woman lyric!
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Cute as hell! I had to fave them so I can watch more later.
I'm mindful that I'm in the stage IV forum and contentious as all get out, so I think I'll get out of this thread.
cb
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Love it. Thanks for the laugh.
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Wonderful video! Made me smile, too.
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I want my obit to say "GG lived well, in spite of MBC"
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