April 2015 Chemo Crew... Starting in April? Please join us!

Options
1198200202203204

Comments

  • GingerChi
    GingerChi Member Posts: 252
    edited April 2016

    NikNak, Big hugs to you! I had Taxol, and no experience with Taxotere. I hope your treatment goes well!

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2016

    Nik Nak, I had Taxotere back in 2013 and Taxol last year. I felt bad with Taxotere on days 3 and 4 and then had a bad taste for about a week. I never had nausea, but did have bone pain with it. Sorry you're goign through this again.

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited April 2016

    Nicnak, I did taxotere and carbo (after 4 rounds of a/c). Similar to kbee, my mouth issues and bone pain were the worst of my s.e. No nausea...but eating with my challenged mouth was problematic. Lots of smoothies. I did infusion every 3 weeks and was pretty good for at least half that time. So sorry your going back for more treatment.

  • Rpayton
    Rpayton Member Posts: 235
    edited April 2016

    Oooops have missed a lot the last week or so. Busy, busy, busy in a good way. Spring is here! Yard work has begun.

    Dizz sorry about the Chicago cold. It changes here fast! Sunshine and almost 70 today but cold rain and frost threat the next couple days. Bring the sun and warmth!

    Saw my radiation oncologist for a 6 month post rads checkup. All good so far. He stressed exercise and lots of movement. He will continue to see me once a year for 5 years.

    Speaking of hot flashes, aches and pains! Hot flashes are a bit better on effexor. My right foot still having pain on the ball and my second toe starting to roll under my big toe, frustrated. It has been 8 months since last chemo. Not sure if I should see a podiatrist yet but thinking I might. Scared I could be ignoring something that needs attention. But so tired of appointments too! :-(


  • GingerChi
    GingerChi Member Posts: 252
    edited April 2016

    Susan, same here for Zumba and ROM especially. One day a week is a mixed cardio/toning class and I use super light-weight zumba sticks....its helped tremendously! Balance has improved too!

    Sorry about your foot issues Renee! I hear ya on breaking in a new Dr. I'm so sick of constant medical appts, and seeking out new doctors. Due to Herceptin being on hold, I'm medical appt free until May 16, which is a 4 week break for me...... the longest since Jan 2015!! YAY! lol

    Its a rainy Friday here...hope everyone has a good weekend in store!

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited April 2016

    Hey y'all. Once again at airport on the way home. This was my first solo trip...Boy was I lonely. Good reports from all. Colonoscopy all clear....if you don't count the little hemorrhoids the GI dr. found. Guess all the constipation during chemo has it's lingering effects. Comingbback in a month for nipples tattoos and to meet with psychologist to discuss some short term treatment that might help with all the lingering effects and anxiety. Hope all is well with everyone. Off to board.

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited April 2016

    Also had accupuncture for first time. Hmmm. Not sure it's for me. May or may not try it again. Anybody else try it and learn to appreciate it?

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2016

    I have not tried acupuncture but am interested to hear if it helps. Sounds like all went well at your appointments.

  • ksusan
    ksusan Member Posts: 4,505
    edited April 2016

    Good news! I like acupuncture but not sure I would feel safe getting it on my arms or torso at this point. Ears, maybe.

  • Fran2014
    Fran2014 Member Posts: 140
    edited April 2016

    Hello All- I know it's been quite a while since I last checked in but know that I would "drop in" to view posts from time to time to see how everyone was doing (and often to get a quick chuckle-you gals can be a very funny bunch of women!). Anyway, after truly giving it deep thought and prayers, I decided to that you women are strong, funny and truly loving, compassionate people so I hope you will forgive me for not keeping in touch for the last several months. Unfortunately, I have hit another "bump in the road" on my journey. I was back to work, finished the Herceptin/Perjeta at the end of December. All looked good on the Dec. PET and the port and "cyst" removal (small little booger in the middle of my new boobs) was scheduled for early April. PS goes to take everything out and thinks it looks suspicious so he removes it and two tiny growths adjacent to it IN my skin (he choses not to remove the port- Thank Goodness). Well, as you can guess-sucks for me. Her2+ rears its ugly head once again. I have to say, this time it hit me hard as I was approaching the damn "finish line" once again. PLEASE, PLEASE don't let this scare you as I know so many of you are doing so well and I could not be happier for you all!!!!!!! You know me-I'll take this one day at time and keep plugging along. Good news-It has stayed "contained" so that's a huge plus for me. It is in the skin embedded within my new boobs (yep, even the new pair sucks!) and in some lymph nodes under my chest wall. Starting Herceptin/Perjeta again on Thursday and then I think Proton Radiation sometime next month (all I keep picturing is the Drs. will all be wearing Superman costumes!!). I'm also waiting to see if I'm going to be accepted into a clinical trial- a Basket Trial which targets my specific DNA (sounds pretty scientific). Anyway, I hope you will not mind if I stick around a bit b/c you all make me laugh and quite honestly, that's what I need right now. SO MANY of my friends and family have been giving or sending me their "recommendations" of treatments/doctors/holistic/"essential oils"/foods to eat/foods to avoid- it's driving me nuts!! You gals have been there I'm sure. I know everyone is trying to help but DAMN let them walk a day in our shoes! Again, so sorry to be such a bummer and know that I do care and think of you often and it makes me smile to know that our April Chemo club is a year old and thriving!! Love to you all, Fran

  • AndreaC
    AndreaC Member Posts: 220
    edited April 2016

    Fran, I am so sorry you have to go through this all over again. Big hugs!!! I know what you mean about well-meaning people offering advice. It is astounding how they come out of the woodwork. It is your journey and yours alone...

    Nic, so sorry about your recurrence. Cancer sucks. This is such a great, safe place to vent though...so vent away. I was on Taxotere as well, and had similar experiences to Kbeee. Worst days were 3 and 4 after getting chemo...extreme fatigue and brain fog. Then the mouth sores and it felt like my mouth was coated and I couldn't taste properly. I had nausea after the first cycle and threw up a couple of times but after that it wasn't bad. Make sure you take Zofran! Keep us posted re your progress.

    Andrea


  • weRwarriors
    weRwarriors Member Posts: 33
    edited April 2016

    Hello everyone,

    April has been a tough month. My mom (53) starts her chemo Wednesday April 27th with neulasta on Friday. She has 4 rounds of AC (every 2 weeks) then 4 rounds of taxol followed by surgery, radiation and a year of Perception mixed in there.

    I am a nurse and I am trying to get her prepared and prep everything for possible side effects... I am beyond overwhelmed. I'm hoping her healthy life style and good immune system helps her during this time. I am so scared but I have to have faith in this treatment plan.

  • ksusan
    ksusan Member Posts: 4,505
    edited April 2016

    I'm sorry, Fran.

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited April 2016

    I have been doing acupuncture once a week since chemo. My practitioner is also really good with herbs and supplements, which has been ever changing since new symptoms keep coming and going. I find the acupuncture really helps with hot flashes and joint pain.

    Is anyone on Prolia? My insurance has denied it I think because I am not yet on an AI. They have approved Zometa. Anyone in that? Finding out that I have osteoporosis in my lumbar spine likely due to the Zoladex was a blow I'm still recovering from mentally. It seems that every treatment intended to protect us comes at a cost!

    Here's a chuckle for you - I found a hard pea sized lump at the edge of my reconstructed breast the other day and immediately started freaking out. I already had an appointment scheduled for a 6 month check up next week, so I decided to hold my breath a wait. So two days later I wake up and guess what? The hard lump has morphed into a giant zit! Likely due to our hot weather and sunscreen! The worry never ends!

    Still have a fairly large open wound from my March 3rd stage 2 reconstruction that I have to pack with gauze 3 times a day. My PS thinks it will eventually heal on its own, but this is getting old. Ready to move on as much as possible

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited April 2016

    Fran so sorry to hear about the cyst turning out to be more than they thought, but glad that they did take it out and identify it so you can get the treatment you need. I can imagine that this news has been challenging. We are here.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2016

    Hey Fran! Sisters forever. We got your back, lady. Sending giant prayers, and I am so so so sorry you have to go through this. Again.

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2016

    Fran, we are glad you've found your way back to us, but so very sad for the reason. Please do keep us posted on how things are going. I've been thinking about you. Hate that you are dealing with this crapagain.

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited April 2016

    Fran, so sorry to hear this. We are here for you as you navigate this.

  • Rpayton
    Rpayton Member Posts: 235
    edited April 2016

    Fran, I am so, so sorry. That totally sucks! Very glad they explored this and figured it out. I hope they can get you into the trial. I had Her2+ too and just finished last Herceptin this month. I will be praying that more herceptin turns this off for you. So glad you are here again with us and checked in. We are here for you to vent and this group will definitely make you laugh. Throw that cancer right out the window ain't no one got time for that crap. Keep us posted. Sending warm hugs. Go eat cake, it is somebody's birthday somewhere!

  • Fran2014
    Fran2014 Member Posts: 140
    edited April 2016

    Thank you all so much!!! Doing a bit better now that the initial shock has worn off and we have told the kids. I will keep plugging away at this-taking it one day at a time. I truly appreciate the support, humor, compassion and camaraderie this group brings to each of us. Thank you for "welcoming" me in with such warmth and understanding.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2016

    owwwwwwww! Sorry, just need to whine. I had no idea that the turmeric, white willow, and green tea I take every day really was helping with post chemo pain until today. I am having fat grafting on Thursday, so nothing that might inhibit clotting, including my beloved anti inflamitorys. Owwwwwww! I feel like I have been beaten with sticks :(,wonder if there is some kind of rebound effect now that all the goodness is out of my system?

  • ksusan
    ksusan Member Posts: 4,505
    edited April 2016

    Bummer. Should I assume white willow has salicylic acid?

  • Stephmoen
    Stephmoen Member Posts: 563
    edited April 2016

    I'm so sorry Fran you are a beautiful strong woman and in my prayers

  • GingerChi
    GingerChi Member Posts: 252
    edited April 2016

    Sending hugs and prayers your way Fran!

  • ThePrincess
    ThePrincess Member Posts: 424
    edited April 2016

    Oh Fran, that is super sucky But I'm glad he was proactive and took care of it!

  • GingerChi
    GingerChi Member Posts: 252
    edited April 2016

    Dizz, glad you got good reports! I've never tried acupuncture, but have been interested since I've read it can help neuropathy, is that why you had it?

    Scarlett, glad its helping you! Joint pain, hot flashes, all driving me bonkers!

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited April 2016

    thinking of you, littleblue, for tomorrow's procedure

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited April 2016

    Thank you Positive! Ok, going in for fat grafting at 0930 tomorrow! It will be fine. It will be fine. It will be fine.

  • ksusan
    ksusan Member Posts: 4,505
    edited April 2016

    Thinking of you.

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2016

    Scarlett, I am on Prolia.

    Fran, do you have plans yet? Thinking of you.

Categories