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  • bikefam
    bikefam Member Posts: 127
    edited April 2016

    Fluffy: Everyone is so different. My PS prescribed physical therapy for me 5 weeks post exchange. My implant seemed to move around as I was stretching. He also okayed me to go back to swimming at that time-said maybe the exercise would make it drop. He mentioned massage to help as well, but didn't say how and I didn't ask. The thing that surprised him was that my non-mx side, with an augmentation, dropped right away (within 3 days). That's a big reason why I look so uneven. Both sides were originally the same height.


  • Anniekay80
    Anniekay80 Member Posts: 127
    edited April 2016

    Been gone from these boards for a while so trying to play catch up. Only 15 more sleeps until my exchange and I get to join the squishy club. I seriously can hardly wait. My final fill was 3 weeks ago and they have done their job of stretching the muscle because now they move back and forth and up and down, sliding across my ribs. It is the strangest sensation. While sleeping on my side, I wake up in pain and have to switch sides. So, a lot of interrupted sleep and the fatigue from my BMX has never really gone away. But, I lead a sedentary lifestyle before BC and now with the fatigue and continued muscle spasms I'm leading whatever is lower than sedentary......slug? LOL

    But this slug had to get moving for better or for worst. My DH who in July 2015 had heart attack/CABG x4/stroke/1 month hospitalization/3 months outpatient therapy and had a miraculous recovery, recently started having cardiac issues again. At only 9 months after his surgery, we just found out 3 out of his 4 bypasses are clogged. He is scheduled for an ICD placement 6 days before my exchange. He can't drive until he has his followup at the 1 week mark which is the day after my exchange surgery. So for 2 days neither one of us can drive AND my hospital/surgeon is an hour away. We are lucky our oldest daughter can get time off work to drive us to my surgery, and then our younger daughter is taking my DH to his followup appt the following day. In between all this he has other appts and I have to go with him to interpret the medical lingo etc. So, busy busy busy...

    So the good news is I'm keeping my mind off BC, but it's not exactly for a good reason. I keep praying that things will start getting better and maybe even easier....... But I know we are lucky cause I take care of him and he takes care of me; we're a team! At least it is starting to feel like Spring here in Michigan. Its supposed to be 70 degrees and sunny this weekend....yeah!!!! Gotta look forward and try to find positivity wherever I can these days. Sunshine and warm weather......hopefully Spring is finally here to stay.......that's miracle enough for me.

    Cyber hugs to all....

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    I saw my PS today. The plan, as long as BS agrees, will be to schedule the prophy umx on my remaining breast and TE placement. Do about 6 weeks of fills and do the exchange on both sides at the same time. Yes! He said my TE looks great despite radiation!

  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited April 2016

    Huello everyone. I wanted to a dress Staceysue. Did you consider the fact you can delay the exchange for a while? Once everything is healed you could wait fir the exchange until you have been ack to work fir awhile. I know it's not ideal but it is a while option. I had one expander in for almost 2 years due to problems with my other ide. My PS aid some had been n for ore than 3 years. Your PS could also withdraw a bit of your fill to make them more comfortable for you. Something to discuss with your PS but perhaps a way for you to handle that?

  • kingster
    kingster Member Posts: 333
    edited April 2016

    I was just diagnosed with elevated "prolactin" level. It's causing problems with my periods and other things like pelvic pressure. I read that chest wall irritation could be a cause. Has anyone had this diagnosis after implants placed? I am to see an endocrinologist now. Another doctor added to the mix:/

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited April 2016

    Thanks, Moonflower, that is what I've decided to do. I applied for a job last week and they called and did a phone interview and I should hear from them Monday. I was honest with them about the fact that I'm going to have to be on light duty another three weeks and then have an exchange surgery maybe this fall. I assured them I'm not sick, I won't be calling in all the time, I'm not dying, I don't need chemo. It is so frustrating how long all this has been taking and the toll it's taking on my career. I told my new PS I thought I was big enough and I just want to get the implants and be done with it and go back to work but he said I'm rushing things and we need to just slow down and make sure I get the results I want. He doesn't think I'm big enough, thinks we need to slow down. GRRRRRRRRR

  • kingster
    kingster Member Posts: 333
    edited April 2016

    Staceysue, how much fill do u have now? I know that frustration. I am also a nurse with long hours on my feet, very physical and mental too. I took 2 weeks off after exchange with no "pocket work" or drains. I was off 13 weeks between all 4 surgeries total. It takes a big toll on finances and just everything. I had my tissue expanders in for 8 months total. I had to have the left TE replaced 6 weeks postop...so that put me behind. This process is rough to say the least...but life must go on. I had 700 ml total, and I'm a C cup now. (I wear a size 14/16). If you go too small, you might look like a flat hamburger bun...don't want that. I worked with my TE's in. I couldn't sleep and it wasn't fun...but I made it through.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2016

    Stacey - it is important to remember that you lose volume with exchange because the implant does not have a hard back like the TE and doesn't push forward and provide projection in the same way. So if you are happy with your current size in an expander, it is important to note that you will look smaller than that after exchange, as kingster noted above. This is most likely why your PS doesn't want you to rush and is indicating that you should continue to expand so that once you exchange you will look as you do now. I also echo that you can keep the filled expanders in place for a period of time if you wish to return to work now. I had the left in (after it was replaced the first time) for just over 7 months, the right for 16 months. With my new left expander it will be just over five months between placement and exchange, including the couple of months between last fill and surgery.

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited April 2016

    I'm a size 12 with a 38 inch rib cage and I think right now I have about 500 or so in. I can't remember. I thought I looked fine in the mirror but saw pics of myself today and can definitely see I need to go larger. I'm getting quite a lot of stretch marks already. Kingster, do you like your size now?

    I had no idea what a marathon this would be. I'm glad the PS I have is honest and somewhat firm. I've been in such a hurry to just be done with things that I'm sure if somebody didn't put their foot down I'd make decisions I'd regret later.

  • Fluffygerbillips
    Fluffygerbillips Member Posts: 27
    edited April 2016

    staceySue, I lived with 1100cc expanders for 16 months. It's not ideal, they are uncomfortable but I lived a completely normal life. I have to say, my exchange was a PIECE OF CAKE, I imagine because I was so thoroughly stretched. I honestly had only a day or two of down time. I know the feeling of urgency to get it all over with but your surgeon is right, you don't want to rush it, get it right the first time!

    Your implants will definitely look smaller than your expanders. I am a size 16 & I have 800cc saline implants over filled to 1140cc so they are firmer & give better projectionthan silicone or normal saline implants. Even so, I look like I'm about one cup size smaller after my exchange... so keep that in mind. I think I've finished up at a 38DD

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited April 2016

    Fluffygerbillips, thanks for sharing your experience. It's good to hear. I didn't know they could overfill that much! If you could do 16 months with expanders that large in, I shouldn't have any trouble. I was a DD before and I don't think I'd want to be that big again....but I'm terrible at looking at myself and knowing what's proportional and what isn't.

  • Rebecca54
    Rebecca54 Member Posts: 78
    edited April 2016

    Hi Ladies, Long time no see. So nice to see more people moving to the squishy side! Ahhhhh. I had my implant surgery on 10/7 and breathed a sigh or relief because I felt like the marathon was over. I convinced myself I liked the hamburger buns on my chest. Actually they look good in clothes but if I'm wearing a thin bra and a t shirt they look "lumpy", just not smooth, especially the left. The PS said he would like to do more fat grafting, actually 2 more operations, and the final he would suck out as much fat as I want him to. I am wondering if I need to replace the implants vs all this fat grafting. Does anyone have experience with replacing? I do wonder if I need both. I guess there's not much of anything in between in implant and the skin so you get a few bumps and my pecs are such that I can make the implants dance! Would fat grafting fix that? I hate thinking about another operation or 2 but also think I want to be a little happier with what I have. And I'm not even thinking about meeting with Vinnie until I know what the long term game plan is. xoxo, Becca

  • NJsurfer
    NJsurfer Member Posts: 21
    edited April 2016

    Gals - I am also 6 months out and I can't be more of a billboard for early PT. I know this depends on your circumstances but I had an exceptional breast surgeon and plastic surgeon but neither one of them offered proactive advice regarding PT. I think the surgeon cares about the cancer and the plastic cares about the appearance but only we own our own flexibility and strength! If you are in this situation make sure to chat with friends about PT. The docs seem quite conservative about it which I can understand but it does make a difference in my opinion!

  • mvspaulding
    mvspaulding Member Posts: 446
    edited April 2016

    I had my exchange surgery on the 7th and everything went great. I had very tolerable amount of pain the first couple of days and only had to use Advil after that. I am returning to work tomorrow and feel I should do ok with it. I am not unhappy with the way they look now and I realize that they will look better without the stitches and would glue. The only part that bugs me and I discussed with my PS before is I have what I lovingly call side boob. It is just a swollen fat pocket I guess in my side even with my breast. I thought they would be taken care of with exchange surgery but it is still there. PS thinks it will go down with time but I have had it since my BMX. Does anyone else have this problem?

    Also, just wanted to add that my PS didn't overfill my expanders because I was having a lot of pain with fills. I was a DD before and I went down to a full C. My implants are 550cc. They seem to fill out my skin quite nicely.


  • kingster
    kingster Member Posts: 333
    edited April 2016

    Staceysue, I have 700 ml silicone and I'm a cup (but more shallow than a natural breast).

    Has anyone heard of elevated prolactin levels caused by breast reconstruction or implants??

  • Fluffygerbillips
    Fluffygerbillips Member Posts: 27
    edited April 2016

    StaceySue - your plastic surgeon is the most qualified to tell you what's proportionate for your body so I'd take his advice! As for the overfilled implants, that's as high as they'll go. I'm a size 16 so I needed bigger implants than they make just to get a proportionate size. It was a loooong haul trying to find a solution to the problem of 800cc implants being the largest FDA approved. A lot of plus sized women are in the same boat.

    Rebecca - my boobs dance too. I've been told that fat grafting MIGHT help but mostly it is what it is. We don't have any cushion over our pecs to hide their movement. I'm getting my nipple reconstruction on Wednesday but after that I'm going to talk to my PS about fat grafting. I don't have any lumps but one is smaller than the other. Hoping we can make some minor adjustments. A little lipo would be a bonus LOL.

    mvspaulding - I also had the side boob but it went away completely once my implants dropped & fluffed... Well, I have a tiny bit left on one side but that side is a tiny bit higher than the other still so I guess it makes sense. Anyway, I wouldn't worry about it just yet.

    Kingster - I have not :(

  • mvspaulding
    mvspaulding Member Posts: 446
    edited April 2016

    Thanks. I was hoping it would mostly go away.

    I have not heard anything about prolactin levels either.

  • RAK1
    RAK1 Member Posts: 240
    edited April 2016

    Hello everyone,

    There is HOPE!

    Well I am happy to say that I am having an exchange of implants!

    June 17th I will have these complications resolved I hope and pray!

    I have a nasty case of Capsular Contracture which is causing a whole set of other issues.

    I also have Dynamic Deformity which also have it's set of issues.

    I am so grateful!

    Robin

  • JessieJake
    JessieJake Member Posts: 233
    edited April 2016

    kingster, your post caught my attention. before I replied I looked up info on high prolactin levels and cause. I was able to find articles that referenced chest wall irritation from surgery, TE placement or implants causing this and secondly I found articles about mastectomy surgery causing it.

    The reason I was curious is because I'm 8 weeks with no period - basically since before my BMX. I was pretty much clock work prior to surgery. At this point I think I'm right in guessing it's hormonal, which is what I was suspecting. For some time after surgery I had rushes of that milk "let-down" feeling you get from breastfeeding. Even now I still get rushes of some sensation periodically. I explained this to the NP at one of my fills and asked if it was possible my body was acting as if I was breastfeeding or pg - hence no period.

    While she might have heard of other women experiencing the let-down feeling she didn't know if it would cause my delayed period. She assumed I might be pg! I'm so not pg. I see a different NP tomorrow. I'm going to ask her.

    The one article said in a study that they found high levels in some women for a few months after surgery, one woman was still elevated at 6 months.

    Oh, someone posted this same question in December 2015 on here. I don't think anyone responded, though. But may mean there are others!

    I'll be curious to here what you learn from new doctor.

    Good luck to you

  • kingster
    kingster Member Posts: 333
    edited April 2016

    Jessie, thanks. If there is no other cause found, then I will assume it's the implants. My periods have always been regular also. I wouldn't mind just missing periods, but I also have the fatigue, cramps without a period, slight nausea, and headaches frequently as well. These implants may have to go, because I really do feel quite crappy. I have had the implants in for one year. Pituitary tumors cause this too. I see endocrinologist in a couple weeks.

  • JessieJake
    JessieJake Member Posts: 233
    edited April 2016

    kingster, well the PA I saw today couldn't confirm anything but chalked it up to stress from surgery, but not her field either. She said I could wait a while to see if my period returns on its own. It's interesting you mention phantom cramps, I swear I had these twice recently but nothing happened. I can't say I've noticed other symptoms.

    I did see the mention of pituitary tumors, too

    Boy, after all this I hope you can find a solution that allows you to keep your implants.

    I may check to see when my next physical is and follow up on it then if I'm still in the same boat. I mean it's not bad to not have deal with periods but I did see a mention about osteoporosis. Guessing that come from people dealing with it for a long time.

    Please post what you learn in a few weeks if you can!

  • kingster
    kingster Member Posts: 333
    edited April 2016

    Jessie, I will PM you when I find out anything. My gyne at my annual ordered these labs because this is a change from my normal. Also, ovarian cancer is in my family history, and I believe he is being very cautious. He did tell me that "prolactinemia" is not a normal part of menopause. I am having an endometrial biopsy Friday due to a "thickened" endometrium. The fun just keeps on going:/ I do find comfort in that someone else in my situation could be having this problem too. I've never really heard of this before.

  • kingster
    kingster Member Posts: 333
    edited April 2016

    RAK, just wondering what type and brand of new implants will you be getting, and what type do you have now? I also have some crazy animation deformity because my implants are under the muscle. I'm just glad when I do push ups I'm face down, lol;)

  • RAK1
    RAK1 Member Posts: 240
    edited April 2016

    Oh Kingster I am glad there really isn't anyone around to see it!!! LOL

    I was crying all the time but I know it will be fixed one day!

    I have now Natrelle Style 20 round smooth silicone high profile 600cc

    I am getting Mentor round textured silicone high profile 600cc, If there is a style I don't know it.

    I will have an increase of Botox injected into my chest muscle, because the first time there wasn't enough and three weeks later it started again and has progressively gotten worse.

    I will be posting some photos soon to show what it looks like maybe that will be some help to someone else when they start wondering if they are the only ones.

    Warm wishes,

    Robin

  • kingster
    kingster Member Posts: 333
    edited April 2016

    RAK, I have smooth round also. I like that they do move around some, even if they look goofy when I flex my pecs. I like to feel that I can "adjust myself" in a bra, and not be totally adhered to my chest wall. But, the textured can be very natural looking without any ripples and such. Those type of implants don't move, so I think there wouldn't be animation deformity with those. I don't think any recon will ever feel the same as my natural self...although breasts full of cancer was such a relief to get rid of:) Let me know how it goes and I wish you the best!

  • Gardnergirls
    Gardnergirls Member Posts: 89
    edited April 2016

    Things are starting to get real for me. Went for the preop and the countdown begins. Dr is thinking 550 implants but that's all I really know at this time. My expander is 550 but isn't filled all the way. He stopped fillings but said I have plenty of skin to put in the implants. I'm just very nervous that I won't have the size I had before. I was a 38D-38DD depending on the bra. I want to have a full shape and have cleavage. I feel like a crazy person looking at so many pictures because I just want to have one surgery and hopefully be done. I'm going to talk with the navigator about all the choices and take it from there. I do know she said something like he takes in about 10 choices. I'm a size 16-XL top so I want to make sure I'm in proportion. I'm also having a tummy tuck at the same time and some of the fat will be placed around the implant to make it look more natural he said. Has anyone had this done at the same time. I'm not having a diep because there is only enough to make me a size A.

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited April 2016

    Gardnergirls I would love to have a tummy tuck at the same time! I wish there was a way to get the insurance to pay for it. I don't have enough fat to go very large with a DIEP, plus it seems I'm prone to seromas and the thought of more drains is just too much for me!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2016

    gardner - If you have been expanded to significantly less than the max fill on your expanders, even though you have enough skin, the pocket behind the pectoral muscle may not be large enough and your doc may not be able to use a larger implant. It sounds like you are having a combo of implant and flap (is insurance covering this as an implant/flap combo, or are you paying out of pocket for part of this surgery?) but I am concerned that you won't reach your desired size with the expansion you currently have. I would ask for further clarification and another discussion about the pocket if I were you. Most docs take a number of options into the OR, that is standard - I am just not sure how large an implant will fit behind your muscle.

  • Gardnergirls
    Gardnergirls Member Posts: 89
    edited April 2016

    SpecialK, I'm paying the tummy tuck portion. He is only using the implant for the breast and injection fat around it he said if he needs to make it look natural. Now I'm more concerned. Guess i better be making a phone call.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2016

    I'm just not sure how your PS would fit a 550cc implant in a pocket currently expanded to less than 300ccs, regardless of your skin laxity. Have you posted on the 101 thread and gotten any feedback from whippet mom about this

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