Surgical pathology changed stage due to Multi-focal tumors

Mine did change from 2 ILC tumors to 1 IDC and 1 ILC. Neither my mo or surgeon were concerned. Each were almost the exact same size. They were only 4cm apart and in different quadrants, multicentric. I had a mastectomy and the pathology said multifocal but 95% certain that they were synchronised separate tumors. No indication of any cancer between them. I could have had 2 lumpectomies. I also had a suspicious area on ultra sound that turned out to be normal. But I won't have that detailed information if I chose lumpectomy . I kind of wondered why 2 biopsies initially said both were ILC.

I only received one oncodx number 34. I am glad with my decision not to do chemo, but I have to say they really down play the risk of taking amromatose inhibitors. I still feel side effects from them after being off for 1 year.

ladies with changed staging due to multifocal tumors - I have multicentric multifocal - 2 biopsied invasive mammary carcinoma “with lobular features” and MRI showed 4 other similarly sized sub-centimeter tumors. The quadrant spread could be two quadrants or three...not sure.

Anyway - interested in how you ladies are doing now. I’m having BMx and had always planned to from the diagnosis.

A little concerned about the stat that only 10-12% of patients have multifocal disease and the one that says of these, 52% have lymph node involvement and 48 do mot

Djsalem - what’s oco-type? There is an Oncotype test done - I had one - that evaluates your particular tumors so there is no false positive involved. It’s specifically used to see if chemo would be beneficial. They calculate a score and your chances(%) of a recurrence based on your tumors.

That’s scary stuff with all those tests.

Diane

Yes I was on anastrozole about that same period of time the pain was cumulative. I hated exemestane I had severe dry eye and weight gain.

I was told 2 weeks ago I had DCIS after my biopsy report, I was told to have the lumpectomy with maybe a few radiation treatments the size was 0.4x6 in size, very small. Had to have a breast MRI, next day went to see the surgeon..

He now tells me things have changed since seeing this MRI, its called a multi-focal tumor the size is 8cm now, he says to remove the breast, along with the lymph node, no treatments needed after that, I am overwhelmed over this news, why remove a breast when it is 0 staging , it just seems so drastic to me, sort of like removing a hand because it has an infection in it. I have seen that some women now are choosing to do nothing with DCIS..

Another thing I have not talked with a oncologist yet, I was told it was useless to do that until after surgery..I am having a really hard time comprehending all this...Would appreciate your thoughts

Thank you so much for responding back to me, this has really sort of slapped the wind from my sail so to speak.....

Thank you for commenting...I think I am just so overwhelmed with the whole thing and very confused why I need to have my breast removed for something that is not cancer~