Huge decisions

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Paintedmommy
Paintedmommy Member Posts: 2

I'm new to this. I'm 26 And a single mother. I always knew I was a higher risk for breast cancer but had no clue how high till the other day. A few months ago my doctor found a lump and decided to just watch it now I'm facing the very real possibility of having cancer in my 20s I'm getting a mammogram and genetic testing. They told me to start thinking of my future and if I will want preventative surgery if I don't already have cancer. My doctor says I'm at the highest possible risk almost every women in both sides of my family fought breast cancer. I made a decision no matter how the test come back to have a preventative mastectomy and I'm just wanting to here from others if you think this is the right choice or if any of you had made this choice?

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  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited April 2016

    I know that if it was me I would have the preventative mastectomy, because I could not deal with the anxiety and constant checks and worrying. I'm not saying that's the best decision for everybody. Mastectomy with tissue expander placement is hard. It's the hardest thing I've ever done. I've had a C-section and hysterectomy with ovaries removed as well as some minor surgeries and I've never had such a long recovery time. It's not painful just requires a whole lot of patience and a lot of time off work. The lost sensation is a big sacrifice as well.

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2016

    Painted mommy, it is a very difficult decision, but one that will be easier to make once you have all the testing done, and can analyze the results with your doctor. We are all here for you, and you are certainly not alone!

    Gentle hugs,

    The Mods

  • Paintedmommy
    Paintedmommy Member Posts: 2
    edited April 2016

    Thank you both, this is something my doctor is recommending I do have the full support of my family and friends. My biggest concerns are my kids they are toddlers, my work I work 70 hours a week but its a fairly new position so I have no time off and with being a single mom I can't afford the time off, I'm also only 26 and single so I'm concerned about scars and stupid things in comparison to what I might face in the future. I know the possibility of me having it right now is very real but I'm staying positive and hope to do this surgery while I'm still healthy rather then wait for it to be a surprise. How long did it take to recover and how painful is the mastectomy, are the scars bad? Sorry I'm just so very curious and think hearing from others will help me feel better about my choice.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2016

    Have you had a biopsy of this lump yet? Have you had the mammo and the genetic testing yet? (sorry, I couldn't tell from your post is you have the results yet or not). If not, I would try very hard not to get ahead of yourself here, and wait for all the results of the tests to come back before you make any hard and fast decisions. It could very well be completely benign (which is what I hope for you).

    Anne.

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited April 2016

    If your lump turns out to be benign you don't have to be in a big hurry to make your decision. I'm a workaholic and I've been off work for months. That has been the hardest part for me. If I could have taken the time to save up enough $ to get me through this time a little more easily, I would have. I had a skin-sparing mastectomy and I really don't think my scars are going to be bad. Some people scar worse than others. The mastectomy certainly was not unbearably painful for me, but I wasn't trying to take care of toddlers and my husband was with me for the first 2 weeks, doing all the housework etc. For at several days I alternated valium and pain meds every 2 hours and slept about 15 hours per day for 2 weeks. I made the mistake of overdoing things after and I'm pretty sure that's what led to me getting a large seroma and going back to surgery and having to have 6 more weeks off work. My granddaughter also jumped on my left foob, where I was having healing issues already, and my incision opened up 4 weeks after the surgery.

    What I'm trying to say is that I have not been suffering and I don't think my body will look badly disfigured in the end, but it's a long recovery and it's absolutely necessary to observe all of the activity restrictions. It's hard to observe those restrictions with toddlers around. It's a long row to hoe.

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