calling all TN achieving PCR

I did not get a PCR (I was quite disappointed!), but I'm 3 years and 7 months out and doing well so far. There is hope..

After only two rounds of Abraxane & Avastin, my IBC was gone. Then, the bone mets were gone. I've had a few bone mets light up again and have done Abraxane again with the same good results. Going on 5 years now since dx.

Thanks! My docs said that because the pre-chemo tumor was fast -growing (ki67 of 70%) and the residual tumor was only ki67 17%, whatever Cancercells might have gotten out into the body were likely killed by chemo. It was just the slow growing cells in the tumor that were left, and removed at surgery.

Aw Angtee so sorry about that news, but the good thing is they usually have you do rads to mop up anything that is left. I go in the 24th and I was told that shrinkage is what they were looking for, but then I'm a 3b IBC, but still, they let me know they would be glad that chemo shrinks it, and rads get the rest.

Sending positive thoughts your way and a virtual hug

I was relieved to get a PCR after a large tumor and several lymph nodes. I was diagnosed 5 years and 8 months ago at the age of 44. All of my treatment details are below. I can honestly say that I'm in better physical shape then I've ever been. And my yearly blood work at my primary care dr shows that I'm definitely taking better care of myself. My DH and I decided a couple years ago that we were pretty blessed to get to keep living this life together, so we changed eating habits and began making time to exercise more then we used to. Neither of us has ever been really heavy, but both could use to lose a few pounds. Which we have and will continue to work on. We still indulge here and there but try to make good choices 80-90% of the time. In fact, we're leaving in less then two weeks to go to Bora Bora to celebrate our 30th wedding anniversary (and I've packed 2-piece bathing suits which I haven't worn in years!). I can't wait to snorkel, kayak and learn to paddleboard, and, of course, float in that beautiful turquoise water!

I still see my MO every 6 months. He does the routine blood work, and does an exam. He's talked about moving me to yearly but he likes to keep an eye on me due to my age and having been TN. I have no problem going every 6 months. Between my MO, my primary care, and my gynecologist, I figure I've got experts checking me out 4 times a year and I'm good with that! Breast cancer still enters my mind every day, but it doesn't consume me anymore. I would say a couple years ago, I quit waiting for the other shoe to drop. We've had some deaths in our family in the last 3 years that has made us realize that nobody is guaranteed tomorrow. I'm going to enjoy my todays as much as possible.

Hope everyone has the best possible day!

Kathy

Achieved PCR with my somewhat unorthodox regimen. My MO has been kicking the shit out of BRCA associated TNBC with this regimen: doxorubicin + carboplatin every 3 weeks for 6 rounds, with Olaparib (Lynparza) 400mg twice daily.

It ended up being a little more complicated than that...

Got one treatment of carboplatin + taxotere for my first round. I was attempting to do egg retrieval in between rounds 1 and 2 and my onc wanted to hold off on doxorubicin for that. The egg stuff I really regretted doing, it was a gigantic pain in the ass and emotionally taxing on top of my diagnosis, and a total failure anyway. I think 90% of my hair loss was from that one dose of taxotere as my hair started growing back halfway through treatment.

4 rounds of carboplatin + doxorubicin every 3 weeks, with EIGHT freaking horse pills of Olaparib (Lynparza) twice daily. SIXTEEN pills! I had to see a GI doc because it gave me swallowing difficulties that once made me pass out O_O The lynparza was not covered by my insurance as it is not approved for use in pre-Stage IV breast cancer, but my FIL has connections at Astra-Zeneca and I received it for free. Nothing like friends in high places. They seem to be offering it up for free as the preliminary results in early stage BC are promising...or so I've heard whispers of. Was delayed twice by 1 week for neutropenia/pancytopenia. My onc believes the addition of Lynparza on top of the platinum chemo was a bit too much for my marrow. He cut the dose of parza to 14 pills daily.

I was supposed to have 6 rounds of everything total, but after showing up completely bottomed out in my counts, he stopped my lynparza and only gave me the doxo alone for #6.

PCR. He is convinced it was dead by round 4, and the thing we were feeling all the way through was a fibroadenoma.