Spring 2016 Rads

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  • DisneyGirl16
    DisneyGirl16 Member Posts: 121
    edited April 2016

    Lovinggrouches, I went in on a Thursday to get my ct and mappings done (my breast looks like a road map with all of the marker and stickers; I have about 5 lines around the borders of the treatment area and then one x marks the spot where the tumor was). I started my radiation the next Monday. I didn't have a "simulation". They just walked me through what would happen and away we went.

  • Tami4965
    Tami4965 Member Posts: 8
    edited April 2016

    thanks Randi.

    I will try the cabbage leaves... at this point I will try just about anything. I just got a rx for silvadene and I hope it helps. Hugs and thanks so much!!

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    had SIM AND first radiation today! Feels a little warm and oncologist says they rarely have anyone developments problems, so well see. Congrats to all who have just started!!!! I did buy a cotton undershirt JUST in case and put 99 percent, alcohol free aloe Vera on the breast when I got home. Just ain't looking forward to 2 hours and 45 minutes a day of driving between work and radiation!

  • iammags
    iammags Member Posts: 216
    edited April 2016

    No kidding Lovinggrouches, I'm not either. If the thunder don't get ya than the lightening will!

  • Lemint
    Lemint Member Posts: 162
    edited April 2016

    Hi everyone, I started my radiation Monday. They marked my skin with a marker and put clear tape over it. No tattoo's. I go after work daily at 4. I'm tired but don't know if from the chemo. My last one was 3 weeks ago. It's good to share our experiences.

  • homeschool4us
    homeschool4us Member Posts: 255
    edited April 2016

    Lemint, I'm also feeling tired already and not sure why. My last chemo was 6 weeks ago and I had started feeling not quite so tired and then all of a sudden yesterday I started feeling absolutely exhausted again.

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    you ain't kidding mags!!! I won't complain though, I am blessed! I have to drive 45 minutes to work, leave after 3 hours and drive 45 minutes to hospital for rads, drive 45 minutes back to work, then 45 minutes back home. Sigh!!!!!!! Then they are about to start construction on the bridge going into the city and will be down to one lane. It's going to be a nightmare!!!! Oh well, at the end of the day, I will do what I have to do!

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited April 2016

    Lumpie, I'm nearing 6 mos. pfc and my hair is about one inch mostly all around, but thinner up front; wish the bang area were longer. It's starting to look like a short haircut and is pretty soft. I too am giving up on wigs, scarves and hats as they are just becoming too hot!

  • Ozpoppet
    Ozpoppet Member Posts: 2
    edited April 2016

    Hi

    Really interested to hear about your first treatment.

    I start next week in Melbourne Australuaand don't know what to expect.

  • Lemint
    Lemint Member Posts: 162
    edited April 2016

    Homeschool, I think besides the skin changes that being tired is a common side effect. I just didn't expect it so soon. Once I get home I'm not get anything done. Urg!!!

  • Randi1035
    Randi1035 Member Posts: 34
    edited April 2016

    Hi Ozpoppet

    The treatment doesn't take long, maybe 10 - 15 minutes. Over before you know it. You won 't feel anything. Today is my 4th treatment. So far so good, although I do have a weird metal taste in my mouth. Make sure you use the creams/aloe whatever your RO gave you AFTER the treatment. It feels good and helps keep your skin in good shape.

    Hope that helps.

  • LifeOfBabbs
    LifeOfBabbs Member Posts: 28
    edited April 2016

    Tami4965, how are you doing now? I'm so sorry to hear of all you are going through. It sounds terrible.

    Is anyone else on Effexor? I was on Paxil for hot flashes, but now my doctors figured out the paxil has and interaction with Tamoxifin which I am due to start next month. I took one Effexor pill yesterday morning and felt nauseous all day. Then, it was impossible to sleep. I saw these side effects on the web, but didn't think it would happen to me. Also, I read over and over about how hard it is to get off the Effexor after you're on it for some time. Any thoughts on this? I didn't take it today because I have company coming and I don't want to be sick while they're here.

  • Randi1035
    Randi1035 Member Posts: 34
    edited April 2016

    LifeofBabbs I'm scared of the Effexor too. Artista928 posted that getting off of it feels like having the flu! She said it also loses it's effectiveness and you have to increase the dose after a while. I'd love to know why they prescribe Effexor to everyone? Aren't there other ones that aren't so strong?

    Stopped taking 40mg of Prozac and got back to my usual 20mg. Does NOTHING for hot flashes.

    Woke up soaked this morning. Just soaked. A friend of mine brought me something called ARTIC TOWEL. It's a blue mesh towel that you wet, wring out and snap. It cools down to 30 degrees, lasts 2 hours. I wear it around my neck and tuck it in under my bra. It feels really nice. Wearing it around the house - helps get me through.

  • Tami4965
    Tami4965 Member Posts: 8
    edited April 2016

    I just don't think I physically and emotionally can put myself through another treatment. I "only" have 8 left. I have one in two hours but I just don't think I can go through with any more... The skin under my boob is so raw and split it just burns. I had blisters but the cream took care of that. I need some kind of antidepressant that's for sure. My skin was great for so long then bam.

  • iammags
    iammags Member Posts: 216
    edited April 2016

    I find it all to be so tiring, in general. Lovinggrouches (LG, for short :) your commute sounds like a nightmare! I know that I asked my MO if there were any alternatives to rads and it was a big NO. Seriously a bummer. He told me that if I don't do rads it'll be like a 30% chance of recurrence for me. The RO said more like 20% but still that's high.

    I"m having hot flashes at night, too, and they suck. No sweat but I just get incredibly hot and uncomfortable. Aww, the joys of middle age.

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    only second day, I'm tired! Tried to stay late to make up some work, but have decided I just can't keep up my work load having to be gone 2 hours a day or more for the commute to rads. I can only do so much. I feel drained and can't sleep well. I may take up the doctor offer for medication for the first time in my life! I turned 42 today. One of my rad guys have me a hand made breast cancer pillow case that an elderly woman was making for all of the cancer patients and she got bad off and cantvmake them anymore, I got the last one! It touched me that he gave me that and a hug when he has only met me twice! Got treated to breakfast at work and got a cake and card and hubby always does something nice. I had a blessed birthday and will try to keep the stress at bay for now. Prayers to all of you today. Sorry I'm going on and no one has to comment. It just helps to express myself and know that someone understands

  • iammags
    iammags Member Posts: 216
    edited April 2016

    Happy Birthday LG!Don't hesitate to take meds for anxiety or depression if you need them. It is amazing what they can do for you every once in awhile. That pillow was a nice BD gift! Was it the heart shaped ones? I have one of those and I love it. People are so kind, right? Have a great evening. Spoil yourself and RELAX! A glass of wine may help, too.


  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    Thanks mags. I don't have wine, but a stash of satsuma rum lol!!! I might take a few shots lol! My gift wasn't a pillow, but a beautiful hand made pillow case! I will be proud to sleep with it! Night all!

  • flowergrl63
    flowergrl63 Member Posts: 10
    edited April 2016

    Dear Lovinggrouches and others just starting rads-- this is my first post, however ..I've been reading everyone's insightful posts....I am on my 12th rad of 16 treatments and I totally get what you are saying. Day three of rad treatment I totally bombed. I said to myself: hey, this is supposed to happen in week 3 not day 3!....came home and felt like a zombie. I thought, OK so by treatment 3 this is what I will be like....so fortunately for me, I just retired (days before my dx!) I called on family for help. I'm 63, good health other than small BC but could NOT deal with the deadly fatigue. I do not know how ppl still work (employed outside of home) through the rads...I'm totally sympathetic that for some there is no choice; I have major blessings in that dept., again because I just retired (and it was planned). However, had this come a year or two earlier, I would have to continue to work, no doubt. I hope this helps you: I found that there are just good days and bad days with rads. I don't get it. When I'm having a good day of energy, both mental and a little physical I take advantage of it. However, sometimes right after a treatment I feel, wasted; I give in, go home and stare into space or journal. I'm also blessed with a 1 hour r/t drive too, including treatment, unlike so many others I meet that travel from counties away...Blessings and strength to all of you/us that are journeying this thankfully together.

    BC Left Breast <1cm lumpectomy; E++ P+ HER2- sentinel node 1/0

    Radiation 16 days

    Undecided on endocrine therapy



  • kbutler
    kbutler Member Posts: 66
    edited April 2016
    10 treatments down !!!! It is really passing quicker than I thought it would and no se yet (ask me in week 5-6 and i may have a different answer). I'm not tired yet. I work full time 10 hr day and due my treatments during lunch r/t including treatment time is 1 1/2 hr. I think what's going to tire me more than the rads is leaving in the mornings not coming home for lunch getting home at 6 then all the things that have to done once I get home.
  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    flower girl, glad you are retired throughout this!! Trying to work the same hours while driving so much and dealing with the stress of cancer, it is not something that anyone can understand unless you've been through it. Add the stress of working less, bills coming in the mail, constant appointments and it's no wonder I'm considering meds! Lol!!!!! My RO didn't give me any creams or anything, but I'm using 99 percent aloe to be on the safe side. All I got was a packet with written info, no suggestions and he stated he will meet with me every Thursday, otherwise, I will just see the techs daily. Never got tattoo, just blue marker with clear tape. I guess if that works for a few weeks, I don't understand why some places use permanent tattoos. Anyway, that's enough for now lol! I just realized that I'm typing random thoughts lol! Everyone have a great weekend!!!!!!

  • ladsgma
    ladsgma Member Posts: 23
    edited April 2016

    I had my first meeting to get set up to do the treatments. I was pretty unhappy that they stuck needles with ink into me instead of using a marker.I felt like I'm cattle or something. I will start next week for 33 treatments, it seems like a long time.

  • Randi1035
    Randi1035 Member Posts: 34
    edited April 2016

    Hi Tami

    Wondering if you went to Rads? How do you feel today?

  • august57
    august57 Member Posts: 12
    edited April 2016

    I went to RO 4/14, simulation and marking and start 4/21 for 21 treatments. As a nurse it was kinda interesting, but for me being the person getting rads it's pretty overwhelming. Not sure if it will be prone or supine yet till the RO decides. I was pretty teary to my appt and most of the day, guess I just needed a good cry. You kinda know what to expect with surgery but rads is unknown. Hoping for minimal skin side effects and fatigue. Best of luck to everyone starting this journey!!!!

  • august57
    august57 Member Posts: 12
    edited April 2016

    they do all your markings and the Sim with CT to help protect and prevent damage to heart and lungs as much as possible from the rads

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    is anyone else here taking an antidepressant? I was offered medicine by my gynecologist the other day and I said no thank you, but I have REALLY thought about it. I can't sleep, I worry all the time, I start crying for no reason and just sometimes feel like I'm going crazy! I have dealt with this cancer stress so much in the past few months and thought I would be better after I KNEW everything and began treatment, but now I'm stressing over the additional female problems and how the ultrasound is going to come out. Worrying if the radiation will kill anything left behind, more thoughts than I can say. Was just wondering if anyone felt the same way. I have never taken an antidpressant or any other anxiety medicine before, and I'm embarrassed to ask the doctors. I am aware that there are few you can take with tamoxifen I will start in a few weeks

  • Artista928
    Artista928 Member Posts: 2,753
    edited April 2016

    I'm on celexa but have been before cancer. I've always been on ADs for 25 years and have tried practically all the known ones out there. The one I would never do again is effexor and after that zoloft wasn't my friend either but not as bad as effexor. Everyone reacts differently to different meds but across the AD board I've heard of less issues with celexa. And you can take it with Tamox.

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    Thanks artista!

  • iammags
    iammags Member Posts: 216
    edited April 2016

    Guess I'll pipe in here, too. I'm taking Gapabentin as an anti-anxiety and I was taking Wellbutrin until just a couple of days ago. It doesn't interact well with Tamoxifen.

    LG, there is no shame is asking for med help when you are anxious and/or depressed. It is a REAL problem. The stress and anxiety that you feel is real and it can take a serious toll on your body. Please consider accepting help. Plus, you don't have to be on the meds forever. Of course you will decide what's best for you. For me, I am feeling much better after beginning meds.

    Good luck! We are all here to help!

  • Sheri64
    Sheri64 Member Posts: 113
    edited April 2016

    Start my rads this today.  I am a little nervous.  I am going to be working and hope I can make it for the 36 TX.  Lucky office only 10 mins from where I work.

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