Lumpectomy Lounge....let's talk!

1515516518520521947

Comments

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    Sounds great, HH. I'll be coming from Atlanta, so it's probably about a 5 hour drive. DH will probably come with me, too. He knows when to make himself scarce, so if you want to get together for dinner on Sat, he may decide to hang out at the hotel. I'm sure he'll want to hear Sandy's music on Sun night, though. Definitely keep me in the loop on this.

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited April 2016

    Poodles...will do....Hope y'all can come Saturday- we will just get a big table at Highlands or the private dining room- so we can sit around and enjoy getting to know one another....my DH will probably come if others do for dinner on Saturday night- or if not- he won't...we can be very flexible. There is outdoor space as well so if weather is nice (and, it should be) we could just get a big table outside....we can be very flexible. There is time to make hotel arrangements and will keep everyone updated on that kind of thing. SO happy that you are planning on coming!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    This is very exciting! And after the year I've had, I could do with some GOOD excitement.

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited April 2016

    Yes, Poodles, you and your DH do NEED some GOOD excitement for sure. Looking forward to some fun with yall! Have a good night...more info about this fun weekend to follow.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    HappyHammer, my MO prescribed Fosamax to protect my bones from the lack of estrogen. The wonderful SE of helping prevent bone metastasis is a bonus!

    HUGS!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Poodles, the trip to hear Sandy is exactly what you and DH need. Plus a lot of BCO love and support IN PERSON! Nothing is better than being with sisters from here.

    HH, if there are several men who have tagged along and would prefer to skip the hen party Saturday night, maybe they could have their own dinner?

    It's going to be wonderful - I'm glad this is all coming together and wish I could be there. My heart will be!

    HUGS!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    I think that would be awesome, Peggy. My DH might feel a bit awkward at first, but I'm sure he would like to talk with other men whose wives are going through all this. He has friends at home, but I think only 1 has been through BC with their wife, and that was a long time ago. The friends are sympathetic, but they really don't know how he feels. Just judging from how *I* feel about DH having prostate cancer, I can safely say that it's a terribly discombobulating feeling. I know that my friends and family would be sympathetic, but they cannot possibly know what it is to be a spouse of one who has a fresh cancer diagnosis.

    I will plan to go up to Hickory on the Sat before Sandy's performance. I'd really like to spend some time with the ladies at dinner and perhaps at breakfast too. I don't know what there is to do in Hickory--I don't think it's a big town. We may just spend the day napping or reading by the pool. I don't have a good mastectomy bathing suit yet and I'm sure as heck not wearing my old bathing suit, so I'll be the one in the t-shirt and capris.


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Poodles, re: bathing suit. Can't you just get falsies or forms or something like that and stuff it in your old bathing suit? I'm not being flip because I really don't know what challenges you face having had a mastectomy. Lands End has bathing suits that work for women with mastectomies. You might check them out.

    I think DH would definitely find the other men who come to be comforting, just like we find our BCO friends. It's nice to be with people who "get" what you are going through without having to painfully spell it all out.

    HUGS!

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited April 2016

    Peggy and Poodles- we can surely set something up for the guys for dinner...Peggy, we will miss you!

    Sunday is a more quiet day in Hickory- there are things todo and see so we can decide what we want to do- you and DH napping and doing some of it poolside sounds great, too!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    Peggy, I'm not wearing forms yet, due to the continued unhealed wounds. Matter of fact, I'm pretty sure my PS wont allow me to go into a pool until everything is well healed. I tried wearing bath poufies, but they really excoriated my chest, so that's out. I'll have a look at Lands End and see what they have.

  • Peachy2
    Peachy2 Member Posts: 350
    edited April 2016

    Just had to share something sweet. My seven year old nephew decorated a bag for Relay for Life at school. He named his grandmother (my mother in law who had thyroid cancer) and my sister in law and me, his aunts. I hate that a first grader has had to process this much thought of cancer, but oh so proud that he is using us as an example to give others hope.

    image

  • meg123
    meg123 Member Posts: 1
    edited April 2016

    I wondered, what meds were you given after your lumpectomy and what meds did they send you home with scripts for

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Shoot, Poodles, I forgot that you aren't healed yet [hit head a few hundred times-argh]. You know I picked up some "enhancers" that are made out of a rather "dry" foam and are very lightweight. They might work. I got them at an upscale intimates store (NOT Victoria's Secret). I'm sure they are available elsewhere. But they are so light and let air through so if you have a t-shirt or gauze pad covering those resistant incisions you might be able to wear them. Just a thought.

    HUGS!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Meg123, welcome! We're glad you found us but sorry that you had to. We are warm, comforting, informative and funny. To answer your question, I was given a prescription for some painkiller (I can't remember which one since I have no experience with them). My son filled the prescription and I never took any of it. I used regular Tylenol. But please do fill whatever prescription you are given. Do not let pain get ahead of you. So take the pain medicine you need.

    Please help us help you by filling out your profile and making it PUBLIC! Then we can tell what your diagnosis is, when you are having surgery and what other treatments are likely down the road. We also would love to know where you are located since we are all over and might be next door.

    Keep asking questions and we'll keep answering!

    HUGS!

  • Katzpjays
    Katzpjays Member Posts: 237
    edited April 2016

    Meg-the anesthesiologist gave ame a patch behind my ear in case I had any nausea from anesthesia. Good for 3days(took it off after 2) I also had a RX for Percoset for pain and ondansetron for nausea. Never took a dose of either. Tylenol was enough for just minor pain I had at the site of my SLN incision

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Meg, I forgot to mention I was given a Valium the minute I walked into the center. Then pretty soon I was given a Dramamine. Both worked just fine!

    HUGS!

  • iammags
    iammags Member Posts: 216
    edited April 2016

    Meg for my lumpectomy I took a Percocet or two. But it was really not that painful. Good luck!

  • tbalding
    tbalding Member Posts: 449
    edited April 2016

    Meg, they gave me tramadol for pain & anti nausea patch behind ear after surgery. Took patch off next morning & didn't need pain medicine. Just Tylenol & ice pack.

    So far so good, no pain just a little sore. Today is Day 2 after surgery. I was able to remove bandage & shower. Also took a short walk & enjoyed sunny day. Came home and napped but was good to get out.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    showering is good, as is napping.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2016

    Meg, would you believe they didn’t prescribe anything for me for pain? When I came to in the recovery room, they pushed some Fentanyl into my IV before disconnecting it; and they gave me two regular Tylenol (325 mg!) before discharging me. The first night I took Tylenol Extra-Strength; the second and third nights, because of the upper body soreness from the “scoline syndrome,” I popped a Norco I happened to have on hand after my knee surgeries and Bob’s colon & hernia surgeries. The fourth night onward? Nada. After I was allowed to go back on things that tend to thin the blood (krill oil, low-dose heart health aspirin, Celebrex), a couple of months later I did go back on Celebrex in the morning because my bursitis (from a gluteal tear caused by snow-shoveling) resurfaced. And once I went on letrozole I added back a couple of arthritis-formula Tylenol at bedtime--which is probably why I’m having only minimal joint pain as one of the side effects.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Guess it was worth all the agony of my mammogram. It came back fine! I have never had a mammogram hurt like this one did (and that's 30 years' worth). When my results came in the mail, I exhaled. I hadn't even realized I had been holding my breath. I see the BS on the 26th for a breast exam. Last time I see her before I move. I'll miss her.

    HUGS!

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    Yay Peggy!!!!!!!!! All of you have a great weekend!! Had second radiation on my birthday yesterday, so far, so good. I turned 42! Meg, I took a few Percocet the first day, but none after that. Both lumpectomy were nothing compared to the sentinel node incision, it just had a hard ridge for some weeks and rubbed on everything, but it's fine now. My rad guy at the hospital barely knows me, but gave me a hand made pillow case made specially for breast cancer survivors and a tshirt. Co-workers treated me out to breakfast and got me cake. Hubby got me a gift card and flowers. I was so touched by the simple things and wanted to cry all day yesterday from happiness. I always look forward every day to how I can be a blessing to someone else for the day, but the simple kindnesses remind me even more to be more vigilant so that I can bring the same simple joys to others!

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    Happy birthday lovinggrouches!! How awesome all the love you got on your birthday. Peggy, Hooray!!!! What a relief.

  • octogirl
    octogirl Member Posts: 2,804
    edited April 2016

    I can never keep up with this thread but jumping in to say yay Peggy!!! Good news and such a relief I know!

    I didn't have prescribed rx after lumpectomy either: BS said all I would need is a combo of advil and extra strength tylenol, and she was right. Even that only for a day or two. They did give me something in the IV right after I woke from surgery, and it made me foggy and not sure that was needed...

    Hugs

    Octogirl

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited April 2016

    I was given Tylenol three after surgery, I took it the first night to make sure that I wouldn't be woken by pain, and then I was done with it. I am glad to have it though! It's the best thing I have found for my headaches.

  • Katzpjays
    Katzpjays Member Posts: 237
    edited April 2016

    Peggy - Congrats on the mammogram results! Bummer to leave your doctors behind. So hard to change, we become attached to the ones who have been through "the wars" with us. Have you investigated doctors in Spokane? I know the Summit Cancer Center is affiliated with the Seattle Cancer Care Alliance. SCCA is a partnership between Fred Hutchison Cancer Canter, Seattle Children's Hospital and UW Medicine. Everyone I know who has gone to SCCA on my side of the mountain has only good things to say about the doctors and the care they have received.

  • iammags
    iammags Member Posts: 216
    edited April 2016

    Peggy I'm glad that your mammogram didn't hurt very much. I was surprised that mine last week didn't either. I'm just 5 weeks or so out. Seriously, I thought I'd be crying.


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Katzpjays, thanks for the suggestion. I will also see what center my DIL used for her colon cancer. At least now I have a place to start!!!

    Iammags, either I wrote my post wrong or something because it was the most painful mammogram I have ever had. My bad girl was sore/tender for several hours afterwards. I have never had that. But the results were worth it. Such a contrast to last year's - which was my first post-lx - which was the least painful ever. But I also had to have an MRI after it too. None needed this time.

    HUGS!

  • Fleecelady
    Fleecelady Member Posts: 9
    edited April 2016

    thanks 3 more days of wait and wonde

  • IamNancy
    IamNancy Member Posts: 1,158
    edited April 2016

    Peggy - I see you are moving and need to change doctors - I am moving also from NJ to FL.. I am trying not to change my MO and RO but will have to change my regular doctor .. Its really difficult to change doctors at anytime but when we have all these follow ups for BC it really is hard.. I hate to change my BS and am not sure what I will do about that - I also hate changing where I get my mammograms and ultrasounds but its not realistic to come back to NJ for that - I do have disks with last mammo and ultrasound though so they can compare..

Categories