February 2016 Surgeries

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  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited March 2016

    I'm going in to have a drain put in my right breast seroma today. Grrrrrrr. I still have my original drain in the left side and getting around 35-40cc per day from it 4 weeks out. They're removing it on Tuesday regardless, because they won't leave a drain in for over a month. Doctor told me I have to sit my butt down so I haven't been able to go for my walk in 3 days. I don't know yet if not walking is helping decrease the drainage. It might be just a little.

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited March 2016

    I got a front-closing mastectomy bra and an Amoena Michelle camisole from the hospital. I found the bra was easier to put on, but the foob would ride way up and it wasn't comfortable. I like the camisole much better. It doesn't give my right breast as much support, but looks more natural because I can better adjust the foob from riding up and it's more comfortable for me.

    StaceySue, what a bummer about the seroma and another drain! Sorry to hear you still have the original one, too. It does seem the more active one is, the more drainage, so take the doc's advice and try to take it easy.

    Happy Easter weekend to all those who celebrate. We're in for more snow, but Sunday is supposed to be bright and sunny. I hope so.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited March 2016

    I had a follow-up with my BS this week. He is releasing me to the wild, so no more follow-ups with him. Kinda sad because he is an awesome doctor, so it was never a chore to go see him. But I will be back when my port is ready to come out. He also said he can do wound care and pull drains after my plastic surgery next summer since I will be going out of town for it. So that would be nice if my PS agrees to it.

  • blg4
    blg4 Member Posts: 88
    edited March 2016

    StaceySue2U I am sorry you still have to have your drain in etc. My nurse said my dr said he wanted the drain to be taken out because I told them it was getting clogged.. someone I had paged for it actually had me take the bulb apart. Maybe he was afraid it would get infected because I bet I shouldn't have been told to take it apart. Anyway I said all that to explain that he said mine could be taken out even though it was in the higher range because where he trained they were taking them out at 50ml. (Not sure the difference between ml and cc but my drainage measurer was measured in ml) But I was told that on a Fri so they didn't remove it until Mon. By then it was down to 20-30

    Skittlegirl… I liked my dr I will miss him


  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited March 2016

    This is my fourth day of no walking and my drainage has only decreased very slightly if at all. I'm going to give it one more day and if it doesn't decrease I'm going to start walking again. This is ridiculous. Blg4, I considered taking my bulb apart because there's this nasty piece of tissue or something in there I'd love to get out, but yeah....I think that might cause a risk for infection. So they took yours out when you were down to 20-30 and you didn't get a seroma?

    Skittlegirl I was kind of sad saying goodbye to my breast surgeon! I think I'll see her again in about 3 months if I remember right.

  • Mecool
    Mecool Member Posts: 70
    edited March 2016

    My last drain just came out on Thursday after I had just 2 days of 30 ml output. It had been 22 days since my surgery. How long do you think I have to worry about seromas? I mean, when do you think the risk of getting one is past?

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited March 2016

    I noticed my seroma the day after the drains had been pulled. It was very visible.

  • knitnpurl
    knitnpurl Member Posts: 62
    edited March 2016

    StaceySue - so sorry about the drain issues you're having. I didn't walk much and everywhere I looked said to have light activity. Increased activity, even household chores, would cause more fluid to come out, making the drains stay in longer. I didn't start walking again until mine was out.

    shpva57 - THANK YOU SO MUCH!!! I just got the Amoena camisole and bra. They are so much more comfortable than anything else I've worn. The cami is more supportive and comfortable than the bra, but it's nice to have options.

  • shpva57
    shpva57 Member Posts: 16
    edited March 2016

    I'm so glad to hear it knitpurl. I have found that hand washing them is best. My husband ran one through the washing machine and dryer which shrank it somewhat so now it's a bit snug and less comfortable. I hand washed them the first time but they do take a long time to dry.

  • blg4
    blg4 Member Posts: 88
    edited March 2016

    StaceySue2U… Would it be obvious if I had a seroma? When they took my drain out.. they commented if I had swelling I could wrap the ace bandage they used after surgery back on me. Not sure if I had any swelling or not, I wasn't sure where it would be. Sometimes my underarm feels bigger to me but was not sure if it was just sore and not actually swollen. About taking the bulb apart... I called the hospital number to have an on call person paged because the bulb was clogged over the weekend. That person told me to take the bulb apart. I was even told to use a toothpick to try to dislodge the clot from the top of the bulb. She told me it was not sterile. I thought it would have been but I was being told it wasn't so I did what I was told. I know it is a teaching hospital so that makes me wonder if I got a student. She did not even tell me to wash my hands! When I talked to my doctor's nurse later, she said the bulb was sterile when it was attached. If you want to read about it, I put the link at the bottom of the post... Not sure why they commented about it being ok at 50ml to remove... because unless my surgeon changed his profession later in life.. when he would have been in training was probably decades ago. They could have decided 50ml was too much to remove the bulb since then. He isn't really old but he has graying hair. You could tell he was much younger on his nametag picture.

    Mecool I was originally told it was ok to remove the drain after I had 2 consecutive 24 hour periods of 30 ml or less. Later I was told even 50ml is ok, that it was done at that amount where my doctor trained. I comment on it too above

    here is the thread where I talk about my drain being clogged etc

    https://community.breastcancer.org/forum/91/topics...

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited March 2016

    blg4, my seroma has been extremely obvious because it's on the bottom of my breast between the skin and the tissue expander. It was drooping down and jiggling! I guess the ones under the arm can be a little deeper and harder to see but you would notice it when it got big enough. If it never got big enough to be obvious, then that would mean your body is doing its job and absorbing the fluids like it's supposed to. It's true the bulbs don't stay sterile. When you open a bulb to drain it, bacteria gets in. It's inevitable, no matter how careful you are. I don't know where the anti-reflux valve that prevents anything from going back inside of you from the bulb is. I wouldn't want to take the bulb off in case the valve is in the bulb and then whatever was in the tubing could get back inside. It could be that whoever told you to take it off knew what they were talking about and the valve is in the tubing. I wouldn't worry about it too much. Teaching hospitals tend to be very good.

  • blg4
    blg4 Member Posts: 88
    edited April 2016

    StaceySue2U… I hope you are doing better.

    The valve isn't in the tubing. I had to explain to the doctor over and over again how the bulb was constructed. The clot was past the tubing. Inside the bulb at the top is a sort of sleeve looking thing.. and the clot was stuck at the end of that. It would be impossible to reach it without taking the tubing off the bulb and sticking a toothpick in it like she said. She was telling me to do stuff that was impossible.. which she would have known if she understood how the bulb worked. (Such as to dislodge the clot with my fingers from the outside of the bulb. Of course that is impossible. A person's fingers would not be able to affect something deep inside the top of the bulb. Yes the bulb would not be perfectly sterile but no reason to help it be filled with germs by having the patient stick a toothpick inside of it. She should have reminded me to wipe stuff with alcohol as I went along or at least to wash my hands! At least wipe the toothpick down with alcohol. The instructions for the bulb showed to wipe everything down that you touched with an alcholo wipe.

    I went to my first physical therapy the other day. The therapist thought I looked swollen. I thought it looked the same as always. She showed me how to do massage. The exercises I was given mostly involved a broom stick. Such as lie down holding the stick in front of me and move it side to side.

    The next morning after doing the exercises the night before I noticed my back was worse. I didn't really think anything of it. I have back pain from being in 2 car accidents and I have fibromyalgia. The day after that, the back pain was severe. I called and left a message for the therapist. I feel the pain was because holding the stick in front of me and moving it side to side is making my back twist back and forth. For someone who didn't have a back injury, they wouldn't even notice that they are actually slightly twisting their back with each movement. I didn't notice it.. I had no idea the exercises would affect my back.

    Before the cancer surgery, I was already off of work due to the accident, The physical therapy for the car accident had to stop because of me having surgery.

  • VSB2015
    VSB2015 Member Posts: 34
    edited April 2016

    I finally saw the oncologist yesterday. After a February 16 surgery I was very anxious about my treatment plan. I will have chemo starting next week, every three weeks, four rounds of Cytoxan and Taxotere. Not too bad.

  • blg4
    blg4 Member Posts: 88
    edited April 2016

    Glad it was not as bad as you thought it might be.

    I am still not back to work. How is everyone doing?

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited April 2016

    Doing fine. 2/3 through rads. MO told me last week that because I had a complete response to chemo, there's hardly any chance of the cancer coming back.

  • grandma3X
    grandma3X Member Posts: 759
    edited April 2016
    Great news, Skittlegirl!
  • Bliss58
    Bliss58 Member Posts: 1,154
    edited February 2017

    Hi all, and hope everyone is doing well. That's great news for you Skittlegirl! I'm doing well, back at work full time, but will be starting rads soon. So looking forward to being done with all this by mid-June! Taking a ride with DH and DD tomorrow on the cog railway up Pikes Peak. But, it's supposed to snow! Yikes!

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited October 2016

    Hi all. Just popping in to see how you are all doing? I finished rads in mid-June and have adjusted well to no recon and my prosthetic; don't even notice it once it's on. Except for some energy issues, I'm doing pretty well. Getting Zometa tx once every 3 months and started Arimidex in March 2016 which makes me achy. Mammo in June was clear. Yay!! And so it goes.... Hope you all are doing well, had a great summer and are now enjoying fall.

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited February 2017

    Hi ladies! Just popping in once again to wish you all a Happy Anniversary! In two weeks, it will be one year since my UMX w no recon, and I must say, I'm still happy with my decision, and all is well. My hope is that you all are doing well and that BC is becoming or has become a very faded memory.

  • Batesburg
    Batesburg Member Posts: 199
    edited February 2017

    Hello BJ and everyone! Yes, this nasty disease is becoming a distant memory- thanks for posting and giving all of us an update!!! It will be one year since my BMX with implants on Saturday! (2/4)

    I hope everyone is finding the blessings in each day and planning a life ahead that is full of love and gratitude!!

    Best always,

    Janet

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited February 2017

    Hi Janet! So good to hear from you and that you're doing well. Best wishes and congrats on the implants! I am grateful to my team and all of you on BCO who have helped me through this journey. And now, back to living!

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