Negative thoughts, triple negative IBC.

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Valstim52
Valstim52 Member Posts: 1,324
edited April 2016 in Mental Health: Because Cancer Doesn't Just Affect Your Breasts

Hello

I've tried to stay positive, am approaching my last chemo (at least for now) on Monday 4/18. Now I have worries about surgery. Will I be PCR? They say my tumors are responding, my skin is no longer red and inflamed, breast looks norma, but I worry am I doing all of this for nothing?>The statistics are so negative for prognosis, and yes I've been on the internet.

Can't erase the dark cloud. I'm on an antidepressant. Have supportive family. But I've cried more this past week, than I have the past 5 months. Is this normal?

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  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited April 2016

    Val, your feelings are normal BUT yes, there's a lot of hope. There are IBC survivors out there who have been NED for years, I know of one who has been disease free for 30 YEARS, and plenty that are in the double digits. Nobody can be sure that we will be in those long term stats but why not? Even triple negatives survive, check out Terry Lynn Arnold, she's TN and is 8 years out with no recurrences. Do all the treatments and try not to forget that you are alive, you are alive, not today cancer, not today.

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  • PurpleMinion
    PurpleMinion Member Posts: 165
    edited April 2016

    Also, don't google. Talk to people who actually know. Another thing is that there are plenty who didn't have a pCR at surgery but after rads were NED and continue to be, so don't be so freaked out by that either.

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  • jenjenl
    jenjenl Member Posts: 948
    edited April 2016

    Your quote in your signature is perfect right now. Re read it. You'll know much more once you have surgery, which i see is about a month away. Then rads will zap anything left. You are doing all the right things and that's all you can do. Be kind to yourself.

    I'm in CLT too but moving to Charleston in May.

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  • MoreShoes
    MoreShoes Member Posts: 322
    edited April 2016

    Valstim, it's normal.Be gentle with yourself and cry if you need to. We can't be strong all the time.

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