Lumpectomy Lounge....let's talk!

1510511513515516947

Comments

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    The whole area where my lymph nodes were removed on July 29th are sore. My radiated foob still gets hot as well. I am 4 months post rads.

  • Peachy2
    Peachy2 Member Posts: 350
    edited April 2016

    I go away for the weekend and miss five pages of posts. Probably best that I didn't participate in the mother discussion. Sloan, your advice is good and I should print it out as a reminder.

    Wondered where you'd been, MelClarity! Yay for hair growing back!!

    As a "Congratulations, you don't have cancer anymore!" surprise my company and dear co-workers gave me tickets to the Rock and Roll Hall of Fame Induction ceremony in New York. Cheap Trick, one of my favorite bands since high school, was inducted after many years of being passed over. I was thrilled to be there. The last song they played was Surrender ("Mommy's all right, Daddy's all right, they just seem a little weird...") In concert at the end of the song they start a chant of "We're all all right!" and have the audience join in. As I was standing there screaming it, I realized that yes, after all of the hell of the last year, now I am all right. And we all are, and will be.

    imageimage

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    Peachy, you have a great attitude. The time is now. Breast cancer is behind us. It's time to get on with life. It will probably never be exactly the same. We will always have cancer in the back of our minds, but we will make a conscious effort to keep it in the back and not in the foreground.

    Hug

  • Melclarity
    Melclarity Member Posts: 388
    edited April 2016

    JCLC - I must admit I burst when I read your post LOL

    Peachy - Ahoy!!! and WOW what a beautiful thing to do for you!!! it gave me goosebumps!!! yes YOU are ALRIGHT! What a feeling huh?


    HH - I concur with the others Im 9 months on still get some pain in lumpectomy site and mostly like Sloan, my armpit is giving me grief as in annoying itchy/nagging pain LOL. All just healing.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    I'm happy to report that I had a burst of energy on Sat & Sun, so I cleaned up most of my back yard. We have about 25 big pine trees that have deposited hundreds of pine cones on the ground, so many that my poor little doggy had to pick his way around them to go to the potty place. I guess the pine cones were hurting his little tiny feet, poor thing. Anyway, I raked up about 1/2 the backyard on Sat, and another 1/3 on Sun. It has taken a total of 20 hours over the last 3 days to burn all of it down. DH even took a week whacker to the overgrown parts of the yard, so it looks pretty nice now. There are still some pine cones on the periphery of the yard, but I will have to wait on raking them up. We're expecting rain later today, not enough time to get my work finished and rake up the rest of the yard. We will have a burn ban in our community from May1 to Oct 1, so I have to get this done soon. It has been so cold or rainy or windy all winter that it's been impossible to burn anything. Don't want to set the house (or anybody else's house!) on fire.

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    Peachy, what a great gift! I love Cheap Trick! Good song to be the theme song of this thread. Poodles, that is great you got so much done. Ha ha ha, Jan! That's funny. I must have missed that post. This thread moves so darn fast.

  • 614
    614 Member Posts: 851
    edited April 2016

    Dear Sloan:  I forgot to mention in my previous post that my paternal great aunt had breast cancer and my paternal aunt had breast cancer plus a recurrence.  She is still alive and doing well at 80.  Her daughter, my paternal cousin, was diagnosed with invasive breast cancer.  My maternal cousin was also diagnosed with breast cancer.  That is it for breast cancer in my family that I am aware of.  However, my father had lymphoma, and my paternal uncle had cancer but I forgot which kind.  (That would be my father, his brother, and his sister all having some type of cancer.)  My mother has lung cancer.  My maternal grandmother had melanoma and lung cancer.  (However, my grandmother spent years in the sun at Rockaway Beach in NY, hence the melanoma.)  My family is very small so every branch of my family is listed above and we have all been touched with cancer. 

  • 614
    614 Member Posts: 851
    edited April 2016

    Dear JCLC:  Your post made me laugh out loud.  You are very funny.  Sorry that you were diagnosed with bc.

    Dear Peachy:  Your post brought tears to my eyes.  That song is so apropo.  What a wonderful gift from your colleagues.

    Dear HH:  My breast still feels weird 1 and 1/2 years post bc treatment (not counting my oophorectomy).  My breast is still partially numb.  I cannot feel the razor when I shave.  If I raise my arm above my head, I feel pain and a pulling sensation at the top of my breast.  (That is the area between both of my lumps.)  Of course, the correct response would be, "Don't lift your arm above your head and you won't feel pain!"  I do not know whether the pain is from my surgery or from the whole breast radiation, or from both.  However, I am fine and I have nothing to complain about because the pain is not bad.

  • Heathet
    Heathet Member Posts: 257
    edited April 2016

    I'm starting my count down - 8 more days until my surgery. My sister in-law gave me a wellness gift basket yesterday. It was so nice. It had essential oil for relaxation with a diffuser, lavender bath salts and ear-seeds for auriculontherapy. I used the bath salts last night and it was so relaxing!

    It seems like I'm running in slow mode and fast mode all at the same time! It seems like only yesterday I was telling my DH that my surgery was three weeks away and now it's the final week. Lots of emotions.

  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited April 2016

    Awww...Peachy- SO happy for you to be able to enjoy the HOF induction of Cheap Trick and...thank you for the "We're all all right" part- brought tears to my eyes,...you gals are so awesome and have helped me through so much and, yes, "We're all all right!"

    Thanks, 614, Sloan and others for posting about continued pain...makes me feel much better. Now, if I could get some real answers about the rash on feet and legs I would be so good! Asking again when I go for Herceptin infusion on Thurs.

  • PolkaDotPurse
    PolkaDotPurse Member Posts: 28
    edited April 2016

    Hello everyone,


    I am scheduled for my lumpectomy this Thursday. I go in for the dye injection on Wednesday. I found out two weeks ago that I have IDC and I'm still trying to wrap my head around it. I've been reading a lot and getting overwhelmed and scared. I'm trying to stay positive and more often than not, I'm successful at it but there's been times were the sadness and despair just wash over me. I'm grateful to have found these discussion boards. No question, just wanted to reach out and say hello.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited April 2016

    i'm sorry you have to go through this PolkaDotPurse. I remember how upsetting it was those first few weeks, I couldn't believe I actually had cancer, breast cancer had never been on my radar. I was an absolute wreck even as I tried to stay positive.

    I promise you it does get easier. Like most things, time does smooth things over, and also as you start to learn more about your particular situation, start to develop a plan, and focus on fighting. I'm not saying there are still hard parts a heart had because there are, but the very beginning when you first got diagnosed and then you have to start figuring out exactly what you're dealing with and what you're going to do with it, that is the very worst.

    This thread has tons of information about lumpectomy, so I won't tell you too much, I will just ay that it was my very first surgery and I was terrified, but recovery was much easier than I expected. The most annoying part was my underarm where they removed the sentinel lymph nodes, but even that wasn't horrible I just had to be careful what I wore for a while and that it didn't rub.

    For the rest of it, I am six months in. I did end up needing chemotherapy, which of course was awful to discover, but I am almost done now and although chemo is not easy it is also not as horrible as I'd anticipated! The ladies here make me feel much better about the things I have to come, radiation and then hormonal medications.



  • KarenR0618
    KarenR0618 Member Posts: 78
    edited April 2016

    welcome PolkaDotPurse, It's a great place to just get information. I found a lot of my questions were answered by reading past post.

    I was scared also. I'm still scared but people here listen and help you through a lot.

  • Lovinggrouches
    Lovinggrouches Member Posts: 530
    edited April 2016

    polkadot, seems as though it was just yesterday that I was in your shoes. I cried my eyes out a almost daily, usually where no one else could see. I had insomnia, laid awake for hours. I found it helped to look up anything and everything I didn't know, and the great groups on this site have so much info to give!!! It gets better once all the constant waiting is over. Genetic testing wait, surgery wait for results, need another surgery, wait, have surgery, wait for results, have oncotype and wait for results, wait, wait, and wait!!! Once you know all the answers and how it's going to be treated and you know how to fight the dang CANCER, I PROMISE, it gets better!!!!! I'm about to start radiation and am looking FORWARD to it because I'm finally doing something to beat this!!!!! Prayers for you all!

  • ChicagoReader
    ChicagoReader Member Posts: 110
    edited April 2016

    Welcome PolkaDotPurse, you'll find a lot of information and support here. If you have questions, you'll find answers or suggestions about where to get them. And if you just need to vent, that's fine, too. Wishing you all the best on Thursday.

  • Katzpjays
    Katzpjays Member Posts: 237
    edited April 2016

    PolkaDot-sorry you find yourself here, but confident you will find comfort and credible information on this site. We're all on a similar journey. I was diagnosed 2/29 and just had my lumpectomy and SNB last Tuesday....waiting for the final pathology. The first days/weeks are the toughest, but try to take one day at a time. It will get better as you get closer to knowing your treatment plan.

  • tbalding
    tbalding Member Posts: 449
    edited April 2016

    Hi Polka-dot, my surgery is Wednesday. I was in denial at first, then all the waiting, thought I had a plan but then had to have another biopsy, more waiting. So now I'm here getting it done. I'm praying they get it all and I don't have to have more surgery.

    Lovinggrouches I feel same way , radiation means I've reached the point where I hope I'm done wth the unknown, that they've got rid of it & am now taking care of business to keep it from coming back.

    For those of you that didn't have much pain, were your incisions deep? I'm not sure how big mine is, but my bs said it is deep, at about the 9 o'clock position on right breast. Concerned that deep = more pain. Don't have to have any surgery on sentinel node s.

    Went to my last zumba exercise class today for a while. They took me out for "stinky" drinks & dinner after class. Really going to miss it & them. How long before you all were able to do more exercise than walking?

    Thanks for all the info, it really helps! Hugs to you all :)

  • brandford37
    brandford37 Member Posts: 71
    edited April 2016

    Tomorrow my big day pray for me y'all (Lumpectomy)

  • Moondust
    Moondust Member Posts: 510
    edited April 2016

    PolkaDotPurse, welcome! I can't add much to what everyone has already said. I will be starting chemo soon and although I'm not looking forward to it I don't dread it like I did before. The wonderful ladies on this forum have made my journey with cancer so much better and easier than it would have been without them! You'll get through this, one step at a time. A month from now you'll have a different outlook and gain some confidence. It's a life-changer, that's for sure, but our lives can still be awesome!

    Brandford, I'm sending white light and healing thoughts in your direction tomorrow!!!

    Peachy, what a wonderful gift your co-workers gave you! I'm so happy you attended!

    Poodles, you really did have a ton of energy! That's really a good sign.

    Heathet, I hope you can do some things to enjoy your week. You'll sail thru surgery.

    Tbalding, I think most surgeons give you an internal med which helps the pain for a few days. Someone correct me if I'm wrong. I don't think the depth will cause more pain. Most people find that the armpit area is more sore than the breast incision. I never even took one pain pill. I walked a lot the day after surgery. You'll be able to do a lot of walking as soon as you want, but you will probably be told to keep bouncing to a minimum. I waited eight weeks before trying pushups. Since you are not having SNB, you will recover even faster! It has been 3 months since my surgery and I feel I'm able to do what I could before, except I'm not quite as strong in the upper body yet. You'll be in my thoughts Wednesday!

    I made an appointment for a short haircut on Wednesday afternoon. It will be my first haircut in over 20 years! I'm not sure how I feel about it, but I'm trying to view it as an adventure. The good thing is, if I hate it, it will fall out a few weeks later :) I see the MO in a week to find out my schedule.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2016

    Peachy, ooh--so good to see you! ;) My son once met Rick Nielsen at a street fair and shook his hand--then refused to wash it for a day! And my first band bought our speakers from his dad’s music store in Roselle, IL.

    PDP, sorry you had to come here but glad to be here for you.

    Tbalding, my incision was at the 9-10:00 position about 3 cm deep. I wasn’t even offered an opioid RX--in fact, they gave me regular strength (not even extra-strength) Tylenol. My lx, including seed placement, sentinel node injection and biopsy, was day surgery. I had very little pain and none of the fatigue they warned me about. (And I am far from stoic--in fact, I once considered writing “kvetch” in the space labeled “Occupation”).


  • Andy1205
    Andy1205 Member Posts: 9
    edited April 2016

    Thank you 614, I was diagnosed with ADH which is Atypical Hyperplasia, The needle core biopsy I had done showed the ADH, So the breast Surgeon wants to do the Lumpectomy to look for Cancer in the area of my ADH, She said sometimes cancer can be found around ADH cells. I have several clusters of Microcalcifactions in my right breast where they did the core biopsy, that is what promoted them to, and that is how they discovered the ADH. I also have Microcalcifactions in the other breast,but they have not clustered yet.I just know that she said (my breast surgeon) that whenever you have ADH found they like to follow up with a Excisional Biopsy (lumpectomy) just to make sure there is no dcis in the surrounding area. Yet I have read that only about 15% of the time it is found to be dcis. This frustrates me, I just dont want to go thru a lumpectomy if its such a small chance. But I am scheduled May 13th 2016 (4 wks away 😔) Thanks for your reply, it took me a couple of days to find it. 😄

  • Andy1205
    Andy1205 Member Posts: 9
    edited April 2016

    Question....Once I post on here, How do I go and find what ive posted, and the replies to it ? I posted a couple of day ago, and this morning I just happend to stumble across my post with a reply ? Im new to this, 😒 But I enjoy being able to discuss the feelings and others expierences.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    PolkaDotPurse, Welcome! You've found the best place to be. We're warm, comforting, informative and funny. Things have moved really fast for you. I waited about 6 weeks for my surgery (which I needed since I had to arrange for my sons to come into town to care for my hubby). You'll do fine. My dye injection was done right before surgery. One thing that would help us immensely is if you would enter all your information about your dx and treatments and proposed treatments in your profile and make it PUBLIC. Then we will be better able to answer your questions better. Also, we'd love to know where you are located. Often there are members in your area and, surprisingly, where you live can make a difference for your treatment path. Ask your questions - we're here for you. I'll be in your pocket tomorrow and Thursday, dancing away (rather badly).

    Andy1205, You have to turn on NOTIFICATIONS for each forum you are in. Up at the top of this page on the left is FAVORITE TOPICS. Click on that and it should list the forums you are in. Click turn on email notifications. That will let you know when anyone posts in this forum. There doesn't seem to be a way to just get notices on posts/questions you ask. Private Messages are the only sure way for that.

    I had my annual mammogram yesterday - a 3D one. Last year's was gentle and kind. This year's definitely did not fall into that category at all. In fact I've never had one so uncomfortable. Probably the tech makes the difference. I survived but my poor bad girl was tender sore for several hours afterwards. So I stayed home and pouted :) I've also decided that looking after a house long distance is rather difficult. I'm glad my son is there and able to check in on my new house. The lawn work hasn't been done apparently. The stupid realtor who sold me the house I bought still had his For Sale sign out front 10 days after closing. My son said I should tell him I'll charge him $500 a day rent and for advertising that the house is empty. If it isn't gone today, I may get nasty. End rant and pity party.

    To all you new ladies, WELCOME. To those having surgery, starting rads or chemo, I'm with you. How lucky I am to have you all in my life.

    HUGS!

  • Grazy
    Grazy Member Posts: 373
    edited April 2016

    I can't get over how fast this thread fills up when you're away from your computer for a bit! Good luck to everyone heading to the surgical suite and to those starting treatment. I would definitely agree with people that the 'not knowing' at the beginning of a diagnosis is draining, especially if you're someone like me who likes to have a plan at all times! I always settled down immediately when I had an appointment to look forward to or a pathology report in my hand. The waiting, waiting, waiting is the worst but when you look back a couple of months, it was really a blip in time.

    I imagine that I'll be getting on with my treatment shortly after my MO appointment at the end of this week and I'm relieved to just get on with it. I think I've dillydallied long enough gathering information and taking my time to research and make informed decisions. My Oncotype score came in a little earlier than expected and I've got a decision to make - I just knew I'd end up in that darn grey area - I'm at the low end of the intermediate zone (21). Fortunately for me, my husband works with three oncologists who have offered to review my reports and give their opinion before I meet with my own MO on Thursday so I feel as though I will have done my due diligence. Once I make my decision, I'll try very hard not to second guess myself.

    Peggy, buying/selling a home and moving has got to be one of the most stressful things in life - I'm thinking of you on that front! By the way, a little while ago you recommended Dr. Susan Love's breast cancer book - I picked it up a few days ago and it really is a breast cancer "bible" of sorts. I laughed to my husband that What to Expect When You're Expecting was my go to book 21 years ago and now this book will be the well worn book by my bedside. So, thanks for the recommendation.


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Grazy, it has been a stressful 7 months. But I am so looking forward to living near my youngest son in Spokane, Washington. Just being in the same time zone with both sons will be wonderful! I'm glad you are finding Dr Love's book so helpful. I read it through in a weekend when first diagnosed. Between that book and the forums here, I was well prepared for my Lx, rads and AI. I also bought the new edition of her book as soon as it came out last fall. Dr Love pulls no punches which most of us appreciate most of the time.

    Sorry for the crappy Oncotype score. I think that intermediate range is the worst. So hard to know what to do. If you are really low or really high then there's no doubt. It is wonderful that your DH can have 3 oncs review your case. Whatever you decide to do about chemo, move ahead with no looking back and revisiting your decision. That will drive you crazy really fast. As the ladies here will tell you, chemo sure isn't any fun but it IS doable. My DIL went to each chemo session telling the drugs to KILL CANCER (colon). And it did. Good luck Thursday! I'll be in your pocket. (I think I need to cut myself up into pieces to be with everyone this week - gross!).

    HUGS!

  • Grazy
    Grazy Member Posts: 373
    edited April 2016

    Thanks, Peggy! I appreciate your words of encouragement. 21 isn't a devastating score by any means, so I'm not horribly discouraged, but it does demand some careful consideration. I want to make my decision based on science, not emotion, although I know that's much easier said than done when it comes down to it. My husband works in the world of oncology so I guess we're a little more scientifically driven in our discussions and have been able to tamp down the emotion. I know there's a lot of great stuff to come in the world of cancer treatment and that will factor into my decision as well. I'm very eager to gather up the doctors' opinions - their reasoning is most important to me. I am completely at peace with doing chemo if everyone feels the benefits outweigh the risks. I've promised those close to me that I won't be careless in my decision making.

    I think it's fantastic that you'll be closer to your son and it will be nice for him, too. Congratulations on this upcoming, exciting phase of your life! A fresh start of sorts.

    I'm about to become an empty-nester this Fall and will spend some of my time in Boston where my husband works during the week. I'll still maintain a home base here in Canada where all of my family are. Waiting for child number two to finish high school has been a long time in coming and I'm excited that I will actually be able to join my husband after a very long time of really only having weekends together! (The secret of a happy marriage, my friends like to say!! haha!) At least my 'move' to Boston will only involve suitcases and won't be stressful. Have a wonderful day!

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    Grazy, I can identify with your empty nest feelings. Its really a mixed bag, missing the kids but enjoying the freedom. We had all of ours out for about a year. Then, one moved out (again) and one moved back home (again.) He is set to graduate in May and he is dying to move out, as are we. Love him to death, but I'm ready to have our house back to ourselves.-

  • Ozpoppet
    Ozpoppet Member Posts: 2
    edited April 2016

    Hello

    I have just joined. I live in Melbourne australia and 4 days ago had a lumpectomy on right breast with reconstruction and reduction to match.


    Today I found that all my margins were clear. We had got it early. I am so relieved. I have been reading others stories and feel a little inadequate to be on this site, but I do find inspirational comments I read very helpful.

    So now I wait to heal then go on a 3 week daily radiation plan. I know little about what it will be like.

    I don't know whether tamoxifen would be good to take. They have said I could try it. I am 65 y old. Is it worth it. Any comments?

    Should I have my 2 daughters tested? So many unknowns.

    Thanks

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    Heathet, Brandford,tbalding, and Polkadot, best of luck with your surgeries. Right niw, some of you are in that fresh hell of not knowing. IMO, having information but no plan was the worst part.

  • brandford37
    brandford37 Member Posts: 71
    edited April 2016

    Good morning everyone I'm at the hospital surgery I'm process will let y'all know how it goes... keep me in your prayers

Categories