Need encouragement from some who have been there and overcome

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Laratee
Laratee Member Posts: 14
edited April 2016 in Just Diagnosed

I have been diagnosed with breast cancer as of Friday 4/8. They did a needle biopsy of a lump in breast and node in axilla. I don't know about the node yet. But the lump is malignant. It is 1.6 cm in size. It has been there a while. As in months, maybe even a year...... but maybe not that long. My head is spinning and I honestly can't remember. I haven't had a mammogram in years. I just let this lump go assuming it was a lymph node, as I've had them before and have always had prominent lymph nodes because I'm skinny.

I'm having an MRI Monday and meeting with a surgeon Wednesday.

I need to hear from people who didn't catch their cancer early and were still ok. I do have a friend who never had mammograms and had a 1.0 cm tumor, and she ended up finding out her entire left breast was full of cancer. She had bilat mastectomy and chemo. That was 7 years ago and she's fine.

I have a 10 year old boy I would like to be here for...... Needing to stay positive that this is treatable, even if it's been caught late. The tumor size is small, supposedly. I don't know anything about this......

Comments

  • Yolo123
    Yolo123 Member Posts: 11
    edited April 2016

    Im a one year survivor but everyone i know personally and theres quite a few in my network that have had BC including stage 3 are all ok 7 and 10 and even 20 years later ... Ofcourse there is a few like 2 that did lose the battle but it was meant to happen that way sadly... Dont forget that no one knows the future.. Do what your doctors say and move fwd ...ull be fine once treatment gets in place and as time passes... Best of luck to you

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited April 2016

    laratee ,sorry you found yourself here. It is scary, but try to take one step at a time. After you have more testing and meet with your surgeon, they will know more about what surgery/treatment they will recommend for you. You may very well be at an early stage. It can take years for a tumor to grow, not just months. Don't beat yourself up; you are taking care of it now and that's what's important. Even if it is a later stage, there are many successful treatment options available. A smaller tumor size is usually considered a good thing, but until they find out if it is contained to the breast, you really don't know the stage. I believe 2 cm or less is considered stage 1, if there is no other involvement. You might want to consider taking a trusted friend or family member with you to your appt. Get all of your medical records as you go, have your trusted person take notes or record the visit. Breathe! Best wishes moving forward!

  • Golden01
    Golden01 Member Posts: 916
    edited April 2016

    Right now, just stick close to that little boy and remember to breathe. Once you see the doctors and figure out what to do, it will be easier. For now, do whatever takes your mind off what you learned yesterday, stay away from Dr. Google, enjoy a walk to the park or a funny movie or watching that sweet boy play, and remember to breathe. Sending good wishes your way.

  • LindaKR
    LindaKR Member Posts: 1,577
    edited April 2016

    6 years post diagnosis from triple positive stage 3A IDC, apx 5 cm tumor, another tumor in another part of the breast 5/18 lymph nodes cancerous - I'm here and no evidence of disease still. 2 years prior to diagnosis I was told not to worry about the lump, it was just dense breast tissue - hmmmmm, not true. There is no looking back at should have, could have...... just looking forward, and where do we go from here.

    Linda

  • tgtg
    tgtg Member Posts: 266
    edited April 2016

    Laratee-- Take some deep breaths . . . and calm down. Like you, my 1.6 cm tumor was caught early, and am fine 3+ years later. Yes, I said "luckily"--a 1.6 cm tumor size is classified as an early catch! While 1.6 cm may seem large to you, 1.6 cm is a little more than 1/2 an inch (2.53cm=1 inch; there are many women on these boards with IDC sizes of 3 to 6 cm. The pathology report from your biopsy should also tell you about more than size, like the ER/PR/HER2 status (grade is only determined by the pathology done on the surgically removed tumor).

    And don't beat yourself up about the length of time since your last mammogram--I had let 22 months elapse between mammos, and the tumor showed up in that space. But the delayed mammo was just water over the dam and there was nothing I or anyone could do about the lapse--the only thing to do was to treat the bc expeditiously.

  • badger
    badger Member Posts: 34,614
    edited April 2016

    hi Laratee, sending encouragement from six years out. It's not your fault for not getting regular mammos. I had regular mammos and for years they were normal until one wasn't. They ended up finding a 2.5 cm tumor that had been there unseen for a long time. It was also unfelt: by me, my doc and my husband. At this time I'm NED, meaning there's no evidence of disease.

    Try to stay off the internet except for here, and if possible bring someone with you to med appointments. Your mind goes kind of numb once the doc says cancer. Good luck next week! ((hugs))

  • Laratee
    Laratee Member Posts: 14
    edited April 2016

    Your stories are helping. Thank you so much.

  • hikerchic
    hikerchic Member Posts: 48
    edited April 2016

    I am loving these stories! They give me a lot of encouragement during a very uncertain time.

  • Laratee
    Laratee Member Posts: 14
    edited April 2016

    This is all so scary. Not knowing. Trying not to focus on the horror stories. Get discouraged when people I know sound so devastated when I tell them.

  • Iowawoman
    Iowawoman Member Posts: 28
    edited April 2016

    Getting that diagnosis was like getting hit by a truck. Cancer really sucks.

    I'm 10 months post-rads and doing well. Definitely take someone to appointments with you to take notes. Get second opinions. Eat right, exercise, sleep, and start eating a little more protein. Your body will need that for healing from surgery.

    Keeping you in my thoughts.

    Lisa

  • badger
    badger Member Posts: 34,614
    edited April 2016

    Laratee, it's because they love you and are worried. Your family & friends can feel pretty helpless. As the patient, you're (somewhat) in control. There will be a lot of decisions to make but in my experience it gets a little easier once you have a plan in place.

    Initially, I told three people about my dx: my husband, my mom, and my boss to approve the time off work. Everyone else found out two weeks after my first chemo when I lost my hair and decided to go commando (no wig no scarf). When people wanted to tell me their cancer stories and I'd stop them and say, does this story have a happy ending? If not, don't tell me. I'm only hearing happy stories right now. ((hugs))

  • momand2kids
    momand2kids Member Posts: 1,508
    edited April 2016

    when I was dx'ed the docs said it could have been there for -10 years.. and I had very regular exams and mammograms-- and I am almost 8 years out--healthy as a horse-feel great.... hang in there

  • MerrellGirl
    MerrellGirl Member Posts: 67
    edited April 2016

    (((hugs))) Laratee! After I told my mom about the diagnosis she said, "You're gonna be alright. . .you might have to go through some things to get there, but you are going to be alright!" Same to you dear. You will find so much acceptance and comfort here at BCO in these early days. No question is "dumb" and you can vent til the cows come home. We will even share our stories of how we told our children - my 5 year old made a "Rad Chain" out of construction paper and was eager to tear off a chain link each day I tackled another radiation treatment. Oh, bc sure does suck, but you are in great company to help you get to your "alright". As others have said, breeeeaaaattthe. Merrell

  • cp418
    cp418 Member Posts: 7,079
    edited April 2016

    Laratee - hang in there. This may be one of most negative emotional, psychological and physical experiences of your life. However, know there are many survivors but only a small percentage still post here as the rest have moved on with their lives. There are many survivors who are beyond 10, 15, and 20 years out. I personally know some. You will find much support here throughout your journey. I was dx 4/18/2006 and am still amazed by it all. (Stage 2A, 1/18 nodes, ER+, PR+, HER2neg, lumpectomy, Chemo 4 DD AC, 4 DD Taxol, rads, Tamoxifen, ooph, Femara)

  • HomeMom
    HomeMom Member Posts: 1,198
    edited April 2016

    Welcome Laratee, sorry you have to be here, but it is really a great place to be! I ignored a lump for 2.5 years after a doc felt it and said it was fibroid cystic. I was too busy making money and was afraid to slow down. I kept telling myself it was my lumpy boob again, but that lump didn't go away. I finally slowed down at work and went knowing it wouldn't be good. I just told myself that at least I'm taking action. I didn't think I would see Christmas, but my BS smiled and told me I wasn't getting off that easy, get ready to go shopping! My doctors were all very optimistic and I am still considered early stage. It's been just over two years since my first surgery and my doctors say I'm doing great. I feel great and I'm so glad I went when I did. If your lump is less then 2 cm you're only stage one (no nodes affected). Whatever the final stage is, they have a plan for you to "fix it".


    Take a deep breath and if you need to sleep at night, get your doc to order you some anti anxiety meds. They really relax you, you need your sleep!

  • Lostdaughter
    Lostdaughter Member Posts: 4
    edited April 2016

    Hello ladies! Not sure how this works but I guess Im just looking for some support. My mother was just diagnosed with Inflammatory breast cancer stage 4. It has spread to her lungs & liver. I am married with 4 kids of my own but I can not imagine my life without my mother/best friend. She is terrified and not ready to leave her kids and grandchildren. I try and stay away from the internet since I cant seem to find a lot of hopeful stories on her diagnosis. The doctor really hasn't said much beside Cancer will take her life and there is no cure. I was like, "Wow, thanks Doc." "So much for all these signs about being hopeful & courageous" She received her first dose of chemo 3/31. Anyone fighting IBC Stage 4?? Would love to stick it to this doctor who apparently thinks he is God to know what is going to take my mothers life. Any advice or words of encouragement would greatly be appreciated.

    To all you ladies fighting this you are all in my prayers and wish you the best. Stay Strong!!

  • susan_02143
    susan_02143 Member Posts: 7,209
    edited April 2016

    Lost daughter,

    To read about other Stage IV women's experiences you might go to the Forum that is especially for women with Stage IV and early stages with mets. https://community.breastcancer.org/forum/8 For support for you, there is a Stage IV family/caretaker forum: https://community.breastcancer.org/forum/144.

    I would strongly urge your mother to join this website to get the support that she needs from others who really "get it."

    *susan*

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited April 2016

    Lostdaughter

    there is an ibc thread, called ibc roll call. There are some on there that have been stage 4 for a while. Same with the stage 4 threads.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    Laratee, my IDC breast cancer was discovered last summer 2015. I had been a bit blasé about getting mammograms, myself. I mean, I got them but just not as regularly as I should have. However, I did get a mammogram in 2014, so I wasn't altogether negligent. The mass in my right breast was high, almost under my arm. It was 1.8cm, so clearly it had been there a while. I think it probably had been their a couple years and just wasn't captured on any of the previous mammograms. Thankfully, the MRI showed no other tumors and estimated the mass to be about the same size as the mammogram did. I had prophylactic BMX, due to gene mutations (otherwise I wouold have stuck to the lumpectomy.) Upon examination of the breast tissue submitted to the lab, no other tumors were found, and nothing found near the previous lumpectomy site.

    I think it is pretty normal for us to feel fearful and anxious about the future. However, keep in mind, these early cancers are about 95% curable with treatment. Hopefully, you will only require a Lumpectomy, radiation, and hormone suppression. If you need chemo, well, then you do. I did and I have to tell you, it wasn't fun but it wasn't the worst thing that ever happened to me. My hair fell out but it's growing back in beautifully. My case was a little more dramatic, due to needing the BMX, but most women sail through LX and radiation without too many complications. My sister did.

    Best of luck to you and try to take things one day at a time. There is no use borrowing worry from the future. You may be grieving something that will never happen and think of the time wasted, time that you could spend on your son. Best of luck to you and try to take things one day at a time.

  • msphil
    msphil Member Posts: 1,536
    edited April 2016

    sweetie we know how u feel most of us been there i am a 22yr Survivor this yrPraise God all while planning our 2nd wedding Positive thoughts n speaking it helped me along with HOPE. idc stsge2 0\3 nodes Lmast chemo and rads n 5 yrs on tamoxifen.

  • msphil
    msphil Member Posts: 1,536
    edited April 2016

    sweetie we know how u feel most of us been there i am a 22yr Survivor this yrPraise God all while planning our 2nd wedding Positive thoughts n speaking it helped me along with HOPE. idc stsge2 0\3 nodes Lmast chemo and rads n 5 yrs on tamoxifen.

  • Jennie93
    Jennie93 Member Posts: 1,018
    edited April 2016

    Laratee, I have a similar story, was called back for more pictures after 2009 mammo, told it was "just a dense spot, nothing to worry about" so I didn't think much more about it. Blew off my 2011 mammo (they were recommended every other year for women in their 40s at the time) and went to the one in 2012 expecting just the usual routine. Well that routine mammo quickly turned into something quite different. Turned my world upside down, you could say.

    As it turned out, the cancer had spread to a few lymph nodes, which we did not know until after surgery, which meant I had to go through chemo and radiation too. It was certainly no fun but I'm still here and doing fine.


  • knittingPT
    knittingPT Member Posts: 156
    edited April 2016

    Hi there! I was 38 when I was diagnosed so had never had a mammogram. I found my 7 cm (YES centimeters!!) lump myself and then was shocked it could be there. It had spread to my lymph nodes. I had chemo before surgery to shrink the lump, a lumpectomy and axillary node dissection, radiation, an oophorectomy ,and now take anti hormonal meds. I was diagnosed in Sept 2014 and am still here today to tell my story! Hang in there. Take it one moment at a time and try not to let your mind run wild. You will have great moments and scary moments but know they are all just moments and nothing at all is permanent. Just breath!

  • Trvler
    Trvler Member Posts: 3,159
    edited April 2016

    The thing that got me through those first few days/weeks was research. I came on here ALOT and learned as much as I could about treatment so I could make the right choices.

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