Lumpectomy Lounge....let's talk!

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  • Moondust
    Moondust Member Posts: 510
    edited April 2016

    Happy Birthday, Tbalding, and I'm very happy to hear your colonoscopy was clear. Good news about the second biopsy too!

    Chipsy, I think it is always a shock to get an extreme recommendation from the doctor when you are not really expecting it. I would feel angry too, I think. It doesn't matter that your tumor is benign. The treatment you are facing is certainly not a benign treatment in my book. You don't have to make an instant decision, and you might want to also get a second opinion. With some time to think about it, you may decide the doctor's recommendation makes sense, or not, but it always helps to think about the options for a while. Hugs!!!!

    Poodles, that was a great story about the TSA woman :) Sorry San Diego was a bit chilly while you were there. And also sorry you have to wait a week for the test results for your DH. I've got my fingers crossed.

    MLP and LTF, I'll remember that your last chemo date is the day after my appt to find out when my first chemo date is! Glad you are both almost done.

    Sloan, I agree that we need to enjoy today and not feel bad about spending our money.

    I love all the kitty pictures! Cats can be good friends! We've got seven.

  • zinny
    zinny Member Posts: 281
    edited April 2016

    image

    Our cats as babies - they are now 18 months…brother and sister rescues:)

  • Melclarity
    Melclarity Member Posts: 388
    edited April 2016

    HEY EVERYONE!!!

    Thought I'd take a break from the Forum, Ive been on 2 weeks School Holidays, and Ive spent alot of time away from my computer. Instead have been out and about catching up with people and life. Its been wonderful! I had my Oncologist visit last week my Vitamin D levels are super high, he's amazed how good they are and how well Ive bounced back. Still in pain but big deal LOL, I just take 2 panadol every morning and burst into life. We are closely monitored in every way from here on. I have my BS May 13th and will have scans u/s and he will give his honest opinion of a mx...which Im really sure he will say to do. This will be the last of it. Im in great health...even got a referral for a rehabilitation course Im going to do. I was approved to continue only 3 days work, great work life balance, my hair is growing GREAT!!!

    I'm blessed, I'm grateful and this is all becoming a distant memory now, but a journey I will never forget, it has changed me, Im a different person now, and I just love life even more, never thought id feel so well again. So will get the surgery out the way and keep on moving!!!! Cancer free since June 2015.

    Hope you all are well, getting through treatments, and managing in every way possible no matter what your challenges are.

    :)

    Hugs

  • Andy1205
    Andy1205 Member Posts: 9
    edited April 2016

    I have Microcalifactions in my righ breast, had a needle core biopsy, and they said that I have ADH and found some precancerous cells. They sent me to a Surgeon and I am having a wire guided excisional biopsy (lumpectomy) on May 13,2016. I am told that 85% of the time it comes back not cancer or dcis. My mom had breast cancer at age 43, I am 41. Im just wondering why the need for a lumpectomy, if 85% of them come back okay. Also im nervous about the surgery. How is it after a lumpectomy ?

  • Melclarity
    Melclarity Member Posts: 388
    edited April 2016

    Hi Andy! Welcome, I'm not familiar with ADH, however My Mum had BC at 40 and I had it at 43, I also got a recurrence 4yrs later last June at age 47. I had DCIS and had to have a needle guided biopsy to determine if it in fact was, so to confirm it. My biopsy came back benign BUT my BS said they are tricky and didnt believe they got the 'spot'. THANK GOD I listened to him, I then had a lumpectomy and it came back DCIS confirmed, so I did rads and Tamoxifen. Andy, they need the lumpectomy to do the pathology, this is the only way to be certain of exactly what it is. No need to be nervous, mine was quick and I was sent home 24hrs later, with no problems at all. Yes you will be sore as its surgery, but certainly nothing that you would feel you couldnt deal with. Listen to your medical Staff and take pain meds as you feel you need them, take time to rest and recover.


  • Andy1205
    Andy1205 Member Posts: 9
    edited April 2016

    Thank you, And my Mom also says to listen to the Doctors about the lumpectomy. ADH is Atypical Ductal Hyperplasia which is like fast growing cells i guess. But thank you very much for the information. And I wil post my expierence after the procedure.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    TBalding, A belated Happy Birthday!

    Melclarity, I also was wondering where you were! I'm so glad you have been MIA because life is good - wonderful to hear. Please stay in touch with us.

    HUGS!

  • Grazy
    Grazy Member Posts: 373
    edited April 2016

    Hi everyone - I was away yesterday/last night and what a cache of posts I've opened this morning - everything from lumpectomies to new refrigerators to cat pictures - I love this site!! lol

    It's interesting to see the posts from the brand new people and thinking that was me just a few weeks ago. It becomes a distant memory in no time at all. My lumpectomy seems months ago and yet it was a mere six weeks or so. I feel completely back to normal and have to remind myself that I haven't started treatment yet - oh yeah, it's not over quite yet, I still have stuff to do!

    My MO's office called yesterday to have me come in next Thursday - it's only been 9 days since I was there last and we decided to do the Oncotype test; the results can't be in yet, so she must expect that the results will be in by then. Naturally, that's the day we were going to be four hours away moving my elder daughter home from university or I should say "college" for my American friends :) so she'll have to take the train home and we'll go back at some point to pack up the car with the stuff she needs for the summer. I need a wife. Or a husband who doesn't work in the US during the week.

    Anyway, I am eager to just get on with treatment and then move on. I'll do whatever I need to do - as all of you have done with grace and humor - there is great peace in knowing the cancer was removed during the lumpectomy and that's the most important thing for me at the moment. Now to kill off those little cells staying too long at the party.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Grazy, so glad you're doing well. We all have been there - needing to split ourselves into 2 or 3 selves to get everything done. Nice that DD can take the train home and you can go back later and move all her stuff home. Fingers and toes crossed that your Oncotype is in and the score is amazingly low! It IS a huge relief to get rid of the cancer in our bodies and move on to keeping it that way.

    HUGS!

  • Heathet
    Heathet Member Posts: 257
    edited April 2016

    I'm a little pived at my DH. I said I would like him around today and he decided to go to the Tigers game. I feel bad at being pived at my DH because I know he just wants to have fun and this has been stressful for him too. I need to let it go and let him be with the guys.

    My mom hasn't talked to me since Feb. because of a fight she had with my sister. (Long story!) This is nothing new with my mom, she does this frequently. She hasn't returned any of my phone calls and I stopped calling because I know her pattern. I wrote a letter just letting her and my dad know of my diagnosis and surgery. She is my dad's care taker, he suffers from beginning stages of dementia and depression. She calls at 8:00 this morning hysterical ( I let it go into voice mail ) about getting my letter and some letter she sent me that she wished she hadn't. I'm not sure when I'll call her back. Don't know how much drama I'm up for today. I want to keep my parents informed but my mom can drag a lot of negativity into things. I'm just not sure how to handle this situation with her. Any advice?


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Heathet, Not a great day for you. DH probably has no idea how much having him home today meant to you. I think you need to speak up louder and more clearly so he understands. I doubt it is because he is uncaring. Does he usually go to Opening Day? If so, then he didn't even realize you meant what you said about having him home - this is normal for him.

    As for your mother. Well, you don't really need more drama and angst in your life. I think you are handling it right. No direct communication. Write letters if you feel like it. But don't call. And don't let her guilt you into seeing her. There will be a time down the road when you can better cope with all that crap but now is not it. Keep as much negativity out of your life as possible. Surround yourself with people who love you, lift you up and support you in a positive way.

    My parents were both long gone when I was Dx. DH was not able to be supportive since he was so unwell. I wasn't able to get out so my support came from my friends via Facebook, email, and, of course, my dear BCO friends who were the best support of all. And even my medical personnel were supportive. Take it where you find it.

    I know others have had to cope with less than helpful mothers (and husbands) and I'm sure they will chime in.

    HUGS!

  • Grazy
    Grazy Member Posts: 373
    edited April 2016

    Thanks Peggy - splitting ourselves into two or three selves is what women always seem to be doing! With my younger daughter off to university this Fall, and assuming my life will be back to 'normal' by then, I'll be able to spend time (finally) with my husband in Boston where he lives during the week. While my friends joke that our seeing each other only 2-3 days a week is the secret to our very happy marriage, it will be so nice to spend a little more time together. I kind of like that we have one foot in Canada and one in the US. Best of both worlds.

    Heathet, I'm sorry you have so much emotional stuff going on with your mom right now - stressful!! Not what you need right now. My opinion is that you should set up boundaries right off the bat - for what you need and don't need and ask that they be respected for your well being.

    My mom is 92 and slowly starting to decline (she's been a Betty White 90 yr old until lately so she - and we - have been very fortunate). She lives two hours away from me so I haven't told her a thing about my diagnosis yet as I'm sure it would finish her off (the worry, and she would just fixate on my situation). We talk on the phone several times a week and get together occasionally, and I'm my usual peppy self, so she's none the wiser. Obviously, if I have to go the chemo route, well, I figure that's a little hard to hide as the hair loss would "out" me, but my brothers agree that it's best for her well being (and mine) to not have to worry about me at this stage of the game. I think we all should just give up the amount of information to friends and family that is necessary at any given time. Will it help or will it hurt for someone to know (my brother's sage advice). All of these decisions are so personal and we all do what we think is best.

    I'm off to get a hair cut soon and all I can think of is "will this be my last one for a while". Oh my. No point in wasting time on colouring today - haha! Have a good day everyone.

  • DisneyGirl16
    DisneyGirl16 Member Posts: 121
    edited April 2016

    tbalding, Happy Birthday!

    Poodles, Sorry you had to go through the whole TSA lady pat-down, but I would have loved to have seen her face when you told her about your surgery. I hope your husband's test comes back fine.

    Molly50, How great to be at the opening of the Wizarding World of Harry Potter in Hollywood. So jealous! I watched some online videos of it and it looked fantastic! What a great memory, even though you got rained on.

    I love seeing the pictures of everyone's pets. We don't currently have any indoor ones, but we do have a three-legged cat that has adopted us. My husband is allergic to cats so he can't come inside but we let him in our detached garage when the weather gets bad or when he just wants to be inside. I am pretty sure he had a home at one time and maybe still does, but he spends a lot of time at our place. We've been taking care of him for about a year now.


  • Heathet
    Heathet Member Posts: 257
    edited April 2016

    thank you everyone for the support! It's a good feeling knowing I can share all these ups and downs with people that understand. Today my goal is to keep it low key and stress free. I'm thinking of heading to Barnes and Nobles to purchase a few books, one is doctor Susan love's book breast, a few good reads for my recovery timeand some inspirational books.

  • MLP3
    MLP3 Member Posts: 534
    edited April 2016

    yay Melclarity!!! So great to hear that you're doing so well!

    To those of you who are questioning DCIS... During my core biopsy and my lx, they found obviously the IDC but they also found a spot in the same area that was DCIS. My breast surgeon said most likely the DCIS area evolved into IDC. So, if they want to perform an lx for dcis... Do it. Early detection saves lives. :

  • MLP3
    MLP3 Member Posts: 534
    edited April 2016

    LTF and Moondust- we got some good vibes going into our last chemo and first chemo plans:)

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    My surgeon was surprised when they found DCIS in the tissue removed during my Lx. It hadn't shown up anywhere. Even at that I had clear margins. No one suggested that my IDC had evolved from DCIS though it certainly could have. Just glad to get rid of it all.

    HUGS!

  • Sloan15
    Sloan15 Member Posts: 896
    edited April 2016

    I told Melclarity that we worried about her like typical mothers. Haha. Mel, you are always so cheerful and positive that you are sooooo missed when you are absent. But, I do understand about needing breaks!

    Grazy - Hoping for low Oncotest score for you!

    Catzpjays - Welcome! Glad your surgery went well!

    Peggy - I might have missed your post, but do you have a move date yet? Getting excited?

    Heathet - In this forum, we tell our experiences and give advice, and members can take it or leave it. So, I'm going to give you a different perspective about moms. Your mom loves you, and somewhere in her life she learned to play mind games to hurt the people she loves in order to get sympathy, satisfaction, to get even or whatever. She's trying to to fillI a need in a weird way. With that said, you can never go wrong with love. She may frustrate the hell out of you, so take a breath and without showing frustration (like she does), just say, "I need to run some errands. Love you." Then hang up the phone or kiss her goodbye. My mom died 2 years ago from cancer. We had a good relationship because no matter how much we might have frustrated each other, we LET IT GO and didn't hold grudges the next time we talked. If one of us said something mean, the other would say right then, "Aww, that sounded mean," and if we had to leave to "run errands" to prevent a fight, we did. Then, we'd start fresh next time KNOWING that we really loved each other and we were being mean because we had some inside need to get even, get sympathy, or whatever. When my mom got sick and had to be on chemo, her filter wasn't there and it was all I could do to LET THINGS GO because she didn't. Kit was one-sided forgiveness, but I'll never regret it. Ever. I know I was a good daughter, I know she loved me, and I have no regrets. So my advice is to be the bigger person and don't take on her trait of being petty. Love your mom and keep visits short if necessary. No regrets, no need to try to get back at her. I hope my story gives you balance and strength to deal with frustrating people. Good luck.

  • iammags
    iammags Member Posts: 216
    edited April 2016

    I'm going for the pre rad CT in a little while. Moondust, not sure if you saw my last post but my RO is so tall and thin. And after you mentioned that a lot of them are tall and then I could barely keep a straight face when I met him. Hysterical!

    I had a mammo yesterday and it didn't hurt as much as I worried it would. I'm a little under a month out from surgery. That was good news. Next week I'll have a gyno appt (not fun), too. I don't know what I'll do with myself when I'm not having doc appts almost every day. :)

    Have a good weekend everyone!

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    Good luck with your sim today, iammags! My RO was a tiny little woman. Mel!! So happy to see you. It was the mother hen in me worry about you. I love that you are just living life joyfully. You inspire me to do the same. Heathet, I am sorry you don't feel supported at home. My dad died over two years ago and my mom is in end stage Alzheimers. I really missed them during this cancer episode. I hope your mom puts her own self aside and becomes a cheerleader for you. I loved all the kitty photos everyone! I have always had cats. I love them. Not a huge dog person but we have a dog as well. DH and DD are the dog people.

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    For those of you with DCIS, I am like Peggy and MLP, I had a lot of DCIS mixed in with IDC and in the stem of my nipple.

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited April 2016

    Sloan, the movers are coming June 17th. Now to get my house here sold. Obviously I don't want the new owners to take possession until after my move date but I'd like to have everything set.

    Molly, you're right. I definitely feel like a mother hen watching over her chicks, MelClarity this time.

    IamMags, hoping your sims go smoothly and quickly! Let us know if you get tattoos. You can be a biker gal then, too!

    HUGS!

  • Jclc83
    Jclc83 Member Posts: 246
    edited April 2016

    Oh my goodness you all are chatty lol. I think I should start taking notes so I can address each and every one of you. My memory is short and I have remnants of chemo brain... So this time I will say Welcome to the newbies! Happy birthday tbalding. Great advice Sloan. Hoping for good results for your DH poodlles. Hi Mel and Molly and happy TGIF hugs to everyone else.

    I saw my MO yesterday 2 months pfc and post rads. He did a quick exam and wants me to keep my port for a year just in case. That's so reassuring. He wants to see me in six months and that I should call him if I have any new pain or symptoms. So I guess I'm on standby. It's kind of a weird feeling like being in limbo. I'm going through appointment withdrawal.

    When I got home my son asked if I was now in remission, boy that's a hard question to answer. Isn't it? I said yes,( thinking today I am )(although remission refers more to leukemias and such) but who knows?

    I sure miss having a cat, especially when I have to walk my dogs in a rainstorm or a blizzard. I also have a parrot (and a Guinea pig) so no felines for me right now.

    I need to run some errands :).

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    Waving hi to Jan!!

  • Heathet
    Heathet Member Posts: 257
    edited April 2016

    Sloan15- thank you for sharing your story. I always try to remind myself that somewhere in her past my mom learned this type of behavior. Maybe someone treated her that way, so for her that's all she knows. Its hard for me because this has been such a cycle for so many years. But I agree with you: I need to take a deep breath, not show my frustration and tell her I have errands to run. I know she cares and is worried.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited April 2016

    Heathet, I am here to commiserate with you about our mothers. My mother is 81 and VERY independent. She is opinionated and extremely stubborn, so once she has made her mind up about something, it's gospel. I have one sister and a couple of nieces and nephews who live within 20 minutes of her. The rest of us live many hours drive or flight away, so we cannot be there to help Mother regularly. I live about 450 miles away and with this BC stuff, sometimes I just don't have anymore energy left for dealing with her.

    Anyway, some days Mother gets on a tear and she's just floundering all over the place, very dramatic. She refuses to let anyone help her with anything, but she loves to complain about everything that's going wrong at her house, camper, etc. Last night I needed to call my sister in MS who is having a hard time with a graduating HS senior with Aspergers (yowza!) and my mother who is giving everyone else a hard time. I told my husband that I didn't think I had that much blood to give. So I put off Mother and called my sister. I feel guilty today, but not guilty enough to call Mother yet. I'm kinda hoping that when I call it will go to voice mail. Then she'll know I called, but I won't be on the phone with her for 90 min talking about her cat, her dog, her handyman, and all the friends I've never met but she wants me to know their entire medical history, LOL.

    I really, really, really hope that I will not be like this when I'm in my 80s. I'm trying hard to be compassionate--I know it must be very hard to be an 81yo widow, living alone, watching your siblings and friends die off. That can't be easy. But I know my mother and some of her behaviors have been going on for many, many years (I'm almost 60), so I know that nothing is going to change there. All I can do is determine how I will react to her misbehavior and drama, and still love her all the time. Good Luck to you, too.

  • Moondust
    Moondust Member Posts: 510
    edited April 2016

    Mags, sorry, I did see your comment and laughed out loud! I meant to tell you but fear I have chemo brain even before I have started chemo! Glad the mammo did not hurt much.

    Sloan, I think your advice to Heathet is totally outstanding!! We can all use that advice for dealing with at least one person in our lives.

    Heathet, I like to say "the key to marital happiness is low expectations of one's spouse". Mine tries to be supportive but in reality he is a more emotionally needy person than I am, so I never feel I can rely on him for anything emotional. But I appreciate little things, such as the fact that he will do the dishes without being asked, and do the laundry, and make a salad for dinner. The day after my surgery, he was away all day golfing (about 2.5 hours away). I did okay though.

    Grazy, I've got my fingers crossed for you to get a low Onco score! Yes, it's hard to catch up if you miss a day or two of posts around here!

    Molly, sounds like a fun time yesterday (except for the rain). I don't drive to LA much but I'll let you know if I do.

    Zinny, is the male the orange cat? Animals get on so well with a missing leg or whatever. They always inspire me to just keep going no matter what. We used to have a cat with one eye. All seven of ours are relatively healthy at the moment.

    HH, waving hello and hope you are having a nice day! Keep steppin'!

    Melclarity, good to hear you've been having a nice life!

    Poodles, I have many friends with elderly parents and they are all having the same problems with them, especially elderly mothers. They all seem to think they are independent when in reality they need a great deal of help, and they are all argumentative. I think we need to write a letter to ourselves to open when we are 80+, so we remember how not to act!

    Hi to everyone I did not mention. Hope your days are good!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2016

    In 12 days my mom will have been gone ten years. I still miss her so much that my first instinct when checking into a hotel room is to call her to let her know I've arrived safely. But in a way I'm glad she hasn't had to be here for me, because she always suffered so much whenever my sister, our husbands or our kids were sick. When there was a time a dozen years ago when doctors thought I was facing either brain or bone cancer or both, I never let on because I knew she'd worry herself heartsick.

    My younger kitty Happy (a ginger patch-tabby) is finally on the mend after a paradoxical reaction to dental anesthesia that caused him to hallucinate, crash into walls and bruise a hip, and then get kidney impairment from being dehydrated due to being in too much pain to get to the water bowl & litter box (we moved them closer to him and Gordy actually fed him water with a dental irrigation syringe). His big sister Heidi is black with jade-green eyes.

    Down here at a spa resort outside San Antonio while Bob is attending the Mayo Clinic's "Echo Fiesta" conference. Going to get a massage or facial this afternoon--if a massage I will have to clue the therapist in as to what NOT to do to my right arm lest my LE flare up. And no sauna, schvitz or hot tub for me--just a little eucalyptus oil in the shower. (If you can't find any, a blob of Noxzema on the tub floor is almost as good). Bob wants to go to the Riverwalk tonight for either Mexican or nouvelle-Southwestern (Boudro's?) for dinner. I was hoping to find some hill country winery tours, but apparently we're too far from the actual wine country to make driving safe. Will have to wait till Tuscany in July (our vacation condo resort is on the grounds of a vineyard).

  • Moondust
    Moondust Member Posts: 510
    edited April 2016

    Sandy, it sounds like you are having a lovely time! We also have a cat named Happy. He is black with white, almost what they call a tuxedo cat. His name came about because he showed up on our porch on New Year's Day several years ago. Last year he was in the hospital for four days on IV because he had pancreatitis. He finally started eating again and has not been sick since.

  • Melclarity
    Melclarity Member Posts: 388
    edited April 2016

    Molly and Sloan - My lovely concerned Mums LOL, too sweet!!! Sloan sent a PM, I took this butt off the radar and it was lovely just immersing myself back into a better life, its good to be alive!!!!


    Back again LOL hope everyone is doing the best they can no matter what your day is today..surgery, rads, chemo or just some great healing today.

    Orknitter - DCIS well its a strange one, it is actually precancer it is not cancer, it is the earliest possible stage, what it tells the professionals is that this is the precursor and a good indication that it most likely will turn into malignant cancer. So think of it as cells, precancerous cells. This is what I had 4yrs ago, and they treated it very aggressively, lx, rads and tamoxifen 4yrs but go figure I got a 2.5cm tumor grade 3 aggressive in the space of a year in between my yearly checkup, I would never have found it as it was in the scar tissue from the lx. In the scheme of things, it is ALL Cancer...but it is the earliest dx of it. There has been a dramatic rise in mastectomy especially in the U.S. choosing this for DCIS, which medical professionals have said is not necessary.

    Ladies I hear alot of you say you are in 'remission' I just want to throw this out there....instead start saying the 'Cancer has gone' Its a play on words, and power of positive minds...but if I say 'I am in remission, it gives it permission to come back' So my fellow Warriors!!! WE are kicking butt!!!! our surgeries, our treatments...as we move forward...keep saying 'the Cancer is gone'. Namaste!!

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