Waiting on results

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aliciaboo74
aliciaboo74 Member Posts: 25
edited April 2016 in Waiting for Test Results

,swollen axilla node thickened areola n sum breast a mri showed birads 4 high concern for infilerating lobular ca, i had a biopsy and neg i was dx w dcis 9 yrs ago.About 3 months the same breast looked thick all away around bottom n up both sides of areola pretty far up ( like a map)i just watched it n then it began to get red ,breast swollen,tender,painful underarm area,swollen axilla n collarbone n neck nodes,clear discharge that discharges on its own,orange peel texture,itching like crazy,and my areola is thick w a yellow discoloration.I went to my bs last month since the symptoms didnt go away and I am on my 2nd round of bactrim w no change.She did do an us on first visit n seen some thickening and last Thurs had 2 areas skin punched so awaiting the results.I have been telling my hubby these past 9 mos i ""dont feel well""something is still wrong as im more fatigued and just ""have that feeling"" as i did 9 yrs ago when i was told i was 2young 4 bc ,,so yea my trust w docs are not very strong and of course the what ifs what if the biopsy cones back neg what if this what if that i dont want to stop without an answer,this is my life .Thank you in advance for the vent im tired ,,you ladies are such an inspiration and so full of knowledge and support .much love,,,

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  • aliciaboo74
    aliciaboo74 Member Posts: 25
    edited April 2016

    i forgot to mention ca runs deep in mothers side,,,i had dcis,,,mother had ibc,,,her mother had ovca and bc,,,an aunt breast,,,a great aunt ovca,,,,

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  • aliciaboo74
    aliciaboo74 Member Posts: 25
    edited April 2016

    ive been taking pics of said breast to record no change well not any better only worse or at a stand still,,,,today n past couple days very tender even just by rubbing arm across it esp cuz it swells out ughhh

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  • 1luckyladybug
    1luckyladybug Member Posts: 2
    edited April 2016

    Anyone with breast cancer know if crying at the most random times is normal? I feel like I'm on an emotional rollercoaster here....I had weight loss surgery a year ago and lost 130 pounds. I have been feeling so tired....to the point I felt like I could just pass out or fall over on multiple occasions. It's been so long since I have felt rested I have forgotten what its like! In late February I felt lumps in my right breasts, went to the doctors and was told I need a mammogram and ultrasound. The radiologist told me it was fibroadenomas and they didn't see anything. Then I got a call from my doc saying to come in? Long story short they found 3 lumps not two and were unsure about the third. He said I want it out and reffered me to a surgeon. Met with him and he told me I could wait six months to see if it grows and get another mammogram and I said no.

    Breast cancer and ovarian run in my family and I'm 35. I said the worst that could happen is its not cancer and I don't think there really is a worst case scenario here....he agreed and I had a lumpectomy on March 25th. He came out and told my mother everything looked great and he didnt think itvwas cancer but will send it out anyway.They never called with results so I finally called them...only to find out they got them on the 29th and it's now April 4th.... The receptionist tells me everything looks good but I will have the doctor look at them and give you a call. I got a call back alright....she told me he wanted me to come in before they close at 4 (it was 1:20)? I broke down and just knew....and I was right. I have cancer. All I know right know is I'm hormon receptor positive and that's a good thing.

    He said we need to go back in, remove more magins, take some skin where they think more cancer may be and check my lymph nodes. I said when...he said well what are you doing tomorrow and I said I'm having surgery. So on the fifth I had more testing..the worst is under my arm....it hurt pretty bad and still hurts.

    So here I am waiting on results...again. I still don't have my her2 results back yet from my lumpectomy I had on March 25th. All I know right now is that I have cancer and that me being so tired makes so much sense now...I also know I need a pet scan as well but decided to see a cancer specialist at Karmonos in Detroit Michigan. This general surgeon can only do so much and in my opinion he never should have said I didn't have cancer, the receptionist never should have read my chart and told me it looks good....and afterbmy surgery he never even went out to speak with my family which is what every surgeon is supposed to do when your in surgery for three hours? It upsets me but his mess ups are behind me and I'm moving forward. I rather have the surgery again then have to deal with this waiting and the results.....I can't get it off of my mind. I am a single mother of two and their dad does nothing nor does he care as I tried to contact him because our kids who are older are having a very hard time but he won't answer or respond. It's disgusting....and I worry about so many different things. I need to get this genetic testing done because I have a daughter...ugh I keep telling myself one step at a time.

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