Stage III Cancer Survivors ...Five + Years and Out.
Comments
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I can't believe I spaced posting here. I hit 5 years from diagnosis last June 18th, and 5 years from finishing treatment December 30th. I honestly did not think I'd be here. I am so thankful.
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MANY thanks, Linda, (lkc) for your great advice. Have looked online for breast health diet--and again after your post.(John Hopkins, Mayo Clinic). Have always eaten healthy esp. at home, but do admit when I eat out I splurge a little--hate to give up everything! Not totally giving up sugar, but cut way down. Also, exercise, keep weight down--so hope all that works because the worry is there and terrible! Love ALL your posts and they give me lots of hope---so KEEP posting! Will use more EVOO and think of your advice!!---I eat a lot of avocados, salmon, etc. too, and drink wine moderately.
Am interested in lifestyles of other Her2 +, -er-pr- Stage 3 or 4, long term survivors. I agree with the other post who said there aren't many with this DX who post.
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Hi to all my stage three friends. It has been almost a year since my last post . Just wanted to say next month will be six years since my DX . Stage three /grade three breast cancer. Because of DX, I have met so many wonderful people I never would have met . Many of them right here on BCO. Six years later still chatting with them . Have met some in person and still working on others !! After DX , somehow or other , my brain decided it could draw and paint and create. It is so crazy ....never thought I could do that!! So I just wanted to say, to all those just starting down the road , maybe reading old stuff on the internet about your prognosis ( I did that) , many many many of us are still here , doing well and living happy lives. Onward we go!!!!!!!!!!!
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Kmur, thanks for posting!!!! It means so much!
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Thank you Kmur I love seeing these stories!
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kmur. Hope you get to do all that artsy stuff for many more years. Pls keep coming back to reassure all us newbies okay? Many thanks for sharing your success!
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Kim...congrats on 6 years. Like you, I've met some life long friends here on bco. Here's to growing old together!! Karen
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Kim, congrats! Thanks for coming back and encouraging us. Yes, and onward we go for many years to come.
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Hi everyone,
I received disturbing news today.
I'll make it short . Hx is below but not updated yet.
2009-2013-2014-2015-2016.
Stage one each time no nodes . First dx Lumpectomy and rads. 1 month after chemo and a b/l mastectomy it came back in my skin locally. So Rads for me again. I just finished Rads in April if last year just finished healing 4 months ago skin broke down some what. So anyway when the for a f/u. Onc said markers are up and I needed a pet scan . Received results today it showed a lymph node in the axilla region.
So now I'm having surgery to remove ithe as recommended by my Onc.
I'm not sure what stage I am. Feels like stage sh to me.
What options do I have does anyone know. I'm not sure if I want them to take it out without some kind of treatment.
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funthing42 - I had a recurrence in axilla. 10 frickin nodes out of 14
The surgeon says she got it all (?!) I had a hysterectomy, ooph and am on 17 / 25 rads right now. Then I get to do 4 rounds of taxotere or 6 rounds of xeloda - won't know til my onc appt March 31. Then will start me on Zometz 2x yearly as I had clean scans though with that many nodes and a recurrence, it seems to me they are pretty confident there is still something floating around. I am now on arimidex after recurring on Tamoxifin.
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It sucks right . I was born in Cleveland many moons ago.
Moved around alot.
I will most likely have the same. I'm not sure onc calling my breast Surgeon. I'm getting MRI's this week. I'm so freaking out. Slept all day.
Im just so confused as to how. I have no breast where it's hiding is a mystery. Chemo Rads with and without breast. I can't take Tamoxifen some kind of metabolism issue , body will not absorb it. Hence the Lupron Aromasin. I'm thinking of asking for a hysterectomy. Not sure it will help.
Thank you for sharing I definitely needed this.
We will get thru it I'm just not sure I'm ready to loose my hair again it is only back to shoulder length. Seems vain but good grief a stage one. I can't get it out of my head.
Hang tough!
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Fun4...I'm so sorry for your news. Hopefully you'll have a plan and some direction. Hugs from Denver.
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Dear all
Thanks so much for the hope your stories give, I have turned to them on many a dark night over the last 16 months. funthing42 and 7of9 I'm so sorry for your ongoing battles but hang in there, you have everything to play for and I hope this thread encourages you as it does me.
I am 9 months from MX and scheduled for Diep on Friday but am increasingly anxious about the risks of the surgery in terms of promoting recurrence for us vulnerable stage 3-ers. I have been talking to my excellent Onc, surgeon and anaesthetist but all of them are a little guarded - the message I get is there are questions and the jury is out. I don't want to hijack this thread of hope so have started another, and would very much welcome any encouragement there from those of you here doing well years after delayed flap reconstruction.
Thanks so much for your kindness x
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Thanks I know it dawned on me as well. Trying to be positve. Some how I thought it was stage III thread.
Survival is definitely a goal for me.
You survivors rock.
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SSinUK.... I had the same ominous feelings about getting fat grafting or even nipple surgery. I have told myself if I live til 50 that I would 'treat' myself to a face-lift as somehow over the last four years and two go arounds I think it really shows on my lower face, neck a little. Lol. All my doctors have reassured me that reconstruction does not impact recurrence though I hated to do a cosmetic procedure and get rediagnosed. Though I may wish I had done both as now after being radiated I hear that makes future surgeries more difficult.
Fun thing.. I never understood people fretting about loosing their hair. Now I get it.
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7 of 9. I'm probably the only one that is enjoying being bald. I have difficult curly hair that was thinning badly before bc and was a big pain in the butt to deal with. Now not only easy but I'm much cooler..I tend to run hot. I'm thinking I may keep the bald look at least thru summer and onward if I see what's coming back is less than before. I'd rather be bald than have severly showing scalp.
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5 years for me!! I should have posted yesterday but just enjoyed the day, a glass of champagne and some cake! The moment they said is etched in my brain and as each day passed the news just kept getting worse stage 3, huge tumour, 12cm+, 9/18 nodes. The thought of actually getting to this point just seemed virtually impossible.
Now I'm aiming for the 10 year thread.
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Congrats Lucca!!!
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Glad to hear it Lucca06! Thanks for posting...always looking for that glimmer of hope! xo Sarah
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so happy for you lucca. It's so great to hear stories of making it !
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Thank you and congratulations, Lucca06!
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Lucca, way to go on 5 years. Looking forward to hearing about year 10!!
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Congrats Lucca, you give us all hope.
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Congrats Lucca!
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Congrats Lucca!!!!!!
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Thank you Lucca for posting, and congratulations!
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Congratulations!!!
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Thank you all for sharing your awesome milestones! There have been many times I will check in on this thread when I can't sleep at night. So happy to see all the women coming back to share with those of us who are still i the early going. (BTW: I am the husband of El_Tigre)
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I don't think that I signed in on my anniversary this year - 6 years post diagnosis, Stage 3A, triple positive, NED!!!!!
Crazywabbit I had a mastectomy, the tumor was too large and in a bad place, so not a candidate for lumpectomy.
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Congrats Linda!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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