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  • Nebraska917
    Nebraska917 Member Posts: 64
    edited March 2016

    what about showering after the exchange. How many days were recommended before doing it and then just put the compression stuff back on after?

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2016

    When you should shower should have been included in your post-op instructions - every doc is different. I was instructed to put the compression garment for the donor area back on immediately after the shower. My solution was some pretty long showers, lol! How long and how often to wear compression also varies by doctor - I have had fat grafting several times, with two different PS. The first one had me wear compression 24/7 (except for showering) for 8 weeks, with no gym - only walking. The second PS had compression 24/7 for two weeks, then whatever I wanted. While I hated wearing it for 8 weeks I will do it again, even though it is longer than PS#2 instructs, when I have surgery in May. She will need to harvest a significant amount of fat and I want a good result at the donor site. I have never been instructed to compress at the graft site, quite the opposite, as you don't want to inhibit the angiogenesis. I have not worn any type of compression bra or ace bandage in any surgery I have had - BMX, exchange, or FG.

  • LoriWNY
    LoriWNY Member Posts: 193
    edited March 2016

    Nebraska--Every doctor gives different instructions so ask yours for his! My PS told me to keep the incisions dry for 1 week when I was scheduled for a post-op appointment. I was not tightly wrapped after the exchange--just had lightly taped gauze over the incisions and I did NOT have drains or fat grafting. This is what I did: I have a handheld shower head in my shower. I wrapped myself in Press & Seal like it was tube top and got into the shower but removed the handheld shower head from the mount. I wet my body with water trying as best as possible to avoid my chest; turning the water off to lather up so as to avoid getting water where it did not belong, and then rinsed off. The gauze remained completely dry but my advice would be to replace it with dry gauze should it get wet. I washed my hair separately in the kitchen sink to keep water away from my chest. It was a process but it felt so good to get a shower every day! Just the shower process was exhausting and enough reason to take the first week off from work!

    Good luck and let us know how it goes for you!

  • Nebraska917
    Nebraska917 Member Posts: 64
    edited March 2016

    the post op sheet says two days.. I just am always curious as to what other doctors have to say as well. I don't go into my follow up until the 2 week mark. Until then I leave the garments on 24/7 for two weeks. I think everything would be a other more tolerable if it wasn't for the fat grafting. Never imagined it being so painful! And I can't decide whether to go buy a pair of compression spanx or something to switch into.

  • Scottiemom11
    Scottiemom11 Member Posts: 1,298
    edited March 2016

    Nebraska. . .I could shower after two days from both BMx (even with drain) and EX. My PS used internal stitches and surgical glue. Every PS is different. I had some lipo on each side of foobs with EX, but no fat grafting and no compression required.

    Scottie

  • Suzanne50
    Suzanne50 Member Posts: 280
    edited March 2016

    Can I ask all you post exchange gals - is your breast really "squishy" ...mine is not. I expected it to be more soft and it still feels hard to me. My PS has me massaging the bottom of it daily. And it isn't as hard as my TE but I just expected it to me more soft and more real life feeling...if that makes sense.

  • bikefam
    bikefam Member Posts: 127
    edited March 2016

    Suzanne, mine is more squishy than the TE, but I too thought it would be more so. I am only 4 months out from exchange, so wonder if it takes time to relax and soften?

  • Suzanne50
    Suzanne50 Member Posts: 280
    edited March 2016

    I am wondering the same thing bikefam. I just expected it to me different. My PS said I had a lot of scar tissue from radiation. Maybe that also has something to do with it.

  • kingster
    kingster Member Posts: 333
    edited March 2016

    I don't believe any implant is like an actual breast, but it's what we have. I don't believe that mine will ever sag or move like real tissue. I have had mine for a year now. Mine did relax and drop though. I have just been trying to focus on the good things. No more mammograms;) I'm free of having cancerous breasts. I have more empathy than ever before. And am surrounded with family and friends that love me with or without breasts. It takes ALOT of getting used to. Mine still feel "pressure" and other times don't really bother me. I do believe mine look better with time and feel better too. Seems like it takes forever. Some implants (like gummies) are more firm, but you get less ripples. I have mentor memory gels. Reminds me of slightly deflated rubber balls, lol.

  • bikefam
    bikefam Member Posts: 127
    edited March 2016

    Kingster, I'm getting used to my foob (I only have one). It is truly good to have something there, as I was without for several months. I feel good and I'm back to swimming, running and biking, so life is good. Mine has not dropped yet, but they say it can take 4-6 months, and I'm just shy of 4, so looking forward to it (it is alot higher than my natural boob, but the PS hopes it will drop in place.)

  • Suzanne50
    Suzanne50 Member Posts: 280
    edited March 2016

    That is encouraging to hear kingster - I had a single mastectomy. Right now the implant side seems to be higher than the other. But PS said it should drop some. Hopefully. I think I do have to get used to it. I actually got used to my TE to the point where it didn't really bother me all that much. So I guess I will get to that point with this too. I just expected "squishy"!

  • kingster
    kingster Member Posts: 333
    edited March 2016

    I do believe they get squishier with time;) Initially my left looked a lot lower than my right, but only a little off now. I massage my right one down gently, and do wear bras all the time (soft bras at night). Actually, looking back at my pre bmx pics, I was more asymmetrical then (but right was lower). Also, I think I have more scar tissue on the left due to needing my TE replaced. No radiation. I'd say, massage gently and stretch;) It's also hard for me to admit it...but I had breast ca and not an "augmentation". Crazy when I think about it. I just saw another celebrity Dx with breast ca. It's just everywhere. We are beautiful and brave, no matter what! Hang in there suzanne and bikefam.

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited March 2016

    Suzanne and bikefam,

    Kingster is so right on! We have a gift to be able to have reconstruction. We had bc and we have a new normal. I have the gummies and they are more firm as kingster said. I saw my MO last week and she said my reconstruction is beautiful! She asked who did it. I am very happy with mine. "Squshy " means softer than TEs.

    Robin


  • PNY
    PNY Member Posts: 90
    edited March 2016

    Exactly Robin, squishy means softer than the TE's. They are soft to the touch but they are firm and stay put, although when lying on my side I do see that it moves with the gravity. (I have rounds) I am now two months post implants and I am so much more comfortable each day. There are times I still get that pocket work pain underneath one of the implants but that happens less frequently. Yawning is still weird or if I do something that contracts my pectoral muscle. One seems to be getting stronger than the other. Although swimming was super hard to do I really believe that is helping me tremendously.

    I am scheduled for my nipples in another 6 weeks then I hope they will look even more typical.

    I am so happy and grateful to be at this point and just hope it continues.

  • bikefam
    bikefam Member Posts: 127
    edited March 2016

    PHY: I started swimming 6 weeks after my exchange, after not swimming for 5 months, all through the TE phase. It was slow going at first-5 laps really slowly. But now at 4 months, I am back to my distance (40 laps), although not as fast. Sometimes I have a little soreness after a swim, but generally I think the PECs are getting back in shape. Still feels like everything is moving around, however, but I think that's the new normal. Keep at it.

  • proctor1725
    proctor1725 Member Posts: 33
    edited March 2016

    Hope you are doing OK. Would love to hear how things are going? How is the pain? did you return to work? Virtual hug! Hang in there!

  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    I have an appointment with my PS on 4/15. I am going to break the news to him that I want implant only. No flap surgery.

  • RAK1
    RAK1 Member Posts: 240
    edited April 2016

    Does anyone have a really good PS that I can See? I'm in NYC

  • Thunder7
    Thunder7 Member Posts: 73
    edited April 2016

    Hello All,

    I am new to Exchange City. My TE's were exchanged on 3/21 for gummy mentor implants. I am very pleased. On 5/10 my PS will make a nipple from surrounding skin. I will need to have a nipple shield type apparatus to keep the new nipples from being flattened. Has anyone used the Medela Nipple shields sold in pretty much all baby stores? Would this be comfortable?

    Thank you ladies!

    Thunder7

  • PNY
    PNY Member Posts: 90
    edited April 2016

    RAK!, I use Dr Christien Rhode at Columbia Presbyterian. I had BMX with TE placement (then chemo no rads. I had my exchange surgery at the end of January and hopefully am having the nipple made in May. Thus far I have been very happy with the Dr.

    Good luck

    Phyllis

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited April 2016

    After reading people's exchange stories I'm a little confused. I have tissue expanders in and I'm going to have to get a job soon. I was moving and between jobs when I got my BC diagnosis and have been off work 4 months already. I recently had a tissue expander infection and that means it will be at least 3 more months before I can have the exchange. Being off work for 7 months is out of the question so I started the job search. My PS told me the exchange would be a very easy outpatient procedure and he could do it on a Friday and I'd be back to work light duty on Monday. I have above-the-muscle expanders and the implants will also be above the muscle. I don't know if that makes a big difference? From what I'm reading it sounds to me like the exchanges involve fat grafting and drains......

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2016

    Most exchange surgeries do not involve drains. Sometimes you will have drains if you had them in for quite a long time with expanders since some people produce a lot of fluid with any of these surgeries - and others have them if a lot of pocket work is done. Since your implants are over the muscle it seems unlikely that pocket work would be an issue. Only some exchanges involve fat grafting, and it is dependent on whether your PS does it at exchange, does fat grafting at all, or if you even need it - all of that is subjective. At the time of exchange (the first time) I had no drains and no fat grafting. My PS did some fat grafting a year later, after all swelling was gone and we could really see if it was necessary. I am not sure you could do any physical work within that recovery time frame - you will still have a fairly large incision.

  • grandma3X
    grandma3X Member Posts: 759
    edited April 2016
    I had a nipple-sparing UMX in January and then had the NAC removed because of close margins. In May I'm having a PMX and must decide between nipple-sparing or not. My PS and BS are leaving the decision to me. I was leaning toward not saving the nipple just for better symmetry, but I'm confused about how they do the exchange surgery. The PSNA told me that they would make the excision across where my nipple was. Do they cut through the muscle to replace the TE underneath? Or do they peel back the skin to put the implant in from the bottom or top of the muscle? In either case, I would prefer to have the nipple-sparing surgery so as not to cut through the muscle or disrupt the blood supply to my skin. Can anyone fill me in on how they do this?
  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited April 2016

    Thank you so much, SpecialK. That makes me feel a lot better. Are you about done with your reconstruction marathon? How much do you have left to do?

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2016

    grandma - if your nipple is to be removed, or has been, the exchange incision will be in the same spot, usually across the front of the breast. The pectoral muscle is cut or opened with electrocautery to place the implant and perform any revisions to the "pocket" to position the implant correctly. If you have a nipple sparing procedure the incision is made in the inframammary fold (IMF) under the breast, but they will still cut through the muscle in this case as well, and most likely will attach allograft material on the underside of the muscle to hold the expander or implant. One positive with an IMF incision is that there is often better blood supply because the incision is closer to an uninterrupted blood flow area below the breast whereas placing the incision across the front of the breast means the entire incision is in an area that has compromised blood supply.

    Stacey - I currently have a TE on the left side that is filled to desired size (480ccs) and am now waiting for surgery May 17 to exchange to a silicone implant, remove the nipple on the right (I had bi-lat nipple sparing) in order to remove extra skin as the right side needs to be downsized to match the left, now smaller, side.
    I currently have a 650cc implant on the right, and from 2012-2014 had a 600cc implant on the left. I will also have fat grafting bi-laterally. If all goes well, and that is a big if, this will be the last surgery, but later I will need a 3D tattoo done to place a nipple on the right, Because of all the surgical intervention I have no symmetry between nipples. I can't have the left nipple removed because that side is too fragile and my skin issues are right where the nipple is, so the solution - which turns out to be multi-purpose because it allows my PS a way to use a smaller implant on the right, is to remove the nipple and some skin. This is going to be a long and complicated surgery, but I have been happy with this PS - I changed docs last year and I have had two surgeries with her so far, she is very meticulous and works hard to achieve the best aesthetic result possible. I have other friends who have been her patients and all of us are happy.

  • momwriter
    momwriter Member Posts: 310
    edited April 2016

    Molly-

    I know I felt I was letting my PS down when I said I didn't want any kind of flap surgery- he's an artist as much a scientist. But I didn't want to take the time for recovery because I have school age kids and wanted their lives disrupted as little as possible. As it was I didn't even tell them I was doing the exchange - was home the same day- took it a little easy but no one besides my DH knew and that's honestly how I wanted it- so tired of all the drama--

    My PS said I could massage after the exchange. But I think yoga has helped/is helping me recover the most.


    Good luck with your conversation with the PS!


  • Molly50
    Molly50 Member Posts: 3,773
    edited April 2016

    Thank you, momwriter!! That's very encouraging.

  • MrsGreenJeans
    MrsGreenJeans Member Posts: 95
    edited April 2016

    Stacey, I too have my TEs placed over the muscle. My exchange is scheduled for next Wednesday, and I will be having fat grafting done at the same time. My PS told me I should probably take 2 weeks off work, but my job is somewhat physical and I also get pretty bad anesthesia side effects. The fat grafting donor site can be quite uncomfortable for a while from what I have been reading.

    If your PS didn't mention fat grafting there is a good chance they don't plan on doing it at your exchange. Good luck to you, I hope you find a great job!

  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited April 2016

    SpecialK, may this be your last surgery and may your results be great!!

    MrsGreenJeans I'm a nurse but I'm looking for a nonphysical nursing position as it seems to me it will be quite some time before I can go back to work otherwise. It really stinks looking for a job when I know I'll have surgeries coming up. I imagine they might do fat grafting at some point.. grrrr I just want my life back.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2016

    Stacey - thank you for the good wishes, and I too hope that this will be the last surgery. Did want to add, that my results will not be great, and I am not looking for that - my left side has had 14 surgeries and my right side has had 4 plus ALND, it just needs to be acceptable.

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