Lcis "Just monitoring" statistics

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mishy044
mishy044 Member Posts: 1
edited April 2016 in LCIS (Lobular Carcinoma In Situ)

Hello there. I am newly diagnosed with LCIS after a biopsy that was not cancer but they found LCIS. No history in my family. For now i have opted for just monitoring with alternating 3 d mammo and MRI every year with breast exams. I do not wish at this time to do tamox. I take a lot of supplements and have for years which i believe keep me healthy. I was just wondering how many people on these boards are doing what i am and how long have you not had it turn into full breast cancer? Thanks in advance for any thoughts.

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  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited October 2015

    I am and it has been about four years.

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  • kimca2000
    kimca2000 Member Posts: 3
    edited February 2016

    I've decided no taxmo either just mris...and healthy eating and exercise. Just had the LCIS taken out 2/8/2016

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  • leaf
    leaf Member Posts: 8,188
    edited February 2016

    I took tamoxifen, but you probably won't get enough responses to get an idea of the effect of tamoxifen.

    Roughly, half of at least classic LCIS women will NEVER get invasive breast cancer/DCIS in their lifetime, regardless of whether or not they take antihormonals. Currently, it is worth noting that long term follow up data from Mayo Clinic and Nashville cohorts suggest that AH carries 30% cumulative breast cancer risk over a 25 year period [8].http://www.ncbi.nlm.nih.gov/pmc/articles/PMC463651...

    But the numbers are very small. In this paper, they find For women with LCIS at entry, no difference between tamoxifen and placebo was observed (HR = 1.05 (0.48–2.30)).For those with AH <atypical hyperplasia>, a reduction of 56% was noted for women receiving tamoxifen compared to those on placebo, but the numbers were small and the difference was not significant. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC463651...

    They are only comparing 12 vs 13 LCIS people on tamoxifen vs placebo, and estimated for a 15 year risk. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC463651...

    So, from what I can see, 'just monitoring' is certainly a valid choice. But I would only ask that you continually do get monitored. There is not much long-term data, but it looks like LCIS womens' breast cancer risk never goes down with time.


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  • 614
    614 Member Posts: 851
    edited February 2016


    Dear Leaf:

    Excellent Post.  Thanks.

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  • leaf
    leaf Member Posts: 8,188
    edited February 2016

    You're very welcome. It helps me learn too!

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  • SassyMutt
    SassyMutt Member Posts: 31
    edited March 2016

    For what it's worth, I've been on tamoxifen for a little over a year now. I have LCIS and also do the six month alternating MRIs and mammos. I have found tamoxifen very easy to take. I was nervous about it given everything I read. But the only side effects have is night sweats. Pretty minor stuff which isn't impacting my quality of life at all. Just mentioning since there is so much negative chatter out there about it. :

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  • InStitches
    InStitches Member Posts: 80
    edited April 2016

    I have been on Tamoxifen since October of 2015 and have no side effects at all. On my second MRI, about 90 days after starting Tamoxifen my background parenchymal enhancement improved from moderate to mild. I take that as an indicator that the Tamoxifen is working.

    For anyone getting an MRI you need to pay attention to background parenchymal enhancement as that can make it much harder to identify problems on MRI.

    Peace and healing,

    Nancy

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2016

    InStitches; I was diagnosed with LCIS back in 2003 and my risk is further elevated by family history of bc (mom had ILC). I took tamox for the full 5 years and now still take evista for continued preventative measures, I've tolerated both meds well with very minimal SEs. An additional benefit to tamox (besides decreasing the overall risk of invasive bc) is that it decreases breast density and makes it easier to see things on mammo. I virtually have no breast density (per the radiologists "all fat"); the only place I don't mind having fat these days!


    anne

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