Starting Chemo March 2016

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  • Faith-Ga
    Faith-Ga Member Posts: 11
    edited April 2016

    Blue Koala- I hope you feel better soon. It seems these drugs are so dang unpredictable. I'm sorry you are feeling so bad.

    Fowlertee- How are you doing? I'm sorry I was so immersed in my own issues and worries that I didn't even ask, and you just started treatment this week. I hope you are doing well.

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  • Fowlertee
    Fowlertee Member Posts: 13
    edited April 2016

    Faith. .no worries..thanks for asking :) I'm ok. I was pretty tired Weds,Thu...fell asleep on the couch before kids went to bed. .ughh. Today, I had more energy and wow. .I'm awake!:) I did feel borderline nausea..but just stayed on top of it with Zofran and was fine. I'm hoping this what SE looks like for me..but who are we kidding..can I be that lucky??

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  • Jonsey22
    Jonsey22 Member Posts: 100
    edited April 2016

    Spoke too soon. Day 4 was awful again just like last time. Not able to stand up for more than a couple of minutes. Hope tomorrow is better.

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  • phaila
    phaila Member Posts: 279
    edited April 2016

    Peg, I'm sorry you went to hospital. I was there for 4 days last week. I saw infectious disease dr too. Which ended up working out because he knew the name of the movie I was watching that I could not figure out what it was .p

    Did you gets TONS of iv antibiotics and iron? I was loaded up the whole time. I left without bad back thanks to those awesome beds!

    Hope your body heals quickly from sickness and hospital stay

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  • sun5308
    sun5308 Member Posts: 2
    edited April 2016

    Hi, I am new to all this. I started Chemo A/C March 25. Can I still join the March 2016 Chemo Group and how? I feel overwhelmed and find this site helpful. Deb

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  • HolaSandy
    HolaSandy Member Posts: 85
    edited April 2016

    Welcome, Deb!

    If you want to come over to our Facebook group, the link is https://www.facebook.com/groups/1380615368631224/

    Otherwise you can post any questions, concerns, comments here. I'm so sorry that you find yourself in this position but we've formed a little online bond that I hope you will feel comfortable and safe in. Take care

    Kristyn

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  • Melgirl
    Melgirl Member Posts: 165
    edited April 2016

    Fowlertee, also coconut oil is amazing for mouth sites or bleeding gums. Just swish and spit!

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  • Mecool
    Mecool Member Posts: 70
    edited April 2016

    Hey Deb! I just started AC on the 29th! Join our FB group, we'll be about on the same schedule!

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  • WannaCruize
    WannaCruize Member Posts: 66
    edited April 2016

    I just clicked on the link to join the Facebook group.

    -Jan

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  • Nina27
    Nina27 Member Posts: 77
    edited April 2016

    sorry ladies, what is considered day 1? Chemo day or the day after

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  • Melgirl
    Melgirl Member Posts: 165
    edited April 2016

    Yes chemo day is day 1

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  • isnogard
    isnogard Member Posts: 34
    edited April 2016

    My hair started shedding around day 17. Then I clipped it short. Don't worry about the port it's an easy installation and you will be glad you have it. Not everyone experiences side effects so you might not have to go out and buy a whole bunch of stuff to deal with chemo. Just wait and see how you handle it and go from there before you spend all that money. :))

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  • isnogard
    isnogard Member Posts: 34
    edited April 2016

    So, I'll be finishing A/C on 4/12/16. Starting Taxol 4/12 for four rounds every two weeks until June. Anyone know how the SE's are for this one besides possible neuropathy? Or, is it all the same basically? Anxious here.

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  • Fowlertee
    Fowlertee Member Posts: 13
    edited April 2016

    Soo..Im on day 5..Ive come down with a wicked yeast infection..yay. Has this happened to anyone? Did you contact your MO before treating it or did you just handle it:) Thanks!

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  • Loretta_J
    Loretta_J Member Posts: 67
    edited April 2016

    Here is the link to the FB Support Sisters. It is a Closed Group right now, so you have to ask to join. We will make it a Secret Group once everybody joins that wishes to join.


    https://www.facebook.com/groups/1380615368631224/


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  • Jonsey22
    Jonsey22 Member Posts: 100
    edited April 2016

    Hello ladies,

    Finally coming out the other side after treatment 2. It takes 5 days on TC for me and the 6th day is better. Only 2 more. Just avoid infection now...

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  • azrescue
    azrescue Member Posts: 116
    edited April 2016

    Sunshine - I'm on carbo & taxotere too. My 1st treatment I didn't chew on ice & I got bad mouth sores. So for my 2nd, I did the ice & I can say it made a huge difference. I have no mouth sores this time.

    The fatigue was much worse with my 2nd treatment & had a lot of shortness of breath with it. Makes me nervous for treatment #3. I'll discuss this with my MO before the infusion.

    Same with me days 3 & 4 are the worst. Then I start to come back around.

    Hang in there everyone. Someday we'll be looking back on this.

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  • HST2016
    HST2016 Member Posts: 2
    edited April 2016

    Hello, I am a little late to joining but was diagnosed on February 29 with IDC, Stage 2A, Grade 3. I am being treated as triple negative, although I had a 10% positive estrogen read, it was a low margin. I started AC chemo on March 10, every two weeks for 4 cycles followed by Taxol for 12 weeks every week. My first two rounds went alright. I have a rough couple of days and seem to bounce back okay. The fatigue is defiantly getting worse. It's hard because I am not tired, my body is just so weak that any exertion is exhausting. Anyways I am happy to be part of this forum and know that I am not alone in the journey. For more years with my children this will all be worth it.

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  • HST2016
    HST2016 Member Posts: 2
    edited April 2016

    I'm going to try to join the fb group as well if that is okay. Heidi Ann is my fb name :)

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  • Loretta_J
    Loretta_J Member Posts: 67
    edited April 2016

    Welcome aboard. I am on the TCHP for now but will possibly be changing due to a bump in the road caused by peripheral neuropathy. Will see my MO Thurdsy to find out. There are several on your regimen though. Glad you are doing so well with the side effects.


    Loretta

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  • sun5308
    sun5308 Member Posts: 2
    edited April 2016

    Thanks everyone, I joined the FB group. I was wondering if anyone else has other health issues that are effecting their chemo treatments. Two years ago I had a Colon resection due to profuse bleeding. They never could diagnosis what caused it. But it left me with major stomach and colon sensitivity and I lost a lot of weight. I am now facing chemo at 88 pounds. In one week I have lost 3 pounds, needed hydration 3 times, Day 2-5 bad stomach cramps. It felt like my stomach was on fire and extreme nausea. They gave me zofron and compezine. I am one of those side effect sensitive people. Now day 9 my stomach is more settled except a lot of gas, but my potassium and white blood cells are very low. I was given an antibiotic and told to stay away from public places. My next treatment is Friday depending on my white blood cell count. If side effects get worse I am worried that my body won't be strong enough.

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  • MFPM
    MFPM Member Posts: 69
    edited April 2016

    Sun5308, I'm in the FB group as well.  I sympathize with what you're going through and totally understand your concerns.  I'm a bit underweight to begin with, having some health problems also, some not figured out yet 'till I'm through with treatment, but am upset seeing weight loss also.  I've only had 1 round of TC broken into 2 weeks.  My eating is okay and my stomach, eh, but the major question I think from day 1 also is am I strong enough for this.  I'm sure we're not the only ones thinking this and though I didn't get a straight answer from my new Dr., I'm sure they base it on the blood work.  I'm trying to stay away from the scale but want to be aware of what's going on too.  Talk to your Dr. as  I will mine again.  I know there's no magic answer but they all say side effects can be controlled and we have to see to it for ourselves.  Marilyn

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  • SwedeAnette
    SwedeAnette Member Posts: 1
    edited April 2016

    Hi! I've been following this group since my first chemo March 14th. I had my surgery Febr. 10. It has been wonderful to follow all of you and to see that what I'm going through actually seems pretty normal..strangely enough! I had my second (out of 6) chemo yesterday and I'm bouncing off the walls from my cortison. Anyway, I hope it's ok for a 51 year old Swedish woman to join your great group! I will apply for the facebook group as well. Take care and I hope everybody have a good day! /Anette

    By the way- I just applied to the FB group . I hope I got it right!


    :-)

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  • Moderators
    Moderators Member Posts: 25,912
    edited April 2016

    Hi SwedeAnette, and welcome to the BC.org community! We're so happy you decided to join in, and we know you'll find lots of answers and support here. If you need help around the boards at all feel free to send us a private message.

    Happy posting!

    The Mods

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  • cfluto
    cfluto Member Posts: 2
    edited April 2016

    How do I join this group? I am brand new at this, started AC March 1st, will do Taxol 12 weeks, then radiation 35 sessions. Thanks!

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  • Moderators
    Moderators Member Posts: 25,912
    edited April 2016

    Dear cfluto, Consider yourself joined and a member and Welcome to the community. We are glad that you reached out here and hope to see your future posts. Let us know if you need any help getting started. You can reach us via private message. The Mods

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  • Loretta_J
    Loretta_J Member Posts: 67
    edited April 2016

    Welcome aboard. You will find lots of valuable information on this discussion board. We all want to know what to expect.

    Be sure and make it a favorite so you can get back to it easily. This is a very active group. We created a Closed FB group to post personal stuff, share our families and hobbies with each other. If you can't find the link in the thread private message me or MFPM.


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  • phaila
    phaila Member Posts: 279
    edited April 2016

    before chemo my ca 27-29test came back at 35. Under 38 is negative. Now after my first chemo my score was 41 which makes me in the positive range. Why would my result go up into negative after chemo??? I'm very scare


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  • ksusan
    ksusan Member Posts: 4,505
    edited April 2016

    I was told that they don't generally do tumor markers during chemo because chemo throws them off, but this is not something I know a lot about.

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  • 786tex
    786tex Member Posts: 42
    edited April 2016

    I am 6 days out on my 3/4 AC. Usually by day 5, I am good but this one has been the worst because I seem to have developed persistent low BP which is odd considering I normally take meds for high blood pressure. They had me go for IV fluids the other day but it really hasn't helped and I am of course off the meds. I have also had horrible stomach problems although I can still eat. I just feel sick afterward. Anyone else have these problems?

    Isnogard - I finish up AC on 4/14 and start taxotere, herceptin, perjeta on 4/28. I was told that after AC, the other drugs will feel like a walk in the park so I am hoping that is true. The part that concerns me is the first one because some people have an allergic reaction. Hope yours goes well.

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