Recurrence after bilat mastectomy?

Hi

I've been posting like a mad woman. I think some have read my post before.

I had a recurrence 4x now. I finished Rads x2 to the right side in April of 2015. This was for the local skin mets to the right. Ran to Boston etc. Protons vs. Electrons .

On Aromasin and Lupron.

Went for reg. F/U 2-3wks ago.

Markers went up doctor called asked me to get a pet.

Now I have breast cancer on my left in my nodes. Cancer was snuffed out on the right.

I have no breast. They are saying it is distant recurrence.

I'm just wondering if it would be more possible NOT to be distant recurrence, this sucks.

We worked so hard getting rid of this and now its in my nodes. I've been node free . Left I guess was never checked. I didn't have Cancer on the left.

I'm narrowing down , starting to get treatment vertigo and feeling fing desperate. I can't breath. I have to wait two more weeks to discuss options. Imbrace and some other options maybe. No chemo. Hmmmmmm. No removal of nodes hmmm.

I've been so good at keeping ahead of this crap now I feel screwed.

My cancer keeps changing 2009

estrogen + progesterone + Her 2 -

Then Her 2+

Then Her 2-

Now nodes are Her 2 +

always some degree of estrogen and progesterone.

Please help with any revaluation.

I've been reading about diabetes and metformin may help. I do not know trying to keep it straight. I want to throw everything at it but the kitchen sink. Looking at the steak knifes again , how hard could it be to remove it myself Lol.

I don't know it feels like I keep missing something.

The doctor is away. They seem optimistic that chemo and removal of nodes are not necessary.

I don't know and like many of us here it's hard to keep up on everything plus work. Research alone is exhausting.

Thank you so much. Communication thru these forums helps. I feel like curling in a ball.

When you are newly dx'd you have some optimisim and drive from fear alone . It would be cool to get some remission.

I'll get the fight back. I Just found out on Friday. Getting another opinion.

Hi

Sorry to hear this of course

I'm so numb and discouraged. They keep asking how I feel. It's like everyone is waiting for the shit to explode.

I'm so numb you could put a knife in me although I may feel it at first it really would not matter. I guess I'm depressed. Lol

Really, I'm just hoping for the best. I'm trying not to be bitter. If I become bitter, I will not get out of bed and I take my small family down with me, they count on me too much.

Please feel bitter for me and I will try to have hope for us and anyone else who needs it.

You took the words right out of my mouth. I was to afraid to get pissed off. Thank you.😊

I just got out of the bed.

When I was first diagnosed in 2010, BRCA tests showed nothing. This time around, the genetic counsellor ordered a more extensive panel (19 genes) and I'm BRIP1 positive. But she did say this result will not change my care because we don't know enough about how this gene interacted with other factors. She didn't think I should be more aggressive with my treatments based on the info. The only thing I did is to inform my sister and be mindful that my daughter will need mammograms earlier than her peers. I suspect this will be true for other genes in the tests that the limited info on the less studied genes will not alter our treatment protocols except for maybe being more aware (many of the genes tested are responsible for more than one types of cancer).

Tessie - I think you should definitely make a doc appointment to get this checked out.

Tessie, I had swollen nodes a couple of years ago that turned out to be nodules on my thyroid and the nodes were reacting. Please get it checked out and let us know. You are not alone.

Hi

I recently found out I had a fourth reccurrence in my left axilla where I never Had cancer. 3 lymph nodes. Pet and tumor markers up.

Skin mets locally right side. 2 mos. After TCH.

Arimadex and Aromasin with Lupron. The only defense every offered. Since 2009. I had 4 years before it hit me year after year.

Now they are pushing Imbrance and latzrole.

They say I do not have it any where elese.

But I want a treatment that I can see the progress. I really do not know which forum to go to.

I want remission gee whiz.

Thanks

Barber going under the knife tomorrow. Taking a stab at removing the nodes. Maybe radiation later.

Dr. Also mentioned fulvestrant and Taselisib.

Thinking of you funthings.....let us know how you're doing.

(((funthing)))

We're here for you funthings.....

{{{{funthing}}}}

Sorry it's so rough. Same meds? Different ones? Or don't you know yet?

I had first cancer in 2008, then mastectomy and reconstruction in 2012, right implant removed b/c it never took (probably due to radiation in 2008). Last recurrence this fall, a tumor on my implant. Had that removed. Radiation and now on Femara. I had this little fat patch that seems to be growing. Should I be concerned?

I agree! I was told my new lump was probably scar tissue ..... right... after 7 years! Then a biopsy said benign but I wanted the lump out anyway. Sure, they said. It was done in Ambulatory Care and not an operating room and I only got local anesthetic. Turned out to be a big ball of cancer! Oops, they said....the other biopsy was cancer, too. This all took place from October to the final diagnosis in January!

All because they didn't believe me! So stamp your feet and raise hell. The best lump is one in a jar.