Infection 7 months post mastectomy

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KarenAus
KarenAus Member Posts: 94

I had a BMX in June 2015 and in dec I started regenerating a boob. I ended up in hospital on IV AB's, it wasn't a regeneration but infection. Last week I again ended up in hospital with an infection in the same area. I was wondering if this is normal or not. Seems I am making my dr's earn their cars.

Karenaus

Comments

  • BethL
    BethL Member Posts: 286
    edited February 2016

    I have not heard of infections starting that late. Stinks, I'm sorry. I had an infection after a ductal excision 2 weeks after surgery and that threw everyone off. Ended up in the hospital for iv antibiotics. Last month, when I was 5 weeks out of bmx I asked my surgeon what the chances were that far out from surgery for infection, after she told me she was worried I woukd get infected again. She said in 11 years she had only seen one patient with an infection that far out. Did they identify an abscess? And did they aspirate and culture it?

    Feel better...

  • KarenAus
    KarenAus Member Posts: 94
    edited February 2016

    This was the whole area of scarring on my left side under the skin. They aspirated and took cultures and blood tests which showed infection. I am making my specialists earn their fancy cars. :P

    Karenaus

  • BethL
    BethL Member Posts: 286
    edited February 2016

    Sorry:( hope it's better soon!

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited February 2016

    Tell them you at least deserve a Prius for every Lexus you’re earning them!

  • KarenAus
    KarenAus Member Posts: 94
    edited March 2016

    Well now had a 3rd episode of infection in the same area and spent a few days in hospital again. I am now 9 months post mastectomy and a little over this crap. They tell me it is because of a owered immune system but i am wondering if it could be something else.


    Karen

  • okbecca
    okbecca Member Posts: 106
    edited March 2016

    You might consider asking them to ultrasound the area to see if they left anything from the surgery in there by accident. Also, consider a different doc with a fresh perspective who doesn't have an investment in believing that the surgery was mistake-free.

  • VioletKali
    VioletKali Member Posts: 243
    edited March 2016

    Honestly, that sounds almost as if they left a sponge in by mistake. This rarely happens, but your situation tends to be a common sign that this has happened-the delayed infection. You kill off most of the infection, but there are still tiny bacteria clinging to the sponge or gauze that wait to grow.

    Ask for imaging studies to see if something was left behind. I would seek a second opinion, too.


  • Artista928
    Artista928 Member Posts: 2,753
    edited March 2016

    Oh for sure, definitely seek a second opinion. Best wishes.

  • KarenAus
    KarenAus Member Posts: 94
    edited March 2016

    The area has had a lot of tests since due to having breathing problems and I am sure somethig would have shown up then. If I have another episode I will be insisting for more followup.

    Karen

  • knittingPT
    knittingPT Member Posts: 156
    edited March 2016

    I developed an infection about one year after my lumpectomy. I just had surgery to open it up and clean it out. From everything I've been reading, delayed cellulitis and infection can happen to a lot of us who have had interruptions to the normal lymph flow. Do you have lymphedema? Maybe manual lymph drainage and compression could help

  • Lou10
    Lou10 Member Posts: 332
    edited March 2016

    Sorry to hear it. Your post brought back bad memories. I had a delayed and long lasting bout of cellulitis after a LX, but it started after 6 to7 weeks, not months! The surgeon said it couldn't have been from the surgery, and I had had a post-surgical biopsy, so who knows. Oral antibiotics, IV antibiotics, several US-guided drainage procedures, breast "exploded", debrided, packed daily for a month or so, delayed chemo, C. Diff., more antibiotics. Nasty. Hope you feel better.

  • KarenAus
    KarenAus Member Posts: 94
    edited March 2016

    This is on the other side to the cancer so no lymph node taken out on this side. I have had physio right from the beginning and tried compression to no avail. I am hoping this is the last time this happens as I am over it. I am supposed to be finished with al this crap.


    Shirrine

  • knittingPT
    knittingPT Member Posts: 156
    edited March 2016

    I hear you! I was just getting back to my "normal" routines with work and exercise. I had finally saved up a week of vacation time and was excited to plan a trip when . . .all of my time got eaten up by this crap. What a mess! And everyone is like, " you are just so lucky" I sure don't feel lucky. How about you? I know that this too shall pass and I will get through it. However right at this moment I am just annoyed as heck to have to deal with it. Hope your infection has now be decimated, never to return again!

  • macb04
    macb04 Member Posts: 1,433
    edited March 2016

    Hi Karen,

    I know you said you have had a number of tests, but were any specifically looking for a soft object like a sponge left in by mistake?? One little sponge left in my mistake might be easy to miss. Just saying.

    If you think your immune system is under the weather so to speak, there are a number of things you can do to boost the numbers of WBC's in your body. Turkey Tail, also called Trametes Versicolor is a well researched Mushroom Extract that is know in several trials to boost WBC activity/levels and to have anticancer properties as well. Another well known herb is Astragulus, a Chinese Medicine herb that is very well studied and has been shown to improve immunity as well. I am including some links you might want to look at.

    Increasing basic nutients like Vitamin C and Zinc is very helpful for immunity as well. I had Intravenous administration of Vitamin C , 50 grams on a number of occasions when I had infections with reconstruction. Avoided getting hospitalized with antibiotics by doing that, as the oral antibiotics don't work well for me anymore, had too many antibiotics lifetime, so affected badly by antibiotic resistence.

    http://www.alsearsmd.com/2010/12/the-best-herb-to-boost-your-immunity/

    http://www.huffingtonpost.com/paul-stamets/mushrooms-cancer_b_1560691.html

    Sorry all this stupid misery has happened to you, hope it gets sorted out soon.

  • macb04
    macb04 Member Posts: 1,433
    edited March 2016

    Hi Karen,

    I know you said you have had a number of tests, but were any specifically looking for a soft object like a sponge left in by mistake?? One little sponge left in my mistake might be easy to miss. Just saying.

    If you think your immune system is under the weather so to speak, there are a number of things you can do to boost the numbers of WBC's in your body. Turkey Tail, also called Trametes Versicolor is a well researched Mushroom Extract that is know in several trials to boost WBC activity/levels and to have anticancer properties as well. Another well known herb is Astragulus, a Chinese Medicine herb that is very well studied and has been shown to improve immunity as well. I am including some links you might want to look at.

    Increasing basic nutients like Vitamin C and Zinc is very helpful for immunity as well. I had Intravenous administration of Vitamin C , 50 grams on a number of occasions when I had infections with reconstruction. Avoided getting hospitalized with antibiotics by doing that, as the oral antibiotics don't work well for me anymore, had too many antibiotics lifetime, so affected badly by antibiotic resistence.

    http://www.alsearsmd.com/2010/12/the-best-herb-to-boost-your-immunity/

    http://www.huffingtonpost.com/paul-stamets/mushrooms-cancer_b_1560691.html

    Sorry all this stupid misery has happened to you, hope it gets sorted out soon.

  • KarenAus
    KarenAus Member Posts: 94
    edited November 2016

    I forgot I put this here. So the end of the story.

    4th time in hospital in June with this infection and even worse than the previous times. I spent 8 days in on 3 ABs and evetually they decided to open the area up againfor a look see.

    Instead of a short op I was in for 2 1/2 hours. The found a pocket about 3-4 inches from the op site with a sinus tunnel to the area. That was cleaned out as was the scar tissue in the old site and I haven't had a problem since.

    I am off to see plasctic surgeon on Monday to talk about tidy up and other things.

    Thank goodness this is behind me.


    Karen Aus

  • Kicks
    Kicks Member Posts: 4,131
    edited November 2016

    This does not directly apply to BC but to when an infection develops/occurs within scar tissue. In fact, it was an experience years ago that I fougbt with a horse.

    Antibiotics can not cross into scar tissue to attack an infection. Scar tissue 'seals' the infection within it - IF it happens - unusual to be totally within the scar. With my 2nd C-section, I developed an infection in the scar from the 1st one before I left the hospital. I don't remember a lot of that time other than the Navy sent armed guard to University Hospital to pick up the drug needed.

    It was many years ago that I had to deal with one of my Dressage horses who had a very severe injury to the front of his hock. We thought it was finally healed several months later - except it wasn't as somehow the scar tissue had 'sealed in' some infection. After my Vet did a lot of consultation with several big Vet Universities, more surgery was ruled out if Himsbad would ever be able to compete again. The answer was to try human tuberculosis meds along with antibiotics as they allow antibiotics to get into scar tissue. It worked. It was sort of funny when I picked up the meds 100 miles away as they 'had no idea that there was someone needing the meds in my town". Even more surprised that it was a Vet. who could order them.

  • KarenAus
    KarenAus Member Posts: 94
    edited November 2016

    I do dressage as well. Thankfully The horse hasn't suffered from this.


    Karen Aus


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