Lumpectomy Lounge....let's talk!

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  • froggie
    froggie Member Posts: 92
    edited March 2016

    I met with the MO a few weeks ago. She spent a little over an hr with me and was very thorough and answered all of my questions. Based on the pathology and markers, she didn't think the Oncotype DX was necessary. Based on her clinical experience, she expected them to both be low with the possibility that the right might be at the low intermediate end and she wouldn't recommend chemo. She called this evening with the results. One was a 20 and the other was a 24. I see her on Wednesday and we'll go over the results in more detail. From the phone conversation, she is still not recommending chemo.So much for expectations based on path. report.

    I also met with the RO. Based on the path report, she is recommending the short course of whole breast radiation. All of the margins were clear and greater than 3 mm and she didn't think I needed boosts but I said no to that.Right now we're talking 19 with 5 being boosts on each side. It is not clear if that will change when she sees the Oncotype DX results. My planning session is next wk. She will look at the placement of my heart prone and if it is out of the field that is how she will proceed. If my heart drops forward while prone, then she go to supine with a Swedish breathing technique that moves the heart back. She seems committed to keeping my heart out of the field so we'll see. Regardless of whether I stay with a short course or go to the longer course, I have to do both breasts which is increasing the area of radiation exposure so low blood counts becomes a real possibility with other side effects in addition to the usual skin reactions and fatigue.

    That's it on the Tx plans.


  • froggie
    froggie Member Posts: 92
    edited March 2016

    Thanks, 614. He was really lucky. they thought they'd have to stent him but by the time he got to the cath lab, he had cleared the clot so no stent. His ejection fraction was normal and there was a minimum of damage at the very apex. He has completed rehab and continues with the exercise plus I have gotten 32 lbs off of him. We were just getting back to normal and then I was diagnosed in Dec. - It's always something.

  • Molly50
    Molly50 Member Posts: 3,773
    edited March 2016
  • 614
    614 Member Posts: 851
    edited March 2016

    Dear Froggie:

    I cannot believe how much you and your husband have been through.  What a rough ride.  Good luck to both of you.  I am glad that you are there to help your husband and now he is there for you.  I hope that you have an easy time with bilateral whole breast rads.  I wish you the best and I am sending you hugs.  I am glad that you do not need chemo.  One less hurdle.

  • Moondust
    Moondust Member Posts: 510
    edited March 2016

    Poodles, it is just wonderful how well your icky wounds have come along! I'm feeling happy about it!

    HH, Rowdy looks like he is thriving on the bottle! I've never had anyone ask to come and help out, but it would be fun. Actually, DH and I talk about finding a ranch sitter some day so we can take a vacation together. Right now one of us has to stay home. It works out okay, though, because he doesn't like hiking and I'm not crazy about golf.

    614, I forgot to say how great I think it is that you are modeling! I would love to have you visit! Anything is possible as time goes on.

    Peggy, I've got about 30 sheep right now. It's easy to lose count once the lambs start coming. These are a breed of hair sheep. Every year they shed off any little amount of wool they grow each winter. Most of the year they look like a goat, except the rams get big curly horns.

    Molly and MLP, your insurance stories make me cringe. I have intense dislike for that business. Why do we have no recourse when they lose things, get things mixed up, and flat out deny claims they should pay? The added stress it puts on us when we are already in crisis is just not right.

    Froggie, hello, and sorry you and your DH are both battling health issues. It is great that you got him to drop so much weight. I wish I could get my DH to do that! My MO was surprised at my Oncotype of 26 also because I was Grade 1 like you. I changed my mind about chemo and will be having it after I finish rads. It was a hard decision and took a while to come to grips with. I hope your rads go smoothly!

    Sloan, you must be getting your biopsy results soon. Fingers crossed!!!!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    Poodles how wonderful

    Froggie this compact is my favourite, I use the powder to lightly shade the whole area and the wax to define. I've got more expensive ones but love this the most

    http://www.amazon.com/gp/aw/d/B00HUPR60K/ref=mp_s_a_1_3_s_it?qid=1458628705&sr=1-3&keywords=bh+cosmetics+brow&pi=SY200_QL40poodles how wonderful!

    http://www.amazon.com/gp/aw/d/B00HUPR60K/ref=mp_s_a_1_3_s_it?qid=1458628705&sr=1-3&keywords=bh+cosmetics+brow&pi=SY200_QL40


  • MFPM
    MFPM Member Posts: 69
    edited March 2016

    Nancy, I just wrote to you privately, having went through the same at Sloan.  However, I just saw the date you wrote it and you're probably recouping already! Marilyn

  • njnancy
    njnancy Member Posts: 45
    edited March 2016

    thanks -- i responded. seed implantation and lymph mapping today. surgery tomorrow. Im less nervous and more anxious at this point. I just want to get started so i can be one day closer to the end. (OK maybe I'm nervous since i have been up for two hours and its not 5AM yet) -- lol

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited March 2016

    Nancy, "you got this." I had the seed implantation, not the wire localization, and I felt it even less than I did the biopsy (the lidocaine is in a very fine needle, and you get numb almost instantly). Lymph mapping takes a little longer, but it still hurts for less than 10-15 seconds. Getting started is a good thing. We're in your pocket!


  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited March 2016

    Nancy, good luck today and tomorrow!

    Moondust, so you don't shear your pretty sheep?

    On insurance. When my DIL was being treated (surgery then chemo) for colon cancer, my DS had a 2nd fulltime job battling with his crappy insurance company. They'd pay for chemo one week and the next time reject it. It's a wonder he came out of it sane. At least DIL is cancer-free (her type produces markers making it easy to track).

    On the paint front for the new house. I had DS look at the carpet (which is fine, BTW) to make sure of the color. The colors in it don't go with the paint I thought I wanted. So I'll just have everything painted with the same color. And that's fine. You can see where some of the walls have been scrubbed really hard and the paint's thin. It will simplify things. Hoping to get the inspection report today. I'll definitely need my DIL to help me decorate - I'm lousy at it.

    Poodles, it is extremely hard having family on the other coast. I hope you can retire to West Coast. I hope to get over to the Seattle area. I'm FB friends with an author who lives there and I'd like to meet her in person (Meg Justus).

    If anyone has friends or relatives in Spokane and they are willing, I'd love to meet them!

    HUGS!

  • Brutersmom
    Brutersmom Member Posts: 563
    edited March 2016

    MLP3 I have had that problem a couple of times. I don't argue I find out what they want as proof. Then I call back the next day. Often I get a different person and then I get the problem resolved. It is frustrating.

  • fightergirl711
    fightergirl711 Member Posts: 300
    edited March 2016

    MLP - seriously that stuff annoys the pants off me. Or as a former co-worker used to say to me, "That fries my nose." I have been dealing with incompetent billing and admin at healthcare facilities up here since I started getting treated in Boston. The last one was for PT for cording, the prescription didn't have the RIGHT LANGUAGE (mind you, from Dana Farber) and therefore I could not make a PT appointment. As a result I was sent on a wild goose chase. And the bills, well that's too long to even get into, but they don't put all the services on one statement, instead they put EACH service (office visit, ultrasound, biopsy, surgery, pathology, etc.) all on separate bills and so you have a pile and don't know what's been paid or not. I actually rely more on the insurance company and my account on their portal to get a full picture of what's going on because the hospital administration I went to up here is so inefficiently annoying. (I do love the nurses, though.)

    LTF, Poodles, so glad you are bot feeling better!

    Did a 5k this weekend with my family, including the kids. We walked, it was cold but the sun felt great. I did take a nice nap afterwards.

    BTW need an opinion - I have tickets for a concert 7 days after my first AC, I should be good enough to go, right? My blood counts have been fine. I'll ask the onc too.

    Baby animals are such a beautiful sign of spring! My oldest was born in April, I always referred to his birth as "the great lambing." :)

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited March 2016

    Thank you all for your best wishes. I knew you all would understand. It's been a long, hard road to get here and it's been like turning the Titanic around. But there is finally light at the end of the tunnel.

    614, we are trying valiantly to get the credit cards paid off so that I can retire. I want to be debt free, or nearly so. Our last kid should be launched sometime this summer, after which we can sell the house in about a year or so (I hope). We're crossing our fingers that none of them tries to move back home. I think we will love living in the Pacific Northwest. I'm a little concerned about DH handling the wet, dark winters, but the only way to know is if we make a go at it for 3-6 months. What's the worst that can happen? We move out there and hate it? We can always move back to Georgia. Or I can send him to live with one of the kids, LOL. That would serve them right!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited March 2016

    Poodles, I think that Spokane is much sunnier than Seattle. Summers are drier. You might want to come visit me when you start exploring areas in Washington. I think Seattle is about 4-5 hours away (not real sure). Not a drive you'd do in winter but otherwise a nice drive. Even with all the rain we had when I visited last week, the sun still came out. Rather reminded me of Florida rains: rain, sun, rain, sun etc. Like your DH I wouldn't fare well with out sunshine either. I have no trees in the backyard of my new house and lots of sun - perfect for me.

    HUGS!

  • MLP3
    MLP3 Member Posts: 534
    edited March 2016

    fighter- I was much better on day 4 after my first AC. 5 days after my second, but exhausted. But I think you should be ok after 7 days for the concert. If you get tired, go home;)

    Nancy- good luck today! Check in later;)

    Ltf- thanks for reposting the links... I'm getting sparse!!

  • iammags
    iammags Member Posts: 216
    edited March 2016

    Nancy- good luck. I had the same procedures done, too. So scary when you don't know what's going to happen!

    Poodles- My brother and sister in law live very close to your sister! In Kingston, WA. I love that area. Good to hear about your good news, too

    I hate having insurance issues and I'm glad that I have Kaiser because it makes billing easier (although I have gripes with them, too).

    Have a great Tuesday everyone.. I'm off to the PS to get my infected drain site taken care of. I know, fun, fun, fun! :)


  • Molly50
    Molly50 Member Posts: 3,773
    edited March 2016

    In your pocket, Nancy!

  • 614
    614 Member Posts: 851
    edited March 2016

    image

    I am pretending to be a model here.  I have absolutely no fashion sense or coordination.  I hope that I can raise some money for Breast Cancer patients through this organization. 

    Sherri - 614

  • Molly50
    Molly50 Member Posts: 3,773
    edited March 2016

    Look how pretty you are, 614!!!

  • 614
    614 Member Posts: 851
    edited March 2016

    Dear Poodles:  I totally understand about paying off credit card debt prior to retiring.  However, medical bills for breast cancer treatment hampers one's ability to pay anything off.  After tx is finished, ongoing medical tests/imaging/doctor appointments, etc. also add to debt every year.  The financial stress, time off from work for tx, appts, and to heal, plus the emotional/mental anxiety from bc make this disease so difficult.  I am still praying that you can retire soon.  Good luck paying off the debt.

    Good luck to all of you having surgery, chemo, and rads.  Also, good luck with pathology result.

  • 614
    614 Member Posts: 851
    edited March 2016
  • HappyHammer
    HappyHammer Member Posts: 1,247
    edited March 2016

    Fightergirl- Your 5k sounds great! I had to laugh at the "that fries my nose" comment- thanks, am hoping to be able to remember it so I can use it.

    MLP- 28 year old stable hands---got a chuckle out of that, too. Can't remember who was asking about a concert 7 days out from chemo (sorry) but agree with you- should be fine and if you get tired leave early.

    Nancy- wear something with big pockets- looks like lots of us with be in there for support. Hoping Peggy doesn't knock any of us out

    Singing

  • KarenR0618
    KarenR0618 Member Posts: 78
    edited March 2016

    In your pocket Nancy

  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited March 2016

    Yeah, Spokane significantly drier than Seattle--can't remember the meteorological term but the mountains catch all the rain.

  • One_Bad_Boob
    One_Bad_Boob Member Posts: 40
    edited March 2016

    So I was fitted for a compression bra and sleeve. I've worn them exactly 3 hours now and I'm ready to cry. I'm not in pain but I am uncomfortable and I'm feeling emotional. Will be donating my VS bras. This was not discussed with me as part of my treatment plan but my RO referred me to physical therapy for lymphedema even though I wasn't having any issues. I do have to admit that the physical therapy is helping to loosen up my scar tissue in my breast and under arm area. The bra and sleeve are supposed to help with the continued post surgery and rads treatment healing. When I asked how long I need these I was told, "Let's just play this by ear". Just feeling frustrated over it all.

  • Kaneli
    Kaneli Member Posts: 100
    edited March 2016

    Hi Everyone! I just wanted to post this for the newbies out there! I just had my lumpectomy this morning. My BS also took out one sentinel node and put a spacer and catheter in the tumor cavity so I can begin Brachytherapy on Monday, (5 day internal rads 2x per day). I have to say that I feel pretty good. A little sore, but I'm just resting and taking it slowly. The dye was injected into a few spots on the edge of my nipple to flow to the nodes. I had heard that that was going to be excruciating. They put a lidocaine type of cream on the area and that really seemed to help. It did not really hurt much at all during the injections,,,... it was more like a fleeting sting. Next thing you know, I was awake and all wrapped up tightly with ace bandages. So far I'm just tired, and a bit tender. I notice it more on my underarm than the lumpectomy site.

    The Doc said that there was no node involvement and they think the margins are clear, but won't know for a few days. They still recommend the Brachytherapy for any stray cancer cells, and I will start that on Monday. I am happy to say that the spacer is already in place and all they have to do is exchange the spacer for the balloon on Friday. I thought they were going to have to do a whole new procedure to get that in on Friday so that was a huge relief.

    All in all, for day 1, I feel pretty good regarding my new LX. That may change as soon as the anesthesia wears off, but, in the meantime, I just wanted to share that it was not nearly as bad as I thought it would be! I appreciate all of the posts on this forum, and it has been a great source of info and comfort to me...I hope this little post will help alleviate anxiety for some of you out there still counting the days to your surgery!

  • 614
    614 Member Posts: 851
    edited March 2016


    Dear Kaneli:  I am amazed that you were able to post today.  Yay, that your procedure is done and that you feel well.  The best news is that they don't think that there is any node involvement and they only had to remove 1 node.

    Dear Nancy:  In your pocket.  Good luck today.

    Dear One Bad Boob:  What is a VS bra?  The compression bra and sleeve should ultimately make you feel better but I can certainly understand how uncomfortable they may be.  Hang in there.  You have completed the hard part.  I'm glad that the PT is helping.  We are all in your pocket, sending your positive thoughts, prayers, and hugs.  Good luck getting through this.  Emotionally, bc is rought.  I wish you the best.  Welcome.

    Dear Iammags:  Good luck.

    Dear Moondust and MLP:  Thanks

    Dear Fightergirl:  I love your name.  I hope that you feel well enough to enjoy the concert.

    Sorry if I missed anyone.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited March 2016

    Drove up to Milwaukee to see the Who last night--they’d had to postpone their tour for 8 months while Roger Daltrey recovered from bronchitis (he is extremely allergic & asthmatic). Last June I had tickets to see them in Rosemont but it was the first night that he had to cancel--Gordy said that when he saw them the night before Daltrey was having problems and had to sit out the last few songs. He was in terrific voice last night--but Townshend had laryngitis and sounded more like Jimmy Durante at times--growling where he used to hit higher notes. It was a benefit for Teens with Cancer.

    BTW, for you Fitbitters--because of all of the wild applauding, air guitar, fist-pumping and dancing in place, my Fitbit said I did 7800 steps, 2.6 miles and 8 flights of stairs. Now you know how to fool a Fitbit!

    Then on the way back to the parking garage, I stubbed my toe on a raised brick circle on the sidewalk, and down I went--landing on my R knee, elbow and upper arm, straining my shoulder. I was able to drive home just fine, but all the way home I was worrying about my LE. I knew that despite not abrading my leather jacket I had still skinned the elbow (friction with the cloth of my sweater sleeve), and I couldn’t shrug my shoulder w/o wincing. When we got home, I was relieved I could still reach up to close the tailgate--Bob said that means I didn’t tear or fracture anything. Washed off the scrape on my elbow--raw red patch about the size of a penny, with some dried skin peeled back--and put on a band-aid with bacitracin. Took a Celebrex and a Norco and slept like a baby. Woke up okay, so have decided I don’t need to waste time going to Urgent Care.

    Have to go buy some pounds sterling today, and Swiss francs tomorrow--I start with 3 days each in London & Lausanne, which don’t use the Euro, before finishing with 3 days R&R in Paris. I now have an excuse to ask for a wheelchair at airports, but because of the Brussels bombings it won’t get me through security any faster. And it’s just as well I didn’t apply for Global Entry--they’re not exempting members from TSA shortcuts until further notice. I’m a bit nervous about the trip, since it looks like Europe is ISIS’ target. I’ve decided not to go to any Friday night services in London or Paris, since synagogues there will probably be vulnerable.


  • Italychick
    Italychick Member Posts: 2,343
    edited March 2016

    clean brain MRI and clean breast MRI, phew! DEXA scan showed very mild osteopenia, so next up is discussing Prolia with oncologist in two weeks.

    But today is a great day! 14 months clean so far!

  • PontiacPeggy
    PontiacPeggy Member Posts: 6,778
    edited March 2016

    Sandy, your fall was scary. I think for all of us over 60 falls are the thing we fear most. Glad you weren't really hurt! And I think you are extremely wise to avoid Friday services anywhere in Europe. That's too bad because I'd think there are some really old synagogues that would be wonderful to visit and attend services. Smart of you to request a wheelchair. I had one in Denver coming home from Spokane (changing planes). Have a wonderful time!!

    HUGS!

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