😞 wasnt expecting to ne here

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Bfhandley
Bfhandley Member Posts: 7
edited April 2017 in Stage IV/Metastatic Breast Cancer ONLY

so i had posted in another place about having a pleurel effusion and trying to determine what was going on. I had been having cts since october. Well i finally had a pet scan that reveiled whay i didnt want to know but had suspected. My cancer is back and has spread not only is the pleurel effusion malignant but i have mets to several bones. Also lymph nodes around my lungs. And possibly a spit on my liver and 3 spots deep in my chest wall they have put me on femara and ibrance

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  • phrogger78
    phrogger78 Member Posts: 115
    edited March 2016

    I am sorry to hear it is not the news you wanted. I am on ibrance and femara as well and so far, it has been pretty good, no major side effects that would cause major concern. Again I am sorry you have to deal with all of this, but I hope the meds are easy on you as well.

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  • PattyPeppermint
    PattyPeppermint Member Posts: 11,162
    edited March 2016

    so sorry you have to join us. I am glad you found us. I dont hsve experience with The femara \ Ibrance combo but many here have. I am sure some will be by soon. There are several threads as well. I have had femara by itself and now on the Ibrance ,\ Falsodex combo. Both treatments have had minimal side effects on me.


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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited March 2016

    Bfhandley, wow that's a lot of news to process. You will find a lot of support and information here on the discussion boards. Browse the stage iv section to find the threads that are relevant to you, and mark them as favorites. If you have trouble finding what you need, let us know.

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  • Bfhandley
    Bfhandley Member Posts: 7
    edited March 2016

    so what was your prognosis. I am still having more tests done. I have to have a brain mri.

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  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited March 2016

    Bfhandley, so sorry you have to be here but the ladies are a wealth of information and support.

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  • Longtermsurvivor
    Longtermsurvivor Member Posts: 1,438
    edited March 2016

    Hi Bf,

    I too had malignant pleural effusion (on and off from 2008-2012). Finally had my lung linings sealed in a VATS pleuradesis surgical procedure. It didn't remove the cancer or shortness of breath, but stopped the troublesome symptom of effusion.

    Please let me know if you'd like to know more about the procedure and I'll tell you how it was for me, though it's likely things have changed during the past four years.

    Bf, wishing you all good healing and many good spells after this unwanted diagnosis.

    warmly, Stephanie

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited March 2016

    I am so glad you have found this forum although I'm sorry for the circumstances that brought you here.

    The initial weeks and months after a mets diagnosis are the hardest. Dealing with the shock and fear can be very difficult. But as others have said, over time it gets a bit easier, and you'll find many people who are doing well with a good quality of life!

    If it's possible, have the met(s) biopsied to see what their estrogen (ER), Progesterone (PR) and HER2 status are, since they may differ from the original cancer (if you were previously diagnosed).

    This is very important: Please remember to keep copies of all tests results and scans in case there eventually is a need or desire to have a second opinion from a specialist outside your medical network.

    You may also want to seek a second opinion at any point about treatment.

    Once your treatment begins to work, your effusion should begin to clear up. If you have a substantial amount of effusion accompanied by shortness of breath, you may want to investigate having the effusion drained to obtain more immediate relief.

    I've compiled a 118 page booklet about Metastatic Breast Cancer treatments, side effect mitigation, and cutting edge research regarding the disease.You are welcome to request a complimentary copy by visiting the top of this page: http://www.nccn.org/patients/guidelines/stage_iv_breast/index.html#33/z

    Wishing you a wonderful response to your treatment!

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  • Chantal10
    Chantal10 Member Posts: 105
    edited April 2017

    pattypepper, how is the falsodex/ibrance combo coming along? How are you feeling? I think I'm headed toward this combo so I'm curious if you don't mind sharing? Thank u


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