Winter 2015-16 RADS
Comments
-
WHOOP whoop!!! Duzy Brimton Mary we did it!!! Like you guys I danced in and out...the lady that goes before me was in the waiting room and i wished her well and told her today was my last day..she said tomorrow was hers then hugged me and said may we never come back..right after my final zap..my fave "dream ream" RT came in clapping and congratulated me with warm hugs and thanked me for letting them walk me through my journey. I thanked them for being amazing even on my bad days. Then my fave nurse greeted me for my final RO visit (until next month) then presented me with a certificate signed by everyone..she walked me to the bell and said WE'RE RINGING THE BELL...she read the survivors poem that I wished I remembered.. And said ring that bell. I rang it and everyone clapped I took a bowed hugged my nurse and she said do something special for yourself today...and there i lost it..tears streamed down my face...and I danced out. I got in to work to flowers and cupcakes from co workers and one of the guys said he thought I was pretty amazing..they clapped more tears..then lunch with friends..champagne.. And no more work. It was a great day.
Everyone's day will be here soon. Hugs to all and big thanks again. Adarkadapted good luck tomorrow... RING THAT BELL!!!
Diane
-
-
-
hello lovely ladies!!! Started radiation 3/14/16 so I'm 4/34 only 30 more to go!! HAHAHA I try to keep it all light and bright because being dark and down sucks! I did 4 AC neoadjuvant then had -a lumpectomy then a redo margins weren't good then 12 rounds of taxol people keep saying you're almost down and I want to tell them where to go! I asked the doctor to do an ultra sound today because I notice dimpling and a lump at my surgery site. I pay them for services it was thankfully just a reaction to the radiation. I learned very early on I am my own advocate
-
FINDAWAY- I am not into alternative medicines or herbs or mediation, but I have a very good and caring friend who is, and sent me this article, which you or other sisters might find helpful, as it deals with ways to counteract the effects of damage to the body caused by the chemicals and radiation assaults of the treatments we all are or have been going through.
http://www.susunweed.com/Article_Surviving_Radiati...
MARY- what a great idea to give radiation staff. I love the idea of little candies in a jar. I was going to get that large jar of jelly beans from Costco ( sort of like little Easter eggs?) but I did not know what to put them in. Will get to Target this weekend for the neat jar.
SUNNYONE22 - I love your visuals. What a great idea to measure the passage of time; according to the disappearance of gumballs. I bet Einstein would even be impressed. And, as you say you get a treat. I get to the rad center early enough to make a hot chocolate in their coffee/ tea / and goodie bar - that being my treat.
I am 6 days down, and 22 to go, and time is going fast, of course I have not reached the point of getting SE effects yet. Am intrigued by the cabbage leaf recommendation, have to copy that on a note pad, for just in case.
So glad to hear all the joy and relief of all who have completed course of radiation, and relieved to hear the SE do eventually subside.
Careful hugs to all,
Windward
-
Only 3 days behind you Windward!!
Here's hoping for skin that doesn't 'pink' and energy levels that don't sink.
-
I slammed the CRAP outta that gong. W000000000000000000000T!!!
DONE!!! Hopefully, forever!!! *MASSIVE HUGS* to everyone still enduring, and high-fives to those who've finished!!!
-
adarkadaptedi....What a glorious picture! Congratulations on finishing. I am so very happy for you!
-
loving all the photos. Congrats to those who finished this week.
Finished #20 this morning. Minimal side effects so far. Wishing everyone a peaceful weekend.
-
Congratulations to all of this week's Enders!!
Hilarious photo, Erica! Everyone holding their ears...
Has anyone else gotten their ovaries removed? Mine got yanked the day after I finished rads. The GO (gynecological oncologist) told me that my ovaries were dead from the chemo so the flashes and chemopause wouldn't get any worse. Boy, was she wrong! They want to give me Effexor to cut down on the symptoms (hot flashes, insomnia). Anyone else on this? Know anything? I am very reluctant to do this, and yet, I would love a good night's sleep
-
Wow - I am so loving the pictures and hearing and seeing that people are done...DONE!!! Hooray!!
I'm not sure my clinic has any fun way to signify completion...but I'll be more observant and look around when I go today. If it's true and they don't, I'm sure I'll find some way to celebrate on my own. That is weeks away though.... Today is the end of weeks three. 3-ish more to go...maybe 4. Skin holding up OK, trying not to scratch when my sternum gets itchy.
- xo
-
Peabrain...I had a hysterectomy several years prior to all of this and had finished menopause. Starting on the Arimidex medication caused me to have the night sweats and insomnia. I spoke with my RO about this, as is started soon after the rads and he felt it was the Arimidex. He suggested trying Benadryl and it has helped my insomnia. He said if I found that didn't work, he would suggest Effexor, as it has a good record of eliminating about 50% of the menopausal type symptoms. When I researched Effexor, I think it is something that I would prefer to stay away from. As long as the Benadryl is working, I will continue on that.
-
I, too, had a hysterectomy 10+ years ago and then was put on Arimidex last month. I had more side effects at the beginning but they are calming down. I start rads on Monday - had simulation today. I'm so very happy for those who are finished!!!!!!!!!!!!!
Sunnyone - please, please please do me a favour. Don't use the word "cured" when talking about breast cancer. There is NO cure for breast cancer, only the hope of becoming NED (no evidence of disease) for as long as you can. Look how many "Run for the Cure" races there are around the world.... It is deceiving to use the word cured and sets people up for unreal expectations for the future. Yes, we all know someone who had breast cancer and died of something else. Like someone with heart disease being hit by a truck. They didn't die of their serious disease, but of something else..
I can attest to the fact that treatment is no guarantee you will stay cancer free.
-
WooHoo High Fives and Happy Dances with me - Duzy -awesome pic - you are beautiful, DiDel - YUM on those cupcakes! And adarkadapted - what an awesome gong - I bet you crushed that thing - love it! Now onto healing and living for us!
My boys took me out to dinner and then we spent the night watching all the March Madness Basketball games - I love basketball so it was perfect timing for these games to start - adds to my celebration..
HaHa Birdysmom - you are funny! Love the Pics as always! Hope you continued nuking goes well!
Welcome Welcome edwsmom, wenrisa & KickinBootay - soo sorry you are here but so glad you found this awesome group.. let us know how you are doing and if we can help .. wenrisa - I would suggest to start using whichever lotion/cream your RO wants you to use on your treated area now to keep skin moist and ask if he/she wants you to stop any vitamins/supplements .. if you read our discussions you will find a lot of differences between RO's so my advice is to use/do what your RO prefers
Moondust - I would have made the same decision and glad no Adriamycin AKA Red Devil or Red Death - not fun! Good Luck with chemo - you will be fine!
Findaway - sorry you are struggling with Rads .. for me I pictured every Zap killing any possible remaining bad cell & also thought of it as insurance against recurrence.
MissV - you have been thru some stuff - UGH and hugs for you - the fatigue and the lack of concentration are hitting me hard at times too ..
biscuits - Good Luck with Boosts -they are so much easier!
Sunnyone - I won't disappear and many have hung around after as well - such a great group!
Peabrain - I also got a scrip for Effexor from my OBGYN for the horrible chemopause hot flashes - I filled it and plan to start taking it this week! Gabapentin for neuropathy also helps a little with the menopause symptoms but not enough .. I have to keep bedroom like a freezer to get any sleep. Also I purchased on Amazon a "Cooling Mat" to keep nearby when you sleep and if hot flash comes on just pop it on your pillow and cools head pretty fast - looses its effect though if you fall asleep on it LOL
barbe1958 - Good Luck to you starting on Monday - hope all goes smooth! ** I would like to make a request that we keep this forum open to using any words we feel comfortable with using - for some the word "cured" could make them feel comfortable but maybe not others, for others the word "survivor" could be a comfort word but not others, etc .. we are not giving medical advice here - only offering support to each other so all words (in supportive nature) are welcome! Thanks
For those newer to the group the Tip on using Cabbage leaves is listed above under "Tips" .. if that helps!!
Have a great weekend all .. hugs to those with skin/emotional Rads SE's ..
Mary
-
Fair enough on the word "cured". Didn't work for me and 100,000+ others that have died of breast cancer....
-
UGH - so many hugs that you are on a recurrence - totally not fair and get it the word cured does not sit well with you - for me and maybe some others like to think maybe there is hope it will apply to us!! Really hope Rads goes quick, easy and smooth for you! Will be thinking of you on Monday!
Mary
-
So good today to not have to be a treatment first thing in the morning. Sad though that our own Michigan State basketball was knocked out in the first round. That sure screwed up many brackets.
DiDel - What a great gift and so happy you are done.
Adarkadapted I loved the picture I wish we would have had something like that. Congrats on being done.
To everyone who came on to wish me congratulations I can not say thank you enough. This board is a great source of encouragement, compassion and truly caring people who keep us moving forward everyday. Each of us will continue to be with everyone who is still going through treatment and will continue to offer support.
Mary you have done such a great job of keeping this board up to date and responding to everyone comments. That is a lot since this has been a very active topic. I am so glad you were able to celebrate with your boys on your last day. I had lunch with my mom and sister and dinner with my husband and daughter. By the way I am jealous of your hair, it seems pretty thick and looks great. Mine is so slow in growing back. I am 16 weeks PFC and it is pretty thin. I decided my last day of wearing hats was my final radiation so today I went to work without and it felt great. Oh all the little and big things we celebrate.
Have a great weekend everyone and hope for minimal SE for each of you.
-
Duzy - you are funny saying you are jealous of my hair - I was going to say the same to you about how dark yours is .. I am 11 weeks PFC and do have a lot of hair but all white with a smidgen of my dark starting to come in .. I am not surprised as my hair grew like a weed pre-chemo but I never expected all white - at least it's hair! I am holding out as long as I can to dye it - not easy! Hang in there yours will start growing fast soon!! You don't need the hat you are beautiful
BTW I picked Michigan State to win it all - my bracket is toast!! Love March Madness so many great games - this is the year of the underdog! I could watch it all day!
Mary
-
Glad to hear others love March Madness. What a great distraction right now while my skin continues to peel. I might have a chance on my bracket even though I am from Michigan I had them losing to N Carolina in the final 4. There may be hope yet. I plan to sit around topless and watch games most of the weekend. No kids at home for me. The doctor told me air helps dry the raw skin.
Scary image but hope it helps my skin.
-
Omg it felt so good to sleep in and I think my back and arm are feeling better must've been tensing up during treatment
Adarkaptedi I WISH we had a gong.that looks awesome!!!
Mary huge thank you for this thread I know it's a lot of work at a time of great fatigue . You're amazing couldn't have gotten through without all of you,
Stay positive...no doom and gloom..you will make it through. I hit a little blip with recurrence but I'm not giving up on my happy ending!!!
Lots of love and hugs to all
Diane
-
My place does not have a bell. I doubt if they have a gong either At least they changed the room light to green for St. Patrick's Day.
I had one "old" tech today and one new one. The new one kept apologizing whenever she had to touch me or move me. I finally told her there was no need to apologize because I'm used to the routine.
Diane, I know it must have been awesome to sleep in! Hugs to you too!
I have six more whole-breast and then 5 boosts. I can almost see the light at the end of the tunnel!
-
Duzy - I went to St. Joe's University (Philadelphia) and they won last night - WooHoo Go Hawks!! I am cheering for them and Villanova at this point!! Love March Madness it is a great distraction for anyone into Basketball
Yeah Moondust - light at the end of the tunnel for you!
Diane - you are welcome - and yes wasn't it a great feeling to not have to go to Rads .. and Let's not do this again
Happy Saturday All
Mary
-
Happy Weekend All! Great photos and thanks for sharing!.
Mary and all who finished this week....big congrats to you and best wishes to those in treatment and starting out next week. It does go fast once it gets started.
Had #12 yesterday with 4 whole tx to go and 5 boosts? So far have "pinked up", red/pink spots on and under breast, and itchy on chest. Told to use hydrocortisone cream 0.05% for itch and given sanitary pads to put under breast! Using soft cloths instead. Nice having the two days to recover a little.
MARY......You have and are doing a fabulous job keeping this board up to date and responding to everyone's comments. Hugh thanks!!
-
Mary that's great they won. I stayed up and watch the Michigan - Notre Dame game that was a nail bitter but ND pulled through. Should be some good games this weekend.
Moondust I found once I got to under 10 it was so much quicker. Hope your skin is holding up
Dorthy26 your in the single digits the finish line is in site. My skin peel under my arm so I kept Aquaphor or Aloe on it and sometimes just let the air get to it
Have a great weekend everyon
-
i love reading all the celebration stories! We're having a party for me tomorrow, and we've spent the last two days cleaning and shopping. Trying not to exhaust myself so I can enjoy it!
-
So, we've discussed the multivitamins/supplements/anti-oxidants. Now, what's the deal with protein? What is the reason to consumer more than usual?
-
@katja I think it's to help with healing and combat fatigue.
-
Twnkltoz - Hope you got the rest you needed and have a great time tomorrow - you deserve it.
-
Hooray for everyone who finished last week! Such a tight knit group, supportive and encouraging to each other..
Mary, I have to commend and thank you for the detailed attention you have given to this forum. You haven't left anyone out or let our comments hang in the breeze. You have responded with compassion to all which is evidence of your commitment to helping all of us through our unique experiences. You have a rare gift...you are a blessing...I hope that you have felt the love returned to you!
I have three boosts left out of 33 treatments and still have minimal side effects: redness, mild itching. My day to day life is entirely unaffected except for the added hour.
Those starting, I recommend buying 2 tubes of miaderm, 1 bottle of pure unscented aloe and 1 jar of aquaphor advanced therapy healing ointment ( I purchased all through Amazon). Also, 3-4 loose fitting, SOFT polyester tank tops to wear under everything (I used jockey elance and Cuddl Dud tanks because I found that cotton, especially ribbed, stuck to my topical creams and ointments and felt heavier on my skin), Go braless if you can, eat well, hydrate, exercise in some way to increase your endurance and stick to a routine. Give yourselves a gift daily, weekly or at the end. Prior to starting I filled a jar with 33 Hershey's dark chocolate with almond nuggets and I ate one after each treatment, it's a visual and small treat to mark my progress and of course chocolate has healing powers of its own
Regarding protein, it is vital for wound healing. Be careful how much you eat and the source. A diet too high in protein can damage your kidneys and at the very least cause severe constipation. Before adding a significant amount of protein, speak to your physician.
http://woundcareadvisor.com/how-dietary-protein-intake-promotes-wound-healing-vol2-no6/
I wish you all a week that goes by quickly. I truly believe we will all reach the finish line stronger and braver than we were at the starting line.
Hugs to ALL!
-
I agree with what others have said. Mary, you rock. Thank you.
Excellent advice, SeekingSerenity!
Re: protein: it helps you heal. Protein is the building block of life (said my bio prof many moons ago), and is especially important when we're in a catabolic (breaking down) state; it helps move us back into an anabolic (building up) one. Both chemo and radiation force us into the former; we need help with the latter. Fatigue, etc., are signs of needing more protein (and hydration--water is so incredibly important for healing).
I'm ten days out and feeling great. I have a nice, tan box on my chest and the muscle is a bit weaker than I'd like, but I'm no longer fatigued like I was before. This is the most 'normal' I've felt in months! Not having to get up early every day and go lie on a cold table inside a Kitchen Aid has really helped with my psychological state, too--rads makes us think about BC every day.
Congrats to all who finished or are finishing this week and, for those who are early in the process, know that there's light at the end of the proverbial tunnel.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team