sturggling to stay positive today

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rissaandcrew
rissaandcrew Member Posts: 7
edited March 2016 in Waiting for Test Results

I feel like I am falling apart. lump was found on Feb 4th and on the 11th I had mammo and ultrasound which found some concerns. MRI was on Feb 23rd and they found additional areas of concern. No biopsy due to the location of the abnormalities. The most concerning area is deep against my chest wall. They don't know for sure what is going on but they want it out. Surgery consult is my next stop and from what my primary doc says they are taking this very seriously and whatever it is that is growing is coming out first and then we can find out what we are dealing with and go from there. Some days are better than others with the waiting but the last few days have been rough. I am struggling to stay positive and engage in my life but I just want to crawl into bed, pull up the covers, and stay there until next week.

Today is my 15th wedding anniversary and Im trying to be excited and happy but in reality I am feeling really down. My husband is a wonderful man and I love him to death but he has a hard time dealing with emotional me and boy have I been emotional. I have been trying to be "normal" while waiting for answers but in the process I have ended up bottling up my emotions to spare him and now I am feeling really alone, scared, and a little resentful. I am the one waiting for news and may be facing cancer and here I am worrying about how he is feeling. When I told him how I feel he did not take it well and is really unhappy now and I feel like crap for saying anything. I just really feel like I need someone to be stronger than me at the moment so I can fall apart without feeling so guilty about it.

My surgery consult is next Wednesday. Hopefully then I will have a plan get whatever it is growing in me out and can finally get some answers. It helps to know there are others out there waiting with me. Not knowing and waiting is so horrible.

Thanks for letting me vent. I feel a little better.....

Comments

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited March 2016

    Hi Rissa!

    Vent anytime! But things are much better than you're letting yourself believe!

    You're doing all of the well-woman diagnostic things you're supposed to do--and you're still in the midst of the screening/diagnosis process. Here's a chart from the Imaginis site, about the screening process:

    image

    On the above diagram, note that your goal is to fail to be advanced farther "up" the diagram. Each one is a narrower group of people. Your doctor referred you for a diagnostic workup and they decided you needed a biopsy. There are various kinds of biopsies, here are a couple:

    fine needle

    core needle

    surgical biopsy

    as you work down that list, they become more traumatic but also more accurate. Because of the location of your lumps/focal areas, the docs so far think a surgical biopsy is the only way to get the info needed to see what's going on. BTW, the surgeon might disagree and be able to do a core needle procedure (for example).

    Of all of those who are sent on to a biopsy (your category) 80% will be told their biopsy doesn't show cancer. But your odds are even better than that! In your earlier thread, you said that your imaging report showed a BIRADS 4 with low probability. Whichever doc wrote the imaging report thinks you have a 90-98% chance of a benign result!

    I know it's easy to worry (and reading about the experiences of those of us who managed to work our way to the cancer diagnosis portion of the chart doesn't help!), but really. Try not to borrow trouble that isn't yours yet (and may never be!).

    LisaAlissa

    etc: spelling

  • placid44
    placid44 Member Posts: 497
    edited March 2016

    LisaAlissa,

    That's a cool chart. I've never seen that before. You seem to so much about diagnostics and treatment. Do you have medical background? What was your diagnosis and treatments?

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited March 2016

    Thanks, placid. It's a chart that's been posted here by various people many times over the years. I think it's helpful as well.

    No medical background--just a legal background which gives me the ability to research the heck out of whatever field I feel I need to understand. It doesn't make me an expert, but it does give me the tools to develop an understanding of the real experts.

    My diagnosis was DCIS (Stage 0, Grade 3), ER/PR+, which was treated with a lumpectomy, SNB, and Mammosite radiation followed by Tamoxifen and then Evista (raloxifene).

    LisaAlissa

  • libra79
    libra79 Member Posts: 64
    edited March 2016

    hi lisaalissaif u dnt mind me askn how was ur dcis found i had a wired guided ultrasound excisional biopsy last Wednesday to remove a CSL waiting on the pathology report will get it nxt Wednesday will also get the bandges n stitches removed.

    Hi rissaandcrew i cn understand the way u feel im like u tryn to stay positive as i wait on results these hve bn two very long wks





  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited March 2016

    You need to be able to cry and be held! Your husband needs to be the strong one now, and somebody needs to tell him how. Somebody must have had a talk with my husband and told him what to do because there's no way he naturally would have known. I think maybe he was reading posts on a breast cancer support group I left open on the computer where he could see it......He just held me and rocked me and told me to cry all I wanted, and now I'm crying again out of gratitude from remembering it.

    You can't expect yourself to be strong or hold it in. It has to come out. I had one visit with a cancer psychiatrist and she told me that me holding in the emotions during the day was really making my life worse at night, when I couldn't sleep. It has to come out some time.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited March 2016

    rissa, congrats on your anniversary! Vent away. I am single, so no hubby to lean on. I think what you're going through is "normal", so don't beat yourself up. Once you get more answers, your emotions will settle down. Remember, what the Dr's are doing, is a positive step to get to the bottom of it. Try to stay busy and enjoy your anniversary. Journal, watch a funny movie, go to lunch with a friend. Easier said than done, but don't rob yourself of happiness while waiting for something that may not even happen. If you are inclined, you can always ask your PCP for a RX for anxiety or a sleep aid, if you feel you need it. Best wishes!

  • rissaandcrew
    rissaandcrew Member Posts: 7
    edited March 2016

    I feel like an ass. Husband surprised me with an 8 day trip to Hawaii. We leave Saturday! My perception of being alone was really a symptom of me not talking to him and pulling into myself. I now have Ativan and am pursuing counseling to help me get through my inability to manage stress.

    On the boob front, I'm more worried than ever. I have had some yellowish discharge from the nipple on the side with findings and have a pulling sensation when I raise my arms above my head. I also woke in the middle of the night last night with sharp pains radiation get from arm pit to bottom of breast. Surgery consult is tomorrow. I just hope I don't have to cancel Hawaii trip. I could really use it about now.

  • Molly50
    Molly50 Member Posts: 3,773
    edited March 2016

    I cannot imagine any reason to cancel your trip. I was diagnosed on June 8th and had my first surgery on July 29th. Go on the trip and tell the surgeon that is your plan. Happy anniversary.

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