Why do they take away your choices?

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Tess53
Tess53 Member Posts: 8
edited March 2016 in DCIS (Ductal Carcinoma In Situ)

Since when did MY breast become Theirs and the Insurance companies to decided what to do with it and I am simply along because I am attached..I was called back for a second Mammogram then in minutes it was, a circled area on one breast then a ultrasound and boom a biopsy. All in less then a half hour and I am walking out stunned.. then I stop and I get furious, not upset, slightly angry but ready to just scream and hit anything. Because they said after they biopsy we're very sure this is cancer but luckily it's still in a small state and can be removed easily. Then I see a surgeon and a Oncologist, and it turns out he won't be the Oncologist that will be treating me at all he does poisons and they want radiation treatments.. Every step I have taken has been two forward then back to start again. I get the "we have so little studies of what happens with DCIS because everyone has removal surgery, wait what?? WHY WAS I NOT GIVEN THAT CHOICE? I am dirt poor can't pay a bill without slipping behind on another and you have just done this and boo hoo'ed to ME like it's MY FAULT that YOU PROFESSIONAL CON ARTIST can ring up a bill I will NEVER be able to pay off.. I would have cheerfully joined a research where they watch it and mammogram it every 2-3 months Take it out if it becomes bigger.. or spreads at all.. WHY?? BECAUSE every one of you has told me it's a nothing a zero, like I am some kind of breast cancer fraud or something.. They billed my insurance over 12,000 for that 30 minute little spree where they kidnapped my choices..Where do they think I can come up with 12,000 ? When I was a Nurse, if there was a Mass that was a concern you went in and removed it whole.. these idiots took a 'IN SITU" meaning Hey I am just sitting here minding my own business I could have been here for 5 years and missed then or could have been here 30 since beast feeding was no longer a issue.. NOOO these jerks just had to open the Christmas Gift in January REMOVING ANY THOUGHT of just wait and see..once they cut into it for a pathologist who's bill I haven't seen, or the first surgeon that was nothing but an perverted clown telling me how dumb all my questions were while patting my breasts like a puppy "Stay, Sit, roll over" the 'cancer was 0.6cm like he'd feel it patting his hand around I finally sat uo and pulled the top off and began dressing, I am not done with the EXAM oh heck yea you are ! I left and when told I had to go back to one of the surgeons I said as long as it isn't the pervert fine.. So, one surgeon bill on someone who will be in jail ir have his hand busted if he ever touches me again.. 400. flush... then the open it up instead of just take it out 12,000 350 for an oncologist that wouldn't be the one treating me anyway.. getting to understand why I was drug all but kicking and screaming to surgeon 2, I swear he looks 12.. but he did a full exam, he did answer my questions honestly and if he told me no that will not work, he at least gave me a answer in English not ' I am GOD and I speak, you listen...' So I fave a healing scar, a very sore breast. OH tip After surgery and the put you in a compression bra.. even 10 post op a night without a bra means that you wake with a nipple area that has literally sucked every bruise to the nipple.. and you could be a nun and you will hear 'it's policy ' enough you wanna walk out.. so a pregnancy on a woman that was done with menopause over 10 yrs ago.. I have been hit with 2 life altering diagnosis in my life, and frankly I am tired of hearing about it.. just let me live.. LIVE, NOT RUN AROUND YOU STUPID MAZE OF MEDICAL MISCHIEF ! You took away my chance to help with a study when you opened the small group of cells.. You have put me in a position that I'll loose my home, you'll cheerfully trash my credit, and you want to turn me into a glow stick now... No I think I want off this ride.. this horror that you medical professionals far more then my body accidentally growing a few cells wrong NO THE DOCTORS FAR MORE THEN MY CANCER HAVE DESTROYED MY LIFE, taken away my choices, my opinions, my decisions. Keep all the therapy you are shoving at me.. You removed it gotten clean margins, so now I walk away from you, your advice, opinions, and any more bills that you want to rack up simply because you have a new buildind to start, or decorate, all those wsteful tthings you do to remain profit free yet still a million dollar bonus...

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  • ksusan
    ksusan Member Posts: 4,505
    edited March 2016

    Most hospitals have a bridge program for people without the means to pay. The billing department or patient advocate should be able to help you.

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  • april485
    april485 Member Posts: 3,257
    edited March 2016

    Wow Tess! Seems to me that you have a right to be angry. I also was diagnosed with DCIS but I was consulted every single step of the way on treatment choices. I was not just whisked into a room and a chunk of me removed. I don't know how you can do it, but I would write to a congress person or someone and complain and tell them exactly what you said here. You should have had the option to enter a clinical trial if you qualified for it. No one has the right to dictate your treatment choices (or lack of them if you choose that) but you!

    Hugs and wish you the best. I chose all of my treatments and I still feel like I have been through the mill. I can only imagine how you must feel!

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  • percy4
    percy4 Member Posts: 477
    edited March 2016

    I also went to a BS in my HMO, after my biopsy showed DCIS. I walked in and she said "Well, I will remove a big walnut-sized piece of your breast (I only had 3 walnuts to give), then you will have radiation, then you will take anti-hormonals, then you'll be fine". Now. I do believe she was trying to be reassuring, in her way, but that whole immediate deciding without me was NOT for me. I'm sure she is a good surgeon; BUT. I looked further into other BS's in my area, and found a woman within my HMO, a little further away, who had 10 years on the first one, sat on 3 "breast boards" and had a little different delivery. She agreed I needed the DCIS out (there can always be a microinvasion within, and in my case, there was) but she said I had to look into rads and decide, though she said she strongly recommended them, and that the anti-hormonals were entirely up to me (I later elected to not take them). I could deal with her delivery and attitude. She also had skills in oncoplastic surgery (leaving the breast looking as normal as can be done) and took out a MUCH smaller area than the first surgeon wanted to, getting the cancer out and leaving me more intact. Always look further if you do not feel good about the initial docs involved. Good luck to you. I know how you feel.

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