Revision #5, and a cold? Supplements reduce swelling/scarring?

happyteacher
happyteacher Member Posts: 118
edited March 2016 in Breast Reconstruction

Hi,

I had a double mastectomy in April 2014, propholactic so no history of radiation or other related potential issues with the reconstruction process. The left side has persistently failed to take though, and I am on my 5th surgery related to putting in/swapping out implants. Each time I go in it is the same process, new implant, heavy scarring, encapsulation, and then a revision. Last attempt he put in the pig tissue (forgetting the name at the moment), but that still didn't work, but I am not as scarred as the other failed attempt- just scarred enough to require to try again/pain and mobility issues.

In preivous attempts he mentioned that any type of an infection can cause further scarring issues. My concern is that I seem to have either a cold or sinus infection. Went to the doc (primary via PS surgeon recommendation) three days ago and was told to just wait it out, but now I am less than a week away and still green mucos and symptomatic from it. They said if it wasn't improving to call back for antbiotics, but were concerned about putting me on them right before surgery as it is frowned against this practice. Not sure what to do.

I have made the decision that if this attempt to fix the implant fails again, then my next surgery will be to remove both implants. Does anyone out there have an opinion on this or prior experience? Putting off surgery is a hot mess at work, but I also don't want to squander what I have deemed to by my last chance to get this done correctly.

Also, my swelling seems to be related to the the fluid build up. I have persistently had the drains in for a month or so after each surgery, and put out a lot of fluid. The drains come out around 20-25 ml of output. Should the be staying in longer? I have this time researched a bit and plan on taking singular to help ward of the swelling. Found some research via a kind poster here that indicates it will not reduce scarring, but seems to beable to prevent it a bit. I have a ton of allergies so it makes sense to use it anyway for me.

Additionally, I found some surgeons online who recommend supplements post-op that my surgeon doesn't, with the effect of reducing swelling and inflammation and supporting the healing process. Here is the list that I found on multiple sites that should be started 3 days after surgery:

multivitamin ( a quality one)

cq10, 100-200 mg

vitamin c, 1,000 mg 3x daily for two weeks, then 1x daily

zinc piconlinate 30-50 mg for two weeks

probiotic

vitamin b6, 250 mg 2x daily... this one reduces swelling

omega 3 fish oil, 3,000 mg daily for two weeks, then 1,000 mg after

bromelain on an empty stomach, follow label instructions for dosage, 2 weeks post op (decreases inflammation)

arnica 30c, 1 pellet 4 or 5 times per day up to two weeks after

I bought them and have it ready to go, but was wondering if anyone out here can either validate that it works or perhaps may warn against it? My surgeon's stance is simply my normal supplement routine (multi, fish oil + d3, calcium).

Finally, my surgeon this time is planning on putting me on steroids for a month in an attempt to ward off scarring, and also score the pig tissue to allow for a bit more expansion. Does this sound right, or are their other techniques that might be used to reduce scarring?

I am so sorry about the long post- here is a quick summary of the multitude of questions:

1. Go on antibiotics for the cold, don't worry about it, or reschedule?

2. Use supplements after surgery to reduce swelling and inflammation?

3. Pull drains at 20-25 ml, or keep them in longer?

4. Steroids post-op to help with scarring?

5. Other techniques other than scoring the pig tissue that might help?

My surgeon comes highly recommended by literally everyone I talk to in my area- both patients and a multitude of other docotrs. I don't *think* this is surgeon error. Thank you so much for your thoughts-

Comments

  • macb04
    macb04 Member Posts: 1,433
    edited March 2016

    I have had problems recovering after implant reconstruction /fat grafting ect. I have had nnumerous surgeries in the past 2 plus years. I had rads and had rad fibrosis making healing a big problem. I get Hyperbaric Oxygen Therapy to help with healing after surgery. Is there any wound care centers near you,? I also see a Naturopath and get Intravenous Vitamin C during surgery, and two to three times in the week after surgery. Surgery depletes your Vitamin C, and Vitamin C is crucial to strength of wound healing and collagen formation. The amount of Vitamin C you have is extremely, extremely low, barely enough to avoid scurvy. When I get IV Vitamin C, I get 50 grams at one session. Please, please increase your Vitamin C intake. Remember it is a water soluble vitamin and thus can NOT ever be toxic unless you have bowel/kidney disfunction. You should titrate your Vitamin C intake to bowel tolerance. This means to take it till you get loose stools, then the next day back off your dosage by about one gram. Continue at that dosage level daily until you start to get loose stools again. As your health andhealing progress, the amount of Vitamin C you need will decrease, thus the amount you can take before you get loose stools will likewise decrease. When I started to markedly increase my Vitamin C levels after surgery, like my Naturopath recommended, my healing problems went away.

    Good luck and may you be blessed with wonderful healing the next time, resulting in beautiful sucess.




  • StaceySue2U
    StaceySue2U Member Posts: 281
    edited March 2016

    I have been mixing castor oil with jojoba oil and adding several drops of frankincense and rubbing it on my mastectomy scars and as the scabs have started to fall off I can see it looks amazing underneath. Very minimal redness and hairline scars.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2016

    happyteacher - sorry for your struggle to reconstruct, I feel your pain - it has been a long road fraught with complications for me as well. There are several things in your post that I wanted to respond to. Not sure why a pre-surgical antibiotic is frowned upon - my new plastic surgeon routinely does this for her complicated patients. I have taken a pre-surgical antibiotic starting a week before (even though I have never had an infection) both times I have been to surgery with her because I have had healing issues, she is being proactive so as not to introduce yet another issue. I also receive pre-op antibiotics day of surgery, and take them post surgically as well. Depending on whether you have a cold or a sinus infection, antibiotics may, or may not, help. A cold is a virus, so there will be no effect, but a sinus infection would require them to treat it. I have had my left implant removed, and it was out for 18 months, but I have recently had a new expander placed after two fat grafts to try to strengthen the frail skin on my left side. So far, so good. Did you have a specific question regarding implant removal? I have taken zinc and bromelaine in an attempt to assist my skin in healing - also consumed 100g of protein a day - but none of this helped. I know a number of PS do use arnica, but for patients after routine procedures - I don't personally know of any success stories with supplementation for those of us with challenges. I am concerned about steroid use after surgery - steroids are a healing inhibitor, I would not use them with compromised skin or a healing problem. I had a serious allergic reaction to antibiotics given during my BMX, my former PS was against giving them, but the BS insisted. I ended up with non-healing skin issues directly afterward - this is what has complicated my reconstruction to present day. I have heard of using Singulair, but not for swelling, for capsular contracture/scarring. Wishing you the best, and hope this time things work out for you.

  • happyteacher
    happyteacher Member Posts: 118
    edited March 2016

    Hi Special K,

    Thank you for your thoughtful response. The singular would hopefully assist with inhibiiting the capsular contracture/scarring. I called the surgeon today to alert them (my pcp requested), and the nurse for the anesthesiologist called for the routine preop medical history review. She was a bit unsure sounding if the surgery would proceed. I am going to run the supplements past the PS, but if he feels at the very least they won['t hurt anything then I am going to try. Not sure about the steroids- that was what he mentioned at the last appointment. I skipped the 2 weeks before appointment due to hearing the preop directions a bunch of times already. I suspect it is a sinus infection. My nasal passages are not congested- it is all below the eyes/cheek area. The antibiotics were started last night, and it does seem to be helping. Like you, I can have a little trouble with some of the meds. This antibiotic is not one I normally use (doxycycline or something like that) and I suspect it may be giving me a rash on the chest. I will wait until tomorrow to see how it is going, but may end up going in to get checked out. Glad to read your PS does antibiotics before- that is reassuring, thank you. I have had the implant removed a few times, so I am well-versed in that regard. My skin fortunately is in terrific shape, I suppose a benefit of being formaly more than 150 pounds over weight and now in a normal weight range- lots of skin to work with.

    I hope your reconstruction process will finally settle down and you can finish it up. Take good care of yourself-

  • happyteacher
    happyteacher Member Posts: 118
    edited March 2016

    I have recently increased the vitamin c, but need to kick it up a little more. Thank you-

  • happyteacher
    happyteacher Member Posts: 118
    edited March 2016

    The external scars are a non-issue- it is the capsular contracture thing that is causing all of the problems. I will note this though, and try it once I am healed up a bit. Thank you-

  • macb04
    macb04 Member Posts: 1,433
    edited March 2016

    How are you doing now? Did your sinus thing improve? Sinuses are very poorly perfused, so the antibiotics can not easily can in there to kill the bacteria. The ENT I know always says to steam, steam steam your sinuses to encourage increased circulation to the sinus area. It is old fashioned, but it really does work. Oral dcongestants are also a big help, in combination with steaming, but only if used morning and early afternoon to avoid possible wakefulness.

  • macb04
    macb04 Member Posts: 1,433
    edited March 2016

    How are you doing now? Did your sinus thing improve? Sinuses are very poorly perfused, so the antibiotics can not easily can in there to kill the bacteria. The ENT I know always says to steam, steam steam your sinuses to encourage increased circulation to the sinus area. It is old fashioned, but it really does work. Oral dcongestants are also a big help, in combination with steaming, but only if used morning and early afternoon to avoid possible wakefulness.

    I found this information on Low level laser therapy of capsular contracture. This is work that was initially done in Australia

    http://acs.sagepub.com/content/32/1/7.abstract

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited March 2016

    3 grams a day of C is considered by most reputable scientists to be a megadose. The “anti-scurvy” dose is basically the amount in one orange or the juice of a lemon or lime--about 50-100 mg. Anything higher than 10-12 gm/day is likely to result only in very expensive pee. And the original poster doesn’t have cancer (she says the bmx was prophylactic)--but in the case of cancer patients (especially during rads or chemo), that high a dose of an antioxidant can prevent free radicals produced by these treatments from destroying cancer cells--it may protect them and even promote their mitosis.

  • happyteacher
    happyteacher Member Posts: 118
    edited March 2016

    @macb I started taking antibiotics a week ago Monday. By Wednesday there was a significant improvement- no more discharge, green color, pressure under the eyes, etc. Surgery was Friday. The PS found that although there was some scarring, the problem turned out to be infection. The infected fluid had encapsulated the implant along with the scarring. Due to this, I will be on antibiotics for at least a 10 day regiment, although he wrote the script for a refill so perhaps maybe longer.

    Interesntingly enough, I did choose to take the supplements. My drainage output is sooooooo much less than any of the other surgeries, and I have 5 on the chest and two on the gut to compare it to. My output is similar to where I would normally be 3 weeks post op, and typically it would take a full month to get the levels down low enough to remove the drains. One drain might already be ready to come out, but I do not want to rush anything so we will see what happens over the next few days. I am going to continue the supplements for sure. Fingers crossed that I can keep infections at bay along with the scarring, but so far so good.

  • macb04
    macb04 Member Posts: 1,433
    edited March 2016

    Sounds like you are kickn along well now, glad to hear that the infection is in retreat. I used supplements too which helped markedly with decreasing drainage. Some doctors tell you about them, but most don't. I would get infections with the many surgeries I have had, and the antibiotics were not enough, so I got IV Vitamin C. This last time I had an infection and the two antibiotics, Doxycyline and Cipro weren't working that well, my fever wouldn't stay down while on it, so I got IV VitaminC. Yes, I know that some of that Vitamin C was excreted in my urine, but I also know that my fevers stopped that night and never came back. I have a great deal of company worldwide using large doses of oral and IV Vitamin C to kill infections(like mine) and to kill cancer. My story is an example of what happens when antibiotic resistence occurs, without IV Vitamin C I would likely have been hospitalized or dead. Thank goodness there is such a helpful treatment available for people like me, in the future there will be more and more people like me, with seemingly simple infections without any antibiotics available to help them.

  • happyteacher
    happyteacher Member Posts: 118
    edited March 2016

    I found out that my implant not only had scarring, but it was infected. The fluid from the infection had also encapsulated it. Unfortunately, the infection came back as a strain that is resistent to antibiotics. Oddly enough, I was on doxycycline and then was switched to Cipro once they found the implant infection issue. I am supplementing the vitamin c, but will kick it up more. I had a fever one night, but it was gone by the morning. Hopefully the antibiotics are working- I don't feel crummy or anything so I will take that as a good sign. Pretty sure I will get one drain out next Wednesday, and the other is avergaing about 40-50 ml. Overall though, everything feels good (relative to the situation) and seems to be progressing along.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2016

    happyteacher - sorry to hear about the infection but glad to hear things are progressing.

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