Exchange City

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  • mvspaulding
    mvspaulding Member Posts: 446
    edited March 2016

    I just got scheduled for my exchange surgery this week. It will be Apr 7th so I thought I would come on over to this thread to see what to expect. I can't wait to get these expanders out. Just in the past few days I have had increased pain with them and having an even harder time than usual with sleep. I'm 4 weeks out from last chemo treatment and I've had a bad cold for over a week with chest congestion and a lot of coughing. I also started Tamoxifen the same day I started getting sick. Not sure what to attribute the increased expander pain to.

    Anyway, all along this journey I was hoping to be done and ready to start my golf league that starts in May. I know it seems silly but that was my thing to look forward to. Does it seem feasible to you all that I could be ready to golf in 3-1/2 weeks or will it take considerably longer?

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited March 2016

    Myspalding, I don't think you will be able to golf that soon. You can't lift your arms above elbows for a while. You don't want to rip anything that was stitched inside. You have to allow the implants to settle and swelling to go down. It also depends on what kind of implants you are getting. I am a year out now with annatomicals and they need to adhere to muscle and skin. Be patient it is worth it!

    Robin


  • mjh1
    mjh1 Member Posts: 445
    edited March 2016

    i found a great organization that offers free retreats to women in all stages of BC survival to learn fly fishing for a weekend and bond with other sisters. They have them in different states at different times. Downstate NY is in September out on the island. Not sure if I can post the link here but if anyone wants to look into it PM me. It would b great to finally meet all my NY sisters!!!

  • teriberibin
    teriberibin Member Posts: 2
    edited March 2016

    Vinnie Meyers did my nipple tattoos in the San Diego area on October 27, 2015. I live 600 miles from San Diego but was able to stay with my daughter, who lives in the area. The cost was $700 for each side, total $1,400, which was higher than anticipated but he did have travel and accommodation costs for himself, his wife and Richie. I began calling for an appt 6 months prior.

    No one that has seen my tattoos can tell they are not real. My daughter was shocked by how real they appear, especially the added nodes. I am pretty tough but I was caught off-guard and cried when I saw the completed work. I want to scream to all those having a mastectomy, DO NOT RISK KEEPING YOUR NIPPLES! JUST GET THE VINNIE MEYERS TEAM TO DO YOUR TATTOOS!

    I chose to have my nipple reconstructed 8 months before and my PS did a fantastic job. Vinnie does a great 3D nipple but I wanted nips. Vinnie had nothing but compliments about my PS's work. I had my mastectomy and reconstruction done in San Diego. I was going to have to travel to have the mastctomy done so I chose somewhere I liked with a gynecologist oncologist I felt comfortable with to do my oomphectomy/salpingectomy. I loved my PS.

    I originally wanted a Diep flap but wasn't a good candidate. As it turns out, it was fortunate my PS went with implants (he is talented a micro surgeon). I have lost weight due to another issue and I have lost most fat around my breasts. Had I gone for the Diep, I probably would be deflated.

    My PS graduated from and did his residency at a highly regarded Baltimore hospital and recommended Vinnie for the tattoos. He's the one who told me Vinnie travels to San Diego twice a year but I did not go thru his office. My PS does not do tattoos himself. He said he only uses "my guy", lol.

    I am currently fighting with Anthem Blue Cross to get the tattoos covered. They are denying me based on his not being a covered provider. Their own paperwork says nipple tattoos are covered and there appears to be some gray area as to whom can provide the service. I plan to not only send pictures, but provide a copy of a pamphlet he provided. Perhaps his connection to two breast cancer centers will sway things my way. I'm not holding my breath but shouldn't a tattoo be done by a person gifted in tattooing the nipple and not necessarily a physician? I knew going in it would be an uphill battle. You'd think that by now, this issue would be resolved in the favor of those who have gone through this difficult process.

  • bikefam
    bikefam Member Posts: 127
    edited March 2016

    Thanks for the upbeat information, Teriberibin... I am seriously considering going to Vinnie's in Baltimore (my daughter lives near there) when I am all done with my reconstruction. Everyone seems to love their Vinnies.


  • Scottiemom11
    Scottiemom11 Member Posts: 1,298
    edited March 2016

    Teriberi. . .let us know if you succeed with BC. My PS has someone in house that does tattoos, but she knows Vinnie and wants him to do mine. Maybe next year, too many other medical expenses this year. We'll have to fly to wherever so San Diego sounds fun. I was told he only charges $800 total in MD so may have to be Baltimore.

    Scottie

  • Mominator
    Mominator Member Posts: 1,575
    edited March 2016

    Moonflowr and Robinblessed: the Add/Remove from My Favorite Topics links are very close to the Back to top/Jump to bottom links. It doesn't take much to hit the remove link, especially when view the board from a phone.

    In fact, I just posted on the technical forum and suggest that those links be separated.

  • patty101014
    patty101014 Member Posts: 53
    edited March 2016

    thank you, lkscolo. I've read many posts over the past few days but have been very groggy and tired from surgery and meds. Much clearer today. I already think they look a bit better, not quite so sand dollarish ;).

    I worked from home today, rested at lunch time and still got the "slow down" message loud and clear at around 5pm. I'll pace myself better tomorrow.

    Question for the group... I'm noticing that my radiated side is more swollen than the other side along my ribs. And where the radiated skin had turned a light tan before surgery, it is very red now. Should I be concerned?

  • mjh1
    mjh1 Member Posts: 445
    edited March 2016

    patty101014 - increased swelling n very red skin definitely warrants a call to your plastic surgeon. If u don't have a fever, it may be nothing but better to be safe. Let us know what he says. Hugs!!!

  • patty101014
    patty101014 Member Posts: 53
    edited March 2016

    thank you. I went to bed last night planning to call today. But when I got up, the swelling was down and the skin less angry looking. The non cancer side is very bruised looking and starting to fade to yellow bruises. I wonder if the color change was bruising that is starting to fade? I feel much better today

  • Jackiegray
    Jackiegray Member Posts: 69
    edited March 2016

    I had my saline exchanged yesterday for silicone and had fat grafting done and major pocket work. My skin is so stretches and very red and bruised. PA and PS. both seen this yesterday in PACU. I was pretty out of it and I don't remember if they said it was all swelling. I sure hope so they look like a porn star. Has anyone had a similar experience?

  • Mominator
    Mominator Member Posts: 1,575
    edited March 2016

    Happy to hear progress in all our exchange ladies!

    Some progress on me: this morning I had my first run since my two surgeries (MBX, Exch). If you can call it a run, since my pace was 14 minutes per mile (some speed walkers are faster than that). See, Monica, I started slowly. Just because you CAN doesn't mean you SHOULD, LOL!

    BTW: I asked the Mods if it's possible to move the Add to/Remove from My Favorite Topics toggle to the right side of the page, leaving the Back to top/Jump to bottom links on the left, alone? They're going to pass that along to the technical team. Yeah! Those of us viewing on small screens are less likely to accidently drop our favorite topics off our favorites list.

    Happy Spring to all. The birds have started a chorus outside my window in the mornings.

  • patty101014
    patty101014 Member Posts: 53
    edited March 2016

    ack! Ok new weird thing... My pec muscles are contracting over my implants. Like muscle cramp contracting. Ugh! I dealt with this during expansion. But did nor expect it to happen again.


    Ok, maybe muscle cramp is an exaggeration, but this is not pleasant

  • Suzanne50
    Suzanne50 Member Posts: 280
    edited March 2016

    I saw my PS today - one week after surgery. He said everything looks good. Still some swelling but not a lot. Tape stays on till next week but I can shower now. Yay! The right side (mastectomy side) has a lot more discomfort than left. He said that is because 1. totally different surgery and 2. I had a lot of scar tissue due to radiation on right 3. had to go through muscle on right.

    So my arm movement, he said would improve greatly over the next week which I was happy to hear. He doesn't think I will need PT.

    I decided to stay home the week. I didn't want to rush going back and feel crummy. So just taking it easy.

  • PNY
    PNY Member Posts: 90
    edited March 2016

    patty101014, welcome to the squishy side:). I had my surgery the end of January. It gets better and better but I still have that feeling when i do too much or exert myself. Its not terriblly painful just uncomfortable. I stop what i am doing and stretch as much as i can and it eases up. I figure one day i will wake up and won't have that feeling anymore.

    Good luck

    Phyllis

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited March 2016

    Phyliss and all new EX ladies; I am one year post EX. One day you will wake up and finally feel "normal". My foobs feel a part of me now. You get used to the new normal. That doesn't mean that sometimes you won't feel a pull here or there but life seems to be back to the day to day things. Do what the PS says and you will come out of this ahead.

    Robin


  • Mominator
    Mominator Member Posts: 1,575
    edited March 2016

    Thanks for the encouragement, Robinblessed. Things are getting better 8 weeks post EX, with only a weird pull now and again, or muscle cramping when shivering. I am able to sleep on my left side now with a pillow, right side is still weird. Although things still feel like they are moving, it is much less moving feeling than 2-3 weeks ago.

    My muscles are so sore today that I'm glad I took a slow pace on yesterday's first jog. But I am figuratively and literally moving forward! We had sunshine today.

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited March 2016

    Mominator, you must have silicone rounds if they move alot. I have the textured anatomical implants so they don't move much. But I love them!

    Take it easy with the running. You want to keep these babies for a long time, don't rush it. I was overly protective because I didn't want to have anything go south.

    Robin


  • Jackiegray
    Jackiegray Member Posts: 69
    edited March 2016

    I had revision surgery, implant exchange, major pocket work and fat graphing on Monday. I seen my PS today going back in on Friday to exchange implants for smaller ones. There is so much pressure on my very thin skin PS is concerned. This is ultimately my fault as I chose the implant size. My first reconstruction was April 2014 saline 550 cc high profile round. They looked awful. They were rippled and my previous PS believed in a natural sag. New PS closed up the pockets both laterally aND underneath. She advised to go with a smaller implant. I chose a 535 high profile silicone. They are HUGE! My skin is stretched so tight it feels like it could pop. Has anyone ever had 2 surgeries in one week?

  • PMR53
    PMR53 Member Posts: 452
    edited March 2016

    Jackiegray, I had Lipo and fat grafting with lots of pocket work also. 4 weeks ago today. I had my final drain removed yesterday. This surgery was as bad or worse as far as pain, bruising than my MX. With the Lipo and fat grafting the bruising and tenderness is pretty intense the first couple weeks. It's hard with the compression garments too. It will get better. Are you on antibiotics?  I used a heating pad and it was really helpful at the drain site. Watch for increased temp and increased red areas. Hope you feel better !!

    Patty 

  • Jackiegray
    Jackiegray Member Posts: 69
    edited March 2016

    Patty thanks for the pep talk. I agree this pain is far worse than the BMX. I am so upset I have to have another surgery Friday. I am on 2 antibiotics cipro and Bactrim.

  • Mominator
    Mominator Member Posts: 1,575
    edited March 2016

    Robinblessed: I also have the textured anatomical implants. My PS did extensive pocket work. I told him at 5 weeks that things felt like they were moving. PS examined the breasts and said that all felt fine. They move around the right amount. He told me to wait until 8 weeks to resume running. I didn't feel anything move in my breasts when I ran. Things feel only a little bit weird when I lie on my side.

  • Tina1969
    Tina1969 Member Posts: 44
    edited March 2016

    Thank you for the encouraging words Robin. It's so great connecting with woman that can relate and have gone through what I'm going through. I'm happy to hear that you are doing well. I'm a little over 3 weeks post exchange and things get better everyday. I still have twinges of pain every once in awhile but nothing compared to the pain from the TEs. It is wonderful being on the squishy side. My left implant was quite a bit higher right after surgery but it seems to be lower now. And they are getting softer. :)



  • mvspaulding
    mvspaulding Member Posts: 446
    edited March 2016

    How did you all decide on what type of implants to get? I have my pre-op appointment with PS on Monday. Saline vs gel. And what are the anatomical implants? I have been so preoccupied with treatment that I haven't really researched this like I should.

  • LoriWNY
    LoriWNY Member Posts: 193
    edited March 2016

    MV--I am so glad that you are thinking of performing your own research! This is so important and I regret that I did not research enough prior to my first set of implants (I had a revision surgery switching out one type of implant for another). May I suggest that you head over to the Breast Implant Sizing 101 thread and do so reading. You will learn a lot! Take some notes with questions to ask your plastic surgeon on Monday. Bring paper and pen to your appointment so you can write down the surgeon's responses (or bring someone with you who can take notes). From what I have learned, most women choose silicone but that's not to say that choosing saline is a bad choice. You need lots of information to make a decision. This is YOUR body and please take time to do your research just like you were researching the purchase of a car or a house.

    I have had both silicone rounds and silicone anatomicals. I believe there are photos of both types of implants at the top of the Breast Implant Sizing 101 thread so you will be able to see the difference in these implants.

    If you have specific questions, please post them and I am sure others will chime in.

  • PNY
    PNY Member Posts: 90
    edited March 2016

    Robinbelssed 54. Thanks and now 7 weeks post EX I do see improvement daily. And I am confident the tightness and intermittent pain under the exchange from the internal stitches will also subside in time.

    I go to the PS next week for my second post op appt. Hoping she says i can go back to the PT for the myofacial release as I found that so so helpful.

    Thanks

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited March 2016

    MV, I went between silicone rounds and anatomical the whole time I was getting fills. I finally decided on the anatomical. I wanted the natural shape and wasn't going big. I was filled to 420cc and have 475cc. I also wanted to avoid rippling. I have no ripples.

    Your PS must be experienced in anatomical. You will find out what is best for you.

    Robin


  • mvspaulding
    mvspaulding Member Posts: 446
    edited March 2016

    Thank you Lori and Robin, I will check out that thread and spend some time this weekend looking into everything. I already know that I am going smaller than I was. I was a DD and we decided on a Full C, small D range. I have been having so much pain in the last week in my right expander, I am not sure why. So this exchange surgery can't get here soon enough.

  • new__me
    new__me Member Posts: 128
    edited March 2016

    i had my exchange surgery with fat grafting yestèrday. breast area is numb (has been since the BMX) . The pain is from my belly where he harvested the fat.

    I am wrapped very tightly from under arms to my pubic area. Very difficult to bend. PS had to do alot of pocket work on my left side and the drain output is much more there. Strict orders to not raise arms above shoulder height. I intend to follow the limitations very closely. My sister is a month or two ahead of me and she ignored the shoulder rule. She had to have each side drained several times and the PS was getting worrièd. As for me, i have a post op next Tuesday.. hoping at leas onee drain swill be retired

    Diane

  • nelliemd2
    nelliemd2 Member Posts: 1
    edited March 2016

    Hi: I'm new to this forum and have spent a lot of time over the past couple of months reading and re-reading these threads. I had lat flap surgery and tissue expander placement on December 1, plus two additional surgeries on an area where my incision had been leaking fluid. All appears to be healed now, and I'm having my exchange surgery this coming Monday, March 21 (plus a reduction/lift on the opposing side). Keeping my fingers crossed that all goes well and that the healing issues are behind me. Cautiously optimistic, yet a bit nervous at the same time!

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