BRCA if you're triple negative did you test positive on BRCA

phaila · February 2016

I'm wondering if any of you who are triple negative were tested for Brca Genes. And if so was it positive or negative? My onco said he's trying to find out what's fueling this cancer because it's strong but small and slow growing... I have (had)idc grade 2 1.4 cm

Scwilly · February 2016

I had TN and tested negative. I do have a small family history - but only with a cousin and none in family tree (as far as we can tell)

lpzfran · February 2016

I am what my oncologist said essentially TN because my Progesterone is 20%.

I did test negative for BRCA 1 &2. I have family history on both sides of my family.

I have a referral out for further genetic testing a complete breast ca panel hopefully my insurance approves it.

phaila · February 2016

well I tested low pr and er positive after my partial mastectomy, then my oncologist said it didn't seem right so he retested with genomic health the oconottoe company. My results all came back negative. How can you test pisitive then all of a sudden by negative??

Which should I believe

WinningSoFar · February 2016

I am triple negative and tested negative for BRCA.

jenjenl · February 2016

TN and BRCA1 positive. When i had my 1st biopsy they said i was 20% ER positive but the oncotype can back TN.

lpzfran · February 2016

I'm not sure. .so confusing to me.

KellyAnne13 · March 2016

I am (or WAS) triple negative. I tested negative for 14 genes in a panel (including both BRCA genes), all were negative. Having said that, my grandma died at 50 of ovarian cancer and I have two distant aunts on the same side with breast cancer, one of which has been confirmed triple negative. With this history the genetics department feel that it is very likely there is a genetic component... they likely just haven't discovered it yet.

Kelly

Jac1982 · March 2016

I'm 33 did double mascetomy, 16 rounds of chemo I am triple negative and want to know if I can have another kid I finish my last chemo treatment in November 2015. Doc says I should have a hysterectomy as soon as possible. My question is bc I'm triple neg and my cancer wasn't hormone driven do u think I can one more child. Genetics said I can I'm just not sure heard too many stories if anybody has a similar story I would love to hear the outcome thank

Redporchlady · March 2016

I am triple negative and tested negative for the BRCA.

Kayrem · March 2016

I was triple negative and I amBRCA1 positive.

Anonymous · March 2016

One of my tumors was triple negative.

I tested negative for BRCA 1 & 2.

SoutherMother · March 2016

I am triple negative with negative BRAC1 and 2 (retested recently). I do have the gene mutation NBN which is thought to raise the risk of breast and ovarian cancer. I

placid44 · March 2016

I am triple negative, negative for BRACA 1 and 2. I had the full genetic panel late last year and it was all negative

Canadian21 · March 2016

I am triple negative and I am BRCA2 positiv

anamerty · March 2016

first bc was er/pr positive ( in 1999 they didnt test her2) genetic testing brca 1 very strong family hx of bc...second bc was tn (new primary opposite breast 3 years ago

Cruella · March 2016

I was diagnosed, after I found my lump July 28, 2015, with an Invasive Ductile Carcinoma, 2.5cm, grade 3, 81% aggressive, Triple Negative tumor, shortly thereafter. Within a few weeks I had full panel genetics test done and the results came back negative for BRCA1 and BRCA2 and anything else.

jlstacey · March 2016

BRCA 1 and 2 negative her

pixiemuse · March 2016

neg for BRCA 1 and 2 with a variant of unknown significance....

hanley50 · March 2016

Hi....

Triple Negative and Negative for BRCA 1 & 2 and everything else tested with My Risk test.

Maryann

WinningSoFar · March 2016

triple negative and negative for the BRCA's.

B

chi-girl · March 2016

I'm TN and I tested negative for BRCA1, BRCA2, PALB, PTEN etc. (So negative for the rest of the gene panel as well.)

shiny · March 2016

hi,

I was tested for BRAC 1/2. There was something highlighted on BRAC 1 test but not the actual known BRAC 1 known issue. I have what is beleived to be a low risk for being a cancer risk increasing mutation. ( how it was explained to me).

There were 5 family members, from grand mother, to aunts to cousins who have had BC though. All at relitively young age. One is known to have been TN two def not, the other's status unknow.

Hope you have a good Easter.

Shiny

Anonymous · March 2016

I am TN and BRCA -. No family history. Kelly

AnnaMO · March 2016

I'm triple negative and BRCA1 (del exons 9-12).

Diagnosed 12/4/15. 4 rounds of AC, 4 rounds of Taxol (last one will be April 5th), then bilateral masectomy, ovaries/Fallopian tubes removed, followed by radiation.

Opinions vary on full vs. partial hysterectomy.

*edited to add*

Carboplatin - which according to my cancer clinic, studies show this chemo is especially effective for TN/BRCA - following BSO and double masectomy followed by radiation; Xeloda approval pending