January 2016 Chemo!

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  • MissBee123
    MissBee123 Member Posts: 186
    edited March 2016

    paulinek SO SO SO HAPPY FOR YOU!!!

    Jill, taxotere is a nasty one. I had it last summer along with carboplatin and that buzzing feeling is exactly how I felt. Days 4-8 were my worst each time and then things kind of went back to normal. I wish I could say I had something that helped but it's unfortunately just a tough it out situation. Keep it up with the water intake and I'll be thinking of you

  • Cathytoo
    Cathytoo Member Posts: 667
    edited March 2016

    Jill...take Miss Bee's advice and DRINK until you think you're going to float away‼️ Also, WALK, even if you think you're going to fall dead on the floor. AND...Clariton and Aleve. This is what has saved me. Hopefully, these suggestions will help you and you'll bounce back quickly.

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited March 2016

    I'm right with you. Taxol for me dose dense is the devil. But it's still better than AC. I have been knocked down since Weds with the bone pain, and my bladder and vagina hurt too. Today is better but still awful aches. Ugh. I iced my hands, chewed ice, and am drinking tons of water. UGH. So glad I have here to vent.


    Val

  • Sheri64
    Sheri64 Member Posts: 113
    edited March 2016

    Anyone feel like the have to pee all the time and can't get to the bathroom fast enough

  • songbird72
    songbird72 Member Posts: 68
    edited March 2016

    I'm glad I'm not the only one having issues with the Taxol! The nausea is so much better than with AC but that pain.... My pelvis/hip area also hurts. It hurts if I sit, hurts if I stand, hurts if I walk. I'm taking Claritin, B6, E, and Ibuprofin. I may try an Aleve when the ibuprofin wears off in a bit. I haven't had the dizziness or anything so I hope that is better for you soon LovestoFly. I hope the pain lessens every day!

  • Cathytoo
    Cathytoo Member Posts: 667
    edited March 2016

    Sheri64...I per every two hours and have to race to the bathroom. Of course, the racing makes me pee my pants. Anyone wearing diapers yet

  • Lolliipop
    Lolliipop Member Posts: 32
    edited March 2016

    Just finished round 4 of TAC on Thursday. Lovestofly, you are so right about hydrating. I had a liter of saline pumped into me when I went back for my Neulasta shot on Friday, made a big difference, wish I could go back for another today. I have such a hard time drinking anything after chemo. Paxton29, my hot flashes are insane. I am up half the night, covers on, covers off with fan full blast. Same thing at work, all day long jacket on, jacket off. Two more treatments then surgery. Really scared to be facing that. Will they do radiation with implants in. I wanted to do the BMX and implants all at once if possible

  • Paulinek
    Paulinek Member Posts: 117
    edited March 2016

    Jill, I had taxotere as part of my TC regimen. I had the bone pain in the hips after the first treatment, the nothing the second 2 (only one day past 4th). I also had other side effects after the first infusion that never came back again. Hopefully it goes away soon and doesn't come back! I agree with the suggestion to drink tons of water!

  • Sheri64
    Sheri64 Member Posts: 113
    edited March 2016

    Look at this nice ring a couple of friends at work

    got me. It says fight like a girl on the other side. It from Avon.

    image

  • Paxton29
    Paxton29 Member Posts: 221
    edited March 2016

    Lollipop, I am having my tissue expanders exchanged for implants before radiation. I know there are pros and cons to doing it that way but my PS thinks it will work out better.

  • zinny
    zinny Member Posts: 281
    edited March 2016

    Congrats, PaulineK.

    Geeper, so sorry for your losses. What a sad week.

    Taxol ladies - the grumpy monster has been awakened! I was thinking it would start tomorrow, but apparently not - guess it is "Day 3." Wow. Am I ever cranky. And sore! The fingertips are the weirdest. Not looking forward to more of the bone pain - starting some meds now.

    Warrior on...

  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited March 2016

    Hey ladies......I hate to hear that Taxotere is wreaking havoc on you Jill....I hope you find relief! I am on day 4 of my first Taxol and the bone/body pain is not fun. The crazy itchy hands and feet subsided with Benedryl yesterday but pain today is like what everyone else is saying. I hope Pauline (our recent graduate of chemo) is right and they get better:))). I went to chiropractor and got acupuncture and adjustment for pain today which also helped. I keep seeing you all mention Alleve.....that is on my list next followed by more water. Stay strong everyone..so appreciate the sharing of ideas!

    .

  • Cathytoo
    Cathytoo Member Posts: 667
    edited March 2016

    DFWFLYGIRL...Aleve works wonders. Try it. Better than Rx pain meds. Feel better

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited March 2016

    DFWFLYGIRL

    I'm with you. Hope it gets better as our bodies get adjusted? My bone pain is a llittle better with each day. I'm on dose dense so I have all next week to recover. It's still better than I felt with AC. My MO yesterday, every SE, she had suggestions, and remedies, they said whatever side effect I have to let them know so they can give me help and support me to get through it. Benydryl for the itch, (my face has started) Aleve for bone pain or something stronger if I need it. So I'm hanging in there.

    On a good note, got outside today, beautiful here in Charlotte NC.

  • DFWFLYGIRL
    DFWFLYGIRL Member Posts: 146
    edited March 2016

    Thanks Cathytoo and Valstim52!!::Aleve.....water and Epsom bath on deck tonight. And I agree...it's better than AC:))


  • Cathytoo
    Cathytoo Member Posts: 667
    edited March 2016

    DFWFLYGIRL ... Enjoy your bath. Think good thoughts....and relax

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    a warm bath felt great

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    I'm still having the pain, but it's 10:30 and I'm awake, so hopefully the exhaustion is lifting.

  • Frill
    Frill Member Posts: 311
    edited March 2016

    I'm glad to hear everyone's doing pretty well with Taxol. I did get to have #7 on Thursday - new system has everything screwed up. But the doctor found some infection in my shoulder which continued spreading on Friday, so I've been in the hospital all weekend with cellulitis - a nice lymphedema present.

    I asked the nurse Thursday if I was going to have a second round of hair loss when I switched to FAC and she said no, that most women's hair was growing back by then. Whew. Not that I couldn't be the exception, but it's nice to know what the general rule is.

    Really sad about not getting to go home this weekend. The next two weeks are going to be trial prep unless that gets moved.

    Anyway, happy daylight savings, everyone. I love this time of year. Last year I was planting flowers every evening. I guess this year I'll be making some flower beds at my sister's house.

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    I am now on day six after docetaxol, I think I'm starting to see the light at the end of the tunnel. I felt pretty crappy most of yesterday, but by evening I started coming around and I ended up staying up watching TV with my husband until 1030. Then I slept until 10 AM, current time! I am in less pain this morning, still feeling weak and dizzy if I do too much, but not in a complete fog like I was yesterday!

    Frill I did FEC before docetaxel, definitely lost my hair. I believe it is the C that causes most of the hair loss. I hope your chemo nurses writing your hair starts growing back, I just don't want you to have false hope and be disappointed (interestingly, I was told exact opposite, that a lot of women lose their hair during FEC and often start growing it back during the docetaxel. I cannot tell yet!)

  • Frill
    Frill Member Posts: 311
    edited March 2016

    Jill: That makes wayyyyyy more sense with what I'm experiencing with Taxol and what I read on the basic info sheets they gave me re FAC. I had the fall out, but it was way shorter timewise, and only on my head. I got one haircut - the one where we did that buzz clip, but not the shave one. I didn't do another one. I shed heavy after that for a few days then stopped.

    TBH, I've spent a small fortune on scarves, so if I could just keep my lashes and brows, and have to lose my hair again, I've got plenty to keep me occupied on top of my head. I'd just rather *not* go through it again. It's out of my control and over a month away.

    I went back and saw you were having lots of joint pain...mine has eased up considerably and I don't have it any more.

    Oh - the MO was really impressed with my RBC and platelet counts, he said they were higher than they usually see at this point in chemo. My sister has been the cancer chef, but boils down to lots o' spinach. I have fresh spinach salad at the hospital 2-3 times a week and I swear she puts spinach somehow in every meal. I may have an elephant arm, cellulitis, and low WBCs, but I'll take what I can get.

    One last thing - here's the HILARIOUS hospital story for y'all. I'm looking at my discharge paperwork and it says: Secondary diagnosis during hospital stay: anemia of malignant neuroplastic disease. Hmmm, what's that? I ask the nurse and she says, "Hmmm, you should google it." GOOGLE IT?! I say that well, actually I did. Then she goes to the nurses' station which is right across from my room and they say, "Google it." I repeated myself. They printed out google stuff for me that gave me no information.

    If anyone's heard of that - I mean, I know "malignant neuroplastic disease" is cancer. But I came in with everyone knowing that. What's the anemia part? I can't believe I'm at one of the largest hospitals in the world and they say, "Google it." I'm half laughing, half wtf.


    image

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    frill you look lovely. I lost almost all the hair on my head with feC, and also most of my body hair. I don't still have my eyelashes and about half my eyebrows, I'm hoping to stay that way. I don't even care what happens to the hair on my head during taxotore, if it takes two more months to start growing back or not barely matters now. I'm totally used to wearing hats and scarves.


    Today has been much better. I still have some body aches headaches and dizzy spells, but not nearly as bad as the last few days and I've been out and about most of the day, just sitting down and taking it easy when I need to. I'm so happy to know longer feel tied to my couch and bed.

    I did my make up nicely last night, to go out for my daughter's birthday

    image

  • Valstim52
    Valstim52 Member Posts: 1,324
    edited March 2016

    You ladies look great!!!.

    So the nurses said to google it? Oh my!!!

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    most of the aches and pain and exhaustion are gone, but I still get the worst headaches! I woke up at three in the morning with my head just pounding, I had to take a Tylenol 3 to get back to sleep. Ugh!!! Damp and rainy out today, so I'm sure that's not helping things.



  • sarah_sunflower
    sarah_sunflower Member Posts: 47
    edited March 2016
  • sarah_sunflower
    sarah_sunflower Member Posts: 47
    edited March 2016

    Geeper, my heartfelt condolences for your loss.


  • sarah_sunflower
    sarah_sunflower Member Posts: 47
    edited March 2016

    Frill & Jill, you girls look lovely. I'm finding scarves and caps more comfortable than my wig. Its been awhile since my wig is just sitting there. I should honour it wear it sometime

  • LovesToFly
    LovesToFly Member Posts: 1,133
    edited March 2016

    I'm pretty sure I will never wear a wig again. It's a shame because my wigs look lovely, but I am so uncomfortable and aware of them at all times, I can never relax when I am wearting one. Scarves and hats feel so much better. I also go bald often these days, it took some getting used to but really it is so comfortable to have nothing on my head!

  • JCS28
    JCS28 Member Posts: 153
    edited March 2016

    Here we go again! I've caught something that has me down and out. I think it's just a cold b/c my husband and kids have it too, but the aches are terrible! I was in bed all weekend and am missing work today. My doctor just called in Levaquin. I had to have this after my first round too when I caught something. But it worked then, so I'm hopeful it will this time. So, I'm due for round 4 on Wednesday, but I'm worried it won't happen. Has anyone had an illness just a couple of days before chemo? How were your counts? What should I expect? Of course, it figures. Initially I though this 3rd round was the easiest, but now I feel absolutely ROTTEN.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited March 2016

    Pain in fingertips...I don't remember if this has been mentioned (probably and I missed it). I have pain in my fingertips. Is this the beginning of neuropathy? I have one more infusion and will wear ice filled gloves. Any other suggestions?

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