Working or Not Working

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bllshane
bllshane Member Posts: 7

Had first chemo and having awful time. Meeting with oncologist Monday. Working with side affects is quite difficult. I don't feel productive on the one hand as I have needed time off due to side affects. Thinking of talking to oncologist about being put on a short leave during the next weekly treatments. My job is one for which we need to fill with a temporary. Although I'm worried about the reality of only having sdi, I'm more worried about my health and ability to tolerate and stay healthy during chemo. Would like to know what some of the experiences are and whether you needed time off. Changing to Taxol once a week end of month. Thanks!

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  • Praline
    Praline Member Posts: 115
    edited March 2016

    I am doing 12 treatments of Taxol... once a week for 12 weeks. I opted not to work. For one thing I am 74 so not as energetic as I was 20 years ago. Another thing is I work as a teacher assistant with Kindergartners. My BS, my MO, and the Nurse Navigator all agreed that it may be better to stay away from the runny noses, coughing, etc..My Nurse Navigator called it a germ factory.

    Good luck with your treatments. As for working, do whatever is best for your health.

  • Skittlegirl
    Skittlegirl Member Posts: 428
    edited March 2016

    I didn't work during chemo. A) I work with biologically hazardous samples, so I would need different job responsibilities B) Since I work in a lab working from home was not an option C) I had chemo during cold and flu season and did not want to be around people bringing all sorts of germs. I actually ended up being hospitalized twice during chemo due to infections and am glad I didn't have the extra stress of stuff getting done at work.

  • debiann
    debiann Member Posts: 1,200
    edited March 2016

    I know many say they work through chemo.  God Bless them, I don't know how they do it.  I am a teacher. I started chemo in May, so most of my sessions occurred over the summer break.  I probably would have been able to work 1 week out of each 3 week cycle if I would have had too, but so happy I was able to dedicate my summer vacation to chemo.

  • ual0307
    ual0307 Member Posts: 62
    edited March 2016

    hi.

    I had 4 DD AC and went with the 4 DD taxol instead of the 12 weekly. The taxol was a piece of cake compared to AC.

    I did work thru Chemo but I am an exec with a staff. Over the 16 weeks I took off the 8 infusion days and during AC the Friday after each infusion. After the last taxol I was out a couple of days because of cumulative effects.

    I made the decision to work because otherwise I'd be at home laying on the couch....Going to work kept me busy and moving. I should tell you there are things I did and decisions that I made that I had no recollection of. Chemo fog is nasty. Two years out, I am amazed at the 6 month hole I have in my memory.



  • ksusan
    ksusan Member Posts: 4,505
    edited March 2016

    I worked through chemo but my colleagues helped me out and I had a lighter work schedule that season.

  • rwiley4529
    rwiley4529 Member Posts: 62
    edited March 2016

    I had 4 dose dense AC and 4 dose dense Taxol. I did not work during chemo. At first I thought I would, but then realized that I wouldn't be able to. I am fortunate that my employer has a very generous leave and disability plan, and my management told me repeatedly "your job is to take care of yourself".

  • hyphencollins
    hyphencollins Member Posts: 109
    edited March 2016

    Sorry to hear you are having a rough time of it. There's nothing wrong with taking some time off. You'll be done with chemo before you know it! I worked, but took off every Fri after chemo (I actually felt ok the day after chemo but it helped because I was down for the count over the weekend). I'd go back to work on Mondays but I felt crappy until about Thursday. I agree with the previous poster, for me it was better to be up and about. I will say I did call out sick 2 times and was also way less productive than usual. Fortunately work was extremely understanding. Taxol was better, I had no energy nights and weekends but felt better at work and was more productive than with AC.

  • reflect
    reflect Member Posts: 576
    edited March 2016

    I am doing AC every 3 weeks and am going to do 2nd cycle this Thursday. The first cycle I went back to work on Monday, Tuesday, Wednesday and couldn't go back Thursday--I was exhausted. So I've decided to take off the M and T following chemo and return to work W. (I don't work Fridays) I think everyone is different and I am ready to be flexible with myself. I am, however, the sole income earner in my family of 3, so even though I have some kind of disability plan at work (and SS I suppose) I am spending too close to the edge already, can't imagine how I'd do it with reduced income. But, if I need to, I'll figure it out I guess.

    I have used a good bit of my sick time already. We do have a sick bank at work which could cover 2-4 weeks apparently, which is great (plug for unions here).

    In the end you have to take care of your health first, otherwise, what are we doing all this for?

  • Deaconlady
    Deaconlady Member Posts: 158
    edited March 2016

    I am currently working through chemo. I just had my 4th Taxol and my SEs have been very minimal. I am mostly really tired and have had a little nausea. I am hoping to continue until I'm finished. I just can't afford the short term disability since I'm a single mom. I am using PTO and will use intermittent FML if necessary.

  • KarenInCanada
    KarenInCanada Member Posts: 271
    edited March 2016

    I am on short term while I am going thru chemo. I get 3 FEC which I just finished and in 3 weeks move on to 3 Taxotere/Hercepton. After that I will be on long term for radiation and until I recover from that. From what I understand working through the rest (Hercepton only) for the rest of the year will be okay with working. My job involves constant customer service, lifting amongst many other things and very face paced, so I can not imagine working through it. Also scares me due to all the germs and sickness constantly going around.

  • PawsitiveEnergy
    PawsitiveEnergy Member Posts: 3
    edited June 2016

    I run my own business and after developing Hand-Foot Syndrome, I had to take a leave of absence. Luckily I have 2 assistants but I will continue to do as much as i can to stay active.

  • Zoziana
    Zoziana Member Posts: 114
    edited June 2016

    PawsitiveEn and others: Hi Ladies-I'm Zoziana and new to this forum. I'm on Triple Positive, Weekly Taxol, and April 2016 Chemo Start date forums already. Just wanted to chime in that I had to take a leave from my job because of bad SE's from Taxol--including Hand/Foot Syndrom like Pawsitive. It is apparently virtually unheard of for Taxol/Herceptin but I indeed developed it and am now bedridden or in a push chair...more than 200 steps around the house in a day last week, and get big problems. Some of my work I can do on my computer, but mostly I am on my feet (college teacher), so that ended the work. I have red, swollen, very painful feet, and am trying to avoid ulcerations and breaks in the skin that can come with this syndrome. Good luck to those of you working--it is hard to do both, but it is also rather dull being stuck at home! :) Miss my neighborhood walks and hill hikes very much! Even my trips to the supermarket picking out my own food! Oh well--must take care of ourselves! And thank goodness for a helpful husband and grocery delivery.



  • boricua_63
    boricua_63 Member Posts: 92
    edited June 2016

    Hi all

    I had mastectomy with breast reconstruction and tissue expander, I am currently out of work with std and fmla, however I will be returning to work July 11 (only if my employer can accommodate my restrictions) I work at a warehouse, so is a lot of walking, pulling , lifting, etc. I am planning to work during chemotherapy which it hasn't started yet (waiting on echo and ct scan) and I'm also planning to tell my onco to schedule the treatment on Fridays, now my question is will Friday after treatment, sat and Sunday be enough time to recover??

    Any advise

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