Will doctor, medical staff "prepare" you for bad results?
I had a ultrasound-guided Mammotome biopsy 3/3/16 after a mammogram and follow-up ultrasound revealed a lump in my left breast. I'm 48 and a previous mammogram had found spots in my right breast, which haven't changed in about a year; we decided to mammogram the left breast because it was almost time for my yearly mammogram.
I'm worried because the nurse navigator at the diagnostic center set up an appointment with a surgeon before the biopsy. The radiologist's report said "DIAGNOSTIC CATEGORY 4--SUSPICIOUS FOR MALIGNANCY BUT THE FINDING DOES NOT EXHIBIT CLASSIC FINDINGS OF BREAST CANCER," but the surgeon looked at the images, did an exam and drew a little Good News / Not Good News chart out for me, and ticked off three things on the "not good" side - undefined margins, something about the shadows, and the color of the mass itself on the images. He also set up an appointment with me for next week to talk about the results.
It sounds to me like he has a pretty good idea it is cancer.
(To complicate things, I do the marketing for this health care organization, so I know the nurse navigator (our kids are friends, even) a little bit, and I've seen her a couple times since the mammogram/ultrasound, and she's come up and been very nice, rubbing my back and talking to me. (We'd normally be the type to stop and say "hi," but not hug or anything like that.)
I know that really, it's no different to have a diagnosis today or next Tuesday (my appointment with the surgeon), but I am having trouble concentrating.
Comments
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I think you may be trying to read into everything that is being said and done right now. This is totally, 100% normal, and I did the same thing while waiting for my results.
Honestly, to me it just sounds like the surgeon is trying to keep you as informed as possible, which is great! Not many doctors take the time to do that. Just because he's taking the time to inform you, that doesn't mean he thinks it's cancer and he's trying to brace you for the news. It just means that he's sharing with you what info they have right now because he wants you to be an informed patient.
As for the nurse navigator....it sounds like she is just a caring person who has heard that your waiting for your results and is trying to offer some comfort while you wait. Nothing more, nothing less.
One thing I have learned since being diagnosed? Life is totally, without one doubt, unpredictable! Just because you think something is so, doesn't make it so. Just because you think something won't happen, doesn't mean that it can't.
BIRADS 4 doesn't mean it's cancer. It doesn't mean it isn't cancer. It just means that there is a chance because something is suspicious. Most biopsies, (about 80%), come back benign. -
There is no 'One Size Fits All' when it comes to how we are given a DX. For me, I saw my PA at 11 and she suspected IBC, she had me at the Radiology Clinic at 1 that afternoon for a new mammo (last annual mammo was 6 weeks previous with 'nothing' there). The mammo turned into an US and biopsies immediately. The Radiologist told me he was sure that the path. report would be IBC but couldn't DX without the path. report 'in hand'. He called me at 8 the next morning with the results - as expected IBC.
I am one who wants my Drs to be very 'upfront' and honest with me from the 'git-go'. Not one who 'pats me on the hand and says platitudes'. I want the truth (as best as is possible to know) no matter what it is /how brutal it might be so that I can base my decisions on TX options with as much knowledge as possible.
Just my experiences and thoughts which are not what all others 'feel'.
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When I had my first ultrasound way back in April, the radiologist had a troubled face and said it was time to drain the cyst that I had. Which we did, and it was completely benign. Then at my follow up ultrasound in September, they recommended a biopsy because it looked suspicious. (Mammo completely clear by the way). So biopsy day came (and I'm already a nervous wreck) and the radiologist says "We don't need to biopsy this based on the ultrasound you just had. We can bring you back in 6 months and see what's going on." And I stared at him and said, just do it, I'm already here, and I don't want to wait any longer. So once he started going over the area with the ultrasound he and his assistant look at each other and she squeezed my hand and started to distract me with conversation. I knew from that point that what they saw was definitely not a cyst. She was super nice to me the whole time and walked me out to the elevator. A few days later I got the results...I don't mean to scare you, but it's better to be prepared than to get hit by the news out of the blue. They technically can't tell you anything until they know for sure, but they have had so much experience with breast cancer they know what it's supposed to look like.
I hope to see you come back here and tell us it was benign. Remember, 90% of BIRADS 4 biopsies are benign.
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Thanks so much, everyone, for your support. I feel like I'm a 15-year-old girl, obsessing over every word the cute guy she likes said to her. Does it mean this? Did he really mean that?
I always say that weekends seem too short, so I'm going to try and enjoy how very loooong this one will seem. Bless you all, and have a good weekend!
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being in your position i also feel your obsession but from what i have read and been told on this forum is a lot of doctors do not pull punches in such a serious matter. I think for any doctor that does not 'prepare' a patient when the culmination of findings from the us and mammo point to bc... is doing us a disservice no matter how brutal it may be. Because when the result comes in after at least you can grasp the situation slightly better to ask appropriate questions. These are skilled very intelligent people who live and breath this day in day out so they know when the odds tilt one way to the other so they know what they are looking for most of the time
Try not to dr google. If you try find something on google you probably will find it. For example all the rare cases of a lady with a fibroadenoma and it turned out to be cancer. Remember there are so many variables to individual scenarios that doctors and case studies do not stipulate in the findings. Also a lot is not recent literature and for women on here today with bc confirmes there has been huge strides in medication for survival rates. We must remember 10 yr prognosis statistics are not only statistics but they only release studies in blocks. And any woman i believe who make it past 10 yrs recurrence free are out there not on this forum living happy normal lives. The issue with all the case studies is they can be missinterpreted many times over by the unknowing. We all read wanting to be doctors and pathologists but it just is not possible to do so without all the context.
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Well, it's Thursday and I'm still waiting for the pathology results to come back. The nurse at the surgeon's office called Tuesday as my husband and I were getting ready to go to my appointment to tell me the results weren't back. She scheduled an appointment for Friday (the next available time). I've checked my online health portal obsessively, but the results aren't there, either.
On Tuesday, I was too upset to go back to work, so my husband and I opened up the windows and did some spring cleaning. So I'm enjoying my rearranged bookshelves and living room that smells like the soap we use to clean our wood floors.
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Depending on how they deliver results
If you request phone it can go either way
If you set up appointment i would hope and there are guidelines around it thatthe doctors prepare and will warm you by asking you to bring a support person which indicates a serious conversation
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My surgeon doesn't give you an option of results by phone. They give results at visit only.
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I am so grateful that every Dr. and radiologist I've seen has been perfectly upfront and honest with me. The day I had my mammogram and diagnostic ultrasound, the radiologist came and told me "I must tell you that I am 98% certain this is cancer. We will do biopsies to make sure but you need to be ready for what you're going to hear." Then my biopsies came back benign and a few days later the radiologist called me and said "I know you must be feeling very happy now about the results of your biopsies but you need to go for more testing. I am very certain this is cancer. Do not neglect to go for more testing." I had the biopsies re-done and yes, it was cancer.
Later, I had an abnormally high calcium. The oncologist called me and told me "we're ordering scans to make sure your cancer has not spread. It is very, very unlikely that it has spread but we are just being careful." The cancer had not spread. Now I know that my medical team will never give me false reassurance. If they reassure me, I can feel comforted.
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I got my screening mammo report, listing “focal asymmetry,” in my patient-portal inbox the morning after the mammo. When I had the ultrasound, the radiologist told me to look at the screen and notice how the black oval didn’t compress when she tried to squish if with the probe. When I said, reflexively, “oh, shit,” she didn’t try to refute that. When I went into the nurse-navigator’s office to schedule the biopsy, I asked about probabilities, and she simply said, “it is what it is and will be what it’ll be.” (Who did she think she was, Doris Day)? When I had the biopsy, a different radiologist said, “can’t tell yet, but you will definitely be able to keep your breast.” And the biopsy results came via a phone call from my gyne’s partner the very next night. The surgical path report took 5 days and arrived via my patient portal, as did my OncotypeDX results--but my BRCA-test results came via a phone call from the genetic counselor. And the DexaScan report took nearly 2 months, via my portal.
So there don’t seem to be any hard-and-fast rules about whether your doctors will tip their hand, nor how & when you’ll get your results. The surgeon who charted out the pros & cons for you was probably the most sensible without either being cold & callous or condescendingly giving you possibly false hope. Some people here use “Fight Song” as their bc anthem--but I think Tom Petty’s “The Waiting is the Hardest Part” is more accurate. Nobody told me not to Google (I didn’t discover BCO until my SNB seroma burst and I wanted some guidance), but I had an instinct for which sites were legit and which were--to put it bluntly--either bullshit, alarmist or flat-out-flip-a-dee-doo-dah quackier than the AFLAC duck. But you’re here now, so don’t Google!!!
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Back from the doctor, dx of triple-negative bc. Surgery is scheduled for lumpectomy; digging into research now.
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Nervous67 - I'm so very sorry that your biopsy came back as malignant. Nobody ever wants to hear that but 99.9% of us here have and we understand what you're dealing with. Please don't hesitate to rely on your BCO sisters to support you through your treatment and beyond. We are all here for you.
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