Swelling above clavicle; lymph nodes? waiting on results...

rockalley · February 2016

Hello all. Has anyone dealt with this? I went for a routine checkup with my surgeon on Tuesday 2/16. He felt the top of my shoulders and told me I had "fullness" on my left side, above my collarbone. He said he could definitely see it and definitely feel it. I asked him what could cause that. He told me we were "going to go with worst case scenario and say it's the lymph nodes." He ordered a CT scan with and without contrast. I had that yesterday, 2/18. I expected to get the results today. No such luck. So here I am, terrified until I get "the call" on Monday. The lump feels like a raised muscle to me. But I have had no injuries whatsoever to that area--ever. After my appt I went in the bathroom to see what he was talking about. I immediately broke down crying. It was so obvious and looked so big. I couldnt believe I never noticed it. Has anyone else had anything similar? I am really scared.

blondedoris · February 2016

{hugs}

It literally could be anything. Haven't really got any more advice but I'm right next to you holding your hand - waiting for results is just the worst x

KBeee · February 2016

keep us posted. Let's hope for some oddball benign cause such as a nearby irritation which caused the lymph nodes to swell.

farmerlucy · February 2016

Waiting with you rockalley. Stupid, stupid, cancer.

clarrn · March 2016

Going through almost the same thing! A doctor where I work noticed my neck and I hadn't either. Booked an appointment to see my GP. Got sent for an ultrasound. They have ordered a biopsy because my lymph nodes had some funny shape going on. Waiting since Monday to hear a date/time. GP said 'I don't want you to worry' Ha😀 I don't think it's possible not to! Hope it's nothing for both of us! !

AKJ · March 2016

It happened to me once. It turned out to be lymphadema

clarrn · March 2016

Thanks AKJ. Its nice to have an alternative to mets! I have to LE in my arm and torso so it's a definite possibility. What do they do for LE in your neck?

KBeee · March 2016

keep us posted. Sorry for the worry. Hoping for good news

AKJ · March 2016

Clarrn, I just continued with my manual lymphatic drainage that my PT taught me. It got better. I focused on my neck area a lot.

marijen · March 2016

Rockalley, my BS told me you can't feel the clavicle nodes from the outside

clarrn · April 2016

We are going to re-ultrasound in 2 months. Waiting sucks!

KBeee · April 2016

Uuugh. The waiting does suck!

lekker · April 2016

Ooo - you generally cannot feel normal supraclavicular nodes, but if they are enlarged, you might be able to palpate and possibly even see them. The supraclavicular nodes, unlike in the neck and axilla, generally do not swell as a result of infection so it should be checked if there is swelling in that area.

clarrn · June 2016

Follow-up ultrasound booked for June 30th. Now where is the ativan? Lol

KBeee · June 2016

Waiting is so hard. Keep us posted!

clarrn · July 2016

Lymph nodes are back to normal. Thank the Lord! ?lymphedema flare. Whatever is was it is gone. And I am allowed to try for baby #2!!!!!!!

barbe1958 · July 2016

Thank God!!!!!

KBeee · July 2016

great news

Swelling above clavicle; lymph nodes? waiting on results...

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