Which days are the worst?

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Hello! I'm sort of new to the board. Diagnosed end of February with IDC, stage 2B. I meet with my oncologist Monday and he'll set my chemo schedule. Apparently that office does chemo every 3 weeks and will stick with that the whole time (probably 6 rounds.) My oncologist does chemo on either Mondays or Fridays.

So my question is this: which days were your worst after chemo? Call chemo day as day 1. Was it worst days 2-6? 4-8? Whatever. I realize it's different for everyone, but I just want some opinions.

My kids are all in school and I don't work outside the home, so my weekends will probably be hardest. Hoping to schedule chemo so that my "better days" are over the weekend.

Thanks

Comments

  • Cathytoo
    Cathytoo Member Posts: 667
    edited March 2016

    Hi...are you doing TC? Or ACT? I've been doing TC x 4. I've been very lucky and have had VERY MILD side effects. Days 1-3 are usually good because you're on steroids. Side effects usually come days 4 -6. So, you might want to plan your schedule so you have an infusion on Friday. That way you'll have three good days with your kids. Make sure you get the thread from the site on what you'll need during Chemo. I bought every single item on the list and was really well prepared. MOST IMPORTANT....DRINK, DRINK, DRINK. Water..,not wine

  • Kicks
    Kicks Member Posts: 4,131
    edited March 2016

    When I did 4 neoadjuvant DD A/C (Adriamycin and Cytoxan every 2 weeks pre-surgery) - there were no 'worst days' as it did not 'slow me down' at all. With the 12 weekly adjuvant Taxol (weekly Taxol post surgery), I was completely and utterally EXHAUSTED 24/7 every day/week.

    There is no way to know ahead of time how you/your body will react as we are each so unique and the different Chemo used will react differently. For some (me included) A/C is not 'bad' but Taxol is 'bad' - at the same time for some A/C is 'bad' and Taxol is not 'bad'. It just depends on us individually.

  • KarenInCanada
    KarenInCanada Member Posts: 271
    edited March 2016

    I would agree with Cathytoo above. The first couple of days I do not find hard at all really, the crash from the steroids usually make 4-6 more difficult and getting a chance to sleep while your kids are in school will be very helpful to you. Hope this helps and all the best

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2016

    For me, if chemo was day 1, then evening of day 3, all of day 4, and some of days 5 and 6 were the toughest. I had chemo on Thursdays, and weekends/Mondays weren't too good.

  • blamoms
    blamoms Member Posts: 113
    edited March 2016

    I do the AC treatment every other Friday. I find day 1-5 are the worst for me. I feel nauseous on the Friday Saturday I get the neulasta which once it kicks in I feel worse until day 5. I wake up on day 5 and feel 80% better. I feel like I have the flu nausea, achy, tired, pasty mouth,not much of an appetite. Once I get over those 5 days I'm back to normal

  • Paxton29
    Paxton29 Member Posts: 221
    edited March 2016

    I'm on TC, and my experience has been:

    Day 1: Nausea starts later that day and continues into Day 2 and even Day 3

    Day 2: Nausea, loss of appetite

    Day 3: Fatigue starts

    Day 4: Worst fatigue, unable to taste much

    Days 5-6: Mostly just tired, still can't taste much

    I've not had any mouth sores. I have however had a couple of fever episodes and have been put on Cipro. Had some icky constipation. Also had some patches of icky skin.

    Oh, and of course the hair loss is a whole topic in and of itself!

  • Jonsey22
    Jonsey22 Member Posts: 100
    edited March 2016

    I am currently on day 5 of my first TC treatment (of 4). I have read all of the stuff I could about what to expect, but it isn't what I expected😳. For me, day 1 was rough. My infusion took 6-7 hours and they gave me extra Benedryl and an antinauseant. Those drugs were the things that made me feel dizzy and generally unwell. It was manageable though. Day 2 and 3 I had bad constipation (the worst I have ever had), body aches, headaches, tiredness, bad taste in my mouth. I was able to do a load of laundry and walk on the treadmill for 45 minutes however. Just had to rest in between. I took Senacot S to try and get things moving but it wasn't working and I had bad stomach cramps. yesterday, day 4, however, was very different. I slept almost the entire day. Couldn't keep my eyes open. It felt good to sleep though and the body aches were less. I had real muscle fatigue in my neck and shoulders and could barely lift my arms. This morning, so far i am dealing with headache, fatigue, achiness. I have read that day 4 and 5 are the worst. I am hoping so because it is hard to do this every day. It would be nice to be functioning again. Right now I am not.

  • Cathytoo
    Cathytoo Member Posts: 667
    edited March 2016

    Jonsey22...here's a few suggestions for your next infusion. Start taking Senekot and Collace (one each) the day BEFORE your infusion and continue until things are normal again. WATER IS YOUR BEST FRIEND...DRINK,DRINK,DRINK. Also begin the day before and keep drinking every day. When you come home from your infusion...WALK‼️ Force yourself. Take Clariton for ten days after your infusion. Next infusion chew on ice when the Taxotere is going in. It might totally eliminate that bad mouth taste. If it doesn't take it away totally, it will be much less. TC is pretty well tolerated. Hope it will be better for you next time.

  • Jacklin
    Jacklin Member Posts: 162
    edited March 2016

    Like many have written here, I found days 4 - 6 the hardest while on A/C & T (all dose dense). I had troubles with constipation and found tremendous relief from Senokot-S (i also started it the night before my chemo), around day 6 I usually started with diarrhea which was helped with Immodium, and yes, don't wait to start it. Drinking lots of water was really important, especially that first week post-chemo. The best thing I can share with you is to listen to your body, rest when it needs to and don't feel guilty about taking that time for yourself. For many taxol was much easier than A/C, but that hasn't been the case for me at all, I've struggled with blistering on my fingers and toes from the inside outwards and now my liver is struggling to clear the taxol despite a reduction in dose to 75% of the 'normal' dose. Each person is unique and therefore their side effects are also unique. Chemo is tough, just be gentle with yourself and don't be afraid to ask for help. Blessings,

    Jacklin

  • CassieCat
    CassieCat Member Posts: 1,257
    edited March 2016

    One thing that was helpful for me was to keep a daily journal of all my SEs and what I took for them (meds, food, whatever). I tried to find patterns so that the next round, I could try and stay ahead of the SEs. It wasn't a perfect system, but I think it did help somewhat. If I knew constipation was likely, I made myself drink apple juice a day or two beforehand, to try and keep things moving. If I needed something stronger, I had options on hand, including colace and miralax. I think staying very well hydrated is very important throughout the process.

  • Mamalala333
    Mamalala333 Member Posts: 13
    edited March 2016

    Found out that I'm getting A/C for 4 rounds every 2 weeks. Then Taxol once a week for up to 12 rounds (doc is hoping 12 but says we'll watch for side effects.) I had the choice of Monday or Friday but the first open day was Monday so I chose that. I bought almost everything on the chemo list and I'm trying to be prepared. I get chemo a week from today! Thanks for the input

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited March 2016

    I had TC, 6 rounds. My infusion was on Tuesdays, every 3 weeks. Wednesday was a neulasta shot. Friday was the bad day for me, felt like I had the flu , lots of body aches and felt like I weighed 1000 pounds. For me, the fatigue and loss of taste side effects lasted longer with each subsequent infusion.

    MsP

  • Lj061197
    Lj061197 Member Posts: 47
    edited March 2016

    Hi,

    I had 6 rounds, Mine were every 3rd Monday. I had the neulasta shot every tuesday, began to feel the effects on Thursday. Chemo is accumulative, the 5th and 6th rounds were worse for me. Drink plenty of water. I drank 68oz per day while on chemo.


  • Jonsey22
    Jonsey22 Member Posts: 100
    edited March 2016

    update: I am now on day 10. It got totally better after day 5. My body feels much better. Lots of skin issues (rashes, pimples) but I am not even napping during the day now. It was like I woke up a new person on day 6. It is manageable now.

  • Hope62
    Hope62 Member Posts: 7
    edited April 2018

    I just started last week. Cycle 1 of 6. Had chemo in the morning and went for a 4.2 mile walk in the afternoon. The next two days I felt nausea but did not throw up. Ate salted crackers , sucked on a few popsicles and chewed a few tums. All helped. So far I have been able to get my daily walks in as doctors said it helps alleviate side effects. Also doing a few house chores.Trouble sleeping however

  • Pumpy
    Pumpy Member Posts: 1
    edited May 2018

    hey hope62 wondering how you’re doing now a few cycles in on TC? Im #1 down as of yesterday and surprisingly feel ok. The steroids are still in system i think and anxious about next few days. Ive been keeping mouth clean and walked twice today for 35 minutes so keeping active so far but only day 2. Hoping to sleep tonight- the steroids kept me awake i thi k last night. Seems like that come down is bad...

    Anyway any advice or info is appreciated.

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