Trying to keep calm, waiting is hard

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  • Simple13
    Simple13 Member Posts: 45
    edited March 2016

    Not sure when the surgery is. Still playing the waiting game with the surgeons. Have had a consultation with both the general surgeon and the plastic surgeon and now we are waiting for information about the surgery.

  • reflect
    reflect Member Posts: 576
    edited March 2016

    Simple, You have been waiting all this time?Is your plan still UMX and Tamoxifin? It seems you have been waiting over a month, why is that? Maybe good news that they are not in a flaming hurry.

    I have started chemo. I will do AC 4x and T 12x and it will last through the summer. then surgery but I still haven't gotten info about my left breast (long story). I would like more clear info so I can decide if I want BMX or not. I think rads is also a possibility. (damn nodes). And Tamoxifin. Gosh, just about everything I "qualify" for. Shopping for a wig Friday. It is much better to have begun treatment.

    Wishing you the best luck going forward!

  • Simple13
    Simple13 Member Posts: 45
    edited March 2016

    Yes, still waiting. Not sure if it's a good thing or a bad thing. But this waiting sucks! Sounds like you have a long road ahead of you. Doesn't sound like much fun either. Yes, we all want clear information. Well, I wish you the best of luck.

  • reflect
    reflect Member Posts: 576
    edited March 2016

    Well, I think we really have to take it a day at a time. It's going to be a hell of year, but perhaps 2017 will find me with fresh perspective and new ideas for myself, after all this work! Good luck Simple.

  • Heathet
    Heathet Member Posts: 257
    edited March 2016

    reflect - i read your post that you are a teacher - so am I. I was just diagnosed with breast cancer. I get the whole finding a sub ! I took three days off this week to go to appointments and just to make phone calls to get medical info. My surgeon says surgery and radiation therapy will most likely be the plan but we're still waiting for MRI results, blood work and genetic testing. And he wants to check the lymph nodes. It's hard waiting for it to all come together. I'm working on staying positive and sending good thoughts your way

  • reflect
    reflect Member Posts: 576
    edited March 2016

    Hello Heathet, Yes, I love my job!! I teach adult immigrants in a program that's part of our community college. ESOL and career exploration, citizenship. Many years now and it's still fresh, challenging and very rewarding. And it is hard to trust a sub with them lol. Not to mention hard to even get a sub. Who do you teach, and what?

    We have to do what we have to do right? I have great support at work. I worked day 5 and 6 after chemo my first time and now I know better. Lots of advance notice for those days in the cycle.

    There are so many tests! Waiting for results, etc, then new tests. I actually feel much better now that I've started treatment. Hang in! It's a process.


  • Heathet
    Heathet Member Posts: 257
    edited March 2016

    I teach kindergarten and I completely understand it's hard to trust a sub with them! Lol - I'm just trying to plan ahead for the days I will need a sub - I looked around my classroom and know where everything is but a poor sub would be lost in my piles of stuff. I've told a few of my close teacher friends and they have been great. I'm going to tell the rest of staff when I know more.

    It is hard waiting - I'm glad they have the tests lined up but I'm eager to start my treatment . It still seems so foreign knowing I have breast cancer - it just kept playing in the back of my mind today at work. I just want to scream take it out! But I'm working on being gentle with myself . Your right it is a process!

  • reflect
    reflect Member Posts: 576
    edited March 2016

    Oh, I know about the unreality of it all! I wake and then I remember "I have breast cancer. What????"

    I also, really really know about the piles of stuff. I really need to organize it all better for the subs and students. The materials I am using include a very basic (and engaging) story with embedded structures--but I have to create or find materials to help them practice (many times, but in different ways!). So it's not as if there is a text book to fall back on. I have tons of learning center activities I've developed, but you have to know how to use them! Oy.

    I have told everyone at work (it will be obvious soon enough--no hair!) including my students. (of course they are all adults) I wasn't sure and then I thought maybe this will be a good thing. Many cultures (including ours) hide cancer and I don't think that's healthy. I want them to see that people can live with this, deal with treatment, carry on and enjoy life.

    Best of luck on the upcoming tests!


  • jushavinfun
    jushavinfun Member Posts: 113
    edited March 2016

    I myself am playing the waiting game. I have been waiting for 2 weeks now for my biopsy. I live in a rural area everything is slower up here. Good luck with yours and I will be praying for a b9 result for you.

  • reflect
    reflect Member Posts: 576
    edited March 2016

    We'll be thinking of you jushavin fun, and hoping for b9 results!

  • Sherri-lynn02
    Sherri-lynn02 Member Posts: 32
    edited March 2016

    Hello reflect,

    I went in for a routine mammogram which turned into an ultrasound, then another mammogram. Yes, they found something and set me up for a biopsy all in one day,except the biopsy was scheduled out for a different day. The Steriotacic core biopsy was done and the report came back that I needed to talk to a surgeon. She wanted to remove this suspicious mass and we set up a date. In the meantime, out of nowhere I started to get a bloody discharge from the nipple of my other breast! What?! So here we go again with an ultrasound. And yes, they did find 2 small masses. We did another steriotacic core biopsy. Yep, my doctor said these 2 also should be removed. I was so extremely thankful that this was caught and we were able to do it all at the same surgery appointment. The surgery went wonderful. My doctor was amazing and my scars are going to be minimal, not that I even care about that part. Now I wait with a BIRADS 4a. Now finally tomorrow I have my appointment to see my doctor and find out my final pathology results/report. I sure hoping for good news. I'll let you all know.

    So yes reflect, I guess you should be thankful they caught something else BEFORE you went into your surgery appointment. Wishing you the best, let me know how it goes.

    ~Sunnysherri

  • reflect
    reflect Member Posts: 576
    edited March 2016

    Sunnysherri, wishing you the best news with your final path report, The hormone receptor info should guide further tx if any. So glad they found this with your routine mammogram.

    Heathet and jushavinfun, any news?

    Best to all of you.


  • muddynwv
    muddynwv Member Posts: 1
    edited March 2016

    I am new here, but it eases my mind a bit to see that this process seems to take an eternity. I found my first lumps under my arm pit x2 and one directly under my nipple. My doctor ordered a mamo and US same day. The NP read the results and said that it was a B9 cyst. I didn't feel comfortable so I set up an appointment with my OBGYN to find out the results from the US say 2 undetermined masses in the armpit and a dark mass that could be a fibroadenoma or a complex cyst. I have been post menopausal for 10 years and all of this has developed in 6 months. Why is this such a roller coaster ride? Anyone else have fibroadenoma after menopause without HRT? My GYN says 85% post menopausal development is cancerous. Currently waiting for the surgeon to call.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited March 2016

    Don’t jump to conclusions until after consulting a breast surgeon and/or medical oncologist--especially if your doc, NP and OB-GYN are at a community hospital rather than major medical center.

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