" Can't Tell "

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shanay
shanay Member Posts: 2

Why am I embrassed about havng breast cancer. I can't seem to tell anyone!

Comments

  • EstelaLorca
    EstelaLorca Member Posts: 98
    edited February 2016

    I'm like that too. I'm not sure why either, I figured it was normal. If I were to analyze myself, I think I'm a person that doesn't like to appear vulnerable or weak. I also dislike the "pity looks" from people. Maybe when you feel safe?

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2016

    Hi shanay, welcome to Breastcancer.org. We're sorry you're here for this, but wanted to say that you've come to the right place to talk to others who can completely understand what you feel right now.

    You may be interested in this article too: Talking to Your Family and Friends About Breast Cancer

    Let us know how you're doing!

    The Mods

  • Twinmar
    Twinmar Member Posts: 35
    edited February 2016

    Almost four years ago, I was in your shoes. I'd been diagnosed with DCIS - the first with breast cancer in my family. I felt as if I had done something wrong - maybe not taken care of myself enough (I didn't want any pity either - I've never liked being the center of attention). I told my immediate family (spouse, kids), my twin sister, my boss and back up at work. I didn't ask them NOT to tell people but I really didn't discuss it either. I had a fewl friends at work who were also diagnosed and their cases were more advanced than mine. I felt maybe mine was a blessing being stage 0 so I didn't want to complain and never brought it up. My sister actually talked about my diagnosis on Facebook (without my okay) - Many of our relatives and friends are also my friends on Facebook. Sure enough, I started getting messages from them asking what was up. I was so angry at my sister that I called her and told her to remove the information immediately from social media. She had also been interviewed by a local magazine and right there in print it said she was dealing with her sister's breast cancer diagnosis (no other information about what kind I had or my prognosis). We are very close and it was one of the few times we really got into it. However, four years has really mellowed my thinking. I don't know why I got cancer but I've made peace with it and I'm no longer embarassed. I had one friend who said she told everyone because it helped her deal with it by talking to people - that it made her situation more real to her.

  • CatsRus
    CatsRus Member Posts: 310
    edited February 2016

    I told very few people when I was dx'd. It was sort of on a need to know basis only. I wore wigs when I lost my hair and no one realized. It worked for me, I didn't want everyone to know. I did believe, however, that if I did tell my wider circle, every one of them would be there if I needed them. I was dx'd March of last year. I finally went public on social media at the beginning of January 2016. I was starting to ditch my wigs and my new hair was very short, very curly and very white. I knew I'd have to answer questions when I saw people so I went public. As I thought they would, everyone wished me well and offered support in whatever form I needed, if I needed. It was nice to have it out in the open, though I am not sorry I kept it quiet for so long. It was right for me. I have a friend with BC and she's the total opposite, from day one she told anyone and everyone. She enjoyed the attention, it uplifted her....it worked for her. What is right for one, is not necessarily right for another.

    When I initially told the few people, I told them that if they were ever asked whether something was going on with me - if maybe someone saw me at the hospital or cancer centre - then I was okay with them telling the truth. I did not expect anyone to lie for me, they just didn't volunteer the information. I did specifically ask them not to put anything on social media though.

    Good luck to you, I wish you well. Do whatever feels right for you and don't worry about anyone else.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2016

    It might not be embarrassment but instead self-protection. It's a survival instinct when we are threatened. I didn't make any loud announcement, and instead only told very few trusted family and friends. I'm a firm believer in the "need to know" sharing of info, and didn't want a bunch of people calling me all the time or asking me how I was doing all the time, which would be a distraction from tx and also could very well derail me into worry when I might not have been worrying at that time about it.

    C

  • grandma3X
    grandma3X Member Posts: 759
    edited February 2016
    Shanay,
    it took me about 2 weeks before I could even tell my (grown) children. I think I just wanted some normalcy before having to deal with it. I told co-workers on a need to know basis and didn't tell my father until about a month after surgery. I have not shared anything on social media yet, but probably will at some point after the dust settles. I think the embarrassment is due to not wanting the attention. I tried to be as matter-of-fact about it as possible and reassured everyone that I felt great (which I did, even after surgery) - no need to treat me like an invalid! The first few people were the hardest, but it got easier with each person I told.
  • SoCalGrl
    SoCalGrl Member Posts: 105
    edited March 2016

    Only my immediate family knows. None of my local friends know and they're none the wiser. I just didn't feel like having people treat me differently or feel bad about it and honestly it's sort of refreshing this way.

  • etnasgrl
    etnasgrl Member Posts: 650
    edited March 2016

    I was diagnosed in November of 2015. As of last month, I finished active treatment.
    The only people who know are my husband, two local friends, and my best friends from high school. (We are a group of 4 and still very close to this day, even though we are scattered across the country.) That's it.

    I have my reasons for not telling many people. It's not because I'm embarrassed, I have nothing to be embarrassed about. My mother was diagnosed with breast cancer at 42. She passed away from it at 56. I didn't tell my dad about my cancer because I know he would instantly think of my mother and be convinced that I would die. His own health is not what it used to be, so I didn't want to put that type of stress on him. Not to mention, it would be stress ME out knowing that he thought I would die.
    I didn't tell my son, who is 11, because he knows his grandmother died of breast cancer. If he knew his mom now had breast cancer, he would be beside himself with fear and worry. I just couldn't do that to him. Had my cancer been more severe, I would have told him.....but thankfully, it was easily treatable, so I saw no need in telling him. When he is older and can better understand, I will tell him because I feel he has a right to know his parents health history. I did go through genetic testing, which thank God, came back negative, so at least he doesn't have to worry about that!

    Anyway, not very many people knew of my cancer and since I didn't go through chemo and lose my hair, it was pretty easy to hide it. Granted, I didn't have a very large support system since I decided to keep quiet, but the support that I did have from those I told was amazing, so I did okay.
    Making the decision to tell people or not is a very personal one. We need to do whatever we feel is best for ourselves and those who love us.

  • Optimist52
    Optimist52 Member Posts: 302
    edited March 2016

    I told many people when first diagnosed at age 40, and had to deal with multiple tiring phone calls (this was before social media) and also the strange reactions from friends and family. As others have stated, you find out who your true friends are. I was also amazed at the level of naivety and ignorance about breast cancer amongst people I told then. Twelve years on with a second (worse) diagnosis, I've told only close family members (my mother has also had BC twice). If I had had chemo then I suppose I would have told more people because I think this would be hard to hide.

    Joining this website has helped me immeasurably to feel more connected and not so alone with this illness.

  • bethanygb1
    bethanygb1 Member Posts: 31
    edited July 2016

    I was just diagnosed this week at age 49 (IDC 1cm by .85mm) and I have only told my husband and sister. Afraid to tell my parents yet. I don't want my mom to freak out. I am not embarrassed by it, I just feel like it's no one's business yet. I have a huge family on my husband's side. If one person finds out, they all will. We just had a house of 12 people stay with us for 4th of July and the week after. I got the bad news 10 min before my husband had to leave for overseas (we live there, but are in the States for the summer). He was floored. I am extremely healthy and active otherwise, don't smoke, drink, no BC in the family, etc etc.

    I don't want anyone feeling sorry for me or reacting weird, so I haven't mentioned it. Problem is I play competitive tennis and I won't be able to play most likely in the fall, if I am going through radiation, so I am going to have to tell them eventually.

    So no worries if you don't want to tell anyone, at least for while.

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